Starting Radiation August 2017

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  • Tappermom383
    Tappermom383 Member Posts: 643
    edited August 2017

    Good for you, Shocked! Congratulations!

    MJ

  • inccmd
    inccmd Member Posts: 69
    edited August 2017

    Congratulations Charleecat!! And early congratulations to Shocked!!

  • CharleeCat
    CharleeCat Member Posts: 8
    edited August 2017

    Thank you to everyone for the words of congratulations! It does feel amazing to have this part of the journey behind me! Shocked, I am so happy that you are done too - hopefully by the time you read this! I think I can speak for all of us, when I say, we can't wait for the rest of you to be finished too!

    It is emotional. I cried when my BS told me that she got all the cancer with superior margins and then again when I "graduated" from RT yesterday. I agree, Tappermom, I don't want to go back, but I will especially miss the techs. They said to come back and visit any time. I live, literally, right around the corner from the cancer center, and I get my mammograms done in the same building. So, I'll probably pop in from time to time.

    I hope that my skin irritation starts to go away. The RO did say it could linger (or perhaps worsen) for about a week, but then it should be fine. The rash is just so itchy, but the cream they prescribed helps tremendously. All in all, it is better than I anticipated, so I'll take it. I didn't have tattoos. I was so happy to take off all of the little stickers and be able to dry myself without having to worry about messing up the marks. (It's the little things!)

    My MO told me I would be taking tamoxifen. Llamalady, I will ask about the split dosage! I really don't know if I am pre- or post-menopausal. I had an ablation about 10 years ago. And I haven't had any bleeding since that day. I am 56 and I have had hot flashes (I call them my own personal summer) and night sweats, for about a year or so. But those have both subsided. I will just have to wait to see what they say at my appointment next week.


  • illimae
    illimae Member Posts: 5,710
    edited August 2017

    Shocked, yay, done with rads!

    image

    Charleecat, I've been on tamoxifen for about a month now. So far I've had some joint pain in my fingers and night sweats, both manageable.

    And thanks for the laugh, "my own personal summer"

    image

  • Castigame
    Castigame Member Posts: 752
    edited August 2017

    Shocked and Charleecat, congrats!!!

    I am going to follow your lead.



    18 out of 30 done.. stll annoyed by multple SE. Skin is still doing good. Just Aloe, Eucerin cream and intermittently silicone cream. I hate Bolus and counting down bolus battles(4 left) My torso gets hot often. Had second burst of fatigue coming over on the way to zapping this morning. I really want to avoid relying on my hubby who is extremely busy. I may have to cancel PT sessions.

    Everyday is two appts and errands since Rads started. Before this BC thing happened I was so scatter brained. But Now I am like an efficiency expert in BC patient care. I even started therapeutic oil for my arthritis and general well being. My wish is to be able to help other sisters when I get better. Maybe powerball ticket I picked up today will make it happen

    Mimi


  • inccmd
    inccmd Member Posts: 69
    edited August 2017

    Just finished my whole breast today. I have only 4 boosts left! Woohoo!

  • Mimie
    Mimie Member Posts: 42
    edited August 2017

    Had #3 today and breast is feeling achy, Is this normal? If anyone who has experienced this took anything (Motrin, aleve, or Tylenol, etc.) please let me know what worked.

  • mmbNaplesFL
    mmbNaplesFL Member Posts: 23
    edited August 2017

    @llamalady -- is the green tea treatment only for those who did not have mx? My RO told me that women who have breasts at radiation have less chance of skin burn than those of us who have lost our breast.

    I am at 12/28 treatments. My chest is definately red at center of breast area, close to breastbone. Not noticing any red under arm or at collarbone where RAD is also directed. I have use the green tea treatments every day starting at day one. I don't notice the pads pulling out any heat. My chest is just skin and bone, no fleshy padding at all. Does that make a difference?

    thanks for your help /mmb



  • CharleeCat
    CharleeCat Member Posts: 8
    edited August 2017

    I had an achiness in my breast too! And a feeling of heaviness. The techs said to keep Aleve, Advilor Tylenol in my system during treatments. I do for a while and it helped

  • inccmd
    inccmd Member Posts: 69
    edited August 2017

    Mimie, I had some itchiness, and when I mentioned it, they right away said use some hydrocortisone cream. Be sure to let them know and ask. The cream did the trick, and I use it occasionally now. And I have used Motrin as they suggested.

