Itchy with Ibrance?!

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jnh
jnh Member Posts: 120
edited July 2018 in Stage IV/Metastatic Breast Cancer ONLY

Hi, I started Ibrance and Femara combo yesterday. Woke up with itchy skin and scalp. Anyone experience that? Also, didn't sleep very soundly, but could have been nerves.

Thanks,Julie

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  • sandilee
    sandilee Member Posts: 1,843
    edited April 2015

    Hi Julie,

    Nope, haven't had that SE yet. I do think that the Letrozole can keep you awake. I take melatonin at night to fall asleep faster. I hope the itchiness is just temporary!

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  • leggo
    leggo Member Posts: 3,293
    edited April 2015

    If it were me, I'd put a call into your onc. From experience, the itching is usually liver related. 

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  • jnh
    jnh Member Posts: 120
    edited April 2015

    thanks, ladies!

    Itchiness is better now! Time will tell what all these SEs will be , I guess!

    Julie

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  • Nenabear
    Nenabear Member Posts: 1
    edited May 2015

    My mother is on her 2nd month of ibrance and letrozole. And she is also experiencing the itchiness and not sleeping well. We spoke with her oncologist about the itchiness but he didn't seem to think it was related. :/ Hope you found some relief!

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  • sandilee
    sandilee Member Posts: 1,843
    edited May 2015

    well, now I'm getting an itchy scalp, too! Been on the combo for two weeks. The rest of my skin is fine.m just my head is itchy.

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  • irish4
    irish4 Member Posts: 19
    edited May 2015

    I have been in Ibrance for three weeks and have also had a very itchy scalp!

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  • sandilee
    sandilee Member Posts: 1,843
    edited May 2015

    I hope it doesn't mean our hair will fall out, lol!

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  • Brixton
    Brixton Member Posts: 12
    edited December 2016
    Yes, I have it too, what are you using to alleviate pain and itch.
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  • Brixton
    Brixton Member Posts: 12
    edited December 2016

    Ladies do u have a certain shampoo. I'm using d' oro for hair loss it has argan oil in it do u keep your hair short. Washing seems to help

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  • artistatheart
    artistatheart Member Posts: 2,176
    edited December 2016

    I get very itchy scalp and skin. Hydrate hydrate hydrade. As soon as I jump out of the shower I lotion up well. The scalp I just scratch a lot...

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  • JustG22
    JustG22 Member Posts: 33
    edited April 2017

    Been on Ibrance/Letrozole for 1-1/2 cycles and have been extremely itchy lately-especially scalp.  I too am hoping hair doesn't fall out.  Been using Nioxin scalp therapy and washing hair only three times a week.  I am attributing the itchiness to not enough water so starting today I am going to try an do better with hydration.  I do not like water so it is always a challenge. 

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  • singlemom1
    singlemom1 Member Posts: 434
    edited April 2017

    The CVS specialty pharmacy has an outreach nurse who called me yesterday to see how I was doing with the Ibrance. She mentioned to me that itchy skin is a common complaint with Ibrance users. My skin overall is not too bad, but my scalp is very itchy!

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  • Bouka
    Bouka Member Posts: 1
    edited June 2017

    I've been on Ibrance for six months now. I do experience itchy scalp. And in general itching on others parts of the body, but mostly, on the scalp. Also thinning of hair.

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  • Moderators
    Moderators Member Posts: 25,912
    edited June 2017

    Bouka, welcome to our community, and thanks for sharing your experience.

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  • NineTwelve
    NineTwelve Member Posts: 569
    edited June 2017

    My scalp started itching too with Ibrance. I don't see any hair loss though. I have very short hair now, and that has been a good thing for me. One less thing to deal with.

    I usually find I have to distract myself when it starts. Or take an antihistamine, if it won't go away after a reasonable time.

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  • Saintsnow
    Saintsnow Member Posts: 2
    edited July 2018

    I have had an itchy scalp since starting Ibrance (with exemesthane) in September 2017 and am slowly losing hair. I recently had a biopsy of two bumps on my scalp and found out they have metastatic breast cancer cells. About 2 weeks ago I discovered a bald spot of about 1.5 inches in diameter where it does not appear the hair will grow back in at all. Does anyone have a similar situation?

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  • singlemom1
    singlemom1 Member Posts: 434
    edited July 2018

    Itchy scalp and major hair thinking!

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