Starting Chemo May 2017

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ParakeetsRule
ParakeetsRule Member Posts: 571

I'm supposed to start on May 15. Anybody else also starting next month?

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  • cse70
    cse70 Member Posts: 43
    edited April 2017

    I will be starting soon, just waiting for the call. Will be getting carboplastin/taxotere. This is my second BC so I know what I'm in for!


  • dimetriamajor1
    dimetriamajor1 Member Posts: 16
    edited April 2017

    Starting Chemo at the end of April 2017, so May 2017 will be a starting point for me. I believe God has a purpose and a plan for my life, so Here is goes, need support and encouragement to move forward.

  • dimetriamajor1
    dimetriamajor1 Member Posts: 16
    edited April 2017

    Can you tell me what to expect for Chemo, because this is my first tie with BC and very new to everything.

  • 840LAURIE
    840LAURIE Member Posts: 6
    edited April 2017

    Hello my name is Laurie I started Kemo on 4/20/17 I'm looking for others experiencing the same things. I'm scared and feel alone.

  • 840LAURIE
    840LAURIE Member Posts: 6
    edited April 2017

    dimetriamajor1 they tell me everyone is different. I started 5 days ago and I felt it hit me hours after I left treatment. Just very foggy headed sick to my stomach. I have slept ALOT. I was very scared when it first came on but mostly I feel like I'm 8 months pregnant and double the nausea.

  • ParakeetsRule
    ParakeetsRule Member Posts: 571
    edited April 2017

    What meds did they give you for nausea?

  • ParakeetsRule
    ParakeetsRule Member Posts: 571
    edited April 2017

    Laurie, have you tried talking to the people in the April chemo thread? None of us here have started yet but the April group is going strong and will probably have good advice and thoughts for you. I'd post a link but the system won't let me.

  • BCFighter2017
    BCFighter2017 Member Posts: 45
    edited April 2017

    I have port placement tomorrow morning , echo on wednesday and MO appointment on thursday for next steps. I am guessing it could start first week of may

  • ParakeetsRule
    ParakeetsRule Member Posts: 571
    edited April 2017

    I just moved my port appointment from the 1st to the 15th, the same morning as my first chemo. I don't want that thing in there any longer than it has to be!! Ugh.

  • msrobin58
    msrobin58 Member Posts: 134
    edited April 2017

    I'm starting AC+T May 3, so this looks like a good place for me to start posting. I know we're all frightened, but I feel like I'm absolutely freaking out. I'm so scared I can barely function. Reading these various threads is helping me a lot. But I need to get my fears under control to move forward. I feel like I'm going to have to go into seclusion with feeling so poorly, yet many women are working and carrying on their lives through it all. I'm a 59 year old housewife, and hubby works mostly from home, so I have plenty of support from him, and many close friends. I'm lucky in that regard.

  • ParakeetsRule
    ParakeetsRule Member Posts: 571
    edited April 2017

    Yeah, the reaction to chemo seems to vary widely! From what I've heard, it's really important to keep on top of side effects because they snowball. My aunt sailed through chemo but my mom ended up in the hospital because her side effects got out of control.

  • msrobin58
    msrobin58 Member Posts: 134
    edited April 2017

    I'm having my port put in tomorrow also. I had my bone scan today and CAT scan Thursday. Still waiting to hear when we'll do the echo, because my insurance denied the MUGA heart scan, and this is the backup plan.

  • msrobin58
    msrobin58 Member Posts: 134
    edited April 2017

    ParakeetsRule, what does your treatment schedule look like? My plan is four doses of AC spaced two weeks apart, then twelve weekly doses of Taxol. Radiation to follow. The plans are for an oncoplastic reduction on the healthy breast after healing from radiation. But it sure seems like a low priority to me right now.

  • Brneyegrl6608
    Brneyegrl6608 Member Posts: 85
    edited April 2017

    I thought I was starting in April, but I had surgery instead. I will find out on the 4th when my start date will be. I'm starting 4 doses of AC. That's all I know for sure right now because I signed up for a clinical trial where I will be receiving two different chemo drugs in altering weeks once a week.

