I'm feeling sorry for myself tonight.

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I've had a rough couple of years. In July of 2015, my spouse entered the hospital. She was very very sick and was in and out of ICU during the 8 weeks she was there. She passed 8/31/15 from liver failure and many, many complications. I missed 8 weeks of work, using a combination of sick leave and vacation time.

In September, I had my annual mammogram. They saw a suspicious area and made an appointment for a re-do in April. I was so wrapped up in grief and in trying to get the estate in order and the bills paid, that I didn't put much thought to the suspicious area. I had breast cancer 17 years ago, when I was 39. I've had numerous biopsies and tests, so I really wasn't worried about it. I already had enough to worry about.

I hired a lawyer and we worked towards getting the estate settled. I discovered that, according to state law (and dying without a will), I only 'Owned' half of my house. My 4 sister-in-laws owned the other half. We got this settled in court. I started to dispose of her belongs - like her car that wasn't paid for - and riled up the sisters again. I had to detail out my finances for her sisters before they finally realized that my household income was more than cut in half. I couldn't afford to make payments on things she had purchased. I couldn't even keep our house.

I arranged to sell my house and to buy another one with lower payments and much lower interest. While I visited my new house to be for the first time, I received a call from my doctor's office, telling me I needed a biopsy after my recent mammogram. That stopped me dead in my tracks.

I had my biopsy, then said good-bye to my closest friends (they were moving to Florida). I waited and waited for my results. They didn't come in when they were supposed to, and my nurse said I'd have to wait to see the doc to get my results. WAIT! That's a bad sign. A friend, the nurse manager of the cancer center, spoke to my doctor. Then she called to let me know I had IDC. Since I'd been through this once before, I didn't panic. I just meditated on the unfairness of the situation. My wife was my rock the first time I had breast cancer. Now, I had it again and didn't have her to help me through it.

A week later, I moved into my new home. Moving was hard; lots of memories to pack up and others to leave in the old house. The new house was great; me and my 4 dachshunds and 3 cats settled in quickly. Good friends helped me move and unpack.

One week later, I had a bilateral mastectomy. The surgery wasn't bad; I did have a few days after surgery that I did feel badly. I was soon able to do things around the house and take walks around the neighborhood. I returned to my job (desk work) after 10 days (half-days) and went back to full time the third week after surgery.

I thought I was feeling pretty good and tried to mow my lawn six weeks after surgery. I couldn't do it. I was exhausted. Two days later, my doc put me in the hospital. I had a giant seroma and an infection. My medical team appeared to think this was all related to my lawn mowing. Who knows? I was out of the hospital after many IV bags of antibiotics. They drained my giant seroma and left me with huge drain. I looked pregnant when I hid the drain under my shirt. They took out the drain after about a week.

I waited until August to begin chemo. My Oncologist was unsure about chemo and ran several additional tests, including oncotype. She told me that my cancer was a new cancer, not a recurrence. Because it was my second time around, I had no sentinel lymph nodes to test, and a medium oncotype, she eventually recommended chemo. I trusted her, and began to plan for chemo.

Chemo was not bad. I had one or two bad days each cycle. I had taxotare and cytoxin. I had no nausea and no bad side effects except for fatigue. I finished chemo in October and started seeing new hair on my head by Mid-December. My first round of chemo, 17 years ago, knocked me down completely. I couldn't work full time by the time I finished chemo back then. This time was so much easier.

In November, I got neuropathy in my feet and hands. It has't gone away, or lessened since onset.

Now, it's January. My head has cleared and I am amazed I made it through everything without going bonkers. My spouse's death nearly killed me, and so did the aftermath of settling her estate and dealing with her sisters. Moving was its own nightmare and so was getting settled. Having Cancer again just topped off my run of bad luck. (Bad things happen in threes, they say).

Lately, I ugly cry a lot at night. It all hurts, and I frequently ask, "WHY?" and "It's not FAIR." Why did I have cancer twice? Why did I lose my spouse? Why didn't she ever make a will? I feel very alone, in spite of my four active doxies. I did participate in grief counseling (maybe I should go back) and am on antidepressants and anti-anxiety meds too. I wonder sometimes if I am holding on to hurts from the past for too long. Why can't I seem to move ahead and get back to a normal life? I am finally growing some hair on my head. That means that everything should be fine now, right?

