INSOMNIACS place to talk in the wee hours

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2017

    Mommy- congrats on making it to 4 years. I remember when they started talking about the whole "five year" thing, including how long I would have to take the AIs, it felt like forever. I am heading towards my 5 year cancerversary later this year, and will be done with the AIs next March. It has all gone very fast.

    I am glad you are doing well friend!

  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited March 2017

    I know Jazzy, it seems like it was only yesterday when I started this crappy journey. Can't wait until I hit the 5 yr. mark myself!!!!!


  • susan3
    susan3 Member Posts: 3,728
    edited March 2017

    Next Monday I am at 15 years 🤔. Time does fly :)

    Sheps, good to see you post. Happy only one treatment. Good luck,with eyes getting better

    Lookie, I was wondering how yucky the bruising was. That has to be,real sore. Gentle hugs to you

    Happy Saturday to everyone else :)



  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2017

    Susan- you are my hero!

  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited March 2017

    Susan: wow. Yes, definitely live, and love, to the fullest.

  • Lita57
    Lita57 Member Posts: 2,437
    edited March 2017

    Sadly, I probably won't make it to 5 years with all my Stage 4 mets, right from the gate.

    BUT THAT'S TOTALLY OK...TERMINAL CANCER...CHECK, ALREADY GOT IT, MY DUDE!

    image

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2017

    Hi everyone, I've been reading, but haven't taken notes so won't remember everyone personally.

    Loverly, thank you for the Dr Mike pic. LOVED it. I sure could use his help!!

    Lookie, You had exchange and FG at same time, right? I read you have a lot of busing from the FG...how's your pain?

    Thinking of everyone who is struggling.

    Shep, I'm so sorry for your hospital experience. I've been thinking of you so much!! Healing hugs!!!

    February was such an intense month for me with work and lots of appointments for my kids. I'm having a hard time balancing my time and energy. But, I want to share a happy story, and I'll bold it for Shep. My DS is taking a 10th grade PE class this term, and a week ago at conferences the PE teacher talked to me about having DS join the high school track team. He said my son is so nice that he will have a good influence on others, and it could be a really good experience for him, plus he's a good runner. So, this boy who was 1 lb 13 oz at birth, did not talk until he was 5 years old, and is very delayed, has been asked to join the school track team. Practice starts in just over a week, so I've been scrambling to get medical release forms signed, talking to a coach, etc. Of course, I'm excited, but also freaking out. This means DS will have very little supervision for over 2 hours. (He receives some adult assistance during school.) He'll have about 1/2 hour after school when he will need to change his clothes and have a snack before getting to the track. I know the coaches will watch out for him, but they'll be managing over a hundred kids. Tomorrow I'm shopping for work out clothes. I'm told they will be outside even in the cool weather. Special Olympics basketball goes through the 26th, so DS will be one tired boy for a couple weeks!

    Blessings to all!

  • Lookforward
    Lookforward Member Posts: 392
    edited June 2017

    Susan kudos to you, you set an example to all of us.

    Wildtulip I am sore and uncomfortable from the fat grafting , but the pain is not bad. It's just uncomfortable getting up and down or twisting around. I'm able to walk for some exercise , cook, but no baths.

    Wonderful news on your son making the track team, he must be very proud of himself

















  • Eeyore07
    Eeyore07 Member Posts: 113
    edited March 2017

    WildT: it is such a wonderful news on DS. You should be a proud mom! Thanks for sharing!

    Susan: 15 years on stage IV and still going strong! You are an iron woman! I read that you are still on chemo, just wonder since you are ER+, why haven't you gone thru any AI treatment ?

    Lita: you are so positive and happy. Love your "smiling face" ;-) and the t-shirt! Hope your shoulders keep improving and you can do high 5 soon.

    ShepK: glad to know your surgery went thru fine, hope you are feeling better every day, and your vision returns to normal soon.

    Hi and goodnightto all owelettes.

  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited March 2017

    WildT such a wonderful, positive piece of news to read first thing this morning. Congratulations to your son. May he always be known for his good influence on others. ANd may he know great joy in his new position on the team.

  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited March 2017

    This cold snap we are having is for the birds!!!!

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2017

    Wildtulip- congrats for your son's new adventures! So happy for you and for him!

