Wig, Hat, or Scarves

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Upheld
Upheld Member Posts: 71

My hair has been the thing that has identified me my whole life. I have thick, long, auburn hair. Since I was a child, it has been the one part of my body that made me unique. Strangers often stop me to comment on how beautiful my hair is. In the past 2 weeks, when I'm complimented, it just about kills me. I say all of that to say that I don't know what to do now that I've been told it's going to fall out. I haven't started the chemo yet, but I was advised to get prepared now.

I've decided to not let it fall out in clumps before I shave it off but would like to keep it as long as I can before that happens. So how long do I wait before I shave my head? (I'll be on Taxotere and Carboplatin)

I can't imagine myself wearing a wig. I think it might depress me even further to have hair that looks nothing like my own.

The scarves seem a bit too much like Little Steven :) Those who have used them, what is your experience?

Hats. I hope to work, so I need something attractive. Where does one find the most comfortable yet unique hats?

This hair. It's going to be my biggest struggle....

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  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited May 2017

    You have my sympathy. Hair is a big deal to most women. Bald is not a look i wanted to rock, that's for sure. You will know when it's time to buzz it off. My hair started shedding around day 10 after 1st chemo. On day 17 it started falling on earnest, all over my clothes, in my cereal bowl, in the car, aaack! Disgusting. I went to Great Clips and had it buzzed. Incidentally, they have a program by which they provide a free buzz to anyone undergoing chemo and the lady who did mine was very professional.

    I never did fully trust scarves. They always felt like they were going to tilt off my head. I'm not a hat person, but i did buy some soft beanies that matched my outfits. I dressed them up with ribbon and pins. I also bought a sleep beanie--you'd be surprised how cold your head gets.

    Idid opt to buy a wig, though, and I really loved it. I chose a look that was about as far from my usual look as it could be--shoulder length strawberry blonde. And it looked HOT, let me tell you. My DH loved it! I figured those who knew me well knew i had lost my hair and would give me a pass. Those who weren't close to me could just bite my butt. I wore the wig to work and church, mostly, but also on date nights. People complimented me on my "hair"all the time, LOL

  • Upheld
    Upheld Member Posts: 71
    edited May 2017

    You made me laugh with that last paragraph! I've thought about just doing something different from my own hair so that perhaps I wouldn't compare it.... Where does one find a quality wig? And soft beanies?

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited May 2017

    Your MO can write rx for a cranial prosthesis (wig). Your insurance will pay for it. MO or cancer center can direct you to wig shop.

  • lovepugs77
    lovepugs77 Member Posts: 296
    edited May 2017

    Lovepoodles, this: "Those who weren't close to me could just bite my butt." sums it up perfectly for me.

    Upheld, I've found lots of sites that have wigs. Like you, I'm stressed about losing my hair. I'm going with something totally opposite my regular look - I've had long hair for a very long time, and I don't think I'd ever be satisfied with something that tries to mimic my natural look.

    I'm probably going to do some sort of simple pre-tied scarves or caps most of the time (like these: https://www.headcovers.com/three-seam-cotton-sleep-caps/ or https://www.headcovers.com/pre-tied-scarf-for-cancer-patient-so-simple-cotton-scarfs-chemo/ or https://www.headcovers.com/so-simple-scarves-pretied-scarf-headcovering-cancer-scarf/).

    Here are some of the wigs I'm looking at. I like the short messy look, and will likely go with one of those. #6 is very similar to a style I had about ten years ago. I liked it, but with my wavy hair, it took too much time in the morning.

    1. http://www.voguewigs.com/allure-jon-renau.html?sort_color=family
    2. http://www.voguewigs.com/annette-5138-lace-front-wig-jon-renau.html
    3. http://www.voguewigs.com/true-demure-petite-average-wig-gabor.html
    4. http://www.voguewigs.com/prestigious-wig-toni-brattin.html
    5. http://www.voguewigs.com/boost-raquel-welch.html?sort_color=family
    6. http://www.voguewigs.com/ignite-5142-lace-front-wig-jon-renau.html
    Another thing, everything I've read says to go with a color at least a shade lighter than your natural hair color because chemo tends to make you paler than usual.
  • Icietla
    Icietla Member Posts: 1,265
    edited May 2017

    Hi Upheld. I am so sorry about your diagnosis.

    Scarves worn as women's headcoverings are not typically arranged for that ["Do Rag" ] look to which you refer.

    I have generally hidden my hair under scarves for I think about ten years now. They are comfortable. One can find scarves in materials well suited for wear in any climate/s and season/s,

    There is a lot of difference between Fashion (or what is called Fashionable, or in Trend) and Style. Style is setting your own Style, doing your own thing, with confidence.

