Exactly the same dilemma as Maize.

Options
Stewpot9
Stewpot9 Member Posts: 1
edited April 2017 in DCIS (Ductal Carcinoma In Situ)

Hi Maize,


I am emailing you on behalf of my wife, who has just undergone treatment here at The Royal Marsden Hospital, Sutton, England.

Her diagnosis 'mirrors' yours and is almost exactly the same as yours, and she faces the same dilemma, as

to whether or not to have radiotherapy.

Your post was excellent, detailed and concise, and I would VERY MUCH like to know what you decided.

I hope you won't mind replying to my message etc.

Many Thanks in Anticipation,

Stewart


(Edited by Mods to remove user's personally identifiable information)

· Share on FacebookShare on Twitter

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited April 2017

    Hi Stewart, welcome to Breastcancer.org!

    Maize hasn't been seen in the boards since August 2012, so might not see your post. If you want you can try sending her a private message, which is like an email in the community, and see if she's still around. You can do that by clicking on her username (maize), going to her profile and under the information at the top, you'll see the option to send a private message.

    Anyway, we encourage you also to describe your wife's story and what the dilema is here in the forums, so other members can help too!

    Good luck. Please let us know how you and your wife are doing!

    The Mods

    · Share on FacebookShare on Twitter
  • BarredOwl
    BarredOwl Member Posts: 2,433
    edited April 2017

    Hi Stewpot9:

    Perhaps you could revise your post and/or profile to include information regarding your wife's age, surgery, and diagnosis (e.g., presence of any invasion or pure DCIS based on the combined findings of all biopsies and surgeries; size; grade; ER status; PR status), plus surgical margin sizes. Then others can share their recent experience.

    Breast cancer treatment is continuously evolving. Since 2012 (when Maize last posted) a number of clinical trials relevant to the question of radiation (or no radiation) for DCIS have been published, and new local clinical consensus guidelines applicable to DCIS with breast-conserving treatment (lumpectomy) and whole breast irradiation were issued in 2016 by ASCO. Thus, the advice that a person received in 2012 might not be the same as they would receive today in 2017, and their ultimate decision might also differ. (Note also that Maize later mentioned, ". . . it appears I may have a collagen disorder . . ." reflecting how patient presentation (e.g., age and/or potentially relevant co-morbidities) may affect medical advice and individual decision-making.)

    Your wife's team, including a Medical Oncologist and Radiation Oncologist, should be able to provide her with case-specific advice regarding her estimated risk of local recurrence with or without various treatment(s), based on their associated risk reduction benefit(s) (e.g., with no further treatment; with endocrine therapy alone (for hormone receptor positive disease); with radiation therapy alone; with radiation therapy plus endocrine therapy). The size of the potential risk reduction benefits must be weighed against the incidence of serious adverse effects, in light of her personal risk tolerance.

    BarredOwl

    · Share on FacebookShare on Twitter

Categories