Starting chemo August 2017 - would love some moral support!

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  • Cherry-sw
    Cherry-sw Member Posts: 997
    edited August 2017

    toughcookie_21, well, what can I say, we cannot choose our parents) My mom, who came to stay with us now, was not allowed to tell her sister, not until we knew what kind of bc it was and what kind of treatment I was getting. I told my brother after the month and a half. And of course everybody I told it to got so upset that I almost felt guilty and it was one of reasons I did not wanted to do it. Another crowd that is just curious about what was going on with me and why I stopped working, I did not want to tell anything to them, the bare thought of them just shaking their heads and thinking, cancer, how awful, thank God we are healthy, and sleeping well, this thought keeps my mouth shut. I have not landed in my diagnosis yet, no one has to know before I ready. I agree with you it can be very tiresome to listen to people's advice. I have another friend who I have been avoiding since the diagnosis and who is probably mad at me right now but I cannot bring myself to tell her because she has always been an adept of healthy life style and is absolutely sure that she is never going to get anything like this (and hopefully she never will) only because she doesn't eat any meat, only fish and very seldom, eats mostly vegetarian diet, no sugar, yoga, fen shui and she (!) follows some lady on the web who learns how to control your hormonal level with the help of food and plants. I just imagine her starting this lecture and I will ask her to .. off and walking away from there. This is just unbelievable how full of themselves some people can be, I do not remember being so myself but probably was since we all think that we will not get cancer, not when we are in our 40-es. But your mom means well, it is tough on her too, everybody has their own way to cope. Mine broke down only once when she told me she would happily traded it with me if she only could. Imagine something like this happening to your child, this is not a normal course of life, poor them when they see us like this. Hugs, Cherry

  • Littlemouse
    Littlemouse Member Posts: 6
    edited August 2017

    love your picture illimae!! You definitely need to keep positive and still find something to smile about each day, as you did with your picture! Love it 😍

    Best of luck!

  • Leatherette
    Leatherette Member Posts: 448
    edited August 2017

    re: constipation-Senna with ducosate sodium has done the trick

    I had my first day back at work today-I'm doing two days a week to start. It was just a meeting, but it was 8:30 to 3:00. I made it through, but was ready to leave at the end (but I always feel that way about meetings!). I had a different problem than others-I asked my bosses to tell the department why I was out, but they were conservative about it and did not, so I had to deal with lots of "How was your summer?" Questions (I work for a school district). I don't like to say "fine" unless it actually was-I feel like that keeps people from having a genuine interest in how others were doing. But at a certain point I did. I just said my summer sucked because I was going through medical treatment to the first few people who asked. No one pressed for more info. Several people said they really like my new haircut (wig, of course), so that made me happy with my choice of wig!



  • Moderators
    Moderators Member Posts: 25,912
    edited March 2018

    Hi everyone,

    We're working on two hair loss management videos and we want to include your photos!

    Deadline for submission: September 8

    These videos will help women facing chemo-related hair loss to emotionally and physically prepare, and to understand their options. The videos will be viewable in the Hair, Skin, and Nails section of the site by October 2017.

    We're looking for any of the following:

    ·Photos of cutting your hair shorter

    ·Photos of the time period when hair was falling out

    ·Photos of having your head shaved

    ·Photos of yourself wearing synthetic or human hair wigs, hats, turbans, scarves, going "au naturel," or any other options you chose

    ·Photos of you using cold caps or scalp cooling systems

    We welcome all photos, including those that have a sense of humor (such as the mom whose young children shaved her hair into a Mohawk)!

    When submitting, please also include the following:

    ·Your name (we will use your first name and last initial if that is comfortable for you)

    ·Your city and state / city and country if non-U.S.

    ·The year(s) the photos were taken

    ·Diagnosis details if comfortable sharing (stage and type of breast cancer, HR and HER2 status) Note: This isn't required – voluntary only.

    ·Your email address and a phone number where we can reach you

    How to submit your photos:

    ·If the photos were taken on your phone or digital camera, please send them in their most raw form: no Photoshop, no Instagram filters, etc.

    ·If you're scanning physical photos, please use a setting of at least 300 dpi and then save the photo as either a TIFF or a PNG file.

    ·All photos can be sent to Claire Nixon, Editorial Director at cnixon@breastcancer.org. She will respond to you promptly with more information!

    Thank you and looking forward to your photo submissions!

  • Clearpath
    Clearpath Member Posts: 38
    edited August 2017

    Hi - my doctors recommend Senokot with stool softener for constipation, and Miralax if that doesn't work. The Senokot (plus eatingprunes) has worked for me and it's gentle but can take a while to work.

    I have my third AC treatment this morning. Having trouble sleeping tonight in anticipation although I know what to expect.

    I told everyone about my diagnosis. I do not believe that having cancer is something I should need to hide or be embarrassed about. Every day I get calls from family, friends and/or work friends to check on me. Whenever someone asks what they can do, I tell them to call and keep me laughing. Of course people will make insensitive comments at times, but it's not usually because they are mean spirited - they just don't know what to say.