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2017

    I am so sorry for the loss of your spouse and your home with her. You've hit 3 of the major stressors in life in short time. Getting your hair back is nice, but no, it doesn't mean all is fine. It may be good for you to go back to counseling. You have a lot to process.

    Do you take anything for your neuropathy? Vitamin B12 helped with mine. There are different supplements that worked for other people. It's still early.

    I have no words of wisdom. Just wanted to let you know that you're not alone.

  • Jackster51
    Jackster51 Member Posts: 357
    edited January 2017

    hey groucho2... I think I'm groucho3 :-) I have no words of wisdom for you, but wanted to say I read your post and it touched me deeply. I'm so sorry for all you have been through. I cannot imagine. Try to take it one day at a time and try not to put pressure on yourself to be somewhere where you 'think you should be'. You are where you are. You've been to hell and back. Cut yourself some slack. You deserve just to be..... Cancer alone is all consuming, and you just lost your love on top of it. Give yourself big hugs and we'll be doing the same. It's a process. Don't rush it and don't beat yourself up. We're here for you. Take it easy.

  • goldie63
    goldie63 Member Posts: 117
    edited January 2017

    My heart breaks for you groucho2. I am also newly diagnosed for the 2nd time, and I don't know what I would do without my spouse. She was the person who held me together 20 years ago, and she is holding me together now. Such a f***ed up world where the love you shared wasn't good enough in the world we live in without having the foresight to jump through a million hoops. You've been through / are going through much grief. Be kind to yourself and take whatever time you need to heal. Lean on friends. Take it one day at a time. Grief counselling again might be helpful. Take care. Big hug

  • groucho2
    groucho2 Member Posts: 51
    edited January 2017

    Thank you for your thoughtful replies, Ladies. Sometimes, I do feel very alone. It's good to come on here and shout out to the universe and get great replies that let me know I am not alone. I feel your love.

    I appreciate your reassurance that there are friends out there and to take the time to grieve and mourn and get better in my own time. I'll text my counselor next week for an appointment. I'm obviously back into grieving again -- or depressed.

    godie68, I am so sorry to hear of your diagnosis. It's so hard the first time -- and you survived. And now there's a second time ..... I's so glad your wife will be with you.

    I'm glad you have your support people in place. Best wishes and {{{HUGS}}}

    I'm so glad you understood about dealing with my wife's sisters. They are so sweet on the exterior, but such female dogs under that sweet exterior!

    This is the first time I've written about the sisters, because they are all on my social media, reading everything I write online. I could never be honest about all of the roadblocks they tossed in my way after Emmy's death and while settling her estate. I've talked to some friends in private about them, but to be honest, my closest friends moved to Florida right after I had my biopsy. I miss them so much! Texting and calling aren't the same as being here. They were with me every day while Emmy was in the hospital. They kept me from going crazy.

    Now that cancer is "over," I am very lonely. I still call friends about once a week to get together, but most of my friends are couples with kids. I feel awkward a lot of the time. I'm not ready to date, or to be 'set up' with someone. I'm not ready emotionally. I know i need to make some new friends, but am not sure how to go about it. I'd had my other close friends for so long that their leaving left another huge hole in my heart and life. How do you find new friends? Church? My beloved church is dying and membership is shrinking monthly. Not many new faces. No use to look for friends at work. I work with the same people, day after day. I do volunteer at a local animal rescue.

    I just don't know what do.

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited January 2017

    groucho2, I was feeling down today and you made me feel better. When I stress out over this crap, it helps to realise others have it worse. At least I have my husband of 20 years, even if I have had no one else but moral support from my mom. Prayers for you!!! Hugs from lovinggrouches lol!!

