Starting chemotherapy March 2017

Options
13468915

Comments

  • Castigame
    Castigame Member Posts: 752
    edited April 2017

    same here. .5 mcg twice a day. Does wonders for me.

  • Castigame
    Castigame Member Posts: 752
    edited April 2017

    just done w #3 AC. I only have to go to principals office 5 more times. Think i found a small additional relief for bone pain. Epsom salt paste shower last night made me feel real good. I fell back to sleep. My skin felt wonderful. Tonight i am just going to scrub epsol salt on my back since i dont want to wet neulasta. Tomorrow night as soon as i get it off i will plaster paste all over my body and wait 20 min or so. I still will take claritin though. I think bone pain will be better this time

  • kimburke
    kimburke Member Posts: 34
    edited April 2017

    Tara17,

    Nice to hear you are 44 too. Great coincidence.

    I got the number for the physiotherapist. However I haven't made an appointment yet. I will probably do so after my third session tomorrow, when I am home and quiet for a few days. I do have symptoms like that you described and i did suspect cording, hence why the physiotherapist.

    Jamaica gets in the high 90s in the days. In thw nights high 70s or low 80s. Guess it would be harder to avoid the sun, for me. Hence the nails changing in reaction to the weather. Sigh!

    I noticed some darkened spots on my veins , on the hand I am getting the chemo through. Will address that tomorrow with my oncologist.

    Will have an afternoon session tomorrow. But I will try and check in tomorrow night. Doing #3 of 4 sessions tomorrow . And three neulasta after. Oh Joy! Grateful for the positive effects of the shots , but hate getting them. My arm is starting to hurt already, complaining about the injections. Have my alleve , but need to get more claritin in the morning.

    To all the new ladies, good luck and we are here for you. This forum will be very helpful for you.

  • Castigame
    Castigame Member Posts: 752
    edited April 2017

    Kimburke

    I started trying epsom salt shower. I love and hate both Neulasta and Claritin. I have arthritis to a mild degree so both give me tremendous""companionship" (bone pain more fatigue headache blured vision) I dont get headache usually. And I have bad vision to begin with. I am sure not a fan of claritin and I need more relief.

    Made a paste and used my $4 shower scrub wand. I even felt like a little kid playing sand on a beach. Waited a few min. It is recommened to sit on something of course. I forgot to ask onco about bath. But i dont want to take a chance w port even if I am told OK. Thoroughly rinsed it of coursed. Fell back to sleep twice when i had to get up for bathroom break. While waiting using remainder of paste soak your feet. Oh Did I tell you about my beautifully exfoliated and moisturized skin?


  • Tara17
    Tara17 Member Posts: 386
    edited April 2017

    tinker bell thanks for sharing the respunrcs that are working for you . Mindfulness app sounds very interesting --i will check it out . Glad that medication is helping you, tinker bell and lordhelpmetoo!

  • Tara17
    Tara17 Member Posts: 386
    edited April 2017

    Kimburke --wishing you all the best for session # 3. You are almost there --you go girl, look how far you have come! Hoping you do well with the pain. Keep us posted on the results of your evaluations . Stay well hydrated in that jamaicain heat :

    I am heading for treatment # 8 of taxol and herpcetin next week

  • MommyErin
    MommyErin Member Posts: 187
    edited April 2017

    Kimburke- Sending positive thoughts your way! I also have some darkening around my vein from my initial chemo treatment 4+ weeks ago, as well as tenderness (had my port placed after my first). I have read that taxotere can be hard on your veins, so that's what caused it in my case. It is going away (slowly).

    General question- how much protein are y'all trying to include in your diet? The nurse at my chemo class told me to aim for 100g a day, which seems like a lot, but I could add an extra protein shake or two a day to get there.

