Starting Radiation August 2017
Comments
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blooming, I got a flower basket for the lab team and a restaurant gift card for the nurse who called out everyone's names (I was there every Monday). They've always been helpful and the caller was super nice and funny, I really appreciated the laugh. Not a big fan of my rads team so far
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I'm getting my first actual treatment tomorrow. I am scheduled for 8 boosts so it seems again not be a standard schedule for everyone. Found out today they will be using a bolus as well. Not sure if that's good or bad. I have my countdown calendar on the fridge ready to start checking them off. I see a lot Of people talking about redness. Do you have pain with redness or is is just coloring?
My team did not want me to use lotions or oils unless I needed them and said they would be prescribed by the doctor. I think I'll still use at least aloe.
I made chocolate covered strawberries and pretzels for my chemo team when it ended. I make chocolates for Christmas every year. They seemed to like them!
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Legomaster, my redness did not hurt but it was sure warm! I did develop a rash that was very itchy but hydrocortisone ointment took care of that. I used aloe and a special cream a friend gave me and the RO approved - Emprizone.
MJ
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Hi CharleeCat. I'm so excited you're down to 4 more!!! Those of us ahead of you know that wonderful feeling when you're almost finished and start to feel like you might just get your life back pretty soon!! I'm equally as thrilled to hear you're having basically no real problems. I'm happy your RO gave you something for the rash and that it's working. Plus you're so close now, I imagine you will come out of it just fine. The RO told me on my last day the slight pink I had could increase a bit after treatments and it did but was a very small amount and caused no problems. It peaked at about day 4 after my last treatment. I kept using my tea for a week after treatment and continued using my emu oil at bedtime. I kept up with oil usage for a good 2 weeks after I finished rads. I use essential oils as well and lavender is fabulous so I'm sure that's helping you too.
I saw my MO the day of my last radiation treatment and he had me wait also on the tamoxifen. He wanted the radiation to finish doing its thing before I started the meds. He said 2 to 3 weeks and left it up to me. It was about 2 1/2 weeks post rads when I started. I'm 2 full weeks into tamox and so far so good!! I was really worried about it, and I know SE's could still develop but I've relaxed a lot. I also had many ladies on here let me know that they were doing just fine on it and that helped me settle down a bit. Also other ladies had posted that they take it 10mg in the morning and 10mg at bed time. I ran that by my MO and he was fine with it. So when I started I decided to do the 10mg twice a day. I have no idea if it makes a difference, but somehow in my mind it seemed like taking a little at a time might be easier. Anyway - who knows if that's helping, but that's what I'm doing. You may check w/ you MO and see if he/she has any thoughts on it.
I'm like you, I'd give anything if every single woman on here had little to no problems with treatments. It's bad enough we're all in this boat but somehow it just seems so unfair to have to suffer issues from treatments.
I'm happy your fatigue settled down! I had 2 separate days about the 2nd week post rads that I was very tired. May have told you that, but I just pushed through and both days it actually lifted towards the end of the day. That's all I had. Other than that I'm back to my life and feeling really great. I can't wait for you to finish up and get back to your life!!!! It's a wonderful feeling and I'm counting down for you!! :-)
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Llamalady, your words of encouragement mean so much more than you could possibly imagine! I will certainly ask my MO about the split dosage. I have to say, that the Tamoxifen is more of a concern than anything else. Glad to hear, that so far, you are faring well.
I have approached this whole treatment process with positivity and humor. Sometimes, I have been questioned for my approach, and called a hero. But, I don't fell like a hero, only a survivor. I choose to cope with my situation with positivity. I knew from the beginning that Survivor was going to be my goal.
I will continue my green tea treatments. Because, like you, I believe that it has made all the difference. Not to mention that the soothing effect of the green tea soaked pads are beyond compare. And, I will continue using my coconut oil with lavender. I have actually had both my BS and my RO endorse the use of essential oils, particularly lavender oil.
Anyway, to anyone reading this, please know that there is a light at the end of the tunnel. I'm sorry that any of us are on this path. I am so grateful for anyone and everyone that I have connected with on this journey! And, please know, that I pray for you all daily! Whether by name or simply by the fact that we are on the journey together.
