Can we have a forum for "older" people with bc?

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  • Anneb1149
    Anneb1149 Member Posts: 960
    edited June 2017

    Busy morning- while I was typing the above post, a bunch of you sNuck in between Sandy and I.

    Just wanted to share my experience with Percocet. I have never been a pill popper, although now I take so many prescribed pills and supplements, I can't count them all.

    I was first prescribed Percocet after my DMX. I can't remember the first few days, but when I was aware of the world again, I was in considerable pain. I knew, probably thanks to Dr Phil, how easy it is to become addicted to opiates. I don't remember if I was prescribed 4 pills a day, or a pill very four-six hours. I never took more than 1 1/2 pills in a 24 hr timeframe. I cut them in half, then in quarters. And I didn't take them 4x a day, or every 4-6 hrs. I only took them when my pain level got so bad, I couldn't concentrate on anything else. I probably stopped taking them by the 10th day after surgery.

    Never touched them again until this d*** sciatica. I have been dealing with this since March. I have done the chiropractor, exercises, my GP and it is still extremely painful. Most days, I can do one physical activity- and by physical I mean clean up the kitchen or go to a grocery store. It's more of a constant ache than sharp pain, although I can and do still get the sharp pains. I try Advil first, then, if necessary take 1/4 pill. I really wish I didn't take them, but they have been a real help to me. I think maybe because I knew how addictive they are, I started off using the smallest amount I could and only took them as a last resort.

    This is not to say any of you are wrong in what you all said about the dangers of drugs and generic. I agree with everything said. I just wanted to say that sometimes, opiates do serve a purpose, when used conservatively and with proper guidelines.

    WEll, I have to do something other than chat with you, as much as I enjoy doing this, so I better start moving

    Anne

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited June 2017

    Not gonna ask, ducky, why you think 45 is “going after the scumbags" responsible for the opioid crisis when he's done nothing, his SIL (appointed in part to fight it) has done nothing, and the healthcare bill he favors cuts funding for addiction treatment—his A.G. wants to let the Fed. gov't bust people for marijuana possession even if they have a valid state-issued med-mar. permit. But this is the wrong thread for that.

    Bob was prescribed Norco for his busted ankle. He won't even fill the 'scrip—Aleve works better.

    The major reason drugs are so expensive Stateside is not just R&D and not just that the FDA makes Big Pharma jump through hoops here that they needn't abroad. It's marketing, marketing, marketing. Years ago, you never saw prescription-drug ads anywhere but medical journals, nor prescription-drug commercials anywhere but doctors-only cable channels. Those ubiquitous brand-name Rx-drug commercials cost 3x as much as a regular 20-sec. spot: it takes a full minute for all the disclaimers & warnings. And drug ads in magazines are 3 pages long for the same reason. At least the drug companies can't spend $ taking doctors on vacations for “continuing ed" meetings that push their particular drugs, nor dinners for the same purpose (I've been to many and Bob even lectured on Viagra & Plavix for awhile till he started feeling like he had to shower off after each presentation and quit before the FDA began the—justified, IMHO—crackdown). The few dinners that still do get held are now “no-spouses-allowed.” They don't even give out pens, notepads, briefcases and other tchotchkes any more—for the first time I'm getting more swag from continuing legal ed courses than he did for CME. But he & his office do get crummy sandwiches & cold pizza. Yum.

    I've gotten name-brand drugs cheap and OTC in some EU countries. Now, why are generics getting so much more expensive, despite no ads or drug reps? Because they can. (Remember Martin Shkreli, Epi-Pens, MS and Hep-C generics prices skyrocketing as equity capital firms buy some generic mfrs. and others merge and drop out of the market for certain meds like letrozole)? Demand is driving price. If Medicare could negotiate prices, we'd see larger formularies and lower prices.