  • ParakeetsRule
    ParakeetsRule Member Posts: 571
    edited April 2017

    Mine's the same! Four doses of AC every two weeks, then evaluation and possibly surgery (not sure what type yet) and then 12 weekly doses of Taxol, and then I guess surgery after that if they don't do it earlier. My brain ran out of space during the appointment and I don't remember what they said about radiation...

  • msrobin58
    msrobin58 Member Posts: 134
    edited April 2017

    I've already had my lumpectomy. My only other surgery will be an oncoplastic reduction to match up the other side. The plastic surgeon wants me take a good 3-6 months of healing from radiation first, since my radiated breast will continue to scar and heal for that long after. Wouldn't do to match them till that's finished.

  • cdv4251992
    cdv4251992 Member Posts: 158
    edited April 2017

    Third time is the charm and I'm hoping to finally start chemo 5/4. I was supposed to start 3/30, but I developed an infection following surgery. I thought I'd start this month, but the infection kept that from happening. Hopefully everything looks good to the doctors on the 4th. I'm getting Taxol and Herceptin weekly for 12 weeks.

  • ParakeetsRule
    ParakeetsRule Member Posts: 571
    edited April 2017

    Anybody else planning to do anything fun with your hair before it all falls out? I've always had mine long so I'm going to get a short pixie-type cut that I would NEVER normally even consider because why not...might also add some purple stripes to it. :)

  • msrobin58
    msrobin58 Member Posts: 134
    edited April 2017

    BCFighter2017 How did your port placement go today? I just got home. It was odd to me, because it was a surgical procedure, yet I was awake the whole time, groggy, but awake. No pain, but it's still numb. I'm sure I'll be glad for it, with fewer needle sticks to bother me.

  • msrobin58
    msrobin58 Member Posts: 134
    edited April 2017

    imageYes, I've already cut mine into a pixie, after six years of long hair. The idea was that it would be less traumatic to lose, but I really do like it. Gives me ideas how to wear it as comes back.

  • Brneyegrl6608
    Brneyegrl6608 Member Posts: 85
    edited April 2017

    I dyed my hair blue for the fun of it and because I'm not working right now so why not! My daughter's and I had a great time doing it. Laughed a lot:)

    image

  • dimetriamajor1
    dimetriamajor1 Member Posts: 16
    edited April 2017

    i will start chemo on 4/28/2017 I'm scare of the other symptoms i have been reading about, i have very long hair and feel proud in it growing in the last 2 to 3 years, also chemo is known for giving other issues such as heart disease. I thinking about opting out of chemo because it gives you other ailments and I feel that I'm not the right person to deal with this right now they didn't find any more cancer in me but the chemo is too just to make sure that there is nothing left in me I'm really afraid alone I have a good support network I have a giant church and a big big family but I live by myself and it's hard when you wake up in the Midnight Hour and your mind start thinking about the things that you have to go through just to make sure you're clean I do want to get rid of cancer but i don't want to get heart disease and I don't want to gain weight lose weight but I can't sleep and crying all the time which I find myself doing a lot so I need somebody to come and encourage me right now cause I really need it thank you

    image

  • l_brain
    l_brain Member Posts: 71
    edited April 2017

    dimitriamajor1-I start chemo today and I know exactly how you feel. I wonder will it work, is it worth it? Will I ever be the same? I think you just have to make the decision based on the information given and try not to second guess yourself. I fear the side effects and being bald too. You can do it, be strong. I'll be thinking about you.

  • cdv4251992
    cdv4251992 Member Posts: 158
    edited April 2017

    Demetria, the unknown of cancer is the worst and makes the nights seem so long. What treatments will you be getting? 14 years ago I was treated with 4 AC and the 4 Taxotere. The side effects were not pleasant but were very manageable, especially if I did exactly what my chemo nurses said. The first AC I took some of the anti nausea meds but not all and was queasy quite a bit. I hadn't understood their instructions as well as I thought and when I clarified them at my next treatment, I did much better the next three. I let myself get terrified by side effects I read about others experiencing on Taxotere. I talked to my nurse at the first treatment and she was patient and understanding and went through my concerns with me, putting my fears at ease. My side effects were quite minimal compared to what others experienced.So talk with your team. I hope you find them as caring as mine were.

