My moms breast cancer?
Hi, my name is Brad and my mom had breast cancer last year. It was caught at an early stage and it's been over a year, everything is good so far. She always has this fear of recurrence, she had the bilateral masectomy and didn't need no radiation or chemo. She has to be on tamoxifen for 5 years. Every time she has a cold or cough, she thinks it came back. If she caught it early and neede no radiation or chemo, she should be okay right? What can I say to make her feel better? She has to keep getting mammograms and MRI's which I find strange, or is that not unusual? I hope you all can help put my mind to ease and my moms. thanks.
Comments
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Brad, Most BC patients do have mammograms and/or MRI's, sometimes every 6 months for the first few yrs. It isn't that unusual. Her fears will most likely start to fade over time. It is an emotional roller coaster at times and it can be mentally exhausting as well. Some people experience PTSD and other symptoms. Keep supporting her. It took me probably 18-24 months after treatment to come out of the " fog", so be patient.
So good of you to post on her behalf. It sounds like her risk of recurrence is low, but she should consult her medical team if she wants some stats. Best wishes to you both.
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I just want her to get through these 5 years and so does she.
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Hi Brad:
How sweet of you to be asking on behalf of your mom how to help her. If we could all be so lucky to have such a son as you!
It is normal for your mom to be anxious about her cancer recurring. All you can do is be there for her. There are no guarantees but your mom has an excellent prognosis. It will likely not recur. Her tests and scans are normal tests for the first few years after a diagnosis and its good your doctors are watching her so closely. She is getting great care. This can be reassurance for her and you.
I had stage 3 BC 13 years ago and mine has not recurred. So, try to keep that perspective.
Hugs to you and your mom
wallan.
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Thank you Wallan, all this was a total shock to her, because she went to her regularly mammograms every year. I know doctors have to take extra precaution, but it's so nerve racking for all of us.
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Brad you are very sweet. Unfortunately, no one is safe from recurrence. I am a prime example. Stage 1 BM no chemo, followed carefully, yet here I am Stage . Please be understanding about her anxiety.
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Now you're starting to scare me.
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unfortunately, we always have to be vigilant for the rest of our lives. I see one of my docs every three months. The best we can do is to take the meds we are prescribed, and live a healthy lifestyle including exercising and watching our weight. It may seem that most people have a recurrance because you read about so many here, but there are many, many women who go through treatment and never have to deal with BC again. I have a friend who is a 22 year survivor.
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brad, I'm chiming on to say that my aunt was diagnosed with breast cancer in 1912, at age 24. Back then they didn't have mammograms or ultrasounds. She had mastectomy only. No hormone suppressant, no follow-up. She lived to be 90 and died of dementia.
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Hi Brad:
It is true that once diagnosed with BC, you are at risk for a recurrance. However, in life, there are always risks of getting sick, getting hurt, etc. This is a fact of life. There are risks of getting something all the time.
If her cancer is early stage, hormone positive, and she did not need radiation or chemotherapy, her prognosis is excellent. That is also a fact. So keep that in mind. I know many women who have not recurred after many many years.
I can understand that it was a shock for your mom at her check up mammogram for them to find something. Of course it was. And it is normal for her to be anxious about a recurrance. She is doing everything she can do to minimize the risk of it coming back. As time goes on, her anxiety will decrease. All you can do is be there for her.
I wish you and your mom all the best.
wallan
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What relieves me is Christina Applegate and Angelina Jolie have been cancer free for years, but they caught it at an early stage.
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I don't think Angelina Jolie actually had cancer. She had mastectomies because she tested positive for a gene that could cause it. There are many examples of people who went on to live a long life without cancer coming back but not knowing is scary and so it is something your mother (and you) will live with but the longer she goes without it coming back the easier it will be for both of you. Let her voice her fears and you too should find some support with your fears. It definitely changes lives but we do adapt. hang in there.
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Wrenn, I read your information on the bottom of your post, you were diagnosed in 2013? how are you doing so far 4 years later?
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I'm doing great Brad and my daughter mentioned recently that I don't talk about dying as much any more.

I still worry but not as much. My daughter didn't want to hear it when I was worried because it scared her.
A cancer diagnosis is scary for everyone in a family but talking about the fears helps I think. Keep expressing your fears and keep supporting your mom. It will get easier.
