Here I am
Good morning. I'm still in shock, so this won't be my best post, but I have to start somewhere. I'm not very good with the internet and forums, but I'm even worse at being told I not only have cancer, but that I'm going to lose my breast and go through chemo that will make me sick and make me lose my hair, eyebrows and eyelashes.
I can't even remember all the details of my dx. My sister was with me and I have a bunch of papers the dr gave me, but I can't read and retain information yet. I know I'm stage one, but it's aggressive, with a 93 or 98% di67 or something like that. I'm 5% each of the two things that I think mean I'm positive, but essentially negative since the numbers are so low and my (maybe) her2 number actually got better during my meeting with the dr, as they updated the results. I'm not sure what those numbers were, but she said the update meant maybe just 1-2 chemo meds instead of 2-3.
I'm sorry I don't have the specific info yet. In the midst of all this I'm selling my house and building a new house and I'll end up having no home for about a month between having to be out of this one (I'm renting it back until October 1) and the new one being ready. I'll stay with my sister, but I won't have my own space and I'll probably be doing chemo by then I suppose. The new owners came through yesterday for their final walk through, so I gave my daughter my bag of info to take to her house so they wouldn't see it, not that I'd understand what's written on my reports anyway.
Right now I'm not even sure what my main concerns are other than not dying (the dr said my survival rate is high, but I'm afraid of surgery etc), and looking disfigured and sick (I truly don't mean to insult or hurt anyone as I know others look like I don't want to look) and feeling sick and weak and becoming depressed (I feel like I am right now) and being uncertain and dazed. I'd like to be able too see pictures of mastectomies and reconstruction and get recommendations if there are others in the Maryland area. Also I'm really worried about eyelashes and eyebrows because my eyebrows are a significant part of my face, being thick and full, as are my lashes. I know it's superficial, but there it is.
I'm long term legally separated so I have health insurance through him, but he mentioned finalizing the divorce recently. I think my daughter talked him out of that for the time being, but who knows. He was emotionally abusive and cheated repeatedly during our marriage, so my self esteem and sense of being enough of a woman is pretty damaged from that. I worked hard for years to overcome the effects of a horrible marriage and had only recently started trying online dating. This will end that forever.
I'm normally an intelligent, funny, kind, caring and even attractive woman with a lot going for me. I feel like a burden to my sister and my kidsnow already and the worst hasn't even started.
I hope I'm not too negative. I truly don't want to make anyone else feel worse. I'm just lower and more afraid and feel more alone than I think I ever have been.
Thank you in advance for any help or advice or guidance you can offer. Oh, and I'm trying to line up a second opinion. Not that I expect it to be different, but just because cutting my breast off is so significant that I want to know that it's really the best option for me.
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A second opinion is a great idea to start. Even if the info and recommendations are the same - it will give you some peace and allow you to process it more. Being in Maryland gives you a lot of top notch choices. Johns Hopkins is highly rated and Frederick Memorial is now associated with MD Anderson.
Have you already met with a medical oncologist (MO)? They will determine the need for chemo and the best choices. You will probably need further testing if not done already. An MRI can show both breasts and some nodes. In some cases, chemo is given before surgery to shrink the tumor and may make lumpectomy an option.
Not everyone loses eyebrows and eyelashes, either. It depends on the chemo and the person. Most do lose their hair so seeing someone about a wig (if you think you'd like one) before chemo starts is a good idea. They can help match color and style.
All of these things are overwhelming right now and that's normal. Fear is a common emotion. Try to breathe. Information sometimes both helps and hurts - maybe a little at a time is good. It's a steep learning curve of stuff you wish you never had to know.
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Thank you for responding. I saw a dr at Mercy in Baltimore. I had an MRI a few days ago, then we met to discuss options. I'm meeting with a plastic surgeon and genetic counselor next week at Mercy. I live in western MD so I'm trying to get in with someone there and will do chemo and radiation (if it's needed) locally. I have a friend that worked at the local cancer center for years. She
Apparently mine is small but aggressive with tentacles so anlumpectomy would likely leave me with a "hole" in my breast, plus I have saline implants and the tumor is close to it. If I have a lumpectomy, I'll definitely need radiation which will likely cause issues with the implant.
