Starting Radiation August 2017

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  • illimae
    illimae Member Posts: 5,710
    edited August 2017

    Met with RO yesterday and was told no tea. Only Aquaphor and/or 100% Aloe. I hope it does the trick.

    Interesting though, that the doc's think it (its antioxidants) offer enough cell protection to possibly reduce the effectiveness of radiation. Once radiation is over, I'll add green tea to my diet and hopefully harness these benefits to protect against further progression, couldn't hurt.

  • StaceyB
    StaceyB Member Posts: 32
    edited August 2017

    illimae - I was told the same thing. It bothers me that there is such a difference in opinion. I am going to add to my diet after radiation as well :)

  • jessiebelle
    jessiebelle Member Posts: 16
    edited August 2017

    I am going for my second treatment today. Everything was ok yesterday, I felt a few twinges last night but this morning my breast felt was normal. I did bring the baggie with cotton pads soaked in green tea and I will try that after treatment today. I am glad that for the last couple of years I have purchased bras without underwire when I could find them as it is much more comfortable for me. Thinking of you and wish you all speedy healing.

  • Littleone1
    Littleone1 Member Posts: 14
    edited August 2017

    I was also told no green tea and nothing that isn't on the approved list they gave me. I go for my simulation tomorrow and my first treatment Monday. The msg they sent me said that people that get my form of treatment find fatigue pretty minor. Are they trying to psych me out? Lol hoping what they say is true.

  • Castigame
    Castigame Member Posts: 752
    edited August 2017

    well 10 out of 30 (or 29) done.

    I feel my body temp is up. Feeling more tired and yucky. Glad tomorrw is Friday and I just have PT.

    Gonna crash very early tonight.

    Mimi

  • Bmac16
    Bmac16 Member Posts: 36
    edited August 2017

    Hi Ladies

    I'm moving over from the weekly Taxol thread. Had last chemo on July 19 and started radiation this week. Interested in the green tea. Will ask my RO when I see her.

  • illimae
    illimae Member Posts: 5,710
    edited August 2017

    Day 1 done and I didn't realize it started until it was almost over, I thought they were just trying to get the position right still. Had PT after, I've got a lot of work to do. My drain was in so long it delayed my recovery, oh well, I'm just happy to move forward.

    Thanks for all the updates rebamacfan123, I'm using them as a guide of what's to come, it's so helpful.

  • pollicakes
    pollicakes Member Posts: 28
    edited August 2017

    Hope you are doing well shocked.  I did my 2nd treatment today.  My breast is a bit pink, but I also started radiation with a trace of cellulitis that I had completed 2 rounds of antibiotics for.  It looks like the radiation may be "irritating" it a bit.  Not a big deal at all...so far.  I am doing the green tea, several times a day.  I also put aloe on and aquafor.  I put a bit of Calendula gel on also and the little bit of pink mostly goes away.  So far so good, 14 more to go. 

  • LeesaD
    LeesaD Member Posts: 383
    edited August 2017
    7 down 17 to go. So far so good. Skin is good. Advanced Lubriderm immediately after treatments in dressing room and Aquaphor at night. Met with RO today and she said skin is great! Have been able to run every morning and did two miles today which is the first time I've done that distance since last chemo treatment so I was pleased today with myself. Finding radiation almost a reprieve after chemo if that makes any sense.

    Someone had mentioned the Pallas trial. My cancer center is participating in that trial. My MO mentioned it to me at one of our earliest meetings and said I might be eligible if it's not filled up by the time I compete radiation. I've seen a thread or two on here dedicated to it so if you need more info do a search for it and it will come up. I think more than a few members of this forum are participating in it.
  • vixxyn
    vixxyn Member Posts: 45
    edited August 2017

    Whew! 3 down, 22 to go. Still no pinkness or fatigue (knock on wood ... lol), but I'm pretty fair skinned and if I go out in the sun I don't so much tan as get rare, medium or well done, so I'm kinda nervous about that. But it is what it is, and worrying won't help. If I get irritation I'll deal with it, and until I do I'm not losing sleep over it. And who knows? I may get lucky and not have to deal with it at all!

    I love all you strong women here. Together we can beat this!


  • ShockedAt48
    ShockedAt48 Member Posts: 138
    edited August 2017

    HapB: I also spoke to my RO about pain where my bra hits under my arm and he thinks it's entirely unrelated to radiation treatment even though it only happens when I get treatments. He said it's probably an injury from when I had surgery. I don't believe him either.

    I am on my sixth treatment and my nipple pain started after my fifth treatment. It was horrible at work today, it feels like I have rope burn on my nipple. My lumpectomy scar is around the aeorele, perhaps that's contributing to the irritation. My breast is swollen and red but not painful. I am afraid that it will become unbearable since I have 9 more sessions. This is an odd question I want to ask. I had to immediately stop taking my birth control pills after my diagnosis. After that my nipples have stayed erect and have become sensitive to touch. I thought maybe I was pregnant and took a test and it was negative. Has anyone experienced this? It is quite odd and I believe has also contributed to my soreness during radiation




  • bareclaws
    bareclaws Member Posts: 345
    edited August 2017

    LeesaD, I'm so happy to hear that you're still running through rads! I am up at 4:30 to get in a run in the dark before I head out to my own rad and Herceptin treatments this morning. I may not be able to do anything else the rest of the day, but I WILL do that.

