My 2 best features...screwed by cancer!

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Oh I just have to whine....my 2 best features before cancer were my boobs and my eyes..well we all know what happened to my boobs...well one of them at least...let's just say..a lumpectomy does not leave your boob looking good...

And now my eyes! I always have gotten compliments on my eyes..and now this new Super Herceptin (TDM-1) is screwing them up. I have to wear my glasses now (which are much stronger) which I have never liked...and my eyes are constantly puffy, dry and red.

Is there no justiceLaughing ok I know it could be worse and I should be happy that I even had 2 good features...but come on I tell ya!

But I do find humor in the fact that my best parts are wrecked...how ironic...just sayin!

Happy Halloween Everyone!

Comments

  • Godsgal
    Godsgal Member Posts: 203
    edited November 2009

    I know what you mean Tooyoung,

    I had a really sexy walk, a beautiful figure, and I used to look like a model.. But now I have lost it all.. I hate even dressing up and looking in the mirror now.. This crappy disease robs us of way more than anyone can imagine..

    Be brave.. we are still Beautiful just in a different way..

    Hattie 

  • LuAnnH
    LuAnnH Member Posts: 8,847
    edited November 2009

    you deleted your post but I am sure we can all fill in the blanks.  This disease robs us of everything!  Our looks, our youth, our mobility, our jobs, our lives!  You name it and we lose it.  No one understands.  That is why I have missed these boards and the closeness you have with everyone here.  We all know, we all understand.  And we don't just brush it off with a you'll be ok, you still have whaterver!  I've never been one to cry and that is all I can seem to do anymore.  I am always in pain, my life sucks, my kids are busy with thier lives and don't need me around to help them all the time anymore.  I have no family close by so they are no help.  I have a few close friends and they seem to be moving further and further away lately.  Whats the point in fighting if you have no life to fight for?  I am sorry, this is about you and your problem and I try to rob it.  Just trying to show that this damn friggin disease leaves us with nothing!

  • Irina
    Irina Member Posts: 987
    edited November 2009

    Oh LuAnnH.. You are right. This disease leaves us with nothing. We lost friends, we not wellcome to the family, we fat and can't do what we should do.

  • tooyoungtohavebc
    tooyoungtohavebc Member Posts: 779
    edited November 2009

    Yeah I deleted cuz I felt maybe I was being superficial...but you guys get it! Thanks for your posts...MUCH appreciated!

  • chainsawz
    chainsawz Member Posts: 3,473
    edited November 2009

    You shouldn't have deleted your post, because we all feel the same way and I'm sure you wrote what I probably would, too!!  It's very hard to deal with the physical changes we have to endure.  I don't even recognize myself anymore.  I went to a party tonite and there were people there I haven't seen since before my diagnosis...people I have known for over 10 years.  They all shook my hand and said it was nice to meet me.  I had to explain who I was and they were shocked!  My whole appearance has changed and definitely not for the better.  We are not superficial - we are human beings who are expected to deal what many could not.  I would just love to have at least one good side effect.....or a dang cure!!   

  • KSkier
    KSkier Member Posts: 467
    edited November 2009

    The truely ironic thing is that our best features are taken from us...just about the time we are mature enough to appreciate them!   We spend most of our lives thinking we're too fat/thin, tall/short, our hair is too straight/curly our breasts are too big/small.  I had finally come to terms with what God gave me, and now I'd be so happy to have any of it back! 

  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited November 2009

    We understand!

    I am fat, lost my hair, it has grow back, but is thin and looks like crap, and I had a really fit figure!

    Now I fight to find anything that looks good on me.

    We know. Everyone poo poos us, and thinks we should be happy to be alive...

    Well, let them go through disfiguration and see how it feels.

  • lukejessesmom
    lukejessesmom Member Posts: 598
    edited November 2009

    glad to know I am not the only one who feels the same way.  It's hard to get excited about anything.  there's always this feeling of having a monkey on your back....and now every time we go in a store we'll be reminded of Christmas....and wondering if this will be the last one I spend with my children.  I hate myself for feeling this way. 

