31 - TNBC Stage 3 - and in need of encouragement

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mkn86
mkn86 Member Posts: 250
edited September 2017 in Just Diagnosed

Hi everyone,

31 years old and I just got diagnosed with TNBC last Aug 11. They just finished staging last week (cT3, pN1, M0 -- i think that's stage 3A?). and currently alone in Frankfurt, Germany waiting for my flight home on Aug 31 to the Philippines.

I'm a long way from home.

It feels weird and on some days i feel paranoid that it's growing and getting worse. I've lost weight since diagnosis and it doesn't help when i can feel where the tumor is (Q2)

Been dealing with the paperwork and working out a practically non-existent insurance coverage back home, histopathology translations (since all my medical reports are in German) for when i meet doctors back home, and stress and have had to keep strong to encourage my family that it's okay. But tbh it has really turned my world upside down.

I signed up for the forum because today i saw one of my friends that i met in Frankfurt (relatively new friend) also breakdown while trying to comfort me about what's to come.

All the uncertainty is starting to feel a little too much.

I need a little bit of courage and hope at the moment.

Comments

  • ALHusband
    ALHusband Member Posts: 344
    edited August 2017

    Go to the group named "Calling All TN's" on this site. All of the ladies are triple negative there like you, and it's a GREAT group of ladies (and a couple of husbands, such as yours truly). There are MANY 5 year plus and even some 10 year plus survivors there. Please go now. They'll help

  • MTwoman
    MTwoman Member Posts: 2,704
    edited August 2017

    mkn86, I am so sorry that you have been diagnosed with bc, but am very glad you've found this wonderful community!

    Have you found someone to perform your translations for you? I lived in Germany for 6-7 years and had to do a certain amount of that myself. So do you have providers set up for you when you get back to the Philippines, or will you have to look for them? I am so sorry you are going through all this and having to go back home. BC is hard enough, but trying to go through diagnosis and treatment while moving from one country to another feels very overwhelming. Are there support groups or services where you will live in the Philippines?

    How can we help you? Sending you warm thoughts and big ((hugs))

  • mkn86
    mkn86 Member Posts: 250
    edited August 2017

    Thank you ALHusband I found it after i posted and will head over there immediately.

    kudos to you also. :

  • mkn86
    mkn86 Member Posts: 250
    edited August 2017

    Hi MTWoman,

    Thank you for the words of encouragement.

    At the moment i am waiting for the translation to be emailed to me and I will send the documents out to Manila the second I get them. I found a company in Frankfurt. But It's hard to feel like there's not much I can do but wait until then.

    I have reached a point where i just want to say "let's just ge this tumor out of me as fast as we can please"

    I will have to look at support groups when i get home. But for now, this community helps a lot. i've been reading posts before i joined. I had a feeling i would need to be able to communicate with people like me at some point.

  • Stre
    Stre Member Posts: 2
    edited August 2017

    HI MKN86,

    I'm 32 and got diagnosed with TNBC last Aug 9..Its hard to even say the word..I'm sorry to hear about your diagnosis too.Ill pray for you.

    We'll get through this.

    More hugs for you

  • mkn86
    mkn86 Member Posts: 250
    edited August 2017

    Hi Stre, 'm sorry that you have to be here too.

    I've read about TNBC and i realized how little I knew about Breast Cancer that I am humbled.

    True, it's devastating to hear the news but yes, i think you and i can get through this :)

    Will you be starting treatment soon

  • ewu
    ewu Member Posts: 48
    edited August 2017

    hi mkn86,

    I'm so sorry you have to be here. I'm 34 and just diagnosed with tnbc yesterday. I am living in the US, away from my family in China. I can totaly understand what it feels like to try to get through this all by yourself.

    I hope you can be back with your family soon. Family and friend's support make a big difference. Don't forget all the nice ladies on this forum. I get my courage from here everyday. It's hard but we can get through it.

