Starting Chemo January 2017

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  • illimae
    illimae Member Posts: 5,710
    edited February 2017

    honeybeaw, I have chemo on mondays and work Tuesday through Friday but if I need more rest, I just go in late. Luckily, my SE's haven't been too bad and I have a lot of support at work, plus I don't really have a backup, so they take what they can get. Also, I put a sign on my door telling sick people to stay away, it's worked so well, I should have done it before cancer, lo

  • Westthebest
    Westthebest Member Posts: 31
    edited February 2017

    Heather,

    You made me laugh-about hair, which isn't easy. Lost mine completely last time 5 years ago. Hope not this time with CMF. Good for you with such a take charge attitude!

    Thank you,

    Westthebest

  • Westthebest
    Westthebest Member Posts: 31
    edited February 2017

    Hello Honeybeau,

    My diagnosis similar to yours, had BMX in Dec. Started CMF two days ago. 5 years ago unfortunately did 4 rounds chemo. I tried to work thru most of it. That helped my mental state immensely. Hired a helper for some. Everyone's different, but work and being busy got me through it. At that time my whole office knew. I still have wipe canister on my desk. The receptionist would call me if someone came in sick. They don't know yet this time. It knocked me hard Thursday, trying to rally. I can tell already I'm also leaning towards some new distractions to also keep me sane. Journaling this time which I couldn't last time. Yes, for me, the work opportunity, distraction, and normalcy was a huge plus!

    Best of luck to you.

    Westthebest

  • illimae
    illimae Member Posts: 5,710
    edited February 2017

    Side effects question: I'm on Perjita and Herceptin every 3 weeks and Abraxane weekly. On day 4 & 5 after the 1st Abraxane dose, I felt some random muscle/joint pains. They seem to come and go and felt like the flu coming on, I'm guessing that's normal, maybe? Anyone else experience that type of delayed SE

  • alc116
    alc116 Member Posts: 1
    edited February 2017

    hey ladies, I'd love to join this group too! I was diagnosed on 12/29 w HER2+++ 6+cm tumor w multiple lymph node involvement and a tiny spot on my sternum. I started TCHP 1/17 after much stress (had to push twice due to infusion rm scheduling, insured declined my PET, then showed up for chemo and my HP hadn't been approved, etc etc). I'm doing cold caps too which made the day go faster I guess. I felt great after, just a bit tired. I've been doing 15min of HIIT cardio a day per my onc and I think it helped a ton. I wonder how much worse the next one will be

  • Catgirl2
    Catgirl2 Member Posts: 104
    edited February 2017

    Hi alc116, I'm sorry you have to join our group. I'm sorry that you had such a rough start. What type of cold caps are are you using? It does make the day go faster when you have that to focus on. However, I feel like it makes for a long, cold day! Have you checked out the Cold Cap user thread. I get a lot of great tips from the ladies on there.

    I'm really dreading round 2 of my T/C on Wednesday.

    I hope everyone has a good Superbowl Day! I pretty much watch for the commercials!

  • MexicoHeather
    MexicoHeather Member Posts: 365
    edited February 2017

    Hi. The shoulder where by port is under really hurts. I let my Oncologist know, we checked the area, and my lungs and spleen. I don't know, but tonight it hurts like an SOB and I had to dig up my pain pills from the surgery. I am going to an PT thing tomorrow. The oncologist said he will order an X-Ray.

  • Melinda0628
    Melinda0628 Member Posts: 67
    edited February 2017

    Haven't been on in a while. Just finished my 2nd infusion on 2/3/17. Only 4 more to go yay! Ill be glad when this is all over with. Then on to rads. So far so good. I should be able to go back to work tomorrow. Bone pain from the Neulasta Shot has been thev worst for me and NO TASTE BUDS! Fatigue and losing my hair was hard but i dealt with it much better than I thought.

  • Catgirl2
    Catgirl2 Member Posts: 104
    edited February 2017

    MexicoHeather: I hope you got some relief and some answers on what is causing your pain!

    Melinda0628: It's always nice to feel like you're one stop closer to the end!

    I have my 2nd T/C of 4 tomorrow. I'll be half way there! Fatigue wasn't bad after 5 days on the first round. I've heard it gets longer with each round. I'm cold capping, so I just had my "Big Shed" the last couple of days. They say this should be the most I lose and the shedding will slow down. I'm sure my hair will be thin, but I have pretty thick hair. We will see if it's worth the cost and hassle. I will say that is is a major pain in the butt!