  • susan3
    susan3 Member Posts: 3,728
    edited March 2017

    wildtulip, yeah for son...that is so,cool. Please keep us updated :)

    Eeyore, 15 years total. 10 were stage 3. Last 5 have been stage IV. I was er positive. Hormone therapy for 10 years. Then I became hormone refractory. Cancer used hormone meds as food. Took off like wild fire. 40 plus lymph nodes, spine, lungs, ribs. That was 5 years ago. Been on chemo since, no other options right now. My body is holding up well, fifteen years is a long time on cancer medicine. I am very proud of my liver and kidneys 😜

    Shepppppssss, hope you are feeling better

    Lookie, no baths!!!!!!! How can one survive :). Baths help my aches and pains. I would cry like a baby if I had to lay off for awhile😥

    Happy Sunday to all

    Queenie, how is school going ?

  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited March 2017

    WildTulip: how wonderful for DS! (that the coaches recognized the combination of 'nice' and 'varsity-level running ability')

    Susan3 school is going 3/4 fine, 1/4 slightly AAAAAAAAAAAAAAAAAaI'm in overmyhead, so far it isn't even funny. I'm taking three business classes, one computer--"Routing and Switching". Guess which one's giving me trouble? But I wouldn't have had it otherwise, as it's the computer class which I'm finding most enjoyable, engaging and educational.

  • WenchLori
    WenchLori Member Posts: 1,558
    edited March 2017

    Hi everyone! I'm baaaack! I've been gone for awhile as we have very limited internet access. My DH has been doing online college the past several months so I had to give up my daily dosage of BCO so he could get his school work done. He's finished for a while... I hope!

    I got thru chemo with flying colors after the first month or two being so rough. My Oncologist said I turned out to be a very boring chemo patient... I'll take comments like that all day long! I get to see all of my chemo nurses every 5 weeks to have my port flushed, we have a great time catching up with each other. After being part of my family for so long I'm sure I'll continue to drop in and say hi to all the girls.

    I'm starting week 3 of 6.5 weeks of radiation tomorrow, so far so good. Crossing my fingers radiation goes as well as chemo did. I love all the techs that take care of me during my radiation treatments. My radiation doctor Dr Wu is fantasic too lol

    It's going to take me some time to catch up but I'm going to jump in here feet first and get myself up to date as well as I can. I'm looking forward to being part of this wonderful group of people once again!

    Lori

  • Wren44
    Wren44 Member Posts: 8,585
    edited March 2017

    Good to see you Lori. Welcome back.

  • sensitivehrt
    sensitivehrt Member Posts: 359
    edited March 2017

    I'm so happy to see you back Lori.  I was worried about you!!!!  Welcome back <3


  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2017

    Hi Lori- welcome back!

  • susan3
    susan3 Member Posts: 3,728
    edited March 2017

    good luck with rads Lori :)

    Queenie, I bow to you for going back to school. If I needed to hide from people, school would be the place to go...no one would ever think to look for me there😏


  • magdalene51
    magdalene51 Member Posts: 2,214
    edited March 2017

    Welcome back, Lori! We like to hear that we are boring patients, don't we? I was, the first time around, too. Oh well.

    WildT, I can hear your heart bursting with pride over your DS. What an awesome testimony to the job you've done bringing him up!

    Susan, you failed to mention that 5 years from stage 4 dx is still pretty impressive. Most only get 2-3 years. It was quite a wake up call to me when MO said that without tx I'd have 4-6 months, tops. Whoa Nelly.

    Queenie, my mom got a bachelor's in social work at age 65 and went back to work. She'd only had a hs diploma. You've got this. What degree are you going for? If any.

    Shep, are you able to get some rest while you recuperate? Hoping so.

    I'm in between naps right now, seem to be sleeping an awful lot. Can't shake the cough & congestion, and the acid reflux keeps hanging on as well. Fortunately no more N&V since Tuesday. And I took a leap and asked cousin for spaghetti last night, though I ate about half what I normally do, and had a bit more today sometime. Keeping up with the acidophilus and probiotics. My left jaw has been acting up again, I still have a tiny bit of emla cream which really relieves the pain. I'll ask doc for more tomorrow when I call to tell them I've been a bad girl and not called 911 when my temp has hit 100.5 like I was told to, and that it's because the ER is the ghetto of the hospital, they can't access a vein without blowing it out, and no one's ever taught them to access a port, and I've never been there less than 6 or 7 hours, and that's when it's not busy. So if they want me at a hospital, they just need to admit me. And that is that.