  • Castigame
    Castigame Member Posts: 752
    edited August 2017

    19 out of 30 done. And 3 more Bolus only😈.

    I found out cold bolus feels less annoying than warm even though it still is zapping.

    Sudden fatigue again but it could be due to multiple things daily. Today I went to see orthopedic doc before rads. Family doc after rad. Went to hospital to pick up lymphedema sleeves.

    Mimi

  • llamalady
    llamalady Member Posts: 47
    edited August 2017

    Hi mmbNaples - I wish I knew how to answer your question. I have seen ladies that have used the tea both lumpectomy and mastectomy. Unfortunately I do not know how they did or what their outcome was. I'm no expert of any kind on the science, medicine or natural medicine to know if having extra tissue would help. Maybe it would but I honestly just don't know. Thinking about your question does make me wonder if the extra tissue of a breast makes it somehow more protective or creates a better barrier or sorts but I just have no idea. I do know the tannins in the tea help w/ stinging and burning so maybe you're getting some benefit from it even if not the full benefit you would like to see. It is interesting that you're having less issue w/ the armpit area and upper chest and your thoughts may be spot on that it's just tougher on an area that is so fragile without any "cushion" to speak of.

    I'm sorry. I wish I could be of more help to you. For what it's worth, if it were me I would probably continue it since some areas are doing ok and would hope that it would at least keep the skin issues to a lesser degree. But that's just me. I know we all have to make the best decisions we can for ourselves in the moment. I'm glad to see you're almost 1/2 way there!!! I looked at the halfway mark as having made it to the top of the mountain and the 2nd 1/2 was climbing downhill :-) Made it much easier in my crazy brain!!

    Best of luck to you!! Cindy

  • Legomaster225
    Legomaster225 Member Posts: 672
    edited August 2017

    Sorry you're having such a tough time Rebamacfan. Two-thirds done for you. Hopefully things will improve after rads. Have you been getting pt for your lymphedema? I had cording and the lymphedema massage worked great for me. Wonder if it might ease some of your discomfort as well?

    I have only had 6 rads of 33. I have a bolus everyday but so far no issues. Long way to go for me though.

  • illimae
    illimae Member Posts: 5,710
    edited August 2017

    Today was 10 of 30 and my weekly RO meeting. Going well so far, only some skin thickness and slight left breast hardness, common in those with the reduction/lift per RO. No fatigue yet, I know it may still happen but I'm walking a lot to keep it a bay, worked for chemo :)

    I hope those of you with aches and pains get relief soon.

  • MamaOz
    MamaOz Member Posts: 432
    edited August 2017

    legimaster. your dx is similar to mine

    Although i had bmx no recon

    I started rads 8/8. Today was 13 of 28


  • Mimie
    Mimie Member Posts: 42
    edited August 2017

    Inccmd and CharleeCat- thanks for your advice. I told the techs before my treatment today and they told me to take either Tylenol or Advil before my treatment each day. It worked great today and pain has subsided. Can't wait for the weekend to come and 2 days off. BTW I bought a tray of cookies to bring in to my techs tomorrow to celebrate finishing week 1.

  • MamaOz
    MamaOz Member Posts: 432
    edited August 2017

    mmb. Very similar to my dx and treatments.

    Today was 13 of 28 slight irritation but not bad yet. using aloe gel and jeans cream which my PT recommended from other patients

    Holding my breath on it getting worse. I also had bmx and just have flat chest. They use a bolice on me and i hate that my head is in machine...

    Mama

  • Castigame
    Castigame Member Posts: 752
    edited August 2017

    Legomaster,

    I am getting PT for arthritis. Lymphedema is ok for now. I cannot wait to use Flexitouch pump for LE. Counting down.

    I still feel fortunate despite all.

    Mimi

  • Myrtle2612
    Myrtle2612 Member Posts: 5
    edited August 2017

    Today was 12 out of 30 - almost half way there! My fatigue lessened Tuesday night & ive felt fine ever since, not sure why but I'll take it :)  Gp is testing my liver enzymes & told me to take organic vitamin C for my easy bruising.