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Today was my 10th treatment with only 5 more remaining. This week has been much better than last week with no nipple pain! I did get extremely tired yesterday but today I feel energetic enough. I went for a hike at my favorite park with my German shepherd. It is so great to see my dog's totally transparent joy with life. Dogs are so special and bring me much happiness.
Llamalady: Your RO recommended 2-3 weeks after radiation to start hormone therapy, mine recommended 1 week. I think 2-3 weeks would be better.
How about everyone else, what timeframe did your RO recommend for the start of hormone therapy after radiation treatment ends?
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shockedat48-- funny you should ask about hormone therapy--- just today my MO said she wanted my to start hormone therapy just after surgery but said the RO will want to wait until after rads. So she will check with him and advise me after surgery
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I have been blessed with excellent health for my whole life. I rarely got sick, and if I did catch a cold or something it cleared up quickly and completely. Until this year, that is, and it has been a real roller coaster ride so far! About 2 weeks before I was diagnosed with ILC, my left foot and ankle became swollen and my ankle began to ache, while the right side was not affected at all and remained normal. I went in to urgent care and they found a blood clot behind my left knee, so I have been taking Elequis for that. The interesting thing is that my regular doctor told me that there is a correlation between cancer and blood clots, so if you have cancer you are more likely to get a clot. I also asked my RO about that and she confirmed that is correct. I had never heard of that before. So now I have one more reason to say CANCER SUCKS! What fascinating things I've learned on this journey!
Lin
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In response to the when to start hormone treatment- I finished chemo July 11 and started radiation Aug 2nd. Two weeks after my last chemo I met with MO and I told him I wanted to start hormone therapy right away and he said they usually wait until after rads so as to distinguish any side effects. I said I wasn't comfortable waiting that long as I'm highly ER/ PR positive and he himself said he wasn't even sure if chemo was doing anything for me as my Oncotype was a 3. He said he had to give it to me as I had 2 sentinal nodes micromets and then I pushed strongly for ALND and found 2 fully positive axillary nodes so 4 nodes involved total. If my MO isn't sure chemo did anything then I kind of wanted to start the thing that my cancer would be most responsive too. He said he totally understands and my RO was fully on board with that too. But because I'm not in menopause yet I have to have my ovaries suppressed so I had my first Zoladex shot last Friday and then my MO said he'll check my estrogen blood levels in two more weeks and if they are low and I am able to be suppressed he'll start me on the AI's then. So the timing is last week of radiation anyway but I'm
glad I got the ball rolling or it would have been another three to four weeks after radiation ended.
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Tappemom38 Thanks for sharing. That's encouraging! I feel like I did when I went through the first round of chemo, waiting for something "bad" to happen LOL! Going to look for "supportive" camisoles this weekend. I started back at work part time this week and no bra isn't an option.
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Hi Shockedat48. I'm so happy for you that you're almost finished!! It's a great feeling when you start to see that light at the end of the tunnel! I had some mild nipple sensitivity and occasional shooting pain during last part of rads. It quickly went away totally shortly after finishing.
Yes - my RO and MO both were on the same page about 2 to 3 weeks post rads to start tamoxifen. They both said let the rads finish working before adding something else to the equation. Also said that then if side effects happened we would have an easier time of sorting what was causing what. So far no issues - fingers and toes are crossed :-)
LOVE you picture of your fur baby!!! Dogs are just the best - well I love all animals, but boy do I love my dogs!! You are so right about that pure happiness with life that they have. They are just wonderful creates and your shepherd is just gorgeous!!! I have 3 - a schnauzer/lab rescue mix and two golden retrievers (the retrievers are brothers :-) This is Henry - 2 years old - the older brother.
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Pollicakes, I just finished my 12th, so 8 more to go. From my understanding, I'm getting whole breast for 16 sessions and then 4 boosts. My boosts will be much higher doses targeted at where the tumor and the margins were. I am not sure why, but it fits what I have read about 20 treatments.
So far, I'm doing pretty well. I've got reddishness - more like discoloration than a burn. I have olive skin. I did ask the doctor if fair, olive or dark skin are affected differently, and she said she hasn't seen it based on color but more on the treatment and cream being used and how often applied. It doesn't really bother me although it feels warm. Those green tea pads feel wonderful as does the aloe I take from my plant.