  • KByTheLake
    KByTheLake Member Posts: 52
    edited August 2017

    Wow--the last few days have been rough! I'm starting to think doing chemo isn't going to be much fun!

    Not being able to eat is probably the worst for me because I just kept feeling weaker and weaker. Either food doesn't sound good or it triggers the big D. Finally, last night I heated up some organic chicken broth and threw in some egg noodles. It tasted good and didn't have me running to the bathroom after eating it! Success!

    I tell everyone I meet that I have cancer and that I'm doing chemo. Since I'm new in town and don't have family nearby, I don't want to be alone in my house with no one knowing what's going on. I want people to check in on me and make sure I'm okay.

  • PauletteK
    PauletteK Member Posts: 2,205
    edited August 2017

    KbytheLake - did you tell your doc you have Big D so he can give you something stronger for your stomach. I found myself a little weaker in my AC #3 but I bounced back after day 6.

    Clearpath- I'm with you, having cancer is not something I need to hide beside most of my slibings have cancer.

    Will be doing my AC #4 this Friday I hope my WBC is high enough to do.


  • marooshka
    marooshka Member Posts: 22
    edited August 2017

    Clearpath - I agree, I felt better telling my main circle and even peripherals I need to deal with here and there and the support via texts, calls, emails has been great. It always felt nervy before I told someone but then it was just a huge relief to have it out there because I could say whatever I wanted. It was also helpful because almost every one of those people knew someone who had been through this so I had quite a few connections to reach out to which was good because I could then pick the most helpful contacts (for example, NO to the Aunt who told me the horrors of chemo and YES to the woman who had great advice on recovering from her mastectomy). I've been emailing with at least two total strangers (to me) throughout and they have been great. It has also been a good lesson to me in how I will deal with someone else's sickness/loss/crisis moving forward.

    KbytheLake - I have found that certain foods might not sound good, but once I taste it, it works. My friend swears by sniffing fresh orange peel to get past the very intense oog. Good thinking to have a network you can keep informed. I ended up at the ER last night after a few days of relentless headache and sudden dizziness. They are still culturing my blood to make sure all is good, but I was released with everything looking ok. Today (day 7) I feel really good by comparison- I think the zofran was maybe the culprit. I would not want to have to go through that with nobody knowing what was going on!

  • Cherry-sw
    Cherry-sw Member Posts: 997
    edited August 2017

    KbyTheLake, chicken soup is what I am having every day. I just boil slowly half of a chicken then add chopped onions, carrots, potatoes and some noodles or those small soup pasta. Maybe some parsley, laurel leave salt and pepper. I always liked it befor, but now I have to eat it every day, it tastes good, is easy on your stomach, it is fluid and the chicken is so good with some extra salt. Cherry

  • PauletteK
    PauletteK Member Posts: 2,205
    edited August 2017

    Cherry - it sounds good maybe I do that with chicken breasts. So it has veges and meats.

  • Cherry-sw
    Cherry-sw Member Posts: 997
    edited August 2017

    Paulette, it needs like skin and bones too so the broth will be a bit fat and tasty. I usually cut the breast part out and use it for something else. If you can find a real hen or rooster and cook it for a long time it will be even better. It has been my "flu" diet since I was small. You can also mix an egg with flour, salt and water, form some small dumplings with a spoon and let them cook in the soup a few minutes, instead of noodles. When you serve it you can add chopped fresh dill, parsley and basil, it is delicious. I also like to have some fresh estragon. Cherry.

  • PauletteK
    PauletteK Member Posts: 2,205
    edited August 2017

    cherry - I'm not sure I want Fat in my soup, that is not healthy at all. I'm writing this chicken soup down so I can make some for my Friday chemo.

  • KByTheLake
    KByTheLake Member Posts: 52
    edited August 2017

    Cherry--dumplings sound really good! I'm going to make a few next time.

    Paulette--a little fat is okay and it will make the soup much more flavorful

  • PauletteK
    PauletteK Member Posts: 2,205
    edited August 2017

    You gals are good cook I need to learn from you all. Will make some chicken soup tomorrow ready for Friday infusion.

  • Cherry-sw
    Cherry-sw Member Posts: 997
    edited August 2017

    KByTheLake, 1 egg + 3 t spoons of flour (maybe a little less) + some water or the broth itself, salt. My mom and granny used to make it.

  • MakeupLover
    MakeupLover Member Posts: 64
    edited August 2017

    Rebekah, my MO said that when we are close to finishing chemo I will get a breast MRI.

    Cherry, my Ki67 is 60%, so yea I think that makes sense, I'm just glad the lump feels back to normal now!

    I've been doing ok these past few days, the sore gums are manageable with tylenol. And i have random headaches every now and then.

    Chicken noodle soup sounds great!