    BTW, the rosuvastatin (generic Crestor) seems to be working well, without raising my blood sugar. My lipid numbers—except an HDL of 85—are way down in the smack-dab-normal range. But I am getting more anemic (despite normal RBC, WBC, B12, D, and iron levels) and my upper back is hurting me—probably not related to the statin but (ominously) perhaps to each other. We'll see what the mammo, chest X-ray, or possible upper GI endoscopy (or full-gut “camera pill") say.

  • Wren44
    Wren44 Member Posts: 8,585
    edited June 2017

    One reason drugs are so expensive is that congress, at the advice of lobbyists, passed a law preventing bargaining for a better price. Other countries bargain and the drug companies expect them to. I think they should ban ads to consumers in any media. Doctors and pharmacists should get the advertising, not patients. We had a great cartoon up in the office that was an ad for (I think) prozac. The side effects were the same as the reasons it would be prescribed.

    I have a few Vicodin to use when nothing else works. Usually one per 6 months. I think ibuprofen is raising my blood pressure and my PCP doesn't want me taking naproxen. Tylenol doesn't do anything to the pain. She says it works for some people but not all. A neurologist offered me an epidural cortisone shot which I'm very queasy about. I have intermittent back pain probably caused by deterioration in my spine (I'm 76). If it was constant, I'd do the shot in a minute, but I can get several days with no pain.

    A drug rep asked the psychiatrist at our agency why he prescribed more of one drug than another. He was absolutely livid and never spoke to a drug rep again. Evidently they can get the info from the pharmacies. With severe mental illness, the distress and side effects have to be weighed carefully. Most of the ones that work can have pretty awful long term consequences. But if the alternative is untreated psychosis, some risk seems worthwhile.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited June 2017

    Have you been diagnosed with spinal stenosis? My mom was about to get surgery for it (a very effective procedure) when on the eve of her surgery she developed massive ankle swelling and was diagnosed with congestive heart failure caused by COPD. She was never again a candidate for surgery as she was deemed a poor risk.

    If it’s not stenosis, but rather degenerative disk disease, aka spinal arthritis (welcome to the club), core-strengthening exercises (when not actively having a back spasm) can help, as can an OTC “TENS” unit (like the little Aleve or Omron battery-op ones from the drugstore pain-relief aisle). Heat or ice (whichever feels better) works too.

  • pink_is_my_colour
    pink_is_my_colour Member Posts: 308
    edited June 2017

    Hi ladies and gents. Just chiming in for the first time. I'm still in treatment but wanted to feel encouraged that there is life after. Good to read about all the trials and tribulations of living life. I'm hoping to get at least twenty more yeasto come but am learning that each day is precious.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited June 2017

    Welcome Pink. Glad you found us. There is indeed life after treatment. Here we sometimes actually do discuss dx. and txs. I think the majority of us here ( except perhaps for a five yr. pill ) are done with active treatments. We have become a cheering team here for each other and appreciate that we have a place to come rant, a place to visit with those who have gained understanding for having been a bit older before getting this dx. We share upsets, remodels, and lots of other bits of information. We generally do not have much for political or religious type conversation as they are fairly personal and seem to be the two things that will cause harsh words and really hurt feelings -- so best we keep to the world full of other things that are interesting, fun, worthwhile.

    Definitely each day is precious and rewarding for the gift it is. I hope you will come back often and spend lots of time with us.

    Edited: Needed to put the ending on the word understand.

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited June 2017

    Welcome Pink........

  • Wren44
    Wren44 Member Posts: 8,585
    edited June 2017

    Welcome Pink. Looks like you are in chemo right now. I hope it goes smoothly with few side effects. Come back often.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited June 2017

    Pink, in your pocket for your chemo—that it goes smoothly, is effective and the side effects are bearable & minimal. Stick around, gal!