How are you doing with yours?
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15 out of 30 done!!! I hate bolus..
A little bit more red. Went to sleep by 845 pm last night seems it will be an early night again.
This is my dog, 8 yr old female beagle. Her name is Scarlett and she gets away w everything.
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I hope it's okay if I sneak into your group even though I likely won't start radiation until September. My remapping is scheduled for 8/28. Why a remapping? I decided to have reduction before radiation knowing that the skin can be compromised. It's been 15...yup, 15, months since my diagnosis. Only the reduction delay is my fault so it's kinda been one thing after another.
I jotted down a few quick notes, but suspect I'll have some usernames or details wrong so I ask forgiveness in advance. ;-) It's good to see a couple of other reduction ladies here. Mine was a challenging case. Still obese, I had lost 100 pounds prior to my lumpectomies so my poor bosom was sagging and dragging to the extreme. My F / G breasts are now a C / D. With such extensive intervention, I've got some ugly skin flaps / dog ears that are painful five weeks post-reduction. I'm very glad they won't be in the radiation path because their location is one even my stretchy Fruit of the Loom sports bras rub. Anyone else?
Regarding "headlights," I have found a couple of bras with very light padding / shaped cups that do a good job hiding them and I've had extremely prominent nipples since high school. I know that beaus in my younger days found them appealing, but they were a source of embarrassment when I was in the working world and I dislike them walking into the room five minutes before the rest of me. I don't have much sensation in the nipples now so I hope that means the darned things won't hurt during treatment!
Loribee, congrats on the swimming record! I used to love swimming laps, but swim times at the city pool are very limited, a badly encapsulated shoulder made most strokes difficult and I stopped going when I got more involved in dog sports. Thanks for reminding me that I must ask the RO when it will be safe for me to swim in a public pool again. My RO prescribed the triamcinolone (sp?) cream, to, as well as a Japanese skin cream only available via Amazon.
I was going to do prone position so hope that will still work with the smaller breasts. I wonder about boosts to the tumor bed since the plastic surgeon's operative report cites removing an area that appeared to be part of the lumpectomy site when she did the reduction plus I know she did some rearranging to maximize remaining breast tissue. Another RO question, but did anyone discuss that prior to rads?
My RO initially recommended the 16 + 4 schedule, but readily agreed to 15 sessions when I brought up the Canadian protocol. After five surgeries, two infections and a tough time with chemo, even five extra battles through construction and heavy traffic seemed daunting. I'm in my early 60s, clean margins after the 2nd lumpectomy and node negative so don't think more rads would provide improved benefits despite my triple negative status.
I found remarks regarding feeling emotional very interesting. I don't have family within a thousand miles and dislike imposing on friends so have mostly dealt with this on my own. I've only had a couple of meltdowns, including one when my second lumpectomy was delayed 1 1/2 hours without explanation. I've been on the verge of tears for days. I thought my unsteady gait was due to pain medications; however, was very distressed to learn that it's apparently the blasted chemo induced peripheral neuropathy in my feet to blame. I thought radiation would be the end of this extremely long treatment plan only to recognize that I may still face weeks of physical therapy (plus OT if I work on my hand). Knowing some women have ended up with congestive heart failure from chemo, I feel like a Wendy Whiner complaining, but I was so ready for these countless medical appointments to finish. Impaired balance would be a problem for both competing and teaching dog obedience so it affects work and play and I simply hate feeling like I could easily topple over. Fingers crossed, the neuropathy will still dissipate on its own. I'm doing balance / core strengthening exercises learned during physical therapy for a herniated disc and inflamed sacroiliac joint in the interim. I don't care to add broken limbs to this fun experience!
So fun to see all the canine companions! I'm sorry this is so long, but I read through several pages of posts so had lots of thoughts.