  • Cherry-sw
    Cherry-sw Member Posts: 997
    edited August 2017

    MakeupLover, my Ki67 is slightly lower, chemo should be effective, hang in there. It is hard to make an accessment when you touch it all the time, try not to feel it for a week. Cherry

  • Cherry-sw
    Cherry-sw Member Posts: 997
    edited August 2017

    Paulette, just as KByTheLake said the fat is just for the flavour, chicken wings can make a great broth but I like to have some meat in mine, Cherry

  • MakeupLover
    MakeupLover Member Posts: 64
    edited August 2017

    Cherry, yea i'm gonna try to ignore the lump lol

    have a great day everyone :)

  • marooshka
    marooshka Member Posts: 22
    edited August 2017

    RE: Soup - Before I had surgery and again before starting chemo I made two big batches of Rebecca Katz' Magic Mineral Broth and froze it in batches. Sometimes I will thaw it out and simmer chicken in it as well and depending on appetite add matzoh balls, piles of veggies, or rice. It is a little sweet so the chicken really helps round it out, and it serves as a good base for all sorts of soups. Another option would be to get an organic, rotisserie chicken. I pick off the breast meat and simmer the bones, wings and legs with some carrots, onion and herbs to make broth. It is really a miracle food!

  • toughcookie_21
    toughcookie_21 Member Posts: 185
    edited August 2017

    I will second that broth and soup really are miracle food. I got hooked on organic bone broth that a local health food store near my house sells in cups for sipping like coffee. It's so healing! Now I make my own with beef shins that I get from a local farm and chicken I get at Wegmans. I make it in large batches and freeze it in muffin tins so I can thaw one or two at a time

  • marooshka
    marooshka Member Posts: 22
    edited August 2017

    Good for you toughcookie_21! I too made a big vat of bone broth and decided to never do it again. It took about 2 days and I think I am better off finding it out there locally. But I am allergic to celery which makes buying broth a challenge!

  • Cherry-sw
    Cherry-sw Member Posts: 997
    edited August 2017

    Marooshka, thank you for the tip, it looks delicious, I will cook it tomorrow

    https://www.rebeccakatz.com/magic-mineral-broth/

    I do not know where to find those seeds though and I am not sure If those may interfere with the chemo, I will just go on without.

    Matza balls)) I need to find a place where to buy those. Jamie Oliver has a great recipe of matzo ball soup in his book Jamie's America, the section on NYC food. Since I am of Russian origine and grew up in Ukraine until I moved here I have a killer recipe for bortsch, a Ukrainian beet root soup/stew, because it has to be very dense, that I have been making without any meat for at least seven years and with various vegetables and sour cabbage

    Cherry

  • Clearpath
    Clearpath Member Posts: 38
    edited August 2017

    I recommend the easy chicken noodle soup recipe on mrfood.com.  Easy, delicious and authentic New York chicken soup - just like my mom's.  I use a package of soup greens and a couple of extra carrots instead of the veggies listed and add three chicken bouillon cubes.  Also, dill is the secret ingredient (which is usually included with the soup greens but if not, add a few stems of fresh dill).  Cherry, you can always use egg noodles instead of matzo balls.

    Feeling OK today after AC treatment #3 yesterday fortunately.  Had my remaining hair cut to 1/2 inch last night.  Hope everyone is doing well.


  • PauletteK
    PauletteK Member Posts: 2,205
    edited August 2017

    OMG you ladies are such a good cook I love it. Will check out these websites. Being Chinese we cook different kind of soup, my kind of soup is clear base my mom told me we don't eat the stocking because most of the soups need 3-4 hours simmering. When I have chicken noodle soup is from the CAN. 😂😂

  • Cherry-sw
    Cherry-sw Member Posts: 997
    edited August 2017

    Clearpath, thank you, I am always up for a chicken soup. Chicken is actually my favourite protein, or any poultry for that matter. Cherry

  • Cherry-sw
    Cherry-sw Member Posts: 997
    edited August 2017

    Paulette, I am up for any Chinease soup recipe, please feel free to PM me. Cherry

  • marooshka
    marooshka Member Posts: 22
    edited August 2017

    Ditto on asian soups. Paulette, we cook a lot of asian inspired food as well and I was sad to think I maybe can't have miso anymore- but that seems to still be an open debate. My naturopath says I should have soy and my friends who were hormone + said to avoid it. Ack!

    Meanwhile, I made up a big vat of brown rice congee with mushrooms and broccoli to bring to my first round of chemo and ate the rest for dinner. I missed not having any chile oil or fried shallots on it, but it was really comforting and easy to eat that day. Once you master your broth, maybe congee is something to try!

  • Cherry-sw
    Cherry-sw Member Posts: 997
    edited August 2017

    Marooshka, my oncologist told me that miso soup and soy to sushi are ok. When they say reduce the consumation of soy products they mean stop eating soy beef three times a week. Tofu has also a quite complicated and not very healthy manufacturing process. I am scheduled for a meeting with dietitian in my clinic in September, I will come back with the report. I want to learn how to make congee, I heard the name before. I have also been into ramen earlier this year. Cherry

  • Walkingintheclouds
    Walkingintheclouds Member Posts: 52
    edited August 2017

    PauletteK - Being a Chinese as well, I was told to put some herb into the soup, such as goji berry, Chinese date...


    Also, I've lost 9/10 of my hair ... sadly in about 4 days, starting from the 12th day of my first chemo.

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