  • LeesaD
    LeesaD Member Posts: 383
    edited August 2017
    bareclaws- Wow 4:30?! Good for YOU!! That's awesome! I'm same way with getting the exercise in before treatment every day. It definitely sets me up mentally for the day!
  • illimae
    illimae Member Posts: 5,710
    edited August 2017

    Shocked, my nipples are extra sensitive and erect often too, I read that this is somewhat common after surgery due to the nerves in the area and that it typically goes back to normal after a few months. I sure hope so because I don't want extra attention at work nor do I want to add many layers of clothing in August in Texas, ugh.

  • TWills
    TWills Member Posts: 679
    edited August 2017

    Just finished my second week, 10 of 33 maybe 35 to go. So far so good. Slightly tanned still and it didn't get any worse this week. I finally asked today why they put a warm damp towel over the treated area and they said it's a bolous(sp) and it brings the radiation closer to the skin. I have expanders so that's probably why. She said I will have more skin irritation because of the bolous, great! I asked the Dr again about wiping down with green tea and he said it was ok. He looked at me as if to say "been on the internet huh?" He said it takes lead to block radiation. He reminded me to keep moisturized, especially on the collar bone. I think all of the things we are using can help, however, we're talking about radiation here so probably only helps minimally. I'll take it though. I'm using calendula ointment on the weekends, just don't feel like I can get that stuff off with one shower so I don't use it during the week.

    Wishing everyone good luck and healing!!

  • bareclaws
    bareclaws Member Posts: 345
    edited August 2017

    I got four more tattoo dots today (six total), due to my complaining about the Sharpie road map on my chest. Not a great fashion statement when wearing a tank top. In fact, my last words to breast surgeon before my BMX, were "tank top". No one notices my lack of breasts, but they wonder if my grandkids have been drawing on my chest.

    Oops, seven dots. I have so many moles and freckles that it's hard to tell.


  • Littleone1
    Littleone1 Member Posts: 14
    edited August 2017

    Went for the trial run today. It seemed to go well. Officially start Monday. Still nervous but handling it a little bit better. I have my aveeno eczema and calendula cream ready to go. My SNB site is not happy with the positioning of my arm and I am still somewhat sore and numb from that surgery which was May 30! I certainly hope that pain goes away at some point. Patients at the office were all so nice to me. It was kind of like a club...a radiation club. I was very relieved to see such nice ppl before I went in. Hoping Monday morning goes well. Nervous.

  • MickeyB17
    MickeyB17 Member Posts: 117
    edited August 2017

    Hello Ladies - I am halfway through - very fair skin - never had a tan in my life. Started getting irritation under the arm where node surgery was. I had ignored putting any cream there because didn't realize rads were hitting there. Anyhow, started cutting a piece of my aloe plant and I apply the liquid directly on my skin after treatment. Works beautifully. Also cover with aquaphor. Do feel tired - though when I push to exercise - run 2-3 miles and use weights - the fatigue does improve.Find these discussion groups inspiring me to push through.

  • Castigame
    Castigame Member Posts: 752
    edited August 2017

    I second power of Aloe!! I am only using aloe and Eucerin lotion.

    Panicked briefly bc I ran out of aloe gel. Debated reordering the same bc of price. Decided I should go w proven product. Amazon is delivering it within 36 hrs from my order! And I found out there is Aloe plant in my front yard!

    Anyway, more tired. Sudden sleep comes over. No appetite. Lymphedema is slightly worse.

    Mimi

  • inccmd
    inccmd Member Posts: 69
    edited August 2017

    I'm loving my aloe plant. When I cut a piece and open it up and put it on my skin, it feels absolutely wonderful. Am using green tea and Aquaphor too. Almost 1/2 through, and doing pretty well. I still can't wait until it's over - guess we all belong to that club.

    Trying not to get my bras too gunky although I'll probably trash them when I am done, so would you believe I bought nursing pads? I was thinking what barrier could I put so I could load up on cream on the nipple without greasing through to my shirt.

  • CTJ1108
    CTJ1108 Member Posts: 5
    edited August 2017

    Started my radiation on Aug 8th and have had 4 treatments so far. No skin effects or fatigue. Since 20 days (4 wks) of tmt- that means I am 1/5 of the way done!

    My rad onc suggested using a cream called Udder cream 2-3 times a day. Works fine.

    I was supposed to start on Aug 2nd but had to wait a week because I got a very itchy and red rash on my L breast- which no one knew what it was. Punch biopsy was negative, some skin discoloration as it has gone away- so will see if going into radiation with that issue confounds side effects. Has anyone else gotten a mystery rash (before radiation of all things!).