    Congrats on for those of you that finished! Must be awesome feeling to be on the other side of that hurdle!

    On the natural deodorants topic, I first tried freedom & regular native but both had baking soda in them & it irritated my skin & turned it darker. I now use the native cotton & lily for sensitive skin without baking soda & it works just great.

    Hang in there all - tomorrow is Friday :)

    Dx 5/18/17 IDC stage 1A, grade 3, ER+ & PR+, HERS2-, 0/3 lymphnodes 

    Surgery 6/05/17 lumpectomy 

    Rads 8/8/17

  • ShockedAt48
    ShockedAt48 Member Posts: 138
    edited August 2017

    I didn't have a chance to post yesterday but I graduated from radiation and they gave me a merit certificate. One of the techs hugged me and I almost cried. I saw the nurses for my end of the week appointment and mentioned the horrible fatigue I got the night before my last session. My radiation oncologist does not believe that radiation causes fatigue. He thinks it's actually good for your body. He doesn't believe plutonium causes cancer either. He's quite an oddball. He told me that for years he didn't believe that a woman's breast could swell from radiation. He finally accepted it a few years ago and said he didn't know what he was thinking. He said that there are virtually no side effects from radiation. A professional has indicated that he knows what he is doing. I hope so!

    So yesterday I felt like I was going to go to sleep driving there. The nurses suggested that I exercise which was what I have been doing. So I force myself to walk last night. On my way home I see a small fire in the hills by my house and call 911 to report it. By the time I get home it's doubled in size and I realize that's it's REALLY CLOSE TO MY HOUSE! We were almost evacuated but they got the fire contained in time! So many emotions yesterday

  • MamaOz
    MamaOz Member Posts: 432
    edited August 2017

    shocked ... congrats on your completion! It is emotional

    A few months ago I went to visit the nurses a month after my chemo had ended and as I approached the door I just lost it! All this emotion just came to the surface

    I was shocked at how uncontrolable it was... I was sobbing!!! I guess I had suppressed it ...

    What a roller coaster...

    heres to friday! For all those still in this like me

    Enjoy the weekend

    Mamaoz

  • MAP1002
    MAP1002 Member Posts: 61
    edited August 2017

    Just started RT on Tues, so 3 down 25 to go. done with chemo, done with lumpectomy (right breast only). So, tired of it all...

    Is it possible to already be feeling tingles and fatigue? I've had very few side effects from the chemo (compared to most). But still get chest heaviness apparently from the projeta (which I finished in April) and leg achiness.

    Don't understand why at this point I'm feeling more emotional than everything else...Up to this point everything went great.. I'm told I've handling everything well above average.

    (tried to put most of my treatment in the personal info, not sure if I got it all right.. Had project, herceptin, toxetere carboplatin. Still getting projeta every 3 weeks)


  • Tappermom383
    Tappermom383 Member Posts: 643
    edited August 2017

    MAP, the fatigue hit me early, too. And I told my RO nurse that I didn't know what was wrong with me - like you, I had handled everything well. Too well, one friend told me. Almost stoic. And then one day at lunch I just burst into tears. The nurse said the fatigue was allowing me to let down my guard. I was better emotionally after that.

    Best of luck as you move forward and complete this leg of this unasked-for adventure!

    MJ


  • MAP1002
    MAP1002 Member Posts: 61
    edited August 2017

    thanks for the kind words. I wouldn't say I'm "stoic". I've been told I have a great attitude..blah blah. I've tried to keep it all in perspective trusting the professionals that keep telling me all will be well. Drs and Nurses have all said I've done exceptionally well through out the process. This week, though, I've been cranky and tired.

    My husband keeps telling me I'm entitled and to cut myself a break.. Just trying to figure if I'm overthinking what I feel physically or if it really is already effecting me.

    I miss being able to work out as I had started a program in Jan 2016. Lost 40lbs before I felt my lump in Nov. Was able to get to the gym a bit even during chemo, but since the end of chemo and my surgery, and now radiation, I'm told to not overdue it. sigh. frustrating!