  • goldie63
    goldie63 Member Posts: 117
    edited January 2017

    Hi again groucho2. We've been having that discussion about friends in my group of friends, because of some new(ish) friends in our group now. A year and a half ago a lesbian couple moved here from out of town, and bought the house next door to some good friends of ours. They all met one day, started chatting, and soon enough the new couple was totally a part of our group. And so they've started the conversation about how lucky they were to move where they moved and just fall into our group of friends. Cuz it's hard to make friends when you're an adult! Too bad we couldn't just walk up to someone we feel a connection to and say 'want to be friends?' Kind of like we did when we were kids!!! So I know it's hard to make friends, and it requires effort, and sometimes more effort than we have to give. Even just a few connections can be a lifeline, though. So no words of wisdom from me. I think the thing is to try to meet people at places where you would have common interests, which you're doing. I will say though that if you lived in my community I'd walk up to you on the playground and say 'want to be my friend?'. Lol. Take care

  • tangandchris
    tangandchris Member Posts: 1,855
    edited January 2017

    Take care groucho....you are a strong person but even us strong ones can feel sorry for ourselves. :) One step, one day...sometimes one second at a time ((hugs))

  • hugz4u
    hugz4u Member Posts: 2,781
    edited January 2017

    Hi, sorry about your rough patch. I think your not done grieving. That takes time. More counselling? You have four doggies, if you have a dog park try that out. While doggys are off leash people stand next to eachother and talk about dogs which no doubt you will have lots to say about your four cutey critters! Friendships can blossom there because people regularly hang out.

    Nights might be lonely. If you have FaceTime it feels more connected than text or phone calls. Try volunteering at night maybe instead of day to keep busy. Maybe a old person next door just needs a hello from you or a checkup. I wrote a list and posted it on the fridge with things to do when depressed and made myself pick one item and forced myself to do it. I felt better when I did this.

    Try a new church or faith if current one is not answering all your life's questions or if you need a more vibrant crowd. Turn to the person behind you and offer a small conversation. You sound social so jump in!

    My therapist said about solving problems. if it's not working try something else!

    Thinking of you


  • Goincrzy8
    Goincrzy8 Member Posts: 387
    edited February 2017

    I am going to vent under this title as I am feeling sorry for myself also. DX in Oct,UMX Dec. Positive nodes of course chemo in the future, Stage IIIC. MO at end of Dec orders CT ABD PELVIS CHEST. Something in the left Kidney that the RO finds, MO doesnt mention to me at all even though hand delivered to her office 10 days before. The RO hooks me up with a Nurse Navigator thank goodness, as the MO doesnt have a working relationship with her. RO orders me to see urologist for kidney and PET Scan. Went to Urologist yesterday, now need left Kidney removed. Some spots on the spine, and the MO acts likes I am dying. I AM NOT, this is all fixable. SO far no chemo no rads, she starts me on hormone therapy for now while I guess they run more tests. Looking for a second opinion and a new MO.

  • groucho2
    groucho2 Member Posts: 51
    edited March 2017

    I thought I'd post an update. I'm back in counseling and am processing some stuff related to my wife's illness and death and to my recurrence of breast cancer. I'm doing pretty good. Her birthday was last week. I took the day off and went to the movies. It was one of our favorite things to do. I ate dinner with a friend and we made a toast to Emmy (my wife).

    This will sound strange; I never changed the pillowcase on Emmy's pillow after she went to the hospital. I've kept the pillow near to me, but never slept on it until recently. I've had some really, really bad insomnia, and sleeping on Emmy's pillow seemed to help me sleep better. I know it sounds kinda gross that I kept the same pillowcase on the pillow for a year and a half, but, honestly, it wasn't dusty or dirty or anything like that.

    Tonight, I washed the pillowcase and put it back on the pillow. It may sound like a small thing, but to me it was another step towards letting her go.

    Thanks for listening.

  • wallan
    wallan Member Posts: 1,275
    edited March 2017

    Hey there:

    I just read your story and posts and I want to send you a big HUG.

    You have been thru a hell of lot in the last year.. .I am astounded by your strength and guts.

    You are really inspirational to me.

    Please know you are in my prayers.

    wallan

  • LAstar
    LAstar Member Posts: 1,574
    edited March 2017

    Hugs to you, Groucho2. Your mention of washing the pillow case brought tears to my eyes. You have come through an incredible onslaught of obstacles, and it sounds like you are carrying yourself through this all with patience and kindness. I hope this summer brings you flowers, more dinners with friends, smiles, good health, and peaceful moments.

  • goldie63
    goldie63 Member Posts: 117
    edited March 2017

    thanks for the update Groucho2, very glad to hear you are starting to find your way.

  • groucho2
    groucho2 Member Posts: 51
    edited April 2017

    It's time for another update! Things are starting to fall into place for me, except for the social part. I began seeing a new psychiatrist that my oncologist recommended (insisted on). She is currently messing with and changing my psychotropic medications. I am sleeping better and find myself doing things that I've put off doing for a long time. It's much easier to get things done now. I concentrate better at work and am finally actively working with a problem employee I've avoided dealing with for months.