    I go in for a 7:15am appt each day- which gets me up and out of the house early- and to work just in time! They also valet park- and my most therapeutic thing in my whole journey is this smiling and positive valet guy! What a gift!


  • CTJ1108
    CTJ1108 Member Posts: 5
    edited August 2017

    BTW- I had rotator cuff surgery back in October 2016, so was worried about having my arm up so high (doesn't like it up there) but after the initial mapping and first appt- the session is so short- does NOT bother that shoulder. So if you are starting and worried about the shoulder joint- if I can do it- you can do it! Not a problem!

  • Tappermom383
    Tappermom383 Member Posts: 643
    edited August 2017

    CTJ - I have a jar of udder cream that is great for the dry skin on my legs. I didn't tell my RO but I used it on my breast and it felt great!

    MJ

  • ShockedAt48
    ShockedAt48 Member Posts: 138
    edited August 2017

    CTJ1108: I developed red, hot lumps on my healthy breast after my lumpectomy surgery that were as painful as the surgery sites. It took a month for them to go away. No one knew what they were. I also had hives from the surgical prep. Overall, pretty miserable after surgery. I was thinking perhaps my lumps were swollen lymph nodes trying to deal with the allergic reaction and the assault to my sentinel lymph nodes as well.

  • ShockedAt48
    ShockedAt48 Member Posts: 138
    edited August 2017

    I have finished 7 days of radiation and I noticed my incision was getting redder. I have noticed a sharp edge that I thought was a scab forming but I looked at it and it appears to be a stitch. I know I had two layers of stiches for my SNB but I thought they were dissolvable. Should I try to pull it out? I don't want any open area to be exposed to radiation

  • Goofycat
    Goofycat Member Posts: 39
    edited August 2017

    ShockedAt48 - no don't pull out. If it is meant to come out before your next treatment it will. Otherwise, have doctor look at.

    My incisions look redder, too, after 5 days of radiation and I feel a tugging sensation in them.

    I hope the remaining treatments go well for you.

  • capnskid
    capnskid Member Posts: 1
    edited August 2017

    Hello and thanks to all of you for posting your experiences and advice. I start 7 weeks of radiation tomorrow. I have my green tea and emu oil (thank you llama lady) and as several of you have mentioned, I'm glad to be getting this show on the road. Tomorrow, I've been told will be a longer day and I'm a little concerned about discomfort due to remaining cording in my left arm. But itsbetter than it was, so hopefully it won't be too bad.

    Have any of you used the green tea through 7 or more weeks of radiation? We're the results still as good as llama lady described?

  • pollicakes
    pollicakes Member Posts: 28
    edited August 2017

    hi cap, I just finished my first week of radiation.  I was very surprised on my first visit, it actually went very quickly for the setup.  The actual treatment sessions also go very quickly, there is nothing to feel.  I am using green tea, it feels wonderful, but I haven't been in treatment long enough to see the effects through to the end.  I also mix aloe vera gel with a few drops of organic calendula oil at night, that is wonderful also.  I haven't had any discomfort yet in any session, like I said, they are really quick.  I did run to Walmart and buy about 10 all cotton cami shirt, I live in them now, they are very comfortable against my skin !!  And for $2.00 each, they are the best.  I hope you get a good night sleep tonight, I know its hard not knowing. 

  • Castigame
    Castigame Member Posts: 752
    edited August 2017

    battled warm upper body as well as general uncomfortable feeling all wknd. Did absolutely nothing yesterday.

    On a diff note, I got pissed off at my neighbor yesterday. Their teenager borrowed pool key at least two wks ago. My hubby asked for it in front of her mother. Mother only shook her head. No return. Few days ago, hubby mentioned "returning your plate for the pool key" nothing. We face each other's townhome btw. I rang the bell three times patiently. Father answered. I said" hello , Can I have my pool key back?" He must felt something bc he said i forgot to tell her. I just walked away by saying you know where to ask. We dogsat their dog for a week even during chemo. Hubby said bad upbringing on parents part and they probably thought I am not able to the pool anyway. Anyway I see it it was wrong.

    Mimi

    p.s. I used to swim for hrs at a time. I really miss it


  • CharleeCat
    CharleeCat Member Posts: 8
    edited August 2017

    Hi Everyone!

    I got a great surprise at my appointment on Friday! I thought that I was having the 6 week treatment, but I'm actually in the accelerated program! As of today, I have done 10 treatments, and I only have 6 to go. I have been using the green tea everyday and I use coconut oil as well. My BS told me that coconut oil works best. I put a drop of lavender oil in at night. I only have some minor pinkness on my breastbone. No other symptoms. So, I am pretty happy. And so is my RO! We got an elliptical this weekend. My husband is going to put it together today - so I can start using it. I have been experiencing some minor fatigue, and I think that will help. My RO said the way to combat fatigue is to exercise!


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