  • Soxfan75
    Soxfan75 Member Posts: 115
    edited April 2017

    Hi ladies - I've been keeping up with the posts but I've been so out of it, that I haven't been able to participate. I just had my 2nd TCHP infusion last Thursday and it completely kicked my butt. I felt good Friday and part of Saturday, and then the nausea and exhaustion completely overwhelmed me for the last few days. I feel like I'm turning the corner today, but the exhaustion is still there. I feel so fuzzy headed that I can't seem to have a coherent conversation. I saw a male acquaintance of mine at the grocery store (who's hot I might add) and I could barely have a conversation. I think he may have asked me out for a drink, but I was in such a fog, I'm not sure. LOL. I called the docs and they're going to check my counts and possibly give me an IV of fluids. I hope that does the trick. I don't want to be missing out on any dates with hot guys.

    On another note, I'm almost 4 weeks since my first infusion and thanks to cold capping, I still have 90-95% of my hair. I've been shedding a lot the last few days, but hopefully it's from all over and not concentrated in one area. I'm cautiously optimistic that it will work and make me feel some semblance of normalcy.

    I'm so glad to hear so many of you are doing so well. It's comforting to know that I'm not the only one travelling this path. You are all such an inspiration!

  • kimburke
    kimburke Member Posts: 34
    edited April 2017

    Hi ladies,

    A quick note. I survived session #3. As expected. First attempt at putting in IV was unsuccessful, near my wrist. So he had to insert more up in the arm where I would normally give blood for tests.
    Got a little rest last night and have been up early as usual. Side effects thus far , a horrible headache which Alleve isn't helping much with, Only sleep so I was back in bed for a nap about 10am and its back again. Didnt have a headache after the first two sessions. It should not be dehydration as I have had 2 liters of water since last night up until now at 1pm and my blood pressure is not too low either.
    The nurse will come about 5pm to give me the first Neulasta shot, Oh Joy! You know how much I love those shots.

    Soxfan75 - I hear you on dates with hot guys. LOLOLOL ! Good to hear you are seeming to settle down now where the effects are more bearable for you. The hair will grow back and you have options , hats , chemo caps and wigs. Its small stuff. I still have a fuzz and am using chemo caps ,its too hot for wigs.

    MommyErin - thanks for the positivity, it helped. I am relieved to hear the dark veins will go away. Proteins, I add a can of Pure Protein 35g to my daily smoothies. Sometimes I put chia seeds in my smoothies too. I try and have a cup of raw nuts daily. May have eggs int he am for breakfast a few times per week. and dinner is fish mainly and one night per week of hormone free chicken. it seems to be helping as I haven't lost any weight thus far, I am too small to lose any more. Started chemo at 120lbs and 5'5". Put on 4 lbs by second round and 5 lbs yesterday.

    Tara17- Thanks, Seems your IV placement second try issue rubbed off on my doctor. I thought of you when he said ,oh oh, I have to put it somewhere else, it didn't go in properly. i hope they get it right the first shot for you next week. Yup, trying to stay hydrated here, especially more so since the session.

    Rebamacfan123 - Oh good tip re the epsom salt. I will try that if it gets unbearable. Hey, I could do with being beautifully exfoliated too.

    Tinker-bell and Lordhelpmetoo- Anti-anxiety meds can be helpful. One more thing to take, but it will relax and give you one less thing to worry about. The greatest thing is to know you need that help and address it.

    And to the rest of the ladies , good luck and chin up. We all got this!

    ........and thats my short note. Oh Lordy , "Mi chat nuff eeh" ( translation- I chat too much)

  • Lordhelpmetoo
    Lordhelpmetoo Member Posts: 197
    edited April 2017

    kimburke, glad you got #3 out of the way. One more!!! I have #4 tomorrow. I started steroids today. I take them day before, day of, and day after.

  • MommyErin
    MommyErin Member Posts: 187
    edited April 2017

    Lordhelpmetoo- I'll be thinking about you tomorrow! Will this be your last? If so, woohoo! Oh the steroids...so helpful, but the bloating! I feel like a marshmallow bunny!

    Kimburke- glad you survived #3! I've definitely gained a few pounds as well thanks to the steroids! So much for losing the last 5lbs of baby weight from my last pregnancy ;-P

    Soxfan75- I totally feel you on the fog! So much is a blur now, especially the few day right after treatment. Let us know how your date goes ;-


  • kimburke
    kimburke Member Posts: 34
    edited April 2017

    lordhelpmetoo

    Good luck on your #4 and last treatment. Hope it ends with a easy and well session for you. Keep us posted.