  • MKT1
    MKT1 Member Posts: 3
    edited February 2017

    BG46TN...good to hear from you about port. I have already had surgery, so limited to chemo in one arm. Getting a port tomorrow, then chemo round 2 the next day. Hope that you are doing well

  • Melinda0628
    Melinda0628 Member Posts: 67
    edited February 2017

    This has been a rough week, of course the first week following chemo always is I worked yesterday and today, with yesterday being awful but today was a bit better. Tomorrow should be even better. I have to leave early tomorrow since I have my Gosserlin shot. I am just counting how many treatments I have left. I know it's killing whatever may be left but I am so tired. Its been a long 4 months since diagnosis and surgery and now chemo. I still had radiation but that will seem like a walk in the park compared to chemo.

  • Melinda0628
    Melinda0628 Member Posts: 67
    edited February 2017

    Hi there,


    I also started my chemo in January, 1/13. I have had 2 now! Last one to be end of April....just counting down :)

  • MexicoHeather
    MexicoHeather Member Posts: 365
    edited February 2017

    Checking in to say that Chemo AC#3 was yesterday and I had the nulasta injection today. My shoulder near the port stopped hurting. Perhaps the steroids given along with the chemo have helped?

    I spent a bit of time talking to my husband about how to pay for all this fine medical attention without me making money😅. Florida Blue is my insurance, which I purchased as a personal policy(not through Obama Care ACA). It's expensive, but excellent.

    And then there was Valentine's Day cake, so there you go. Life is beautiful. Keep going forward, ladies.

  • Jessie_thatsme
    Jessie_thatsme Member Posts: 2
    edited February 2017

    Hi I'm Jessie!just started my first cycle of Taxotere and Cytoxan Feb. 7th and I was wondering if anyone else experienced back spasms? I Had one really bad oneon the night of day 6 and now I'm on day 8 and every time I stand up it's a shooting back pain and then it stops, then it comes back if I sit and stand again. My flu like symptoms went away after day 5 so in general I'm feeling better aside from the crazy spasms. My mouth feels like I drank a pot of scalding hot coffee and I have zero taste buds but I'm still so hungry lol anyways so nice to see there's is a huge support system here.

  • Catgirl2
    Catgirl2 Member Posts: 104
    edited February 2017

    Hi Jesse, I am also having Taxotere and Cytoxan. I have now had two rounds of my 4. I did not have the back spasms. My mouth is like yours. Nothing tastes good for about a week and then it still doesn't taste quite right to me. I got pretty bad mouth sores the first round. This time, I'm trying to keep my mouth moist with Biotene. I hope your spasms go away!

  • MexicoHeather
    MexicoHeather Member Posts: 365
    edited February 2017

    Hi catgirl. I wanted to share with you and Jessie my success with mouth sores: Xylitol candy. It has the same ingredient as the expensive mouth moisturizer. You can make it yourself and it is easy. Tastes yummy,

    image

    like the Ice Chips brand candy! Here's the cooking result. 2.5 calories per gram, use in moderation.

  • Catgirl2
    Catgirl2 Member Posts: 104
    edited February 2017

    MexicoHeather: That is cool! I would never have thought of doing that!

  • illimae
    illimae Member Posts: 5,710
    edited February 2017

    Well, I am now half way through chemo after delays caused by severe allergic reactions to taxotere and taxol and the 3rd try (Abraxane) seems to be working. I had a mid point mammo and ultrasound a few days ago and I'm happy to say there's been shrinkage. The largest at about 5cm is now at 2.9cm, yay!!

  • Kinnie88
    Kinnie88 Member Posts: 9
    edited February 2017

    Like you, I am at a lost.

    Doxetaxel/Doxorubicin (AT) 4 cycles?

    I was diagnosed with Stage IIB breast cancer in November. November 18, 2017 I had Breast Conserving Surgery at Bumrungrad International Hospital in Thailand. The pathologist results were ER+HER-, grade 2, T2N1M0. The lump was 2.5 CM and 2 lymph nodes positive. I saw a Medical Oncologist in Thailand and he stated only 4 cycles of AT base on research studies. Then followed by Tomatherapy for 6 weeks 5 days a week and going on Tamoxifin daily for 5 years. I decided to do my Chemo in my home country of the Philippines. The Medical Oncologist concurred with the protocol but wanted 6 cycles not 4. I just finished my 4th cycle and I feel terrible. I did notice that the Dr in the Philippines IV assignment for all 4 cycles was 100MG of Doxetaxel and 50MG of Doxorubicin. The Doxetaxel of 100MG is higher than FDA recommended of 75MG This why I think I am having such severe side effects. I also found some research by Dr. Shulman stating 4 cycles is adequate and over 4 cycles does not provide a significant benefit. Please provide comments, thank you!