Funny, I got implants so I could feel normal, like people didn't always notice that I had such tiny droopy breasts and now this...
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You may want to have treatment closer to home, but it would be worth a trip to a major research/teaching facility for a 2nd opinion. NotVEryBrave is right to recommend an NCI hospital
http://www.hopkinsmedicine.org/breast_center/team_...
Remember, surgeons cut. Make sure you see a medical oncologist before you make any decisions. Often times now chemo may come before surgery. Especially if you are HER2 positive (and that's a good thing in terms of treatment possibilities) Those decisions should be made by a medical oncologist working with your surgeon. Also if you're considering reconstruction, you need to meet with a Plastic Surgeon now.
Got it about the brows. I figured I could live w/o lashes & hair on my head, but NOT brows. I used Latisse on my lashes & brows. It was expensive, but worked well for me. Eyebrows got kind of thin but I never lost them. Several women got tatooed brows. You can work around anything.
When you get a chance, go to My Profile and post the details about your diagnosis and treatment plans so far. Make sure you check "public" so we can see your specs. Hang in there.
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LovesToFly (Jill) has a YouTube tutorial about eye makeup during chemo—how to build brows from scratch and use shadows & liner to compensate for a lack of lashes.
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hi brightness, sorry u are going through this. Once your docs have given u more info and a treatment plan you will feel a little better. Use castor oil for lashes and brows. And if your interested you can cold cap to save your hair. It's pricey but you won't go bald. I lost 50% so I never went bald and it helped me cope with not looking sick. Good luck. You can do this.
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Soon you will pick up the lingo like a pro and unfortunately learn all about your type of cancer.
It all begins to make since what the docs are talking about but right this moment sounds like you are too anxious to retain and the best thing taking your sister with you. Most of us felt exactly like you do so don't be hard on yourself.
Maybe a lumpectomy will be an option for you and not have to have the disfigurement you are concerned with, as many of us were. But, let me say that loads of ladies say they just want their breasts removed to get rid of as much as they can immediately.....and these days get blow back from the surgeons who push for lumpectomy. They will be your decision based on what you feel is best for you. I personally opted to go flat, and then a year later decided on reconstruction. Probably not the best decision I ever made waiting a year,but it has worked out ok.
There is a very good thread on here that shows different types of mastectomy before and after and lumpectomy. Do a search and follow directions and it will let you look at the pictures. There is also a thread, maybe the same one in which a lot of information is given about types of reconstruction and what size and types there are.
Your oncologist will be your lifeline, so get one you feel very comfortable asking questions to. In an earlier post it was recommended to see medical oncologist first before any surgery .....very important.
All of this seems insurmountable right now, but it gets better and the fear is controlled once you have a plan in place. Keep that insurance in place, you don't want to have to deal with that on top of everything else.
It sounds as though you may have her2 which you will read onDr Goggle is very aggressive and the worst possible type. Those are old statistics. Since the drugs Herceptin and Perjeta have now been in use up to 15 years in some cases, her2 has become extremely treatable.
Learn now to blow off kind intentions of those wanting to give you asparagus cures, or stories of uncles cab drivers 3rd cousin who had this and healed it by drinking some weird mixture or died immediately. People tell you the dumbest things.
The education on here is great and there are some very smart women who will pop in and give advice when asked and always be supportive. You have a lot ahead of you just with the move ahead, much less cancer.
I didn't mean to be long winded, just wanted to give you some kind words and support, and maybe ease your mind.
Brenda E
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I think she said something about herceptin and/or perjeta after she saw the updated test results. She was very pleased to see the test results on the last number, which I'm pretty sure was her2 had changed.I've got to pull out the paperwork. I asked for a copy of the pathology report so that will help me fill in a lot of blanks here. She gave me a whole bag with a notebook and packets and I simply couldn't deal with it.
I really don't understand this language yet. After reading the responses I realized the first dr is a surgeon, but the second opinion will be a medical oncologist. I didn't realize there was a difference and that was just a lucky coincidence. I'm very confused and afraid still. Chemo aside, just surgery scares me badly.
