Major differences between male and female breast cancers found

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  • Fiddleman
    Fiddleman Member Posts: 59
    edited August 2016

    I thought I'd make a general post as it's more of a followup to my treatment. Had my first chemo yesterday. They had to start 2 IV's, sequentially, as my veins were not very large, If I ever doubted having a port inserted, those doubts are now moot. SE's haven't kicked in yet, but I'm preparing myself. Thought the oncologist would have results from the BRACA genetics test, but those results have to come from the geneticist. Whether inherited or not, the mutation does seriously increase risk for prostate cancer. With all the obfuscation around the PSA test, that news is not particularly encouraging. This is also true for other cancers, but I guess not so much. I'm calling genetics today! Since, "Sufficient unto the day is the [trouble] thereof.", It's one day at a time, and be thankful for the good ones. I know it's early, but this is a good one. Hope to check in more often.

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited August 2016

    In your pocket Fiddleman, for not bad se's. And no genetic mutation.

  • Traveltext
    Traveltext Member Posts: 2,089
    edited August 2016

    Fiddleman, don't be disappointed if chemo goes smoothly! Just take the supplementary meds they offer to combat nausea. And get as much exercise as you can. I made the mistake of lying around after the first chemo thinking woe is me, when this was entirely unnecessary. I then started a building project that kept me totally busy and made the side effects virtually unnoticeable. Have you been offered the ice mittens?

    Genetic test results can take time. You do need to keep vigilant for prostate cancer. Last week, following a DRE, an MRI picked up a 16mm growth on my prostate and I'm having a needle biopsy on Tuesday to see what the story is. Will report the results. One day at a time, indeed.




  • Fiddleman
    Fiddleman Member Posts: 59
    edited August 2016

    Traveltext. I did have a minor bout with nausea, but the meds did the trick. Paid bills, wrote some emails and got 20 minutes on the elliptical. Drank a lot of water yesterday and was up 8 times last night. Wife's threatened to desert me for the other bedroom tonight. Can't say I blame her. HA! Today I'm mostly just tired, but after a little nap have more energy. Hoping to practice some today and get a swim in after it cools. Too damn hot and sunny to risk the lymphedema arm.

    Good luck with the biopsy. I can't imagine your anxiety over it and I'm sending you healing thoughts and best wishes and please do keep us posted.

    I did call the geneticist and boy am I glad. She's going on vaca for 3 weeks and is trying to get caught up. The results are in and I see her next week. Squeaky wheel, eh?

  • Fiddleman
    Fiddleman Member Posts: 59
    edited August 2016

    Thanks,valstim52. I appreciate the positive thoughts and feedback. You can see my post to Traveltext as well.

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited August 2016

    Hey traveltext in your pocket for the biopsy. Yes Fiddleman, chemo time will fly (I know it does not seem like it) but it will.

  • Traveltext
    Traveltext Member Posts: 2,089
    edited August 2016

    So far, so good Fiddleman. Ah, I remember all night peeing with the chemo. Encourage your wife to get a good night's sleep in the spare bedroom, I'd suggest. Caregivers need to be looked after. What state is the LE arm at?

    Re the pc biopsy, I'm past anxious and moving towards hopeful for a reasonable result. Also, I have so many friends who have been through the process that I fell well supported. Thanks for your thoughts.

    With the genetic test results, I had mine after chemo, and so they weren't taken into account for the treatment plan. They are of interest to family, though. And my results were ambivalent, so that was further a confusion. Keep us posted.


  • cliff
    cliff Member Posts: 290
    edited February 2017

    I should ask my doctor if he has ever seen male breast cancer before, he sure got things going, only 2 weeks from "hey doc, whats this? it kinda hurts" to surgery. any studies around? I would gladly donate what ever they need to advance their study, unfortunately, my surgery was last april so most tissue samples are gone now. come whack off a hunk, it seems everyone else has.

  • Traveltext
    Traveltext Member Posts: 2,089
    edited February 2017

    I believe your tissue sample could still be available. Check with your doc. The hard part is finding a study that accepts males.


  • cliff
    cliff Member Posts: 290
    edited February 2017

    a bit of discrimination there?

  • Traveltext
    Traveltext Member Posts: 2,089
    edited February 2017

    Perhaps there's just not enough of us to get most researchers out of bed :)


  • cliff
    cliff Member Posts: 290
    edited February 2017

    maybe researching an old fart like me isn't as interesting as researching the gals? I make no bones about not being very pretty.