    Side effects are scary but know that everyone reacts differently. Just because a side effect can occur, it doesn't mean it will happen to you or be as severe as someone else. Your chemo nurses can help you manage them so don't hesitate to talk with them.

    Hair loss is hard, no way around it. I have found taking charge made me feel in control of something I have very little control over. Last time, and this time, I cut my long hair into a cute short cut. There are great thread here to read and gain support from.

    Does your treatment center have a social worker you can talk with? Or maybe they have a support group or can put you in touch with?

  • msrobin58
    msrobin58 Member Posts: 134
    edited April 2017

    Oh Dimitria my heart reaches out to yours. While I'm not alone at home, I keep thinking that I don't think I have the strength to do this either. Just today I was wondering if it was worth it. What if I go through all this, and it comes back anyway? What if I just opted out and took my chances? But I know I have to throw all the weapons at it, so I'll know that I tried my hardest. Let your church family help you. Even if they don't offer, go to your pastor and tell him you are in need of some support. I'm sure he'd arrange it if you asked, even if that help is just having someone to sit and hold your hand. I'm doing a lot of crying myself, but when I get extra blue, I remind myself that there are women all over the world who have done this already and come through out on the other side. I suppose if they can get through it, we can too. All of us here certainly understand what you are going through.

  • msrobin58
    msrobin58 Member Posts: 134
    edited April 2017

    Love the blue hair, very fun! I had a purple streak not too long ago, before this all happened. I think I'll do it again when my hair comes back.

  • ParakeetsRule
    ParakeetsRule Member Posts: 571
    edited April 2017

    One thing that's helped me a lot is reading through the posts from people going through chemo a few months ahead of us, like the March (https://community.breastcancer.org/forum/69/topics/853397) and April (https://community.breastcancer.org/forum/69/topics/853740) groups to get an idea about what it will be like.

  • lovepugs77
    lovepugs77 Member Posts: 296
    edited April 2017

    Hi everyone,

    I will be starting chemo (most likely AC + T) sometime in May, too. I have the MUGA scan scheduled for Friday, then hopefully a PET scan (if insurance agrees) for Monday and my port surgery soon thereafter. The nurse said chemo will start around 5 days after I get the port, so I think I'm looking at mid-May.

    I'm going to get my hair cut in advance, too. I've always had super long hair, and I just think it will be less traumatic if I cut in advance. And like someone said above, cutting it is one way of taking a little bit of control back. Plus, like ParakeetsRule said, it is a great chance to try something I wouldn't have otherwise! I actually wish I had done it before my surgeries, just because it felt so gross during recovery when I wasn't allowed to shower.

    Have you ladies been looking into wigs and scarves? I'm undecided about what to do there. I think I probably need to get a wig for when I feel like I need it, but it is SO hot here in the summer and I think scarves will be cooler.

    Right now I'm feeling scared, but relieved that I'm finally doing something about it.

  • ParakeetsRule
    ParakeetsRule Member Posts: 571
    edited April 2017

    I don't think I'm going to do a wig. If I change my mind, I'll just buy some cheap ones off Amazon or something. (another great way to try out crazy hairstyles/colors I wouldn't usually attempt!) I have a ton of scarves, bandannas, and hats already so I'm hoping that those will work. Summers around here suck too and even a scarf will probably be too warm, so we'll see! The pre-tied scarves look like a good option, I'm sure there will be days where even tying a scarf feels like too much work. I was looking at the ones on this site: https://www.headcovers.com/slinky-headwrap

  • lovepugs77
    lovepugs77 Member Posts: 296
    edited April 2017

    ParakeetsRule, where are you? I'm in eastern NC, and summers are awful - hot and terribly humid. I'm definitely thinking the pre-tied scarves are the way to go, for me at least. I think trying to tie a scarf so it looks nice would just be a huge source of frustration for me. The wig will likely be just for special occasions or when I just want to blend in a bit better.

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