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Oh come on "dying" when it caught it the most earliest, but I understand the fear. My mom is going through it now.
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c'mon what? Every one of us who was diagnosed with some kind of cancer, regardless of stage, grade or treatment now lives with the reality that we may die from this terrible disease far earlier then we expected to. I'm not sure what you mean by your comments but I don't appreciate being dismissed because my cancer seem to be caught early and was treated routinely. if indeed that was what was occuring here and i'm happy to be corrected.
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Yes, Brad, "dying" is a possibility even when breast cancer is caught at it's most earliest. It's something probably all of us think about - a diagnosis of breast cancer, even early stage, forces us to face our mortality. That is really scary. So your mother's reaction is normal, and has some basis in fact.
Some of this has already been said by others, but let me give you a few facts about breast cancer. I don't want to scare you, but it's also important that you understand that while your mother's prognosis appears to be excellent (from what you've said about her diagnosis and treatment plan), like all of us, she's not without risk. It's these very real risks that are driving her concerns. Over time, we all learn to adjust and accept these risks as being part of life, but if your mother is not there yet, that's okay. It takes time. So, some of those facts:
- Having annual mammograms does nothing to prevent breast cancer. The purpose of a mammogram is to catch and diagnose breast cancer, hopefully while it's early stage, therefore improving the odds of long-term survival, and possibly reducing the amount of treatment needed.
- Catching breast cancer early doesn't mean that the cancer might not be aggressive and that it might not have started to spread. Everyone diagnosed with invasive breast cancer, even very early stage, is at risk of either a localized (in the breast area) or a distant (metastatic) recurrence. The risk is greater for those with more advanced breast cancers or with particularly aggressive breast cancers, but even those with small, early stage, non-aggressive breast cancer face some level of risk.
- While the risk of a localized recurrence is usually very low (1% - 2%) after a mastectomy, it still can happen. So proper screening remains important.
- There is no date by which the risk of recurrence disappears. Most recurrences happen with the first 5 years or 10 years, but some women develop a localized or metastatic recurrence years after that. It doesn't happen often, but it can happen. So again, proper screening and vigilance remains important.
- The good news is that while we all face some level of risk, in the end most women diagnosed with early stage breast cancer never will develop a localized or metastatic recurrence. Most women are diagnosed only one time and most of us survive our diagnosis and live long full lives, eventually dying of something completely unrelated to the breast cancer diagnosis.
- However because we all face some level of risk, it's normal for anyone who's been diagnosed to worry about every little symptom. It happens to all of us and it usually takes some time - one year, two years - before the anxiety starts to fade. At some point we all learn to put aside the fear (although it probably never completely goes away) so that it doesn't affect out day-to-day lives. It becomes, as wallan indicated, just one of those facts of life.
Brad, it sounds as though your mother had an early stage, non-aggressive cancer (given that she didn't require chemo or rads). That's good news and it means that she probably won't ever have to deal with this again. Her odds are good. The problem that she lives with however is that there is always that bit of uncertainty. That's real. No matter how good the odds, none of us can ever know which side of the odds we'll land on. Because your mother's fear of recurrence and even her fear of dying does have a (small) basis in fact, there is nothing you can do to eliminate her fear. She has to learn to live with it, and over time her fear will fade. The best you can do is be patient, understand why she has these fears (it's not irrational),support her, and give her the time she needs.
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I'm sorry I didn't mean it like that and I apologize. I thought I was trying to make you feel better by telling you in my own way to keep a positive attitude, that's what my mom is doing. I will never know what women go through with this diagnosis, because I'm a guy, but I know the fear, because my grandfather died in 2000 of colon cancer and he was in remission. I think he caught at mid stage though. The cancer made his skin turn yellow and to this day, I can't get that horrible image out of my head. I was only 12 years old too.
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brad, your statement, "I will never know what women go through with this diagnosis, because I'm a guy" is not really a true statement. Although rare, men can and do get BC. I hope you never have to deal with it. I hope the comments you received have been helpful. Best wishes to you both!
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Can worrying about this diagnosis make you say things you don't mean out of frustration like "I'm over it" My mom has been getting more frustrated over the past year and letting things out.