  • VLH
    VLH Member Posts: 1,258
    edited August 2017

    Shocked, YAY on finishing RT & YIKES on the fire!

    Re: your RO, I'm astounded at how the profession denies side effects far more so than surgeons or MOs. When a woman makes it through chemo with minimal nausea issues, has no expectation that rads will cause nausea, yet ends up feeling queasy after every daily radiation treatment, perhaps acknowledge that nausea IS associated with RT for some patients. And fatigue isn't a SE? Seriously? A fate I wouldn't wish on anyone, if our doctors had to go through treatment with a lovely array of side effects, I think a whole new level of compassion would emerge in cancer care. Of course, the downside is the people in charge of saving our lives would have chemo brain so...

    My MO was amazing, trying to get ahead of / respond quickly to problems. Quite spoiled, I wonder if my RO will be dismissive of SEs.

    Since I don't see a separate reduction surgery topic, I'll ask here: Are you areolas quite pale compared to your nipples? The surgeon said she's pleased with the blood flow so that's not an issue.

    Monday is my radiation remapping. Tuesday, I take my beloved dog to the vet to see if a growth signals the beginning of the end. She was diagnosed with Lymphoma when I was in the middle of chemo & I'm lucky that she's done well for several months.

    Sending wishes for a pleasant weekend with minimal side effects,

    Lyn

  • StaceyB
    StaceyB Member Posts: 32
    edited August 2017

    MAP1002 - It is weird, I had a hard time emotionally starting radiation also. I think after getting through chemo, the thought of starting a new phase for 6 weeks just through me over the edge mentally. I actually requested some sessions with the social worker (which I didn't feel I needed during chemo). They were helpful, but I think that some time to adjust to the new phase of treatment also helped too, and I found myself feeling better. I am feeling a lot of fatigue. I was a little tired in the beginning, then felt very energetic. I just finished day 20 and the past few days I have been exhausted again.

  • MAP1002
    MAP1002 Member Posts: 61
    edited August 2017

    Thanks. Nice to know its not all in my head..

  • Goofycat
    Goofycat Member Posts: 39
    edited August 2017

    I finished my radiation treatments today!!!!!!! Breast is tight, pink, and incisions tugging sensations. Aquaphor seems to work the best for me and now I finally get to use it daily (I was told to only put it on nipple area during treatments). I have used the green tea daily, also.

    The radiation therapists were very kind and explained everything along the way. I hope that everyone has the same positive experience with their treatments.

    I am glad this forum exists to hear from others. It sure has helped me along the way. Thanks for all the good advice.

    Have a great weekend!

  • MamaOz
    MamaOz Member Posts: 432
    edited August 2017

    lyn,

    I agree on side effect thing i finished 14 of 28 today

    And felt queasy after .. I do have a heavy feeling in chest kinda like you feel like a chest cold coming on and a foggy fatigue is setting in

    My Ro said the chest feeling is the inflamation from rads

    What is radiation remapping? Your 2nd simulation run thru?

    If so with mine they actually gave me my first rad treatment that day as well and gave me my schedule which continued on the next day

    Hope your dogs ok, i have a 14 year old shi szu who also was diagnosed with lymphoma when i was doing chemo!

    He also has a lump on his head

    We have him on steroids and creams .. to keep him comfy but being old i cant put him thru treatments he is hanging in there he still is eating etc ok so far

    Good luck with your doggie geez they are like family




  • Mimie
    Mimie Member Posts: 42
    edited August 2017

    I've done 5 of 20 and also experiencing queasiness. It started day 3. I have radiation at 3pm, and have no appetite for dinner. I will mention it to my RO when I see him on Tuesday. I've been exercising daily and working part-time, so far no fatigue, but plan to rest and catch up on Netflix this rainy weekend. I have swelling, and soreness, and an almost constant headache. Techs recommended Tylenol for the soreness and it's helping the head ache too, how convenient. I'm very emotional during this phase too, had not planned to be as this is close to the finish line and not invasive. But as I lay there getting zapped I pray it won't effect my heart or lungs. I'm not sure, but I think I feel a tingling on my breast during radiation. I mentioned it to the techs and they didn't think it was from the treatment...15 to go...

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