  • MexicoHeather
    MexicoHeather Member Posts: 365
    edited March 2017

    Chemo has sent me to Menopause Land. Since this cancer loves estrogen, t guess this is good, but it is Hot Flash all night and much of the day, too.

  • BG46TN
    BG46TN Member Posts: 286
    edited March 2017

    MexicoHeather I"m popping over from Nov.....yup my last period was in Nov when I started my first chemo....and the hot flashes are nuts! they seem to be getting worse as my treatments go on, I used to be a person who slept in flannel pjs, now I am in boxers, a tank top, window open and a fan next to me! LOL During the day at work I have to wear layers so I can strip down and always have a small fan with me ha ha

    But I guess the "silver lining" is no period for a whlie ha ha.....(hopefully she will stay gone for a while) I am going to be getting my ovaries out too so I dont think I"ll have to worry about it much anway....

  • illimae
    illimae Member Posts: 5,710
    edited March 2017

    Jessie and Catgirl, are you using a baking soda rise for the taste buds? Does it help?

    Mexicoheather, I have joined you in menopause land. So far the hot flashes are just to the back of my neck, like someone is standing behind me with a blow dryer, very strange and annoying.

  • MexicoHeather
    MexicoHeather Member Posts: 365
    edited March 2017

    Taxol #1 was Monday. It's been a different experience, with more mouth issues and an odd all over ache. At about 4 am I took one benedryl and put Aveda Stress Fix moisturizer on my feet and ankles. It seemed to help and I woke up energized.

    I am trying to find things that will emotionally relax me. Unfortunately my husband is away for two weeks, so I have our 16 year old and church friends checking in.

    Here is my beloved, whisper quiet Dorcy camp fan. I am using it for hot flash relief.


  • Melinda0628
    Melinda0628 Member Posts: 67
    edited March 2017

    Just had my 4th ACT out of 6 last Friday. I am so ready for this part to be over. Anyone have hot flashes with ACT? No tastebuds also suck.

  • illimae
    illimae Member Posts: 5,710
    edited March 2017

    Melinda, several of us are having hot flashes, I'm on Abraxane instead of taxotere or taxol (due to severe reactions) but it's still a taxane drug and a cousin to those with many similar SE's. I've been dealing with the taste buds problem from a week or two and yeah, it really sucks.

  • MexicoHeather
    MexicoHeather Member Posts: 365
    edited March 2017

    Hi. Back from the 2nd of 4 Taxols. I'm feeling good and I'm jazzed up on steroids. ¡Ole! My husband has been out of the country, in a rather dangerous area, for two weeks. I let the church put me on the meal train. Husband returns Tuesday.

    image

    May I say the stress still gets to me? I call it prolonged distress. I have been taking long Epsom Salt baths, attending to the weird mouth feels with 3/daily brushes, and using an ambient sound machine and a mini-fan pointed directly at my head.


  • illimae
    illimae Member Posts: 5,710
    edited March 2017

    Mexicoheather, You can definitely say you still have stress, I assume we all do and will continue to for years to come. Nice you see you out enjoying the day, hope you husband returns safely and soon :)

  • Lordhelpmetoo
    Lordhelpmetoo Member Posts: 197
    edited April 2017

    newt72

    Im from feb board but would like to join your fb group. I'm Sylvia on FB. Will send request now

  • Lordhelpmetoo
    Lordhelpmetoo Member Posts: 197
    edited April 2017

    catgirl,

    I'm also on taxotere and cytoxan. Just finished my 3rd march 31. My last is April

    21. Please tell me how it's going

  • Lordhelpmetoo
    Lordhelpmetoo Member Posts: 197
    edited April 2017

    hi Jessie,

    I also started on February 27. Just had 3rd march 31. My last infusion is April 21. I didn't have back spasms but definitely had muscle and bone pain. As if I had a bad flu. My tongue had a white film on it too. Food is not appealing to me at all

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