  • Tinkerbells
    Tinkerbells Member Posts: 211
    edited May 2017

    why don't you make a wig from your hair? There are several places that do that. I used hip hats with hair online. My hair was very thin- they wove in some synthetic strands and I had a half wig (wore a hat over it). I also had a human hair full wig that I wore. The half wig from my own hair brought me so much comfort- it looked and felt just like mine (because it was!)

    Oh- if you do use your hair, you must cut it in a certain way before you mail it off- several ponytails all over your head. If you do, you have to cut it before it starts to fall out

    It's not easy losing your hair, wishing you a smooth journey.

  • Kicks
    Kicks Member Posts: 4,131
    edited May 2017

    My hair is was most to my waist when DXd. Have had long hair basically all my life. When DXd, I cut in a long Gypsy Shag before chemo. I went to the Look Good - Feel Better class before first Chemo and the Salon owner who was doing the class had just received a box of wogs from a manufacturer that had a frosted Gypsy Shag in it and she thought she'd never fond the right person for it +til she met me. I went to her Salon the next day and got it. It was 'me' - other than being frosted as my hair is still naturally as dark as it was as a child. Then VA approved my 'cranial prosthesis' (wig) so I got a frosted 'Pixie' wig. Still have them both and will occasionally wear them for 'fun'. But then 'fun' wigs are not 'strange' to me. I was a Master Cosmetologist and Salon owner in my younger years and had quite a few wigs -some just for 'fun' like my bright green one for St. Paddy's Day.

    I mostly wore scarves as real easy. I made them so I could customize them for different uses. Some for 'dress' and to match the outfit I was wearing. Some just 'fun' patterns. Some out of flannel or fleece for warmth (I did Chemo when it was cold). Hubby and Son would stop by the Fabric Store in town and if they saw material they liked, they'd get it and bring it to me to make a new scarf. Were easy to make and modify for different 'look'.

    Hats - never wore any - I hate hats.

    I would suggest if you get a wig to get one of the higher quality synthetic wigs. They look natural and are quite easy to maintain. Human hair wigs are much harder to maintain unless you have experience with human hair wigs. It can also be a bit pricey if you have to send them to a Salon for maintained.

  • Kicks
    Kicks Member Posts: 4,131
    edited May 2017

    Just thought of something.

    As your hair is long - When you go to have your hair cut, have it sent to 'Locks Of Love'.

    www.locksoflove.org

    This is an organization that collects hair and has wigs made from it for children going through Chemo.

  • Tinkerbells
    Tinkerbells Member Posts: 211
    edited May 2017

    just looked online- you can have a full wig made from your own hair, if that's the option you choose. Good luck to you

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited May 2017

    I purchased many hats and scarves from a website called Hats, Scarves, and More. I wore a wig at work and "out". Around the house and town I wore hats. Wigs can be cut and styled to match your natural hair as closely as possible

  • rainnyc
    rainnyc Member Posts: 1,289
    edited May 2017

    Ask your MO's office if they have recommendations for a wig specialist, or if they don't, ask for the name of the hospital social worker. That's where I got the wig shop that I ultimately went to, who specialized in chemo patients. They could not have been nicer, and I felt that the two wigs I got were worth every cent. (I freelance, and I did not want word to get out that I was sick.)

    Incidentally, there is a big difference between shaving your head and buzzing it. You want the latter, because there is too much risk that shaving your head will result in small cuts, and with the lowered immunity that comes with chemo, you don't want to risk infection.

    The hospital where I got chemo had a boutique that carried wonderful and affordable hats. I did buy a sleep cap but I also got several hats there. I've always loved hats, so that was a small treat that I allowed myself. But I also got hats other places--like inexpensive ones from street vendors (I live in a city) that I dressed up with different scarves.

    Good luck. It's a stinking part of the whole business, but you'll get through it.

  • Jackster51
    Jackster51 Member Posts: 357
    edited May 2017

    My hair was my identity my whole life too. Sadly, 5 years after Taxotere, I am still in hats and scarves, as it never returned. Devastated beyond. You might want to check into using cold caps with Taxotere to avoid being one of the 10% this happens. to.

  • BellasMomToo
    BellasMomToo Member Posts: 305
    edited May 2017

    I was on TCHP, 6 cycles, one cycle every 3 weeks. After I was dx'd, I cut my shoulder length hair to chin length. I started to lose my hair two weeks after the first infusion. While my hair was falling out, I wore a nylon cap so I wouldn't drop hair all over the place. This was in November so I wore a hat while outside and a bandana while inside the house. After most of my hair fell out, I used my electric razor and shaved the rest off.