I appreciate everyone's input more than I can say. I'm just so overwhelmed and terrified that I feel paralyzed. I'm really not sure I'll survive this.
And I'll be alone through it. I mean, my sister is wonderful and my poor frightened children are supporting me as much as they can, but in the end, when I wake up heaving and sobbing in the night, I'm alone. I can vaguely imagine how one might survive this with a loving partner, but the alone factor putsthe final nail in the coffin of hopelessness for me.
Then again, as I was scanning the forum late last night I saw a thread titled "going through chemo while homeless" or something like that. If someone can do that, it seems wrong to complain about what I'm facing. I feel like I'm just not me right now.
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No - a breast surgeon (BS) is the doc who cuts out the cancer. You may want to get second opinions from more than one.
A plastic surgeon (PS) is a doc who does reconstruction. That's the one who makes it 'look good'.
A medical oncologist (MO) is the doc who 'runs the bus' in terms of treatment if you have chemo & likely if you're ER/PR positive or HER2positive. You can consult two or more of those.
Brightness, you can do this. I am "alone" - meaning I do have have a loving partner. I have a grown son who lives in another state & a useless brother who also lives in another state. I went through 5 surgeries, all the testing, chemo, rads etc. by myself. My son came for 2-3 days for the three major surgeries, because they won't let you leave the hospital alone & to make sure I was up & moving again. Yes, I have good friends who helped with errands & food. Otherwise, I drove my self to chemo all except the first time when they give you Benedryl. I drove myself to rads every day for 5 weeks.
Once you know more about your diagnosis and have a treatment plan in place, it really does get easier. Sounds counter intuitive, but it is true. We know you are worried, but you'll get through this.
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By the way, if you really can't stop crying, call your PCP or your GYN and get some anxiety medication. There's no shame is taking meds for awhile with this shock & diagnosis.
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Hi Brightness, so sorry you find yourself here. This is also my first post but I've been lurking and reading here for a few weeks. I was diagnosed about 6 weeks ago with bilateral breast cancer. At first, it was terrifying and awful and I felt hopeless. As the weeks have passed, I've learned that effective breast cancer treatments are available. Reading the stories of those who've gone before me gives me hope.
I am being treated at Mercy. I will have bilateral mastectomies with immediate reconstruction there this Wednesday, 7/12. Although I am very, very nervous about my upcoming surgery, I have found my surgeon, plastic surgeon, nurse navigator, PT, and everyone else I have met at Mercy to be kind, supportive and knowledgeable. We are fortunate in Maryland to have a wealth of high quality medical care available. I was able to get opinions at two top-notch breast cancer treatment centers in Baltimore before deciding on Mercy. Wishing you peace and courage on your journey.
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I finally read my pathology report and my sisters notes from our meeting. Unfortunately it still doesn't make much sense and didn't fit some of the questions in the dx part of the profile. So here are my numbers per what I understand:
IDC
Stage 1
Grade 3
ER <5%
PR <5%
Her2 positive after fish analysis was updated (the dr seemed pleased that its positive. Does that make sense?
KI67 96.3% (I think this number indicates aggressiveness)
The sad thing is I'm taking such baby steps that just figuring out that much feels like a win.
Oh reesey, thank you so much for telling me about your experience with mercy. Did you see a MO there? I'm still confused by that. Dr Bedi is, I think, a BS, but maybe I'm not understanding correctly. (I hope it's okay to use a doctors name here. If not, I'm sorry).
I want to say thank you again to everyone who has given me input so far. I'm normally an intelligent, capable woman who takes charge of things, but with this I feel paralyzed and broken, so truly, I appreciate your help.
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Yes it makes sense that your doc was pleased by the HER2+ results, especially since you are ER/PR negative. That means there are treatment options for you with Herceptin & perhaps Perjeta and you will need an oncologist.
Is this your doc? If so, yes she is a surgeon.
https://mdmercy.com/centers-of-excellence/womens-h...
