How many had rising CA 125 Before mets discovered?

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9lives70
9lives70 Member Posts: 127
edited April 2017 in Stage IV/Metastatic Breast Cancer ONLY

I had my BMX 2/28 with clear nodes and margins however my MO is concerned with a rising CA 125...before surgery it was 47. Had CT scan that was clear. Now just did my post surgery blood work and the number is up to 52.

MO ordered PET scan for next week ( even though he refused to give me one initially when I asked for one to have one to use just a baseline because he said it wasn't protocol… then as soon as he got my blood work he was like oh yes, let's get one next week..this rising number is a mystery...)

I'm terrified now that I am already stage four rather than being stage 2a as they told me upon diagnosis and after my BMX.

It's worthy to note that I am premenopausal and I do understand that this test is not as reliable in premenopausal women and can Also rise from benign conditions ( however seems some of the benign conditions would've shown up on my initial CAT scan?) all my other bloodwork looks totally normal...

I was wondering how many of you guys were in the same situation with the rising CA 125 before you were diagnosed with mets?

Thanks for sharing, I appreciate it. Sending you love and light.

9lives70


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  • Lauriesh
    Lauriesh Member Posts: 692
    edited March 2017

    there is a forum for those concerned about mets, it is probably better to post there.



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  • 9lives70
    9lives70 Member Posts: 127
    edited March 2017

    thanks...I just posted there too, but was curious to know if a similar rising trend of this marker was seen in women here before they were actually diagnosed at stage 4,vs just being concerned about possible mets. That's why I wanted to post it here too.....:

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  • zarovka
    zarovka Member Posts: 3,607
    edited April 2017

    9lives - you are welcome here. With ILC, you have to pay attention to tumor markers because scans don't always pick it up. You should ask about testing for circulating tumor cells as well. That said, ILC can be spreading without showing up in a scan or a CTC test. I would watch this carefully and get a second opinion at a major cancer center. Find someone who works with a lot of ILC. Complicated space.

    >Z<

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