Radiation to start soon and I'm a mess.
I'm due to start radiation soon and I feel like I am literally making myself sick. I am so anxious, I can't sleep and my life is on hold. I am not doing anything - I can't do anything. This has nothing to do with the radiation treatment. I like and trust my doctors and want to move forward with it. Something happened about 2 weeks back that turned my head around. Someone very close to me (female family member) betrayed me... said something that left me shocked (I'd rather not go into detail). Is it true? I don't know, that is not the point. For her to tell me this knowing I have breast cancer and currently going through treatment stunned me. She should have my back but she stabbed me instead. I confided in her (careful who you confide in) and she used the information for her own benefit.. I saw a therapist through my oncology group and she told me that I need to take care of myself and and health now (I know), that I am going to make myself sick (I know) and that I should tell myself, "I will revisit this after my therapy".
I'd rather not visit the therapist again since I did not feel comfortable with her (nothing against therapists). I also told her I didn't want to go back into my childhood and talk about my parents etc etc. What I need is to be calm and not a nervous wreck when I start radiation treatment. How do I get these thoughts out of my head? Is it true? Not true? How could she betray me??
I don't want to go on meds but I can't live like this and don't want to have radiation therapy like this. Find another therapist? Breast cancer group? Valium.
any ideas would be so appreciated.
Comments
-
Patti, So sorry you're going through this on top of BC. Can I ask if the therapist that you saw (that you weren't comfortable with) actually ASKED you to go back into your childhood and talk about your parents? The reason I ask this is that I AM a therapist and would NEVER think that this was an appropriate topic to start with in someone struggling with BC (unless they themselves brought it up and wanted to work on that). Therapists are not one-size-fits-all, and are not for even for everyone. That being said, I have not only provided therapy to others (so I am biased on this) but also have been in therapy off and on over the years. I found being in therapy very helpful when I was going through treatment. Overwhelming anxiety can be common, and having somewhere you can 'dump out' what worries you the most (in a safe and completely confidential environment) as well as help you figure out ways to deal with it can be super helpful. So I encourage you to think about another therapist (but remember, I'm biased). However, there are some things that you can do for yourself that can be very effective in helping reduce your feelings of anxiety (and anger? at being betrayed). Some examples: warm bath, massage, yoga, aroma therapy (oils or candles with lavender), nice walk, soothing music, meditation/breathing, binge-watching tv/movies (for distraction), animal therapy (play with and pet your own or someone else's), chamomile tea, hot/tub or sauna.
Again, I am so sorry you are having to deal with this right now, but since it seems to come from a relationship place and not so much a I-have-cancer place (" This has nothing to do with the radiation treatment. I like and trust my doctors and want to move forward with it."), I would recommend therapy to help you sort out what is going on for you and how it is affecting you. Sending you bright light and hugs!
-
Thank you for your reply.
No, the therapist didn't ask me about my parents etc., I told her I didn't want to spend time exploring my past. What I needed was something fast to help me with my upcoming radiation. Practicing "letting go" and mindfulness helps but when the thought pops into my head in the middle of the night, it is horrible.
I dread going to sleep.
-
I've found therapy to be very helpful at various times in my life, but it is important to find a therapist you are comfortable with. Just because one wasn't a good fit for you, doesn't mean another won't be. Freudian therapy, where you explore your childhood in depth, is not very popular these days, so I wouldn't worry much about any other therapist, counselor, or psychologist wanting to go there. It does sound like this therapist gave you good advice about focusing on your treatment and getting well and going back to work thru this betrayal when you are stronger and have less pressing things happening in your life.
That said, I also found Xanax to be very helpful in getting thru my active treatment of surgery and rads. I relied on it heavily for a few months, but then had no trouble cutting back-I have used it for years to travel since most modes of travel, especially flying, cause me a great deal of anxiety-to my pre-BC levels of Xanax use. Sometimes a little chemical help is just what we need.