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Yes, Dr Bedi is a BS. I won't see a MO until after surgery as my pathology indicates surgery first, then adjunct treatment decisions based on final pathology. It's the pathology that drives the treatment plan and the sequence of when and what treatments proceed, as I understand it. Deb, the nurse navigator at Mercy's breast center, is awesome and I'm sure she will be glad to help you with questions if you reach out to her. She's a BC survivor herself. Her card with her contact information is in the front of the binder in the bag that you got at your first appointment or PM me and I'll send it to you.
You are still that intelligent and capable woman. It will get better.
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Yes, that is her. She said surgery first, then chemo, then radiation if needed, then the herceptin &/or perjeta. I'm working on getting a consult with a MO locally. My trusted friend who works in oncology said this dr is really good and just happens to have a few openings so I called right away. They are currently reviewing my info.
Next week I meet with a genetic counselor and the plastic surgeon to discuss options, although it sounds like mastectomy would be more successful than a lumpectomy for me. I'm afraid of surviving surgery and I'm afraid of enduring chemo.
I wandered around the forum a bit today to read about herceptin and perjeta side effects. I also texted with my boss, as I'm not sure I can keep working given the fact that my brain is barely functioning and I cry at random times. It's only part time and really a pleasant job. My boss said they'd be flexible and supportive. I think she doesn't want me to quit. I just feel so hopeless. Someone here said I'll find a new routine though. I want to believe that's true and that I'll be okay.
I'm normally such a positive, uplifting person. I'm the person that cares for others. I was just starting to try dating again. I'm building a new house. Things were falling nicely into place finally after several years of sadness. Now this...
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And it still will. This is the worst of it, the waiting, getting the appts set up, meeting the drs. When all you want is to be done with it yesterday. Now you are starting to have it come together, baby steps, yes.
There will be tests, appointments, get a calendar to keep track of when you are supposed to be where. Ask you PCP for anxiety meds for short term use. Nothing to be ashamed of there.
I'm 5 years out from treatment. Doing fine. This is the best place to be fo support, you can do it
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Yes, if you’re ER/PR-, HER2+ is a good thing—it means the targeted therapies Herceptin & Perjeta are additional “weapons” to the chemo you will need, and you won’t need the long-term daily anti-estrogen meds that we ER/PR+ patients have to endure for 5-10 years. ER/PR- always means chemo (unless it’s DCIS or, like one or two older sisters here, you’re willing to have a BMX and cross your fingers, on the ground that you’re old enough to outlive the chance of recurrence).
But surgeons do not “push” lumpectomy out of self-interest. They can charge much more for mastectomies, which often require at least an overnight hospital stay, drain management, and more followup appointments. My surgeon gave me a choice, laying out all the options & stats as well as having me watch a “decision-tree” video presentation. She was a pioneer in skin-and-nipple-sparing mastectomy, but was pleased that I opted for lumpectomy instead. And she did a skillful job of preserving my breast’s contours & hiding the scar.
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Brightness - if your boss is willing to work with you, I would keep the part time job for now. It will give you something to focus on besides the waiting. And really - call your PCP or you GYN and get a prescription for either depression or anxiety depending on what they think. There is no reason to suffer so much mental anguish without help.
Also, do talk to the MO before surgery. If you are HER2 Positive, the usual order of things now is chemo first with Herceptin & possibly Perjeta. Those drugs are life savers.
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Regardless of size of tumor or surgical plans, HER2 positive is pretty much always chemo first with Herceptin added as well. Perjeta is added if the tumor size is >2 cm. So seeing one or two MO's early on is important.
Lots of MD's "push" lumpectomies these days - it's just part of the swinging pendulum and what's perceived to be better even though survival rates are the same. However - it's never just mastectomy vs lumpectomy. You have to also consider radiation which is always recommended with lumpectomy and sometimes needed with mastectomy.
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Thankfully I'm out of the fog enough to hear a bit of what you are all saying. The BS may have been saying surgery first because the original report said her2 negative. The report got updated with the fish thing sometime during our appointment. Nonetheless, I appreciate knowing this so when I meet with the MO I'll see what she recommends and why.
