CMF

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bkglenn50
bkglenn50 Member Posts: 138

Hi Ladies, I havent been on in a long time. I mostly just read and learn. Lol But my options are all just about gone and my Dr put me on CMF Hey says it's old school chemo. If anyone has had any experience with it I sure would appreciate it. I still feel great and work full time. But, I have extensive liver mets and lung.💙💚💜Thanks so much!!

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  • blainejennifer
    blainejennifer Member Posts: 1,848
    edited April 2017

    Did CMF for six months, and it was a very easy chemo. If you haven't done Xeloda, you'll probably get more time out of it than I did, as CMF is the infusion version of Xeloda. I was surprised that I got as much time out of it as I did, as I had a good 13 month ride with Xeloda about two years ago.

    I'm very impressed that you are TN, and that you've been doing this for 9 years now?! You need to tell us how you've done it.

  • bkglenn50
    bkglenn50 Member Posts: 138
    edited April 2017

    Oh my goodness I didn't know that it was the infusion form of Xeloda. Xeloda kept me Ned for almost six years! I've been trying to keep it at bay for the last 3 years. I've tried so many I can't remember them all. Hopefully, I'll get some time out of it. Thank you for answering me. At least I'll kind of know what to expect.

  • Westthebest
    Westthebest Member Posts: 31
    edited April 2017

    Hello bkglenn50,

    I'm on CMF. Had 3 of my 6 treatments...the drugs were way to strong 1st round...i'd told ONC i am a drug lightweight. He realized that when my counts plunged. Cut it back 25%....then did mutation genetic test (waiting for results) but he thinks i'm not processing/exiting drugs fast enough....yes, I could tell by how I felt...hopefully he's dropping all drugs by 25%...I say-if you feel something is "off" advocate for yourself until you get relief, or a better answer. I am working too, and it is a wonderful distraction. Nauseated during treatment, and for a week off and on...then better. Getting a bit lazier as I go re exercise..but I run around quite a bit anyway. Did shopping therapy today-success! Best to you.

  • Dvdsp
    Dvdsp Member Posts: 43
    edited April 2017

    Hi! my mum is on CMF chemo, only 2 cycles, her CEA TM was 255, after 1st cycle 140, and 2nd cycle 104. It seems to be working, although her transaminases are quite high and she has stopped her chemo at least 2 weeks. My mums mets are pleural and mediastine so we are hoping its "only" a SE of all her treatments

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