-
Everyone handles things differently, there is not a 'right' or 'wrong' way; for me, I had no desire to explore my emotions about everything until a LONG time after treatment was over. I did my homework, I trusted my team, and then I just had to DO it and get it over with. I asked for a prescription sleeping pill while going through treatment (which, for me, included both radiation and chemo), I bought some relaxation and hypnosis DVDs (which worked surprisingly well), I walked and did whatever other exercises I was up too throughout, I worked, did family things.....whatever I could to keep busy and not have time to dwell on things. It wasn't until about a year later that I felt I had the emotional energy to start to sort through everything. I went to a formal support group once, and found it was not for me. I have some local friends who have gone through treatment, and we used to get together about once a month and just talk (happily now when we get together the topic rarely comes up), and finding my way to these discussion boards has been very helpful to me. Just do what makes the most sense to you to get through this time and sort out the rest of it later. Best of luck!
-
I asked for a prescription for Sonata to help me sleep. Turns out I didn't use it more than 3 or 4 times in that year. I also had Xanax that I took when I had scans - MRI or PET/CT. Don't rule out a mild drugs for awhile. You're really up against a wall here.
But I also agree that therapy can be good. I just never had the energy or the trust to find someone.
-
I too have used Xanax on/off. It took awhile to find a therapist I felt comfortable with. Betrayal hurts. Nights are the worst. I listen to piano music on a timer or play the abc game. Apples, bananas, cantaloupe. You pick the topic.
I also do Jin shin Jyustu holds. They have really improved my life since chemo. Good luck! There's always somebody awake in these boards.
https://www.youtube.com/embed/videoseries?list=PL3R1sIQwcvVdQKSwXHjiKu9p_LtKyVFKs
-
Do you have a nurse navigator? These are RNs who guide you through your journey and can give advice or refer you as to what to do. Support group works for many. Meds are a must for me. I had depression and anxiety going in and had to bump it up with meds to get through active txs.
Second. Therapists are different. You want to get a cognitive behavioural therapist. They are the ones that teach you how to change your thoughts and cope with stresses. The one you saw sounds like a psychotherapist. They love digging in your past. They are good if you want to try and understand why you are the way you are. So I'd call different therapists and find out what type they are. Or you can buy cognitive behavioral therapy self help books. Those are just as good if you don't mind not having direct communication. I've been in a psych ward before for debilitating depression and anxiety, suicidal a couple times (before cancer) and the therapy we got was cognitive behavioural- coping skils to deal with the world once we are released.
So for the quickest I'd explore the self help cognitive behavioural books and start practicing the techniques. Also things like meditation, yoga---relaxation stuff helps.
Good luck!
-
Hi - I'd second everything MTwoman said, and the therapist's advise to revisit the issue after you've finished treatment is solid.
However, I'd take it a step further and make an appointment, on your calendar, to worry about it at a specific date and time in the future. I know that sounds ridiculous but I've used that technique with varying time frames, and widely varying issues, numerous times over the years. If you start to go back to worrying over the issue, remind yourself that it's not on your calendar for today and that when it is, you will spend 45 minutes (or whatever) stewing about it. Maybe schedule something else to take the time slot (lying in bed at night) such as what do I want to do for vacation this year? What do I need to do around the garden/house before summer arrives? What movies do I want to see this next month? If I were going to re-arrange the furniture what would I move to where? (I like to conjugate verbs in foreign languages in my head as a distraction but that's just me.
)
Sometimes telling your mind that you've got the issue under control - on your calendar for August 13th, for example, helps it loosen its hold on the topic.
Good luck as you finish up your active treatment.
-
Hopeful - I LOVE the calendar idea. People think I'm nuts for scheduling doc appointments 6-9 months out, but it does just what you said. It's not on my calendar today or this month and I don't have to worry because it's scheduled down the road.
-
Thanks, MinusTwo! I'm glad to know I'm not the only one who takes that approach to appointments, either.
-
I absolutely have the appointments made as I walk out the door from the last one. That way I can cross it off my worry list.....until the week before anyway.......and I try to keep that week super busy. I also have 'breast exam' written on my calendar for the 1st of every month; otherwise I'd be poking around 'looking for' lumps 24 hours a day
-
Thank you for all your responses. It has helped and I feel I'm able to block these thoughts from my head for most of the time. I am certainly much better than I was 2 weeks ago. So I marked the date when I will revisit this situation - March 12, 2017. Also I agree cognitive behavioral therapy is what I would be looking for if that is the route I want to take. Maybe a therapist, maybe a lawyer, maybe a private investigator. But I don't want to go there yet.