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited June 2017

    imagePink, I certainl;y wantto give you the; official welcome.....I am the oldest (82), funniest, smartest, prettiest, sexiest one on here......and also a member of the "Mile High Club"....we're a great bunch here....we laugh, cry, vent, listen, but above all "we love".....so you come on in.....pull up a chair, and sit a spell.......come back often....Ya hear.....hugs.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited June 2017

    There are no guarantees.
    From the viewpoint of fear, none are strong enough.
    From the viewpoint of love, none are necessary.
    - Emmanuel (Pat Rodegast)

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited June 2017

    Woke up during the night to lightning and thunder. I can hear it w/o my hearing aids though don't get the full brunt. Wet this morning and the a/c has been kicking on so there is likely lots of humidity out there. I am going over to Dr. B's today to see after the Yorkies ( 2) the one mini schnauzer. Just a couple of times will do. The one Yorkie is going to be 17 really soon and no longer sees too well and so does better when sort of hand fed. I will do that early this evening.

    Not sure how much it may or may not rain anymore but thinking it would be easy to get a little more. Carole -- how is it with you??? I think you mentioned Tues. that you had rain there in Minn.

    We get nice temps ( though likely humid so ??? ) for two days, then back into low 90's. We may be sort of set for the summer then.

    Hope you all have a wonderful day this Father's Day. In honor of my dad -- gone since 1996 -- Dad, I love and miss you. You were a wonderful Dad. Sending lots of love and hugs. Happy Father's Day.

  • VelvetPoppy
    VelvetPoppy Member Posts: 649
    edited June 2017

    We got in late from our mini-vacation Friday night, so I only unpacked the essentials. Started the real unpack Saturday morning and sorted laundry as I went. Everything was piled up in the living room. We had a good time, but it was HOT-upper 90s. Husband got his peaches , so he was happy. I found a hat for the tea party I am invited to on the 4th, and I bought what I hope are a super great pair of walking shoes. They had better be, because they were expensive!

    Couldn't get near the laundry room to start a wash on Saturday because my son was in there and I had book club at 11:00. By the time I got home it was too hot to do anything. I washed a huge load of casuals this morning and hung them out. They dried in less than two hours because there was a light breeze. I fluffed them in the dryer and don't have to iron now.

    I have to have my girls at the groomer by 7:30 tomorrow morning. Roxanne, the Aussie, will get a good bath and strip, as well as her shots. Daizie, the borador, will get a bath and shave. She looks like a bear cub. She will also get a shot. Roxie is due for all of her shots, but Daizie isn't due for hers until November. When I called for the appointment, I was told the dogs would need an extra canine flu vaccination. Another strain of flu has been showing up in a couple of communities near here and there have been some unhappy outcomes.


    Summer is here in the Gulf Coast area. Temps in the mid-90s and oppressive humidity. I haven't exercise walked for almost a week because we were out-of-town, and I want to get back to it, but I don't know how or if I can do it in this heat/humidity. I may have to get up and be out at the pavilion where I walk before sunrise. I have never gotten used to this climate and I have lived here most of my adult life. I wish I could afford to be a reverse Snowbird. Live
    up north during the summer & early fall and come back to Texas for
    winter & early spring.

    I have a busy start to the week, so I guess housecleaning and laundry will have to do for exercise until mid-week or later. It will all depend on the weather. Some of the forecasters are calling for rain late in the week.

    We are watching the Gulf this week. There is something "brewing" out there and the weather people say it has a 90% chance of developing into something. We sure could use the rain. Computer models can't agree on where it may come ashore. It is early in the season for us to have to worry about anything major developing-our peak is August & September, but my husband was a first-responder for his company and had worked many a tropical situation, so we will watch it.

    Here's to a good week, ladies.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited June 2017

    Welcome back Poppy .

    I had an interesting day today. Well, I had agreed to stay with my doggie friends while the family had a Dad's day for Dr. B. Jo called me this a.m. to say they were still going but apparently last night's storm dropped some straight line winds in a couple parts of town ( we live 2 miles out in the woods by a lake ) and their area got them. Some whole trees just toppled over while some lost major limbs --- just ripped right off the tree. Their were piles all over the yard. The bad part was no electric power -- so had to keep filling a generator with gasoline to keep the fridge and freezer running.