  • mkn86
    mkn86 Member Posts: 250
    edited September 2017

    hi ewu it's nice to meet you. even under not-so-good circumstances. Are you starting treatment soon

  • Megha_07
    Megha_07 Member Posts: 1
    edited September 2017

    Hi , My mother has been recently diagnosed with Breast Cancer. On 21 Aug'17 she had a surgery Lumpectomy with SNB and AND . Below are the details

    Histologic Type: Invasive mammary carcinoma with medullary features

    Modified Bloom-Richardson Histologic Grade: Grade III (out of III)

    Total score: 9/ 9

    Tubule formation: 3(out of 3)

    Nuclear grade: 3(out of 3)

    Mitotic count: 3 (out of 3)

    AJCC/TNM staging: pT2N1a

    FINAL IMPRESSION:

    INVASIVE MAMMARY CARCINOMA WITH MEDULLARY FEATURES OF RIGHT BREAST

    WITH STAGE: pT2N1a

    Immunohistochemistry (IHC) Result:

    ER: Negative in tumor cells

    Allred score: 0/8

    PR: Negative in tumor cells

    Allred score: 0/8

    Her-2-neu: Negative in tumor cells

    Ki-67 labelling index: 85-90%

    EGFR: Negative in tumor cells

    Cytokeratin5/6: Focal positive in 10% of tumor cells

    Can anyone tell, what is the stage and what would be the further treatment plan and how can I help her in coming difficult days ? Would she be fine. She is 64 years old.

  • Michelle_in_cornland
    Michelle_in_cornland Member Posts: 1,689
    edited September 2017

    Megha, Stage 2 (T2), One node positive (N1), Grade 3. Triple negative (ER/PR/HER2 all negative). Eighty five percent of all persons diagnosed with these specific identifying markers and medullary, are alive after 15 years. If it is medullary, then it appears less aggressive in form, according to numerical calculations.

    So, hang on to the fact that it is Stage 2, that is a good thing. At 15 years out, a person with those characteristics, has a greater chance of succumbing to something else, vs. that type of breast cancer. Take comfort in that as well. Here is an article on the type of breast cancer


    Treatment of Medullary Carcinoma of the Breast

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    Together, you and your doctor will develop a treatment plan for medullary carcinoma. Some doctors feel that a true medullary carcinoma may only require surgery without any additional (or adjuvant) treatments, such as chemotherapy or radiation therapy. This is because medullary carcinoma is usually a small tumor that is not aggressive and rarely spreads to the lymph nodes.

    Other doctors believe that all cases of medullary carcinoma should be treated like invasive ductal carcinoma. True medullary carcinoma is quite rare and very difficult to diagnose with certainty, and some doctors may want to make sure they are not under-treating the cancer.

    Atypical medullary carcinoma would receive the same treatments as invasive ductal carcinoma.

    You can work with your doctor to come up with the treatment plan that is right for you, based on the features of the cancer such as tumor size, grade, and whether or not the cancer has spread to any lymph nodes. Your plan may include:

    • Surgery to remove the cancer and, if necessary, any affected lymph nodes. If medullary carcinoma spreads to the lymph nodes, it usually involves no more than 3 nodes. Possible procedures are:
      • Lumpectomy: The surgeon removes only the part of your breast containing the tumor (the "lump") and some of the normal tissue that surrounds it. Your surgeon may also remove some lymph nodes.
      • Total or simple mastectomy: Removal of the breast without removal of the axillary (underarm) lymph nodes. A sentinel node biopsy may be performed to check the node or nodes closest to the tumor for any signs of cancer spread.
      • Modified radical mastectomy: Surgery to remove the breast, the lining of the chest wall muscle, and some of the lymph nodes under the arm.
    • Chemotherapy: Chemotherapy involves taking anti-cancer medicines in the form of a pill or directly into a vein. The medicines travel through the bloodstream to all parts of the body. The main goal is to destroy any cancer cells that may have broken away from the original tumor.
    • Radiation therapy: Radiation therapy, also called radiotherapy, directs high-energy waves at the area of the body affected by the cancer, such as the chest or the underarm lymph nodes. This directed radiation can destroy any cancer cells that may be left behind.

    Most medullary carcinomas test negative for estrogen and progesterone receptors. Therefore, they usually cannot be treated with hormonal therapies such as tamoxifen or aromatase inhibitors, which interfere with estrogen's ability to promote cancer cell growth. Medullary carcinomas also usually test negative for HER2/neu receptors, and so cannot be treated with Herceptin (chemical name: trastuzumab). Still, be sure to confirm with your doctor whether or not you are a candidate for these therapies.

  • ewu
    ewu Member Posts: 48
    edited September 2017

    mkn86, I still have a couple of exams next week. I hope I can start my treatment soon after that. Are you going to go back home country and start treatment?

  • mkn86
    mkn86 Member Posts: 250
    edited September 2017

    hi ewu,

    I am sending you big virtual hugs, first of all. Hearing the diagnosis is not easy.

    Yes i am back in my home country right now. Tomorrow i start with meeting the oncologists I have looked up before flying home. So that sort of gives me a sense of structure. I want to start treatment as soon as possible maybe next week sounds too optimistic but I am trying.

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