  • Tara17
    Tara17 Member Posts: 386
    edited April 2017

    catching up on the posts -- you ladies bring a smile to my face at such a time with injecting humor into your symptoms ! Such an inspiration !


    Soxfan --we absolutely cannot have a fog cloud invites from hot guys ! Lots of IV fluids stat, if that will cure the fog :). How were your counts ? Glad that cold capping seems to be working for you . Its a lot of work to do the cold caps --so kudos to you . Good luck with treatment #3


    Mommy Erin -- marshmallow bunny, lol. But more of you for your kids to hug :) in terms of protein, I am vegeterian, so i am doing lots of lentils and nuts. When i got diagnosed, i just got totally focused on what i could eat or not eat from a cancer prevention standpoint . I havent worried too much abotu calories and protein because i was nutritionally healthy on that front going into this and i was warned not to gain weight . So being vegeterian i have focused on my vitamin levels . Would suggest everyone get their vitamin D level checked and make sure its where it needs to be . I am trying to increase intake of dark green leafy vegetables as that is supposed to have cance r fighting properties. Also a low fat diet is supposed to be cancer fighting.

    Kimburke -oh no, my second try IV luck rubbed off on to you! Hope it didnt hurt too much, hope no bruising and i hope its only one try next time! And no you dont chat too much, i loved your long and friendly note. Was it West Indian patois that you wrote in --similar to Rihanna's 'wok'?

    How did your neulasta shot go? And how's the headache? Any updates re physiotherapist appt

    Lord help me too - all the best for your last treatment! Woohoo!


    Tinker bell and lord help me too--keep us posted on how you tolerate the anti anxiety meds


    Rebamacfan --so glad the epsom salt method is working for you!


    To all the ladies -wishing you the very best this coming week --all of you are an inspiration!!! I am wishing the best for our group and every success for each one of us


    Xoxo hugs to all

    Tara

  • Tara17
    Tara17 Member Posts: 386
    edited April 2017

    Colorado Kiki --havent heard from you in a while. Thinking of you. Do post and let us know that you are ok

  • Lordhelpmetoo
    Lordhelpmetoo Member Posts: 197
    edited April 2017

    MommyErin,

    Yes today was my last treatment! So happy and thankful to God! Now just dealing with puffy eyes and cheeks. Day 4-5 seems to be my worst days so far

  • Lordhelpmetoo
    Lordhelpmetoo Member Posts: 197
    edited April 2017

    kimburke, thank you!!

    I dread every infusion but this one was special since it was my last one. Now I'm dreading the SE. But I get IV hydration the next two consecutive Mondays. Which help a lot. I asked for them as if 3rd treatment

  • Lordhelpmetoo
    Lordhelpmetoo Member Posts: 197
    edited April 2017

    Tara, thank you! I'm not a vegetarian but probably heading that route. I also have lentils almost every day. I also have a morning smoothie with banana, blueberries, leafy greens, apple, and a scoop of plant based protein.

    You're right about the vitamin D. I had it checked at beginning and was extremely deficient. Dr put me on 50,000 u per week for 12 weeks. It's back to normal. Now I take 2,000 per da

  • MommyErin
    MommyErin Member Posts: 187
    edited April 2017

    Tara17- Would you mind elaborating on why you were warned not to gain weight? I've had the opposite experience (nurses and onco happy I've gained a little since starting treatment instead of losing weight) and I'm by no means underweight (athletic, healthy BMI). Thanks

  • moodyblues
    moodyblues Member Posts: 470
    edited April 2017

    I am becoming a bit afraid.  I will be starting chemo in several weeks (after my last tube comes out next week and the holes finally heal up)  Can I do this?  I know I have to but can I really handle all of this?  Herceptin, Taxol........  Geez, will anyone be able to help me as I go through all of this?