    Our temps were not bad as they have been but nothing to shout about either. Got through the first part of the day --- all sweaty from picking up sticks and twigs in the dog yard ( sort of large ) so decided I'd run home, wash up, grab coffee and come back. Well, I HAD to as my key ( it was quite old ) broke in the door. I was able to get it out, but knew when I got back I would not be able to leave again as it would get dark. Daylight hours and lots of people home I knew things would be all right -- but no way would I have left in-locked doors any other time.

    So, I'm exhausted but happy. I have a fresh house key -- so back in business. Hope you all had a fantastic day.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited June 2017

    Whew, Jackie—glad you’re okay, got into the house, have a new key and (presumably) the power is back on.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited June 2017

    Remember, if all life is sacred, then today is sacred. Ask yourself, What am I doing to feel joy today? A wonderful way to start the day is to bless it:

    Blessings on this day, may I make it special in some way.
    Blessings on my life, may I treat it with love and care.
    Blessings on all people, may I see the goodness in everyone.
    Blessings on nature, may I notice its beauty and wonder.
    Blessings on the truth, may it be my constant companion.
    - Charlotte Davis Kasl
  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited June 2017

    Pretty day outside today. Lots of sun and a clear blue sky. If there are clouds they are not in my line of sight. Today I go for my mammo and dexa. They are an hour apart -- and at our local hospital which if I was super ambitious I could nearly walk to. I wouldn't though due to the heat --- but could. Wednesday is new hearing aids day. Will have to make the 15o mile round trip to Marion for that. Worth it totally. I don't pay anything for the hearing aids and when I need batteries for it I just call Colorado and they send me a yr.'s worth at one time.

    So I should have a fairly good day ( I'll be so glad to get those tests done ) and Dh has Wednesday off so I'll have company on the ride to Marion, Il. Sometimes, and I so appreciate it, things seem to fall into place really nicely.

    Guardian angel was surely with me yesterday. As I was coming home to clean up and have coffee --- I stopped on the highway to make my turn and three or four cars stopped behind in normal fashion. Just as I started inching toward the left for the turn I glanced into my review mirror and here comes a big pick-up truck. I was able to stop although the truck nearly had to veer into a huge ditch ( actually barranca size ) on my left. So Mister, I hope you think about this next time your on the highway, that people live around that highway and are going home. You have no business passing a line of stopped cars if you don't know why they are stopped. I would have hated to see the truck go into that ditch and the possible harm to the driver. So Sandy -- I really did have quite the day.

  • VelvetPoppy
    VelvetPoppy Member Posts: 649
    edited June 2017

    I got the dogs to the vet/groomer, but needed help. I have always been able to handle both of them by myself, but since BC, I can't. Last year our son took them in for shots and grooming, so I didn't think. Both dogs weigh about 65 lbs. Daizie is gentle and walks well on a lead, but Roxanne is still a wild child. She hates the lead and strains until she chokes herself. We've tried training, but it didn't work. She is always in a hurry to explore everything! I was able to get Daizie into the backseat with no problem, but the minute I put the leash on Roxanne she began to pull. I knew I'd be yanked all over the parking lot and possibly hurt my right arm, so I asked my husband to come with me.

    He doesn't like his routine interrupted-he's painting furniture in the back yard while the dogs are away-but he came with me this morning. I texted our son and asked if he would help me load them after work. I deliberately chose a vet /groomer near where I worked, so I could drop off on the way in & pick up on the way home. ( It is across the street from the library and the vet I used is a regular patron. He would come to the AV department for audio books every few days. He was also our neighbor for 10 years, so we are on a first name basis.). Anyway, P now works at the library and can meet me at the clinic.

    Washed & hung another load of casuals. Will get them down in a few minutes and fluff them in the dryer.

    The floors that needed mopping are finished, so I can spend the rest of the day scanning photographs into my computer.