  • heatherpalmerton
    heatherpalmerton Member Posts: 2,247
    edited November 2009

    Yes I know what it has taken, It's taken my right boob, both my ovaries and tubes. I have what I call the "JELLO BELLY"  I do have to say one thing It may have taken my physical being. BUTT SCREW THIS DISEASE!!!!!!!!!!!!!! I will not let me take it take my spirit.  "That is not one thing it's not going to get!!!!! Please don't get me wrong It is ok to have a fit of rage and get pissed off even a little pity party. "I am allways the one to have that choice and to have the controll of how I choose to deal with it.  I remember when I was really sick with the scleroderma. My doctors insisted I take Paxal?? MS for depression. "I thought to my self and yes I told them. "MY GOD CONSIDERING WHAT I HAVE BEEN THROUGH DON"T I HAVE THE RIGHT TO HAVE SOME KIND OF DEPRESSION?????????????? DUH The funny thing was just to appease them I went on it. Thats when the depression set in. So I self medicated myself and went off it. Thank god I haven't had to take any medication Yet.

  • donnabee
    donnabee Member Posts: 580
    edited November 2009

    I wanna know what two best features we've all lost.

    Me? I've always been overweight (ok fat:) and a  little cranky, I'm a big worrier and a pessimist (at times), so there is no big difference there. I havent had chemo (yet?) so I still have my old grey hair. BUT, there are two things I really miss:

    1) I used to be sharp as a tack. I could work at a breakneck pace and get an amazing amount of work done with a high degree of accuracy and care. AIs have taken care of that along with other stage IV effects.

    2) The great old Beatle song "When I'm 64" used to mean something.

               "o/~ will you still need me, will you still feed me...o/~ " 

    Now its a song about other people.. No guarantees, I know. But it used to be pretty reasonable to think about what I'd do when my husband and I retire which was goign to be 10-15 years from now. Looks like I'm going to be taking "retirement" now without him-- and I don't know that I'll be up to any cross country Winnebago trips once he retires.

    Ok, enough feeling sorry for myself. I've got it ok compared to many. Hang in there gals.--donna 

  • tooyoungtohavebc
    tooyoungtohavebc Member Posts: 779
    edited November 2009

    You gals totally get it! Hitting the nail on the head for sure. Makes me feel better. Soooo the 2 features I had written about before deleting were..

    1. boobs..man I had good ones...now I have one good one and one deformed, scarred and skin met ridden boob,,lovely

    2. eyes: I always get compliments on my eyes, but this new super herceptin TDM1 trial is messing them up. Not only has my vision gotten worse, but my eyes are constantly dry and red and puffy. And I really am not supposed to wear my contacts any more so I have to wear my new stronger glasses. So my nice eyes are hosed too...karma I tell ya!

  • Lesley1
    Lesley1 Member Posts: 60
    edited November 2009

    This video (link below) has been helping me with this stuff lately. It's of the Canadian Indian actress Lisa Ray, an otherworldly beauty, who was diagnosed last July at 37 with incurable cancer--multiple myeloma, to be exact, but she's in the same boat we are. She was immediately put on some kind of steroid treatment and the weight piled on; she's got the steroid moon face. And now, because she has a film coming out, she has to get out there and promote a movie she made before all this happened, when she was still lithe and a world class-beauty. She's by no means ugly now, but she's not the same. And just watch how she handles it in this video. That's her on the right in the film clip at the beginning and then that's her now talking, and she just doesn't seem cowed by this. She seems sparkling and unbeaten and unapologetic, and every time I look at this, I take strength from it. It can't be easy to have been called one of the ten most beautiful women in the world last year, and to have the press now saying, "The glamor is gone" (someone wrote that about her weight gain), and yet, she just gets out there and doesn't hunch down embarrassed. 

    http://www.youtube.com/watch?v=aKxAQJNMdUo 

  • pattih
    pattih Member Posts: 631
    edited November 2009

    I noticed this year I have a permanent wrinkle between my eyes and I am pretty sure it is from frowning in pain for two years. I looked at pictures and it was not there two years ago and now it is deep like I pinched the skin between my eyebrows. My eyes used to be my best feature and now they just show pain.  I wonder if I could get botox covered?

