MIDDLE-AGED WOMEN 40-60ish

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  • Lita57
    Lita57 Member Posts: 2,437
    edited January 2017

    Diana...Taxol is pretty rough from what I've heard. Have a Zometa infusion tomorrow. They tell me to take an antihistamine 1 hr b4 because I've had weird se's (left side of my face goes totally numb-rare but it does happen with Zometa).

    Starting to get a little tired of this because it's coming up on a year now. Still grappling with the fact that this is the way it's going to be for the rest of my life - infusions, joint pain, mind-numbing fatigue, and my ever faithful companion, Mr. Diarrhea ....boo!!! 😥😣

    Take it easy everyone, and try to be grateful for whatever little joys in life you can find.


  • stellamaris
    stellamaris Member Posts: 384
    edited January 2017

    KKuziel..i have been put on Prolia because my bone scan showed osteopenia in my hips and osteoporosis in my spine. I have had one shot, and will have the 2nd in May. I wouldn't even have known about the osteoporosis if i hadn't had the bone scan, which was only prescribed because of having to take the letrozole. So far no side effects. I am also taking vitamin D.

  • stellamaris
    stellamaris Member Posts: 384
    edited January 2017

    KKuziel..i have been put on Prolia because my bone scan showed osteopenia in my hips and osteoporosis in my spine. I have had one shot, and will have the 2nd in May. I wouldn't even have known about the osteoporosis if i hadn't had the bone scan, which was only prescribed because of having to take the letrozole. So far no side effects. I am also taking vitamin D.

  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited January 2017

    You ALL are my inspirations! Peace!!!

    (Love the topper E!)

  • Momine
    Momine Member Posts: 7,859
    edited January 2017

    Zaranth, the onc who took care of me had a mantra, which was "live your life!" She is the one who OKed the trip. But even if you don't take vacations during chemo, keep in mind that the last week before the next infusion, you usually feel pretty close to normal. So, I scheduled the fun stuff for that week.

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited January 2017

    Welcome, Zaranth! Sounds like BC ruined the holidays for you this year, but there is just NO good time to get BC, believe me. I know everything about the treatment sounds daunting, but you'll manage just like the women here and we are a wid range of normal ladies, not superwomen. You can do it. Life does not stop for your BC. You will be able to take part in some things, but just do not overextend yourself. Pick and choose how to use what energy you have. It does help to get on a chemo thread with others go through it at the same time. Comparing notes helps a lot. We will be here for your questions and for support. Let us know which chemo you will be on...and best of luck with it.

    Welcome, Kayla250!

    LIta57, I know you will keep us posted about your scans. Hoping for the positive on them. Also, hope you can get the pain under control. LIke your pic at Joshua Tree!

  • Zaranth
    Zaranth Member Posts: 9
    edited January 2017

    Thanks elimar, I'm still in the middle of the shock of the diagnosis and surgery. It all happened quite fast for me. I'm sure the dust will start to settle. I'm trying not to be too hard on myself when it comes to what I get accomplished each day, but I hate being inactive, and all I'm doing is sitting here worrying about what the affects of the chemo might be. Got started on a quilt project today, though, maybe that will distract me some.

  • Dianarose
    Dianarose Member Posts: 2,407
    edited February 2017

    went yesterday to have my naphostomy tube changed out. Was shocked when he said the dye went through and we can cap it off and if things go well take the tube out in a week. It is capped where it comes out my back and if it doesn't work I can attach a tube and bag myself. After 6 months it sure felt good to sleep without a bag strapped to my leg. Had to get up twice to pee but not complaining 😎. Now to work on bladder control. Good news is the Taxol must be working. Today is day three since chemo and all my skin from head to toe hurts to touch and feels like a bad sunburn. Weird dam side effect. Hope everyone is doing great

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited February 2017

    D-rose, I just bet it did feel great to ditch that awful little leg accessory. Bad enough all the stuff they do to us in surgery suites and treatment lounges, but those "carry-out" treatments that we take home attached to our bodies are the worst! Good riddance, I say.

  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited February 2017

    Piss on that "carry out". Hope all goes as planned!!!


  • Dianarose
    Dianarose Member Posts: 2,407
    edited February 2017

    Sunday morning and still peeing on my own 👍. Doc says if tube comes out in a week it will take two weeks for the hole in my back to heal. Hot bath with some lavender epsom salt just might be in my future. 😎. Fatigue, body aches, skin sore and dry mouth are my chemo side effects right now. Biotene works for all of 5 minutes. Any suggestions on a different product. My tongue is the worst.

    Not sure if I posted this yet or not (chemo brain) but I am going to take all my recipes and publish a cookbook. I would love to have a section of favorite recipes from my friends here on BC. If you have a favorite recipe you would like to include PM me and I will give you my address to mail it to. My friend is going to help me put it all together. I already have about 50 orders. Should be fun. DH came up with the idea.