I got together with some friends privately last night. One of my friends also has cancer, but for some reason I can't remember if it's breast or lung. I even took her to several treatments and appointments, but I just can't remember. Anyway, she's going to knit me a knitted knocker for my bra and make an ouch pack that her sister, who also has cancer, used to cushion her breast post mastectomy (MX?).
I think I'll talk with her and one other friend who has a friend that had breast cancer alone so they can give me ideas and information.Someone here mentioned getting a calendar. I think I'll get a calendar/notebook combo to keep track of things.
I'm still so afraid, but at least I'm not in the fog for now. I'm trying to remember to breathe deeply and hold my shoulders back and head up. I've heard attitude goes a long way. Still, this is not how I envisioned my fresh start. I thought I'd be selling my,house, moving into my new house and could start traveling again and doing more fun things. Instead I'll be healing, emotionally and physically from losing a breast and my hair, and that's if I live through surgery, which really scares me.
Okay, so that burst of positivity didn't last through a whole post, but at least it existed for a few seconds...
This gets easier, right?
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What is it about surgery that scares you so much? Other health issues? Talk to your BS about them.
Your plans are on hold for now, you will pick up after treatment and enjoy your plans.
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Brightness - well 3/4 of a positive post is spectacular. Good idea to talk to your two friends who have been through cancer. You can do this. I started traveling again only one year after all treatment. I don't lift a suitcase into the overhead compartment anymore, and probably I'll never consider a marathon or scaling Everest, but I have had some lovely trips.
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I got together with some friends (one currently has ca in the lungs that is mets from the uterus and the other had a friend go through breast ca) today and went to the health food store and picked up some things to help with constipation, which has been an issue and apparently can get much worse after surgery and during chemo.
I cried some and was able to laugh a little, then napped a bit before waking up in a panic again. I don't want to accept that this is my reality.
I was able to make a basic list of questions for when I meet with the MO. My daughters close friend is a nurse locally and she asked around and was told this MO is wonderful, so that's two recommendations from people on the inside. Hopefully her office will call in the morning about getting in to see her.
Someone asked why I'm afraid of surgery. Isn't everyone though? They will put me to sleep with anesthesia and cut a piece of my body away. Aside from the horror of that, so many things can go wrong. Do you simply become immune to that because of all of this?
I think I'm going to at least ask about a local BS and PS. I know Mercy has a good reputation (at least I think so) and I live in a more rural area, but I figure it can't hurt to ask and I'd love to stay local if I can.
I have a million papers to fill out before I meet with the genetic counselor and the PS, yet just a little effort and I shut down.
This place has been a lifeline during a terrifying time. Thank you and please keep guiding and offering insight. It really helps me.
Have I missed any relevant questions that have been asked? Also, why don't I hear more about the KI67 number here? I got the feeling that's significant. Mine is 96%.
My friend said the shock will eventually subside and once a plan is in place and a routine is found, I'll start to feel normal again. To me, that just sounds more terrifying. I'm tired of being afraid.
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Brightness, I'm glad you have friends in real life to walk through this with you, in addition to the support here. You're in the worst position right now--just a little bit of knowledge and no firm treatment plan. I know I was a hot mess for the first 2 months, until I had the surgeries behind me and visits to two oncologists.
As for being afraid of surgery, I'd say that's a big concern for everyone, especially if you've never had surgery before and don't know how this all goes down. I remember my first surgery, years and years ago. I'm a nurse, but surgery isn't my field. I was terrified--and it wasn't even cancer! The morning of surgery I was absolutely panic-stricken. Thankfully, my surgeon was understanding. He sat down with me and listened to my fears. Once I found my voice, I realized that my real fear was that I wouldn't wake up. So he went and got the anesthesiologist and HE sat down and explained everything that he does, how he gives the meds, how he would monitor me during the procedure, how he wakes me up. He was very concerned that I not feel pain or suffer nausea needlessly. And then he told me something that changed my way of thinking about surgery: He told me that he gives anesthesia to 4-5 people per day, 5-6 days a week. That includes children having their tonsils removed, women having hysterectomies, old ladies having their bunions repaired, and middle aged men having a heart valve replaced. For some reason, that was very comforting to me to hear that even babies and old people were safe in his hands. I asked him if I could have something to help me with the anxiety and he immediately gave me something through my IV. It didn't put me out, but it calmed me down considerably so I wasn't so hysterical anymore.