  • Fiddleman
    Fiddleman Member Posts: 59
    edited March 2017

    I have to agree with traveltext. With only one out of every 100 cases being male, the sample size would be statistically insignificant. Nonetheless, anecdotal data do have some value. All we guys can do is hammer away at the "pink barricades" and hope we make enough noise for the gatekeepers to acknowledge our existence. The best way to help improve male survival is is to get the word out. More guys have to do self exams. Early detection is the key,

  • DallasDuck
    DallasDuck Member Posts: 11
    edited August 2017

    Agree totally. I am a 66-year-old male just out of Aug. 4 left MX operation. This has been such a shock to me and everyone around me. Many of my nephews and siblings are having trouble processing it, but I am pressing all to be aware and proactive. I am very lucky to have caught this when I did. Initially I thought it was a lipoma because I recently had one of those show up, then disappear on my thigh. It so happened that I had a routine physical scheduled the next week with my doc, who promptly ordered an MRI.

    My experience has been mixed thus far. I had little time to shop for an onc because all the testing took four weeks to lock in the dx and I wanted that thing out of my body. The onc I selected is very slow to inform me of path and test results. I have had to call incessantly, and his staff refuses to learn how to post reports to the patient portal. Either that or he is purposefully withholding. He keeps saying, "they contain a lot of science you don't need to see." Very frustrating. And I let him know it.

    I reacted badly to the anesthesia, and thank goodness that precluded me from going home the night of surgery. I promptly hemorrhaged and had to go back into surgery for repair of anicked vein and clean things out.

    I'm now more than a week out and finally got the final path report in hand after our first follow-up meeting. I still have the drain and some staples left in the wound. I go back in a week and he wants me to see a medical onc after I heal up and the drain is gone.

    Question: Did any of you with Stage 1 or less discuss having Oncotype DX or similar genomic recurrence predictive testing done with the initial path report? Seems like it should have been done in my case but the onc is telling me that is what the medical onc will do.

  • Traveltext
    Traveltext Member Posts: 2,089
    edited August 2017

    Welcome to BCO DallasDuck. Things are moving quickly for you, but at least you are on the case medically and lucky to have been diagnosed Stage I.

    Someone, I hope, will answer your Oncotype testing question.

    I've been in contact with dozens of bc guys and they mostly were diagnosed later than you, so I'd say your prognosis is excellent.

    Keep us posted as you learn your other treatment options and plans

  • DallasDuck
    DallasDuck Member Posts: 11
    edited August 2017

    Thanks, Traveltext -

    Man, have you been through the ringer. Congrats on your great attitude and fighting soul.

    I look forward to engaging with the guys on this board. It's great way for us rare birds to exchange pertinent info on this rotten disease

  • Traveltext
    Traveltext Member Posts: 2,089
    edited August 2017

    Yep, DD, we're part of an exclusive club. meet some others here: MBCC


  • momallthetime
    momallthetime Member Posts: 1,575
    edited August 2017

    I check in here because my DD has mets, she was negative for BRCA but I worry - have my son and girls. No one could tell me exactly if they should be checked or not. Most say not necessary. But Dallas Duck you have MD Anderson, they are suppose to be tops, would that not be a good place for you? The doc giving you these old fashioned answers sure sounds off to me. You have the right and even obligation to see what's what. A doc that talks like that is first putting his ego b4 your health, and is not allowing you to be proactive. You do what you gotta do. Good luck.

  • Fiddleman
    Fiddleman Member Posts: 59
    edited August 2017

    Right on, Mom... It seems to me that DD is not getting the most up to date treatment, and no physician or oncologist should be reluctant to provide info. DD, if you do not feel fully comfortable with your medical team, if you have to wait or fight to get answers this does not bode well for future post op, rad, chemo treatment. It seems you have some time now that you are healing, and perhaps should see what this oncologist says. In any case I highly recommend a second or third opinion. Find a team that feels right to you. If your gut says "wait a minute", I sugest you cut and run ASAP.

    Stage I Wow are you lucky (if there's any luck in getting this in the first place). I also suggest listening carefully to traveltext. He's "The Man" in Australian MBC. Good luck, and keep us posted.