  • macatacmv
    macatacmv Member Posts: 1,386
    edited February 2017
  • macatacmv
    macatacmv Member Posts: 1,386
    edited February 2017

    Diana, I think that is a great idea about a cookbook. Would it be just bakery items or the full gamut of food stuffs?

    I have been practicing a GF, DF, YF, SF (gluten, dairy, yeast and sugar free) diet. ha ha leaves very little food, I know!

    This thrust is just staying around where it is not wanted!!! Gone on a stronger med (just diflucan) to kick it's butt!

    But it has killed my taste buds and eating has lost it's joy. So I am on to reorganizing, rearranging, and revamping! I feel like I have been asleep for awhile and just woke up and looked around and said oh my gosh, look at this place it's a mess!

    eph, you crack me up!

    I shared that meme because I printed it out and pasted it onto the door to my mud room so I see it as I am leaving the house. A little inspiration for our days!

  • Dianarose
    Dianarose Member Posts: 2,407
    edited February 2017

    Mac- the book will have a little of everything. My diet is the opposite of yours lol. Just had a pop tart 😎

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited February 2017

    Hooray for progress on the tube front!


  • Dianarose
    Dianarose Member Posts: 2,407
    edited February 2017

    Having a bone scan and CT scan this morning. I get really stressed having them. Feel free to join me and bring snacks. Lots of snacks! No restrictions 😎.

  • Loral
    Loral Member Posts: 932
    edited February 2017

    Diana...Good Luck, the munchies are here...

    Image result for sugar snacks

  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited February 2017

    image

    Getting ready to go to work, so for me it's breakfast time!!

  • macatacmv
    macatacmv Member Posts: 1,386
    edited February 2017

    Diana, how'd it go?

    keeping you in my prayers!



  • Dianarose
    Dianarose Member Posts: 2,407
    edited February 2017

    Scans went ok. Still hadto drink some kink of chalk shake. Snacks were great! Thanks! I hurt all over after and came home and went to bed. I think being stressed and lying on the cold hard tables didn't help. My back really hurt and hoping it's not due to my spine met. Will get results Thursday before chemo. Also will be doing a tumor marker Thursday. I know everything must be better then the last ones as I can eat and pee now. Never would have thought I would be excited about having to get up in the night to pee again lol.

    Native Mainer- hope you stay warm and cozy for our two day snow ❄️ st

  • Dianarose
    Dianarose Member Posts: 2,407
    edited February 2017

    A phone call rained on my parade yesterday. Got the call that the scan showed my kidney was backed up and dilated even though I had no symptoms and to connect the bag. I was so upset and depressed I didn't want to be around anyone. This so sucks. Then to add some salt to my wound the bag came disconnected at 3 am and I woke up soaked.

    El- I am going to have to get a clear purse so I match

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited February 2017
  • Loral
    Loral Member Posts: 932
    edited February 2017
  • elimar86861
    elimar86861 Member Posts: 7,416
    edited February 2017

    Aaaawww, Dianarose, sorry that freedom from the bag was so short-lived. Hope they have some good news for you tomorrow regarding your TM number. That is an awesome idea to put out your own cookbook.

    mac, Feeling any better?

  • Lita57
    Lita57 Member Posts: 2,437
    edited February 2017

    Diana...😥😣😝.

  • Chemokaze
    Chemokaze Member Posts: 208
    edited February 2017

    I like this thread...you just have to laugh...

    Send your good vibes to me tomorrow. I finished radiation 2 weeks ago and getting new bone scan and CT scans of chest/jelly belly/pelvis.

    Take care and cheers to all of you...

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited February 2017

    Hello and welcome, Chemokaze! Besides wishing you luck on your scans tomorrow, I have one question to ask: You are a second-timer, so how is it you did not realize you had a lump of pure evil lurking in your right breast until it got to the 6cm size? Was it deep on the chest wall? Did you skip a mammogram or two along the way? I am just curious that it was not "caught" sooner, not trying to be judge-y, I just have an inquiring mind (ask anyone!)

  • Dianarose
    Dianarose Member Posts: 2,407
    edited February 2017

    Well had a long visit with MO today. No more Taxol. It has helped stabilize my mets but still have the same amount of cancer. Bone scan picked up mets in bones in my chest, multiple spots on spine and two on my skull. She is trying to get me in a clinical trial that has Ibrance along with a new drug. Taking a two week break then onwards to a new treatment plan. On a positive note which ever plan we decide on my hair will grow back 👍. I have been so cold without it. I am trying to stay positive and if this new plan doesn't work she said we have options. Drove home in a dam blizzard.

    Natvive Mainer- stay safe and warm

  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited February 2017

    {{{{{{Dianarose}}}}}}}

    Chemokaze, love your name! Hope your scans come out on the right side of good!

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited February 2017

    Diana, hope you don't have to go back out in this mess, it's pretty wild! It's all very light snow up this way, not getting the heavy wet stuff you are. Hope you don't lose power.

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