Since that day I have had at least 10 other surgeries. Not even kidding. I've had everything from gall bladder to knee joint replacement to BMX. In every instance I go in telling the nurses that I am nervous and I'm going to need something for the anxiety ASAP. I find that the pre-op nurses and doctors are very conscientious about making sure my questions are answered. They work together to keep things calm, keep me physically warm, and talk to me every step of the way. It makes me feel like I have some measure of control. I have a ton of respect for these nurses and doctors, because you know they do this all day, every day and they never seem to forget that its YOUR surgery experience.
Your friends are right--you probably will feel more in control once you get a plan in place. Until then, you might want to talk to your doctor about getting something to help you with the anxiety. Lots of us find that we need a little pharmaceutical help during this time.
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Thank you for the advice about anti anxiety meds. That will definitely help. I'm so afraid of dying and leaving my children to deal with all the upheaval I'm currently experiencing in my life in addition to grieving. I'm not good at being a burden. I'm always the one helping others. I feel like it's yet another piece of who I was being cut away from me.
Mornings are hard. There is no one sharing my bed, holding me when I awaken in the night deep in the grip of panic and overwhelming sadness, so by the time I finally actually get up, I feel like I'm drowning in the fear and hopelessness of what is happening to me. Ironically, it makes death not seem so bad if it weren't for my loved ones and the sadness they'd have to endure. I'm not suicidal. My sense of obligation and responsibility is far too strong for that. Still, I have realized the strong faith that carried me through a painful marriage and a brave rebuilding of my life is pretty much worthless now. I prayed nearly every day for years that God would save my marriage, that He would show me what to do, yet my husband was extremely emotionally abusive and unfaithful and ultimately chose the other woman. I was just getting my life back. I finally had hope for my future. And now this. And I prayed and prayed that it wouldn't be cancer, then that it would be an easy fix. Now I don't pray. I tried hard for years to be an example of Christ's love and goodness to others. What's the point though?
Anyway, sorry for the negative post. Mornings are really hard. Can anyone promise this gets easier and there is hope eventually?
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Maybe a few sessions with an oncology therapist would help? Life has handed you some setbacks, a therapist could help you deal with these.
Nobody can promise what you want. We can only tell you how we deal with this. The large majority of us go on with happy lives. Even those who have progression hang around here.
It is hard to believe that once your treatment plan is in place and started that it DOES get better. So keep making those plans for your new house.
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I really am sorry if anyone is reading my posts and it makes them sad. I don't want to make this horrid journey worse for anyone.
My boss guilted me into coming to work a bit in the morning. I hate her right now. I don't care about that stupid little job. Maybe I'll appreciate it someday, but right now I hate it.
I got an appointment with the MO for next week. The girl who called feommthe office said they normally don't see anyone until after their surgery, but since I requested it, she will see me. She confirmed I'm her2 positive with negative ER/PR, but said they'll start chemo after surgery. I thought I'd read here that some do chemo first...
I have a counselor. I see her Thursday. I feel like I need one who lives with me though, I'm such a mess. My children say I have to be strong and positive, blah, blah, blah. No one hears me when I say I don't think I can do this. They only say I must. I got implants after my ex had several affairs years ago. It had always bothered me that I was so small and droopy. I didn't want to be "look at me" huge, just normal, so people didn't stare at how small I was. Now this. I'm afraid I'll die in surgery, but I'm also afraid they won't be able to make me have any shape and I'll feel disfigured forever. Again, I'm not trying to say anyone else is disfigured etc. I'm just expressing fears. A friend confided she has a prolapsed bladder and pointed out that I never knew in all these years that she struggles with it. Her point was that people may have all kinds of issues, but they appear perfectly normal on the outside. That seems like a good point.
I told my builder what's going on with me and that having to move only once would be quite helpful. Still, if the new house isn't ready when I have to be out of this one, I'll end up moving twice during this health ordeal.
