Anyone who has had nipple bleeding.

I had bloody nipple discharge (BND ) the night before my mammo and u/s . They also do both tests since I'm very dense,fibrocystic and 34 DD make sure you let them know so they can tell the radiologist, my mammo and ultrasound were both clear no problems found. The radiologist came in and told me if it happenend again I needed to see a surgeon ASAP even if was a tiny amount, well over a few days it changed color from bright red to rust colored so I went to see a surgeon. He thought it was probably nothing to worry about and I should give it a few months and if it was still bleeding then he would be willing to go in there and remove the irritated duct . But everything I read online was enough to make me nervous so I told him I wasn't cool with waiting. So I was scedueled for a duct removal had surgery 1/24. When I woke up I knew he must have found something much larger cause I was in more pain then I expected and it was 3 hrs later then I was told I'd be ready to be discharged. He stopped by and told me I had alot of junk in there and it looked suspicious so he ended up removing a 10 cm x 4.5 cm x 2 cm area. He wouldn't look me in the eye when I asked him if he thought it I'd be getting bad news. So that was a very long 4 days. Pathology report diagnosed the tissue as ADH ( atypical ductal hyperplasia ) which depending on who you ask is considered pre cancerous or pre pre cancerous. So I am VERY lucky my nipple started bleeding otherwise I never would have know trouble was brewing since my mammo and ultrasound were clear. So of course its something to be concerned about it may be nothing at all or an early warning. I will be praying you get good news hun. Try not to worry I know easier said than done There is a ton of valuable info on this site, so educate yourself and please let us know what you find out (((((hugs))))

Hi hun

Glad you found this site . I'm pretty new here too but in a month have learned so much. I'm very concerned that this has been happening since November. I was told in January if it happened again even a tiny bit to get myself in with a surgeon ASAP my mammo & ultrasound were clear but they never tried to do a ductogram surgeon wanted to wait I said no now or ill find someone else . I do t know where you are but please get yourself into a breast surgeon or general surgeon. Blood is never a good sign I was extremely lucky I bled cause it was all precancerous when the surgeon found a good sized area of "junk". That's almost 6 months and they aren't suppose to aggravate it to make it bleed I was told not to try and express it. You are right they're not taking this seriously enough some bc only symptom is bleeding. I am so upset you have been put off this long that's not safe based on everything I've read and been told. Please please please see someone else a surgeon can figure it out usually once they're in there. Don't let them blow you off even if your MRI is fine the only 100% chance of knowing for sure is a biopsy with bloody nipple discharge that's usually done by excisional biopsy. Read as much as you can about bloody discharge from the nipple and find a surgeon or ob:gyn that can send you to one. Don't worry but get in with someone who will be proactive . Good luck please let us know how you are and who you found to get you some answers. I'd be livid by now and threatening them with malpractice suit if God forbid something is very wrong and they waited this long you deserve better care than this wtf???

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its called I'm 25 and my boobs are trying to kill me. Yes you are young and its rare but it does happen. You know your body better than any doctor ever will , so you listen to how you feel , you have every right to have a mammogram. Age shouldn't be a factor , see another dr please. And you are right if it was an infection you would have been put on antibiotics. I've never heard of a breast infection going away on its own. They usually make you very sick , fever pain redness etc. sorry they aren't taking you seriously. I'd find someone else good luck hun.

I had bloody discharge from my right nipple.  It started around Thanksgiving 2012 and I went for a mamogram that was clear but my doctor thought I should go for a breast MRI too, I did and that was also clear.  At this point in beginning of Jan. my doctor suggested surgery because I was still having the bloody discharge. The discharge was annoying and also the blood in it was not very red more of a rust color. The Dr. said not to worry it was probably just a duct that needed to come out and that would be that.  I had my surgery a week ago and at that time the Dr. said he removed the duct but the duct had two growths in it. So this has me worried I am still waiting on the pathology report I go Monday for the results.  I am staying positive but getting anxious as the time nears to find out what the results are.  The reason I wrote is because when you have discharge and your mamogram and MRI are fine is does not mean there is nothing there.  I am so glad my dr. felt I needed surgery even though at the time he didn't seem concerned but felt that it was not worth any risk. You have to be your own advocate and be strong and if one dr. says it's nothing find another one.  The surgery is over now and I feel good and know I did the best thing for my health and hopefully it is benign... 

I was diagnosed in September 2012 with breast cancer. Two tumours in my right breast and one in a lymph node (axillary.) Against my doctor's and oncologist and surgeon's wishes, I have not had surgery or chemotherapy. I've been on Tamoxifen for almost the entire time since my diagnosis and have been using an alternative treatment. My last visit with my oncologist went well. She told me she was "amazed" my cancer has not spread out of control in the last year and that my tumours have in fact, shrunk! That was so wonderful to hear. I just had my shower today and while drying off, noticed a small amount of blood coming from my right nipple. I'm very freaked out about it. One thing I should point out, is that I shower or bather at least once a day, I'm a clean person. I noticed a while ago (few months) that because my nipple is slightly inverted, dirt can build up around it, sort of like in your belly button! I used some q-tips and peroxide and did a clean up job after my shower and noticed a clump of dirt had built up around it.  Can't explain why so much, maybe in hot weather, I have to clean around the area more frequently. Maybe from sweating in the summer, it attracts more dirt. I see my family doctor on Monday (today's Friday) and will ask him what he thinks is going on. I think it's a matter of not being very diligent about cleaning around my nipple, that and the fact that I just took a long train trip and was unable to shower for a few days. I will certainly be doing more reading about this. I really don't want to freak myself out unneccesarily, I'll find out soon enough. Like I said, my last visit about 1 month ago to my oncologist went very well. Has anyone else with an inverted nipple due to tumours experienced the build up of dirt and bleeding?