  • Wren44
    Wren44 Member Posts: 8,585
    edited June 2017

    Velvet, Have you tried the gentle leader? We fostered a pitt bull/basenji mix dog who pulled like crazy and was very stubborn. She couldn't pull as hard with the gentle leader. Hated it for that reason, but we made it a condition for going on her walk. Except for pulling, she was a love and found a great forever family.

  • VelvetPoppy
    VelvetPoppy Member Posts: 649
    edited June 2017

    ~Wren~

    I don't take my dogs out of the yard, so the only time they need a leash is to go to the vet/groomer. Thanks for the suggestion, though.

    They are both so funny. Roxanne knows all of the commands and complies happily. She loves to please, but the "big world" is for her to conquer and all obedience disappears once she leaves the yard. We did the obedience training when she was a puppy, teenager & young adult. She is a great watchdog and is good with people. She is a definite man-dog, following husband and son everywhere so she is always available to "help". Her only flaw is the leash-she hates it! Daizie, on the other hand, is just the opposite. She knows the commands as well, and chooses when she will comply. If she thinks there may be a treat or a ride, she will be on task. But she prefers to be left alone. Obedience training was easy with her. She walked on the lead, never tugged, but will not walk outside the yard now. If you hook her up, she will just lay down and refuse to move. I think with her it's age. Both are seniors now - 9 years old.

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited June 2017

    Gonna get whacked here in the Philly suburbs...lots of hot weather this week, so when it ends it usually end up with a wichked storm..possible 4/5 inches of rain, and bad windss, lightning, etc.......I hate these kind of storms......I have trees completely covering behind my house, and a sream runs right behind.....won't overflow, but the rain weakens the soil around the trees.and these are huge trees......

    Just hate storms period....

  • carolehalston
    carolehalston Member Posts: 6,887
    edited June 2017

    Poppy, my dh and I are reverse Snow Birds. I grew up in south Louisiana and have lived most of my life there but I hate the summer weather. This summer is our 6th summer to come to northern MN. Today the high is about 63 and it's quite windy. I have been wearing jeans all day. Dinner tonight will be chili made from scratch, starting with dry pinto beans. At home I would never think of cooking chili in June.

    Interesting that you need rain in TX. It has been raining a lot in the New Orleans/Baton Rouge area where we live. I get e-mails pertaining to golf at our club and some of the women's golf events have been cancelled because the golf courses are so wet or because it's raining on the golf day.

    I talk to my mother nearly every day and she seems to be getting along well. In July I will fly home and spend a couple of weeks going to visit her. I know she gets bored on the days when there is no bingo game. Her main entertainment is playing games like solitaire on her IPad.

    On Wed. dh will be driving to Kansas City, Kansas, for a wood turners' convention. The trip is his birthday present. I hope he has a great time. I will be on my own here at the resort until next Monday, when he should return. I won't have a vehicle so I'll have to do some walking and bicycling for exercise instead of going to the gym.

    Happy Monday to everyone.

  • VelvetPoppy
    VelvetPoppy Member Posts: 649
    edited June 2017

    ~carole~
    I grew up in MI & couldn't wait to get out, now I wish I could go back. I really miss the cooler weather and even the snow sometimes. I just wouldn't want to do the harsh winters up there. The heat and humidity are so oppressive here. We do as much as we can early in the am & then hide until about sunset. It's worse now, since BC because I am not supposed to expose my right arm (& chest) to the sun. I use sunscreen and have a couple of SPF50 shirts, but they make me so hot. OH well...from my A/Ced house to my A/Ced car to the A/Ced restaurant or store. Until winter!


  • duckyb1
    duckyb1 Member Posts: 13,369
    edited June 2017

    Velvet......my grandson moved from Chicago to Dallax...and he loves Dallas.....might I say he liked Chicago but did not like the winters......he left a very high paying job in Chicago because he wanted to be on his own..was in finance, and hated it after doing it for a few years.......we were all shocked, but he always makes good decisions and we hope this one is good too......he says the people in Dallas are so friendly and was bragging about the wasrm weather when we were still wearing winter coats here......LOL.....his place has a pool so maybe he doesn't mind the heat......YOUTh...isn't it great........have a great day....and just stay cool......