I'm going to call the BS office in the morning to discuss setting up a date for the surgery. My youngest daughter is coming home in a few weeks. The kids want me to get it done then so she can help me recover. I want to wait 20 or so years.....
We're other people as afraid and panicked as I am?
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You don’t have to be strong! Throw that old canard out the window (and shoot it for good measure). Fall apart if necessary, you’re entitled! BUT…….
You will not die in surgery. You will not be disfigured, much less forever. But you are also not your breasts, your hair, nor your contours. Nobody stares at small-busted or even flat-chested women. Nobody notices (unless they’re shallow and competitive, and who cares what they think anyway?).
I panicked three times: first, when I got that mammo report (the very next day) mentioning a “focal asymmetry” after 19 consecutive “normal” annual reports; second, in those two weeks between ultrasound & biopsy, when I was away on business; and then the night of the next day after the biopsy when I heard the words “invasive” and “carcinoma.” (There was so much in the news about DCIS that I assumed that if the biopsy wasn’t benign, it would be no worse than DCIS). The next morning, when my gyne called me back and told me who to call for which appointments, I calmed down a little more with each appointment I made. I didn’t see an MO till after my surgery, when I had the good news about the histology, margins, and nodes; but the next 10 days until I got my OncotypeDX results and then the two weeks until my genetic tests came back were nearly as nerve-wracking as the two weeks between ultrasound and biopsy. But as each piece fell into place, and each phase of treatment was over, things got more normal.
It gets better. You’ll have your ups & downs, and you will probably have a difficult few months, maybe a year. But then you will get back to your life and one day you will get through an entire day of living without thinking “I have cancer."
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Thank you for hanging with me. I was afraid I'd scared everyone off with my negativity and neediness. I'm normally a positive, upbeat person. I don't feel like me right now. I don't want this to be my reality. Apparently my children are quite worried about my negative attitude, as they believe (and I suppose I do too to some extent) that a positive attitude will improve my outcome, but I simply can't muster up anything but fear and hopelessness. I do wish I was settled into the new house already, but that's still several months away. I read somewhere about a woman doing chemo while homeless. It makes me feel selfish and horrible, but I don't want to deny my feelings.
You mentioned histology, margins etc.. I hadn't even thought about all those things. I'm just now starting to understand what I suppose are basic details. My daughter said I shouldn't read anything here because it upsets me, but I feel like while it is hard, this is my reality and I need to slowly educate myself and hopefully slowly begin to accept and maybe even eventually take some control over my plan. I can't seem to make her understand that it will hit me much harder if I don't know what's coming my way. Yes it hurts, but it's going to hurt no matter what.
Anyway, tomorrow I meet with the genetic counselor and the plastic surgeon to discuss options.
I'm so afraid
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Oh my goodness Brightness, we've all been there! No need to worry about scaring us off!! While it sounds like your daughter is trying to look out for you, I do think that the learning curve is steep and reading about women who've had similar diagnosis but selected different treatment options will help you develop a good list of questions so you can ask more targeted questions. You will most likely be meeting with several different types of specialists (and maybe more than one of each if you want second opinions), so having an idea of what each one could do for you, and what type of info you want from them (in addition to their expert opinion about your specific risk profile and the treatment associated risk reduction) is important. If someone hasn't mentioned it yet, it is a good thing to start a binder with all of your written reports, pathology etc, to take with you. Get copies of your images on CD. Your pathology report will give you the histology and margin info. If you have questions, post the language here and we will help you.
We are "in your pocket" tomorrow. Let us know how it goes. Being afraid is ok. YOU CAN DO THIS!
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no you didn't scare me off either. What you are feeling is normal. And it's ok. Your daughter is trying to help, but is just as afraid as you.
I want to tell you about 2 BCO sisters. K was dx stage 4 immediately. During her treatment her DH said he didn't love her anymore and wanted a divorce. She took the 2 young kids and moved out. Bought a fixer upper house. Is currently on vacation in Europe with her 8 and 6 yo kids. I met her a few months ago.
Another sister, same situation but slightly older kids. She bought a house too, moving in today. Also stage 4.
There is reason for hope. These 2 are prime examples.
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