    I bought several scarfs (and the nylon caps) from tlcdirect.org. One trick to wearing scarfs is to put it over a headband. Otherwise, long scarfs tends to shift when you move your head. I wear a terrycloth (athletic type) headband and it works great.

    I also bought a couple of light, cotton caps to wear while sleeping.

    I bought a synthetic wig, but haven't worn it yet. I only bought the wig cause my driver's license is up for renewal in Sept. and if I have to take a new picture I want to have hair.


  • Midwest_Laura
    Midwest_Laura Member Posts: 168
    edited May 2017

    Similar to other stories here, my hair began to fall out about 10 days after the first chemo.  I had to buzz it by day 17.  The mess in the shower was unbearable by that point.

    My preference for headwear is a "buff".  You can find lots of choices on Amazon by searching Buff Headwear.  These are easy to put on and they stay put throughout the day.  I like to wear them tucked up and under in the back.  That way, there's a little dimension to the look without it hitting on my shirt collar.  Amazon has lots of color choices so I can easily coordinate them with my clothes for work and home. 

  • Kicks
    Kicks Member Posts: 4,131
    edited May 2017

    I never wore a 'headband' under any of my scarves and never had any problems with them moving/shifting'. Even out in the wind. As I said I made mine and had somewhat different 'sizes/shapes' - some were shorter 'tailed' and some quite long.

    Talk to the Nurse Navigator at your Facility. They may have wigs to give to patients. I was given one that was a really nice wig but I never thought it was 'right' for me but Party thought it was great. I took it home and put it on and when I put it on for Huuby and Son to see it - they all but fell out of their chairs. So when I went to the Feel Good - Look Better' class I took it to give back. Well - there was a lady there that it was absolutely perfect for. So she went home with a wig that was perfect for her - looked just like her hair. The next day I got my gypsy shag that the Instructor thought she'd never find anyone for it.

    The Facility also had a lot of donated hats (knitted/crocheted) and scarves that had been made by volunteers/survivors who made them and donated for anyone who wanted/could use them. I still make some to be passed on.

  • Kicks
    Kicks Member Posts: 4,131
    edited May 2017

    I never wore a 'headband' under any of my scarves and never had any problems with them moving/shifting'. Even out in the wind. As I said I made mine and had somewhat different 'sizes/shapes' - some were shorter 'tailed' and some quite long.

    Talk to the Nurse Navigator at your Facility. They may have wigs to give to patients. I was given one that was a really nice wig but I never thought it was 'right' for me but Party thought it was great. I took it home and put it on and when I put it on for Huuby and Son to see it - they all but fell out of their chairs. So when I went to the Feel Good - Look Better' class I took it to give back. Well - there was a lady there that it was absolutely perfect for. So she went home with a wig that was perfect for her - looked just like her hair. The next day I got my gypsy shag that the Instructor thought she'd never find anyone for it.

    The Facility also had a lot of donated hats (knitted/crocheted) and scarves that had been made by volunteers/survivors who made them and donated for anyone who wanted/could use them. I still make some to be passed on.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited May 2017

    I got my beanies from Headcovers, on Amazon. I found my wig at a private wig shop, recommended to me by the hospital wig shop after I burst into tears in the chair. The private shop was owned by a 72yo lady who had a lot of experience with chemo hair loss. She helped me find my style first, then my color. My wig is very realistic. She was invaluable. There's no way I could have picked one off the internet.

  • avidreader
    avidreader Member Posts: 12
    edited May 2017

    Hi Upheld --

    Thank you for posting. I, like you, have been identified by my hair and am struggling with the idea of losing my hair; it's going to be so strange to not be "that red-head" after 3 decades (for awhile, at least). I have no suggestions about wigs, hats, scarves, because I don't know for myself, either. I just wanted to commiserate with you.

  • Upheld
    Upheld Member Posts: 71
    edited May 2017

    Sounds as if we may have a lot in common. I am also an Avid Reader. I was speaking to a friend at work today about losing my hair. She said something profound. She said that people are going to take their cues from me as to how to approach me. She said she could not imagine me wearing a wig after having such glorious hair. She could see me in a pretty scarf though and felt as if it would be a statement of strength and would make an impact on whomever I would meet. Especially those who knew me and identified me because of my hair. So, at this point, I'm thinking of not getting a wig. It will be summer time as well and it will be hot enough without a synthetic wig on my head. Are you having surgery or chemo first?

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited May 2017

    oh I'm so sorry you're facing this. Hair is a big deal. I hated losing mine. I told hubby I'm not doing chemo because my hair will never be the same again. Of course I did 🙄 My hair fell out about 10 days after my first treatment. I had hubby shave the rest. I cried. I hated being bald. I never liked scarves or hats. I wore wigs and I have to tell you they were the bomb lol. Mine were synthetic - you wash them once a week in the sink, towel dry them and then let them air dry. They went right back to their beautiful shape. I was able to find wigs very similar to my own hair. The only thing I hated was when the weather was hot. That was not fun.