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited June 2017

    That's what we're here for:to make the world new.We know what to do:seek justice, love mercy, walk humbly, treat every person as if he or she were yourself.These are not complicated instructions.It's much harder to decipher the instructions for putting together a tricycle than it is to understand these. - Nancy Mairs

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited June 2017

    Lovely here today. Humidity wasn't a factor yesterday and shouldn't be today hopefully. I can take heat as there are plenty of ways to cool down, but the humidity gets to me and wears me out and turns me into a very sluggish person. Will be MIA for a bit tomorrow as we are going to Marion so I can pick up my new hearing aids. Despite the fact they are large enough that batteries last 14 to 16 days --- they are still difficult to see when I wear them which is all the time. When I started having hearing deficiencies it was somewhat gradual. I absolutely knew that I wasn't hearing well -- no question, but it was slow enough that I forgot just how loud some sounds were. So coming home after I got the first set of hearing aids I was so startled by the sound of the turn signal when I used it. I thought something was going wrong with my car. It was only what I should have been hearing all along in normal fashion.

    I think the carnival will be here in a few days. They set up in a park we have in town. It is not a huge one ( not like the one which is much more wooded and rural out by our house. The park in town has the community swimming pool and a lot of play equipment for youngsters. We use to go to the park all the while I was in grade school for the end of the year picnic. All the mothers brought a dish to share and they got to sit and visit while the kids played. It was great. Of course, there was a huge very tall slide and many of us ( before we learned how to best it ) ended up with bleeding knees from not being able to catch ourselves correctly at the bottom -- and I was included in that --- so we had first aid going on by the moms too.

    I hope you all have a wonderful day.

  • pink_is_my_colour
    pink_is_my_colour Member Posts: 308
    edited June 2017

    It's funny how life can go in circles sometimes. When I retired from working a year ago I packed up all my work clothes and took them to the Good Will. Debated whether to keep any of my scarves but figured why keep them because I'll probably never need them or wear them.

    So, yesterday I went back to the Good Will to see if I could find some nice scarves. Found two lovely scarves for $7. Better than paying $20 - 50 at the local stores.

    It's a beautiful day. Sun is shining. Not too hot. Life is good

  • carolehalston
    carolehalston Member Posts: 6,887
    edited June 2017

    I'm always intrigued when a post is removed. Guess it's my love of mystery!

    Hope your trip to Marion is going well, Jackie.

    Ducky, we're usually up to date on Texas weather when we're home in LA because a lot of what happens in TX moves east to Louisiana. However, Texas seems to have more violent weather than we do, worse storms. It has extremes of heat and cold, high winds and flooding plus the same threat of hurricanes along the coastline. It's an interesting state with a variety of landscapes and nice people. When dh and I were rv'ing, we covered most of the state including Big Bend National Park down on the Rio Grande river.

    Puffin, you must be enjoying this cool sunny weather in Fargo. Have you been using your Segway?

    I'm doing laundry today, walking back and forth between our camper home and the laundry room, which has one large washer and one dryer.

    Happy Tuesday to everyone.

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited June 2017

    CArole sale with Chicago's weather......whatever it does there in a couple days Pa . gets it, or at least the Philly area does.........

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited June 2017

    A HUGE branch just fell of of our front Ash Tree! About 12 inches around at the base.... Not even a dead branch, just fell off for some reason! Went down in the ground about 6 inches, and fell over the fence and over the sidewalk! Thank GOD no-one was walking out there.... A guy came by when DH was sawing it up, and he didn't even say a word....

    We will clean up the rest of the sawed off branches in awhile.... Just so hot out there..... I'm organizing my sewing stuff.... putting it all together in one of my Betsy Johnson designer roll-away bags.... Hah! It's so pretty, I have to put it OUT somewhere! I'm always sewing, or mending something around here...

    We walked up to Starbucks earlier this morning.... Cooler before 10.....

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