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brad - you need to back off and just listen to whatever your Mom chooses to share. Try to respond with "uh huh" or "oh". If you want to educate yourself, you're welcome to read all of the many threads on this site. In addition to the male/female difference, there is obviously a generational difference - so it would be very unusual if you really did understand. Not meaning to be harsh - just a fact. None of us - no matter when diagnosed - will ever be "cured". We can be NED (no evidence of disease), but breast cancer does not have a cure and can come back at any time. I'll only know I'm cured if I die of something else.
Your Mom has a hard road to travel. It's good she has you for support, but it's a little early for you to be telling her how to feel. All of us worry for a long time that even a hang nail might be the cancer coming back. As time goes on it will get easier.
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I just found out that Olivia Newton John's breast cancer returned and she was diagnosed 25 years ago, but she also didn't have a double mastectomy I don't think. I heard it metastacized and spread to her back. Did we even have all these advanced medicines to treat cancer 35 years ago?
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Brad you seem to be searching for evidence that your mom is going to be the one to never get cancer again. You are never going to get that evidence so you have to change your focus to finding a way to adapting to that information (which we all have to do). In your efforts to find proof your mom may feel pressure to reassure you when she has fears herself. Maybe there is a family support system at your mom's cancer centre. Might be worth checking.
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Brad, I echo a lot of what has already been said here. Breast cancer is scary. It's even scarier when it comes out of nowhere, like it did for my brother (and me). Unfortunately, my brother did not survive. But what I can tell you is that statistics are averages. And no study in the world will ever tell you what will happen to you specifically, or in this case, to your mom. For each person, it's either 0% or 100%. We just don't know, and we probably never will.
As you and others said, your mom's cancer was caught early. And she is on treatment, so that's also good. It's normal for her to be scared sometimes. Tell her about this site, and how many women are living full lives after/with breast cancer. Just be there for her, and remind her that right now, today, cancer is in her rear view mirror.
Wishing you both the best.
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Speaking for myself only if I was expressing worry and someone told me that cancer was "in my rear view mirror" I would think they weren't empathizing with my current state or trying to minimize my (legitimate) right now today feelings. I would rather hear "I hear you. It is scary" and a nod. On the good days and moments I wouldn't mind hearing "nice to have a worry free day/moment huh". I think being heard goes a long way as far as 'support' goes.
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I'm so sorry about your brother, was his cancer at a later stage?
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Hi bradt93...I'm sorry about your mom's BC diagnosis. We all know how she feels. I think you are a great example of how this disease not only affects the person who has but also the entire family. I agree that you are looking for a guarantee that your mom will not have a recurrence. Unfortunately there are no guarantees. I'm a little confused as to why she is having mammograms if she had a BMX. However it sounds like she has a really good chance of being ok. Hopefully the longer she goes with NED the less she will worry about having a recurrence. She is very lucky to have such a loving and sensitive son. Good luck to both of you.
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Brad, my brother had stage 4 cancer when he was diagnosed. The treatment and outlook for stage 4 cancer is very different than early stage cancer.
If your mom is still having trouble going about her daily life with worry, I really think it's best to seek out a support group for cancer survivors. Most cancer treatment centers have one. They will help address concerns that many if not all cancer survivors think about when they are finished with treatment.
In the meantime, here is a link that should help you and your mom: Cancer Survivorship
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Brad, this is new territory for both you and your mother. My mother was a 38 year bc survivor - she passed at age 88 with colon cancer. My daughter is an 18 year bc survivor (she was only 32 when diganosed), and I am a 6 year bc survivor. For us, and unfortunately for a lot of survivors, with every new twinge, every new ache, every change in our health, our first thought is "cancer". The fear lessons with time but it is still our first thought - this is because we are fully aware of what can or may happen - we are still both "positive" in our feelings, but we still make sure we have yearly mammograms and see our doctors at least once a year. Just listen when your mother wants to talk and suggest she make a note of any questions to ask her doctor(s) at her next appointment. Listening is the most important thing you can do. My son cringes, but he still listens....
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My mom had her MRI last week, she hasn't heard anything back. If it returned something serious, would they have contacted her immediately? She's concerned about why she hasn't heard anything.
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bradt93, sometimes imaging centers have review protocols that need to be followed and summer means some staff may be on vacation. Waiting is awful, but try not to read too much into the delay. Good luck and I hope she hears good news soon!
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