  • EZE
    EZE Member Posts: 1
    edited May 2017

    I was diagnosed Jan 4, 2016. Stage IV. What started as unexplained arrhythmia, turned into BC in my liver, sternum bone, lungs, and left breast. I know I'm lucky that Ibrance/letrozole is really working for me. I'm healthy enough, right? When people tell me I'm lucky I don't have to have chemo/radiation my response is nicer than it should be. How am I lucky that the cancer has spread so much that it can't be cured? I have about a third of my hair. Again, I'm lucky I started with crazy thick wild curly hair and now its limp and straight? Im doing the Avon39 for the second year. I'm lucky that I wore an orthopedic boot and did PT for 4 months for a stress fracture after last years because my bones are weak? I know that I really am fortunate and any one of you ladies can feel free to tell me that. But when anyone else does its frustrating . I know it makes people feel better , but I'm a little busy trying to reassure my 3 teenagers that I'll see them graduate from college, once they get through high school. Thanks for the vent...

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited May 2017

    EZE,

    THis thread has been dormant for almost 8 years. You may want to consider starting a new thread as that might yield more support. Best wishes to you

  • Micmel
    Micmel Member Posts: 9,450
    edited May 2017

    even though this thread is an old one, I just sat here crying while reading it because I feel all those things everyday, my heart is also broken yearning for who I used to be. I never realized how beautiful I really was and was always trying to look better and get fitter. I was in the best shape of my life running five days a week 6 miles or more daily within an hour and ten mins. I was like the wind. I was strong, I was toned, I was fine. Why couldn't I have stayed that way. I was happy. Content, comfortable in my own skin for once in my life. Now I have lost my long beautiful chestnut brown middle of my back mane. My best feature, and my shape , my one breast is gone, my stomach looks like a road map from all that surgery, and of course I have gained weight that I can't seem to get rid of. My hair was straight now it's curly. It was brown,now its salt And pepper. I don't. Want to see anyone I used to know. I can only go forward to met people who I don't know yet. That way they won't have their jaw hit the ground when they realize what has happened to me. I miss myself, I even see things differently , the sky, a breeze, like i know that I have a limited time to stand and feel this place and love harder than I could ever imagine possible before ? Why is it that we learn life backwards, but must live life forward ? If only we could go back. If only there was no cancer to harm our sisters or our mothers or our aunts or even uncles , fathers,brothers. In some cases. Cancer is just awful, it wears you down, makes you insecure,depressed,anxious,sick,tired,such pain, and to top it all off, the treatments Rob you of your outside while cancer robs you from the inside. I have had enough cancer please just go away and leave us alone. All of us! I am not an overally religious person, but feel like I have to hope in something , we sure could use your help with finding a cure down here god! ~M~

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited May 2017

    Hello, EZE, and welcome to the BCO community. I came across your post -- not sure if you saw that the other posts on this topic are from 2009. Maybe people will start posting replies and the thread will become active again. In any case, I wanted to invite you to pop in on some of the currently active threads, too. You might want to start by browsing the stage iv forum. Click on All Topics on the left, them scroll down to the section called Stage IV and Metastatic. Click on it to see the latest posts on various threads in that forum. In the stage iv forum you will find threads such as Ibrance (Palbociclib) , Bone Mets Thread, How are people with liver mets doing?, and many others.

    P.S. Strangely, I did not see the posts from exbrnxgrl and Micmel until after I submitted mine.

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited May 2017

    Micmel, you are so eloquent. When you say, "I even see things differently , the sky, a breeze, like i know that I have a limited time to stand and feel this place and love harder than I could ever imagine possible before ? Why is it that we learn life backwards, but must live life forward ?" I feel with you so much, it is a physical pain.

  • Micmel
    Micmel Member Posts: 9,450
    edited May 2017

    Shetland~. Life makes you see things so much differently in the face of something like this. I know you understand what I mean. Taking each day as it comes seems so appropriate, until you look back and you're already over a year and a half out of diagnosis, or in many cases even so much more thank goodness, time moves and we can do nothing to stop it, just like cancer, thank you for reading my post. I know it was long,but I could identify with how it felt to lose my best features and the tears started flowing. as they always do. Always keeping everyone close in prayer ~M~

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