    It's not fun losing your hair. I'm 3 years out and finally like my hair again. Hang in there.

    Nancy

  • LimnoGal
    LimnoGal Member Posts: 157
    edited May 2017

    Upheld-I chose to wear scarves rather than a wig. I bought several of them. Different patterns and shapes. Some pre-tied, some flat. My favorites were pre-tied tichels with long tails (like the Bella scarf from turbans plus). They were made for Jewish women who covered their hair, so they were not super tight fitting and there was a similar face-framing effect to long hair (maybe that was just in my mind). I believe that it may be easier to transition out of wearing scarves than wigs when your hair starts coming back in.

    Losing your hair truly does suck.

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited May 2017

    The American Cancer Society will give you one wig. They didn't have choices for my gray hair, so I ended up buying one. I am a Realtor and wanted to look as much like my photos as possible when working. I didn't really like it. I wore scarves also. I hated trying to "match" scarves to my outfit. I never completely lost all of my hair and never shaved it. I got it cut before chemo and was able to donate 10-12" to an out-of-state non-profit that takes gray hair. I remember being SO excited when I started feeling stubbles come in! I finished chemo in Feb and I think by August I had enough hair to feel comfortable going in public without anything. I took photos of my "progress" and for some reason, that made me feel better! Then, there are those who rock the bald look and good for them! Wishing you the best.

  • MexicoHeather
    MexicoHeather Member Posts: 365
    edited May 2017

    I needed to shave off my hair after two weeks of treatment. I had very long, full hair and mentally I think I still do!

    Florida's climate is so warm, that I can only wear the wig for short periods. The scarves are an effort, but I get lots of compliments on how I tie them.

  • Rufhewn
    Rufhewn Member Posts: 45
    edited May 2017

    I spent a lot of money for a quality wig and hated wearing it. It was unco,fortsble and hard to keep styled. I ended up buying a baseball cap with built in hair that came down to my neck. It looked and felt normal and I never felt self conscientious on it except in places where wearing a hat wasn't acceptable. It was so natural looking, I kid you not, my oncologist asked me if it was my hair! Really, I'd just finished chemo two months earlier. He is a kind but serious guy so I think he was really wondering.

  • BulletproofLegs
    BulletproofLegs Member Posts: 21
    edited May 2017

    When I had AC in 2011, I cut my always long hair to a pixie. Never realized how fabulous that cut was before I had it. 6 years later, that's still what I wear (until this is gone too!) I had cancer right around the same time then and I lived in scarves and hats. Insurance got me a wig which I never wore. My friend sent me a purple wig and if id wear anything, it'd be that. I sort of oddly embraced my baldness and allowed it to show off my inner badass.


    Mustlovepoodles, I thought your name was "mustlovepoo" and I thought I had found my new best friend! I do love poodles and dogs of every kind

  • Icietla
    Icietla Member Posts: 1,265
    edited May 2017

    MexicoHeather, your climate should have your hair growing back at an unusually fast rate for most of the year -- for as long as your warmer season lasts. The silk scarves are great for wicking away perspiration and readily drying by evaporation, so they can keep you cooler and more comfortable than you would be otherwise.

  • Kicks
    Kicks Member Posts: 4,131
    edited May 2017

    I preferred 100% cotton for the scarves O wore when outside getting warm - mowing, riding (bicycle and our horses), flyfishing, etc. The cotton is great at absorbing 'sweat', wicking it away and cooling as it evaporates. I still have some cotton scarves I soak with water before going out to do a 'hot' job outside as it is very cooling and quickly/easily re-wet when it dries. I never had much luck with silk or silk-like fabrics except for 'dresser' wear.

  • Upheld
    Upheld Member Posts: 71
    edited May 2017

    Where did you find the cotton scarves Kicks?

  • Kicks
    Kicks Member Posts: 4,131
    edited May 2017

    I made them. Very simple to make if you sew at all. Can make them very simple or get 'fancier'/decorative.

    Not all my scarves were cotton but for the most part my daily wear ones were. They were also rather simple. I also used flannel and fleece for some as it was winter and winters are quite brutal here in the Black Hills area. I did make some out of 'silk/silk like' material but they were for 'dress' and a bit 'fancier' (some with lace and /or ruffles, longer tails, a bow or decorative knot, etc.)

    Back then, Hubby and Son (adult) went to fabric stores often and brought home material they thought I'd like so I could make a new scarf. (Most of their choices were 'right on' but a couple were , but they were trying which is what mattered.)

    PM me if you'd like more info on how I made them.

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