  • DallasDuck
    DallasDuck Member Posts: 11
    edited August 2017

    Just to follow up, my BS says the MO I see 9/1 will order the genomic testing on my tumor. Apparently, the BS has gotten crossways with other MO's over the years because they wanted particular testing practices followed. Makes sense, I guess.

    From what I have read, I cannot really understand the criteria that will be used to determine whether chemo will be suggested. It appears the modern practice is to employ tamoxifen in all cases where tumor is ER+/PR+ and HER2-, even when nodes were all clear. But chemo for those with that profile is all over the place. Some have had chemo and RADS, others just chemo, then tamoxifen. Others just tamoxifen. I really don't want to do any chemo.

    Finally got the drain and last staples out Wednesday (mid-Week 3 post MX.) I am still experiencing needle-like tingles across the surgical site. BS said those will gradually dissipate as nerves regrow. I am curious if others experienced this sensation.

    It feels tight across my upper arm and through the surgical site when I raise my arm. Any advice on exercise techniques, frequency would be appreciated.

    I doubt I will be swinging a golf club any time soon.

  • Traveltext
    Traveltext Member Posts: 2,089
    edited August 2017

    DD, hold the golf clubs for many months, but start appropriate stretching exercises for your arm as soon as your wounds have healed. In my case that was a couple of months because I had a seroma to deal with. To this day, I do arm exercises (both arms for balance) which involve swinging my arms, up, down, sideways, holding a 2kg weight in each.

    As to chemo, I had no option, and luckily it was a breeze for me. Rads ditto. Just weigh up all your advice and make the decision then. In your favor is your low staging. Keep us posted.


  • Fiddleman
    Fiddleman Member Posts: 59
    edited August 2017

    Hi DD. Sorry you're having such confusion around treatment options. Like Traveltext, I had no choice. If my nodes had been clear and there were no mets, I most likely would have had just rads (depending on the size tumor margins) and Tamoxifen (double negative). I was hoping to avoid the rads but, because one lymph gland had ruptured, my doc decided it was prudent. Re soreness, tingling and stiffness, these are all normal. I still have numbness around the scar. Because I had LE as well, I received (and still am) PT, both for managing the LE and to strengthen the arm and upper body. The stiffness will last until you can start breaking up any scar tissue. Dumb me, I actually tried playing my fiddle about 3 days post-op. I don't think that helped the healing process particularly, but at least knew I could still play! I agree with TT that you should go easy on exercise. Your surgeon should be able to write a scrip for PT. Any good therapist will do a full assessment of your current condition and devise a program appropriate to your situation. I would not suggest that you try anything before such an assessment They and/or your doc will give you the green light when you're ready to do 18 holes again. Good luck and I hope this helps. BTW, there is a book by Wayne Dornan called How I Survived Breast Cancer: An Inspirational Journey Of Hope And Fact. It's available on Amazon and goes through all the possible treatment options and breaks them down by staging and other factors. It's a little technical in some parts, but it really helped me understand what the hell was (and will be) happening to me.

  • DallasDuck
    DallasDuck Member Posts: 11
    edited August 2017

    Thanks, you two. I am pulling down the recommended books and getting started with exercise. I will ask about PT, but it wasn't offered by the BS, who is also an onc, supposedly. I will be shedding that guy from my team ASAP. Getting practical advice from him has been an absolute chore. Besides, he is several years older than me and unlikely to be around when / if I need more from him.

    Back with more as the MO comes with his recommendation. Also, I have been in touch with Peggy Miller and will be posting my story on that site in the coming months. Forty years as a writer / journo and I guess I will be coming out of retirement.

    I really appreciate the advice

  • Fiddleman
    Fiddleman Member Posts: 59
    edited August 2017

    Hey, DD. That's what we're here for and we're more than happy to help. Glad you find the discussions useful. Now, knowing you are the literary type, I have another book suggestion. It's a little technical, pricey and hard to get but I think it's worth the investment. Sounds like you need s much ammo as possible. It's Male Breast Cancer: Taking Control by John Boyages, MD, PhD. It's published in Sydney Australia by BC publishing. Traveltext told me about it. Some of the treatments may be slightly different, given its AU/UK focus, but it gives a LOT of insight. I Think I got it on Amazon, or perhaps eBay. Keep us posted on your progress, and feel free to send me a private message should you wish.

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