I've been going to bed pretty early every evening because I'm so tired during the day. Last night I force myself to stay up until 9pm but woke up at 1. I scream at myself to "STOP THINKING" which doesn't work and I was up until 2:30. I then made the big mistake of taking NyQuil. Quite a bit so this morning I feel as though I'm coming out of anesthesia and I'm like a zombie. Tomorrow the radiation "dry run" begins and I hope I feel somewhat better. The NyQuil put me to sleep quickly but I'm paying the price. I'm apprehensive about radiation so I think once that starts, I'll calm down a bit. But the NyQuil !! omg it's 4PM and I still feel like death
Thanks again
-
I'm glad to know you're doing better (except for the NyQuil episode!). I suspect that once you do your radiation simulation and start your treatments it will help, too. Did they advise you that there will (probably) be a wait between the simulation and the start of treatments? I think in my case they said 2 weeks but it turned out to be much less. Once I had the date on the calendar I just wanted to get started, because the sooner I started the sooner it would be over with!
If you do have some down time in between, I hope you can use it to pamper yourself a bit, even if in small ways. Hang in there!
-
I was told the treatment would start the next day. I already had the scan and the marks were placed (no tattoos). There was a one week wait and i start the dry run on Monday.
Artista - I do not have a nurse navigator and have never heard that term. Who recommends the nurse navigator? The oncologist? Primary physician?
What really helps are my friends who call and check up on me.
-
Artista - I'm at a major medical center and I did not have a nurse navigator either. There are places that still don't have that marvelous invention.
Patti - You'll just have to ask lots of questions from all the docs & nurses. Good luck. Do report back.
-
Hi, Patti - It's great that you were given a firm start date; the less uncertainty the better, right? I hope your dry run today was helpful. Are you doing the short (Canadian) protocol or the longer course? Either way, I think you'll be surprised at how brief each session is. I hope it all goes well and does what it's supposed to.
-
Hopeful - I had my first rads today and went very well. As others have said, it was fast and uneventful although I know it may be different in a few weeks. I was scheduled for 3 weeks and 1 week of boosts, but that has been changed to 8 days of boosts. A little surprised with my early stage dx.
-
Hi, Patti - One down! Let's hope for an easy course of treatment. You're lucky to be able to do the short course.
My total number of boosts was tweaked after planning, too. I think sometimes once they've done the simulation they can see what might get you the most bang for your buck, so to speak. And since it's focused on the tumor bed it's probably targeting the area most vulnerable to recurrence.
I found the boosts really, really easy. The skin turned pink with the first one (in a very defined pattern) but didn't get much pinker after that. And the rest of my skin started fading during that time so that it was almost pale again by the time I finished the boosts. That was pretty encouraging. Your mileage may vary, as they say, but I hope the whole thing goes fast and does what it needs to.
-
I came down with a bad case of food poisoning or stomach bug and missed one radiation appt. Still not feeling well after 3 days but could be ME making myself sick. Having said that, I have been better emotionally, keeping my revisit date of March 20 in my head (changed from March 12 since additional boosts were added). I'm sleeping better.
thanks for all of your help.
-
It seems like forever now, but really it is just a short blip in the rest of your life
-
Ruth - true. But I have a feeling this situation, actually both of my situations -cancer and betrayal- will be with me for a long time.
thanks
-
They'll be with you forever; but if you make new friends, have new experiences, make new (happier) memories, they will recede into the background.
-
You are right.
-
The further out you get from ending active treatments, the less you think about cancer. You go from appts/treatments every week for what seems like forever, but now that I'm on the every 2 mo visit with ps, 3 mo visit with MO & pcp, every 6 mo with bs it's not as much on my mind in between. Before there wasn't enough time to get it off your mind because you are off to another appt, esp when doing rads every day. I was done with rads end of June 2016 and it's been easier on my mind and stress than during. Hang in there. Keep up with your hobbies and interests, it helps. X
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team