Your Story

Hi,

 I'm 36 and have been with the love of my life for 16 years now, we have 4Children , 2girls 14 & 12 & 2 boys 10 & 8. I had my last child in 2006, he was 4 months old and I wasn't breast feeding. I was feeling my right breast to see if the milk was dried up and bright red blood came from my nipple. I immediately went for a mammogram and ultra sound and they didn't see anything abnormal but I was told to consult a surgeon anyway. I can't remember the name of the procedure he was doing, I know that he removed my ducts and a small piece of tissue from the bottom of my breast. They tested it and everything was benign. I was told to come back every 6 months for mammogram and ultra sounds, I have dense breasts so they always do an ultra sound to be sure. Everything was going good until one day I woke up and It looked like I had a spider bite on my breast., I went to my doctor she thought it was the same thing. I started to do research because in my gut it just didn't seem right. The bite or what ever was didn't go away fir months and I got 2 more. I got a second opinion on my films ans they say the look fine. I'm still not satisfied, on my breast it looks red blotchy under my skin, sometimes it feels like it's in fire, sometimes I get shooting pains. Or a dull ache inside my breast. I don't understand why neither if these hospitals did a biopsy? With my symptoms and history. They aren't seeing a lump so they are assuming nothing is wrong. I'm scared. I'm young and that's another thing ,they go on which is so wrong young people get cancer all the time. I'm neot that young. But I don't want to die over someone NIT taking the time to ease my mind and find out fir sure if tgere is something wrong instead if getting slips every time I go that say PROBABLY benign!! I need help and advice. Should I consult a surgeon and ask for a biopsy. I don't know what to do and I'm scared. My mom passed away at the he if 40, car accident so I don't have her to talk to. It's just John and I and the kids. Please someone point me in the right direction. I don't want to fall through the cracks because of shitty insurance or drs that are to busy to care. Thanks for listening. Rinne

I am on a quest to figure out what is wrong, I hope and pray that this is something minor, but either way I know that I will get the word out about IBC (inflammatory breast cancer) since there is hardly anything about it on the web or spoken aboit amongst women and men, friends doctors and family. We must be in tune with our body's and our voices must be loud and clear. I will not stop or back down until I know what is causing these symptoms and pain. I pray you do the same. Be an advocate for your self so we don't have to hear about one more tragedy. I may not matter to my insurance company or to doctors but I do after to myself and the ones whom love . FIGHT

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As the Mods said this is a thread that hasn't been active for a while so if you start a new thread in the  Not Diagnosed But Worried section you will probably get more responses there as that is what you are - not DXd but worried, not waiting for the results of tests/scans done.

IBC is rare, being only between 1% and  5% of all DXd BC so no there are definately not as many of us dealing with/talking about  it.  I found quite a bit of info on line - most was good/useful but some seemed to be designed to scare.  There is a Section here for IBCers - it is not one of the more active ones but then there aren't as many of us.  IF everyone who thinks they are IBC because of skin issues were, it would not be as rare as it is but would be the most common cancer.  It does not 'come and go', it is aggressive and rapid and can literally present overnight, it has no 'rules' it follows will all (For me, an enlarged lymph node under arm came first literally overnight, 6 day later I had the DX - IBC, in the 17 days til I started neoadjuvant chemo the node greatly enlarged, breast enlarged, nipple inverted, peau d'orange developed.  BUT I never had any discharge, pain, itchiness or reddened skin.  Others are different.)  From what you wrote, IBC would probably be very low on the likelihood list but anything is possible.  No one here can DX you - we are your medical staff.

We do each have to be our own best advocate in everything in life.  That does not include self DXing, but being diligent/vigilent in pursueing answers.  'Something' is going on so you do need to find out what it actually is so you do need to see Dr(s).  If you feel uncomfortable with their DX, then 2nd (or more) opinions may be in order.  For the skin issues, a Dermatologist may be in order..

Hi , recently I started bleeding from my right nipple , I have an appointment with the doctor next week . Did any of you notice when you were diagnosed if it involved one duct or more ? Thanks.

Hi Mariangel43, thank you for sharing your story with me. I hope you are doing well now . Bleeding from your breast is such a surprise , at least to me . It must have been difficult to deal with it for a few years like you did ? Did mammograms or ultrasounds ever show anything unusual ?

I have one duct , I think so far , that is bleeding.

Take care .

Hi farmerlucy, thank you for sharing your story with me ! Yes , I can understand the little reminders that keep us going to our screenings , it is definitely going to keep it in the front of my mind . I believe our bodies speak to us in so many ways , it is important to listen . Having doctors that listen is always important too .

Hugs

I always had a letdown feeling sometimes and very small (1/16) inch spots of blood in my bra or on my shirt. I never expressed it and it was only on one side.

I go for ultrasound on my breast tomorrow. I was just wondering if i were to bring in a sample of the bloody sheet? Could or would it be beneficial? Could they test it? To rule out cancer?

I'm just curious.....

I had my exploration ad ductal excision on Wednesday . I am recovering nicely . I go back next week for my check up and results . I am taking one step at a time no matter what . Have a great day ladies .

So I seen my dr today. I have a dialated duct. They are going to schedule a ductogram and possibly biopsy. Possibly a paploma? Or cancer! I'm just glad I'm going to get answers