How long have you been Stage IV?

It will be 5 years for me in June...so 4 yrs. 9 mos.

hi. Dx March 2011 amongst made it 5 years, UV dx Oct 2015 liver lung rib. Will it ever get better??

Glad this thread was revived as I didn't get to share initially. I was stage IV from the start (they realized that once I had my ptscan though I spent a couple months blissfully not realizing it), and this July will be 4 years. I've been NED for 3 years this April; so, I'm hoping that will continue on......

Dxd Jan 2009 stage IIIC. Stage IV bone mets in June 2010. Liver and malignant pleural effusion early 2017.

9 months for me, dx stage IV de novo at 41 on 11/16/16 with met to left iliac bone.

updating: 10 years with stage IV de novo.

I was originally diagnosed stage II in 2006. Three months ago, after almost 11 years, I was diagnosed stage IV with bone and lung mets. Like others who have posted, my shortness of breath and coughing was treated as asthma. I finally insisted on a CT and that's when the fun began.

I'm in my first cycle of I/F with minor side effects. But honestly my symptoms were so bad before the diagnosis (extreme fatigue, constant cough, loss of appetite and weight) that I'm grateful for the drugs and feeling much improved. Drawing inspiration from all the stories here.

Started March 2012 age 34 with stage 4. NED 3 years & re-occurance 2016. 5 1/2 years now since stage 4 diagnosis.

I was diagnosed at Stage IV BC in Oct 2014 and after Xeloda and then Ibrance/Letrozole for 10months I had no signs of cancer in Dec 2016. Then in July 2017 3 small Mets in bone appeared and I began LSZ 102 trial on August 17, 2017. I will be getting FES PET Scan on Sept 14, 2017 to check on Mets and I am hoping for improvement.

I was originally diagnosed Stage 1 in 2005. 7 years later, in 2012, it came back, stage 4. It's been 5 years now.

Lynne

IDC at age 37.. stage 4 at 42. I've been stage IV for 4 months

update—5 years with stage 4! So very thankful and very blessed

Stage II in 2004. Stage IV in April 2012, so a little over 5 years. Still just bones so far but they have gone from about 7 to diffuse. My onc did the ca27-29 the whole time I was NED for 8 years, and that is how it was caught. Thank God because I had no symptoms and still don't. If I would have waited for symptoms I might have needed some kind of vertebral procedure or maybe living with chronic pain, who knows. So far very lucky.

Stage IV diagnosed Oct 2016 with bone mets in left iliac and sacrum. Mets showed up on routine CT scan, no symptoms. July 2017 - progression of bone mets to L5/right pedicle and left acetabulum. Xeloda failed to stop progression. Originally diagnosed Stage 2b in July 2012. Am encouraged to see so many with longevity.