    And Lita, I am stealing that picture! I love it!

    *waving at the ones I missed*

  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited March 2017

    Well done you Wenchie. Nearly done! Here's to onwards and upwards!

  • susan3
    susan3 Member Posts: 3,728
    edited March 2017

    mags, I was shocked when I found out most don't access ports. I think at this point right now, I could access my port :). Spaghetti sounds good. Quiennie's husband makes the best !

    Morning all. Hope everyone feels better today.

    I went to sleep at 6 last night. That felt good. Bailey wasn't as happy, so at midnight we were throwing the ball in the backyard. Then back to bed. I have a long work day today :(

    My hubby got a new job...yeahhhh. Starts the 21st of this month. I could quit my job now if I want to....not sure what to do. Maybe I will first cut back more and just work one day....

    Happy Monday:)

    Chevster, is your breathing better?


  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited March 2017

    Lori: yes, "boring" is the way to be!

    Mags: yeah, I wouldn't want to go to the ER either, and ours isn't bad, for an ER department. Small town's are good for something!

    As for my educational goals, it's either stop at what this community college has to offer me (combination of computers and business) or pole vault into a graduate program elsewhere (probably a variant on MBA) if I can figure out how to pay for it, and what to do with it when I'm done. (I have a masters in library science, but don't care to go back to library work.)

    Susan3: spaghetti--everyone's favorite comfort food! But glad it's not me whom Puppy Bailey's getting up for Ball at midnight.

  • Wren44
    Wren44 Member Posts: 8,585
    edited March 2017

    Listening to all the problems accessing ports. We had a client who had been a heroin addict. He said it was all he could do to watch them approaching the vein at the wrong angle. He wanted to yank it out of their hand and do it himself. When they ask me if my veins are hard to hit, I lie like a rug and say no. The actual record is 2.5 hours with everyone in the hospital taking a turn. The blood bank does OK though. I figure they're going to do a better job if they feel confident.

    Mags, I agree with your assessment of the ER. The only way to be seen right away is to arrive in an ambulance, sirens going, and heart symptoms. Otherwise, it's back of the long long line.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2017

    Back in 2012 when I had a ruptured appendix and was in the hospital for 8 days, I had two IV's, one for high doses of anti-B's and the other for fluids. I remember one person coming in to change one of the needles and jabbed at me many times until I demanded someone else. I will never forget how black and blue my left hand was, even in my morphine stupor. Hospitals are scary places......

  • WenchLori
    WenchLori Member Posts: 1,558
    edited March 2017

    Thank you for the wonderful welcome! I'm thrilled to be back!

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited March 2017

    Hi gals.... Jazzy, I remember (kind of) when I was about 14.... So sick one day, then worse at night.... Then I remember that sharp pain going across my lower stomach.... The next morning I could hardly move, but the pain was better. They had a Doctor come over, he pushed on my stomach, and thought right away I had appendicitis...

    They finally took me in.... surgery, and they told my folks I only had 50/50 chance of making it.... It was serious THEN in 1951 ! I can't imagine anyone having it now-a-days....!

    I was only in Hospital for a week..... I remember my Mom stopping to buy me a sweater-set that I liked... At that time, I just didn't care about MOVING much less shopping somewhere.... but she also fixed me cream of Asparagus soup.... my favorite.... Funny the things you remember!

    Wish you guys would quit going to the Hospital! Hope you all are doing better!

    Yes Susan, I CAN breathe better.... Still do the Nebulizer a couple times a day though.... Sooooooo windy here today! I went out at 6:30 this morning, when it was 45 degrees out... I was shoveling dirt around in my big pots, adding compost.... But THEN all of a sudden, this WIND came up, the temp dropped to 32, and I went in the house! Some storm up in the Mountains, with high-winds HERE! Oh well.... Supposed to be nice out this week....

    If it could only just STAY Spring!

  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited March 2017

    Welcome back Lori!!!!

    This is the first time today that I have been on here. So tired from being so busy!

  • susan3
    susan3 Member Posts: 3,728
    edited March 2017

    imageimageElena and bailey say hi :)


  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited March 2017

    https://www.facebook.com/thedodosite/videos/106701...

    Ms. Spookie......Cute Aussies above. I think they are Aussies


    And for Wacky Wednesday:

    image

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