  • Tara17
    Tara17 Member Posts: 386
    edited April 2017

    hi mommy Erin - I am Petite not overweight : was advised not to gain weight / becbecause lot of folks gain weight on chemo - anti nausea meds are nowadays very good so people eat more , are more sedentary during chemoand then can become overweight - obesity is associated with more issues in breast cancer . So might be best for me to rephrase and say gaining a few pounds is fine ; but letting that slide into becoming overweight is not good for health outcomes

  • Tara17
    Tara17 Member Posts: 386
    edited April 2017

    moody blues - you can do it !!! I too have been on taxol and herceptin - we will support you through this !!

  • MommyErin
    MommyErin Member Posts: 187
    edited April 2017

    Tara17- Thank you! That make sense.

    Moodyblus- You can do this! Side effects really are well managed now. And like Tara17 said, we're here for you!

  • moodyblues
    moodyblues Member Posts: 470
    edited April 2017

    Thank you Tara17,  I am banking on it!

  • moodyblues
    moodyblues Member Posts: 470
    edited April 2017

    Thank you MommyErin, I appreciate your encouraging words.  :)


  • Tara17
    Tara17 Member Posts: 386
    edited April 2017

    hi Mommy Erin --especially as you said you are athletic , i think even more that a few extra pounds are fine for you! Exercise is associated with better cancer health outcomes

  • Soxfan75
    Soxfan75 Member Posts: 115
    edited April 2017

    I was in my fog all week and finally hospitalized with a neutropenic fever. They've been pumping me full of antibiotics and IV fluids. I'm still here for at least one more night (been here for three days now), my fever has gone down so hopefully they'll finally let me got home tomorrow. If they don't, I might actually have to buy all of those things I've put in my online shopping carts. Lol

    Tara17-my white blood cell count was 1.4 when they sent me to the emergency room on Thursday. This was my second infusion and I didn't get a neulasta shot this time either because my white blood cell count was high on the day of the infusion. Not sure what they'll do next time around.

    Lordhelpmetoo-Congratulations on your last infusion! This must be a huge relief! Is this it for you or do you have additional treatment you're looking at?

    Kimburke-I hope you were able to get that headache under control. I imagine Jamaica would be too hot for a wig. How much hair have you lost so far?

    Moodyblues-You absolutely can do this. I think you'll be surprised at just how strong you are. Mommyerin is right. The side effects really are well managed. My biggest fear was hair loss but once I started researching it and discovered I could combat it with cold capping, I felt a huge weight lifted off my shoulders. For me, information is key to relieving anxiety. It's not the same for everyone, but if you're going to do it, stick with the reputable sites. We're here with you every step of the way!

  • Mquara
    Mquara Member Posts: 85
    edited April 2017

    Checking in. 4 days past my second round of TC. Having a rough time. I was in the hospital with pneumonia last week, now I'm in Neulasta hell plus even with the Dignicap my hair loss is going strong. At this rate I am at least 50% down, if it doesn't stop I don't know if I'll have any hair left for round 3 on May 9th.

    They had a problem with my PICC line this week so I have a dark angry bruise on my arm too. Just feeling sorry for myself today. I can do this......but the hair, it's puttting me in such a funk that my anxiety meds can't compete.

    Hugs for everybody else having a bad day :(

  • Soxfan75
    Soxfan75 Member Posts: 115
    edited April 2017

    Hugs back to you Mquara. We're all entitled to have as many bad days as we need. Maybe this is the big shed period and it will stop or slow down soon. My onc said to stick with it even if you lose a lot of hair because your hair will grow back faster. It's still frustrating and scary after all you're doing to save it. Sending lots of healing thoughts and positive vibes your way!

  • Prue_pueng
    Prue_pueng Member Posts: 17
    edited April 2017

    I don't use coldcap. On my #2 chemo I still have full hair ( buzz to about an inch) during that time hair fall a lot to about 10% left. I decided to shave my hair right after my #3 chemo.

    It was a relief don't have to worry about it any more. I was cried at the hospital when I knew that I will loss my hair.

  • Lordhelpmetoo
    Lordhelpmetoo Member Posts: 197
    edited April 2017

    soxfan75,

    Hoping you're doing better after being in the hospital. I'm having a bilateral masectomy next month, then tamaxofen for 10 years.

Categories