    Although I see signs that I am doing better, I really don't feel any better. Hopefully, I will begin to feel better soon since I'm already "acting" better.

    My new psychiatrist wants me to join a grief group, but all of the groups around here are run by non-affirming churches. She doesn't understand my outright refusal to attend a grief group at a non-affirming church (one that does not accept GLBTQ). She tells me grief is grief.

    I know that grief is grief, but I don't want to attend a group only to be told that my love/grief for my spouse is somehow less than if we were a heterosexual couple. Perhaps that is prejudiced, but I have had very bad experiences with being judged by so called "religious" people since Emmy's death. But then again, I have had incredibly affirming experiences with some extremely fundamentalist people, too. I don't think of myself as religiously prejudiced; my psychiatrist is Muslim (Malaysia), my old psychiatrist is Hindu (India), and the counselor I saw for many years was from Pakistan (also Muslim). The counselor I sometimes see now is Native American. But all of these people were also gay affirming.

    I don't know. What do you think about attending a grief group sponsored by a Church? (The dominant denominations in this area are Southern Baptist and Church of Christ. [they make Southern Baptists appear liberal]). I can probably talk to the counselor ahead of time, since I still have strong ties to the counseling community (I am a licensed professional counselor - but have not practiced in 15 years), and get a feel for how the group will be run.

    Maybe I can find a good, online grief group.


  • LAstar
    LAstar Member Posts: 1,574
    edited April 2017

    Hi, Groucho -- glad to hear your update! You are putting one foot in front of the other -- that is great. As a refugee from the Bible Belt, I am also very hesitant to subject myself to that intolerant mindset. I wonder if you could find a few like-minded people (maybe women in particular) to form a group that talks through grief and any other personal issues. You should not have to deal with anyone's personal prejudices while you are working through your loss. Meeting with a faith-related grief group might be an opportunity to teach others the depth and validity of your relationship, but that burden should not be yours right now.

  • gracie22
    gracie22 Member Posts: 229
    edited April 2017

    Groucho, congratulations--you are doing great. Don't know who wrote it originally, but as a counselor yourself, you probably know that "feelings follow behavior". Just keep doing what you are doing and your mind will catch up. There have got to be some LGBTQ grief groups somewhere nearby. Any LGBTQ clubs/social groups you can mine for info? I have always lived in big cities where that's not an issue so am unfamiliar with what is possible in your area of the US. Agree with LAstar's lovely post--you should not need to deal with intolerance/distance from others at a point when you are so in need of solid support.

  • Tickety_boo
    Tickety_boo Member Posts: 16
    edited April 2017

    Is there a liberal church in your area? I understand your concern; it's important to be able to express yourself and feel like it's a safe place. I also have a female partner. Some of the more liberal churches include Presbyterian, Methodist (not the Missouri Synod), Episcopalians and if you can find the Unitarian/Universalists you are golden (that's where I go - very LGBT affirming). I went to a grief support group after both my parents died within 7 months of each other. It was absolutely invaluable; the most helpful thing I did to deal with it.

    You have certainly been through the wringer of life! Take care.

  • groucho2
    groucho2 Member Posts: 51
    edited April 2017

    Hi Tickety_Boo. Hi Gracie22. I belonged to the Metropolitan Community Church (a predominantly LBGTQ church) for over 25 years. Our pastor left, we got a new pastor and he effectively killed the church. Then, the treasurer embezzled all of the church's money and that was the end of the church. I loved that church and hated what happened to it. The members scattered and most do not attend any church now. The local social LBGTQ groups are much, much younger folks. I did try a couple of "Meet Ups," and found some really interesting people.

    Oh, Wow! A new internet search just discovered a local (Affirming) Methodist Church finished a 6 week grief group on April 5th! I can call the church tomorrow and find out when they will do their next group! This was a sister church to my old church; I trust them.

    Thanks for the feedback and for the push to find an appropriate group.

    In other news, I got my first haircut since chemo this week. It looks good and feels good. I don't know where all the silver highlights came from or where my light brown hair went (it's now salt and pepper), but it's hair, and I'll take it

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