MBC Alliance
I am so happy to share that I was just accepted as only a handful of patient/advocate members to the MBC Alliance! If you have not heard of it, it is a collection of breast cancer non-profits (including BCO), advocacy groups, pharmaceutical companies, and some individual members (like me), with the goals of furthering research, education about MBC (to medical professionals, early stagers, MBCers, and the general public), and providing support services to patients. If you have not yet seen it, here is there website:
I will be part of the advocacy committee, and specifically focusing on how the alliance can increase their social media presence and designing campaigns around the groups mission.
It is an exciting opportunity to share "our" voices with the key decision makers and help change the MBC narrative. And while I have my own personal views, I am just one patient, so I would love to hear what you all have to say as well as I begin to take this project head on. If you have any ideas, thoughts, or opinions, please feel free to PM me.
Comments
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Awesome!! What a great opportunity for both you and those that you can help with your feedback. Metastatic disease is so underrepresented as far as awareness goes. This is a great initiative.
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Becs-
Just wanted to say a BIG congratulations to you and thank you for your willingness to be a part of this initiative. Please keep us updated as the project progresses!
Hugs,
Sheri
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Becs - way to go!!! Let us know if there's anything you need from us. Note - I'm not Stage IV, but I feel really strongly that this is such an important thing that I hope you don't mind me affirming the cause.
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Go be loud! I am so happy you can do this for the community.
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