Wishing you a nice weekend and minimal side effects,
Lyn
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Hello Inccmd, i'm doing ok, I have finished 7 sessions of 16, then 6 boosts. My breast (around my nipple and then underneath) is reddish/purple, but it has been doing that since the first session. The color subsides a bit as the day goes on but doesn't go away completely. I'm not even going to bother asking my RO, omg, I so dislike her, she has a horrible bedside manner, she just doesn't seem to care and can't be bothered. If it gets worse, i'm just going to show it to my MO, LOVE MY MO, SHE IS THE BEST !! I don't really have pain, maybe just a bit of a cramping feeling sometimes on my side, but nothing that is alarming. I'm also doing the green tea, which feels fantastic. Along with the green tea, I put on Aloe mixed with a few drops of calendula oil, I also put on coconut oil with a few drops of lavender oil. So far so good. I have been thinking about the 6 boosts, and that seems a bit excessive to me, I haven't really read anywhere about people doing that many boosts. I guess i'll see. But so far so good !! So glad to hear you are doing well also !! xoxoxo
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Rebafan - awwww Miss Scarlet is just beautiful :-) and she should be able to get away with everything :-) I love seeing pictures of everyone's 4 legged kiddos!! Looks like you're 1/2 way there in your treatments! I considered that to be the top of the mountain and every treatment after that I was walking down the other side!! Hang in there!!!
Inccmd, Pollicakes - so glad to hear the green tea is comforting for you. I felt the same way. It just immediately cooled the skin for me and felt so nice during that time! I hope it continues to bring relief and that you all get through this with as little discomfort as possible.
CharleeCat - So are we now saying "3 more to go"?? :-) Been thinking of you today and hoping nothing stands in your way of getting these last 3 treatments out of your way!!! Thank you for your kind words. I know many others here that were ahead of me offered support and kinds words to me before I started each leg of this journey and it helped so much. I think you and I must handle things in a very similar fashion. I also approached this with humor and a positive attitude and I know that helped. I've laughed and made jokes all along the way, leaving a few with shocked faces I might add :-) But I felt so fortunate to be given a "good" bad diagnosis that I decided to just grab it and kick some butt and take my life back. So that's what I've tried to do. I don't know what the future will bring, but I'll find out in the future. So for now I'm just going back to enjoying life and I find myself getting so excited for others coming along right behind me because I just know how happy they are to get their lives back as well and that just makes me smile!! Keep us updated - we'll have a long distance "cheers" when you get to type "I'm Finished"!!!
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HI! I'm scheduled to start radiation on the 28th. The past 7 months have been quite a journey, but I feel the worst part (chemo) is behind me! I met with my RO last week and had a CT simulation scan on Monday. I will be receiving 33 treatments targeting the site of the tumor, top of the breast (mammary glands), armpit, chest wall on right side, and upper right back area.
I'm sure I'll have questions/concerns as I proceed, and I'm sure this group will be just as helpful and as encouraging as the Taxol group. In fact, after reading only a few posts I've noted different suggestions for lotions/creams.
Thanks in advance!
Donna
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Welcome DonnaJoan. I'm halfway through my 25 treatments as of tmrw and I can tell you that radiation for me personally has been relatively uneventful and SO much easier than chemo so yes hopefully as you said the worst is behind you! Best of luck to you as you start!
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Is anyone being followed by their gynecologist also? Reluctant to add another Dr to my long list but none of the ones I have seem to be advising me on my nether regions. Side effect wise or future wise. When I ask my MO she just kinda shrugs it off. I'm premenopausal, or was before chemo, so I'm pretty sure that makes a difference since I'm ER+ and PR+. Not that I've heard that from any of my Dr's, just here. TIA
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I arrived my zapping place 20 min early after dropping my car off for service at a dealership. I got a call saying " technical glitch can you come 4 and half hrs later?" It is a good thing I am patient and I need my zapping. In the meantime where can I kill hrs in between? I have spent too much money lately. 😑
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Zapping machine down for the day. Problem solved
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Question for all you ladies.
Most of my treatments have been late afternoon - 4:30 or later. I've felt pretty good so far. This week I changed 3 days to early morning because I needed to, and I feel much more tired mid-afternoon and haven't slept as well at night. I have heard that afternoon appointments allow you to sleep a lot of the fatigue off, so I'm making sure the rest of my schedule stays afternoon because I begin my semester teaching (college part time).
What are your thoughts, opinions, experiences with the timing of your treatments?
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I had nearly all my appointments in the afternoon so I could go to my fitness classes in the morning and get some work done (I work from home). I am one who had terrible fatigue but my skin behaved very well. I often took a cat nap in the afternoon when I got home (even though I usually am unable to nap).
MJ
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I will be going in for my second-to-last radiation treatment tomorrow. (Yes, on Saturday!) My RO decided to close the center on Monday for the eclipse. We live in the Nashville, TN area, and are in the path of totality. So, they are open tomorrow instead. They asked if anyone wanted to come in. I jumped at the chance. I didn't want to push my end date back. Luckily for me, I live, literally, around the corner from the center. So, I am still on schedule to be finished on Tuesday!! They did tell me today, that the side effects could continue for up to two more weeks. They said that it takes up to that long for the radiation to leave your body. I feel hopeful, that it won't worsen as long as I keep doing what I have been doing.
llamalady, I will definitely post a big "I'm finished" for you! And I will be listening for your long-distance cheer! LOL!
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Hi all!
For you, and all who join you throughout this month, here's some helpful info on the main Breastcancer.org site on Radiation Therapy, including info on types of radiation therapy, what to expect during the process, and how to manage side effects.
Also, the Treatment Side Effects section is a great resource for tips to help manage any side effects you may experience.
You may also find it helpful to read last month's radiation thread for more tips and tricks from others who've been there!
Hope this helps!
--Your Mods
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Ugh! Went for my treatment today but spoke to the nurse first bc I am having a sharp burning pain right at the spot of my first surgery (lumpectomy). My RO wanted to look at it, my whole breast is pink and when she felt it thought it was hotter than the other breast. She thinks I have an infection so no treatment for me until the BS clears me. I had that surgery may 30 and the reduction July 6! Could it really be an infection this far out?! I just want to be done! On the upside, my RO did say she reviewed my scans again and has determined that the site is too big for the 4 boosts so it's a total of 16 treatments for me. 4 down, 12 to go after this setback. One day at a time right? Feeling down.
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I had simulation last week, it went very badly. Tech didn't warn me he was doing a tattoo, and all of a sudden I felt an intense pain in my back. I asked how many more and he said 7. I asked for lidocaine and he said the Cancer Institute didn't have any. I told him it is liberally used upstairs in the Breast Center. He refused to get it but said I could get by with the markings and tape. Why didn't he offer this from the beginning?! I felt traumatized and was crying for days. I guess my guard was downas up to then every aspect of my treatment had been exceptional. All the caretakers were compassionate and concerned with my comfort level. DH called the hospital and my RO ended up calling me Saturday night to apologize. I start my treatment of 16 and 4 boosts on Monday. I'm really scared now.
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Littleone: My breast has been pink to reddish since the first day of radiation thru now and it's hot also. No one seemed concerned about it. I have also had severe nipple pain by my incision site that luckily went away. Are they sure it's an infection since I think it's normal for some woman to have theses symptoms during radiation?
Twills: I'm premenopausal too and have been told I will be taking tamoxifen and will have to have annual pelvic exams while I'm on the medication because she of the increasedrisk of endometrial cancer.
Mimie: When they gave me my tattoos the one between my breasts and the side of my breast really hurt and the one on my SNB side I barely felt because of the numbness, the one on my stomach didn't hurt too much but looks much bigger and blurry looking. I was surprised that they hurt so much, no tattoos in the future for me!
Question: My oncologist recommended that I take hormone therapy for 10 years. I'm curious, what amount of time have you guys been recommended to take your hormone therapy by your oncologist. Thanks!
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shockedat48 that's what I thought too but I do have to say that after 3 doses of the antibiotic it feels much better. I told her that I thought all of those symptoms were normal and she said they don't see infections often but they happen enough that she wasn't surprised either. So back to the BS on Monday and hopefully get cleared to start again at the end of the week. Have to keep this train moving or I'll go a little batty. I also will be taking tamoxifen for 5 years and an AI for another 5 years. I am 49 and premenopausal so I think out age has something to do with it. I've been reading about the side effects...not thrilled. My gyno says that most women tolerate it very well so I'm hoping he's right!
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Shocked, I started my 10 years of tamoxifen almost a month ago, so far not bad, I've had some night sweats and stiff finger joints. Both SE's are tolerable but I'm working on how to lessen them.
Just had my 7th of 30 rads, I noticed that my radiated breasts nipple seems thicker skinned than the other one. Anyone have thicker or tougher skin?
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