Can we have a forum for "older" people with bc?
Comments
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I found my old iPhone 5S (when I got the 6S, they didn’t make me turn it in) and decided to turn it, like my even older 3GS (circa 2009), into a wi-fi-only iPod. Stupid setup screen isn’t recognizing either the original password I used when I bought it, or the new iCloud/iTunes password I reset for security reasons (the old pw didn’t conform to Apple’s new requirements). All I wanna do is use it for playing music, setting an alarm, and looking at the weather app (when I’m not near the computer or my functioning iPhone—I have a landline, so I don’t haul it around the house with me). For some stupid reason, there’s no weather app included on my iPads. Guess I’ll have to go old-school and go to Dashboard in the Dock to find out—but unlike the app in the iPhone, it doesn’t forecast hour-by-hour. And as for it being a music player, it’s pretty much a brick until I can get to the Apple Store and ask a Genius. If all else fails, I will do a factory reset to wipe its little demented memory and donate it to a charity or women’s shelter (even with no data or cell connection, it can still call 911).
I no longer have a desktop Mac—ever since a raccoon fell through the office ceiling onto my old eMac back in 2005. (For awhile I used a cheap old-shape flatscreen monitor hooked up to an obsolete iBook, but I’m gonna put my sewing machine on there instead) And as for the Gateway desktop upstairs, Gordy uses it only to raid his music library for playlists to put on his Android phone or his MacBook. We have tons of obsolete software (floppy disks!), hardware, and computer books. When it gets nicer out, I’m gonna open the office window, throw them down into a box on the deck and haul the box out to the alley dumpster….empty, lather, rinse, repeat. I have sooo many dead electronics to get rid of (too obsolete for any entity to accept—we’re talking several generations of OSes ago). Meanwhile Bob uses a SONY Vaio laptop he upgraded from Windows 7 to 10, insisting that the CME websites he visits use only Internet Exploder. I find that hard to believe. And I detest Windows.
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Sandy, Love the raccoon story, mine was only a glass of orange juice on my Macpro! Had a heck of a time setting up the new macair, did it myself, since they told me it was easy, haha! I still have my EMac but its slow and can't get on some web sites as the OS is old and can't be upgraded anymore(planned obsolesence!) e have a land line too so only have flip phones, which we rarely use. AAAH technology is wonderful , when it works. You got any grandkids around to help you set up the new one?!
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Good friends help you to find important things when you have lost them…your smile, your hope, and your courage.
Doe Zantamata -
Hello,
I am 66 and I would like to hear from any of you that had chemo.
I need to have 4 cycles of Taxotere and Cytoxan every 3 weeks.
I am somewhat concerned about my age. Frankly,
I don't think I have felt much energy for about 2 years.
I had shingle 2 years ago and really wasn't the same. Oddly, I had just started to feel almost normal. Started to walk and joined a gym and lost 10 Lbs when I was diagnosed with BC
I am looking for a fighting spirit, some strength, and to get rid of negativity.
I was so on track thinking I only needed radiation and then because of mammaprint F F score of 20% they recommend chemo.
It is uplifting to see many of you have moved beyond BC
I did go to a stage 1 support group and it meets again this Monday. There are about 8 women. Not sure it is helping. One women has same Dr as me and did the chemo. She seems very strong but really wouldn't warm up to me to talk. She has some personal problems with family. Her family was coming in for Xmas and I was so envious that she was last chemo and family coming. But none of that seemed to cheer her.
So wish my Mom was living as she was so strong and would make me face all of this. My son reminds me that I am like her and I can do this. He is much more like my Mom so strong and hits everything head on.
Wishing you all the best for 2017.
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P2S, I did 4 TC's 3 yrs ago. I was 58 when DX'd. It's hard to say what your SE's will be, bc everyone is different. But, the good thing is, your MO will most likely prepare you and give you an arsenal of things to combat any SE's that come. Just make sure you address them as early as possible. I was very fortunate and my SE's were pretty minimal. Your MO will most likely check your blood levels prior to each infusion, to make sure there is nothing that would prevent your TX. Drink LOTS of water, even when it may not taste right. Walk often and stay away from sick people!:) Check on the TC threads for others experiences. I visualized myself curled up in bed for months and hurling constantly. Nothing like that at all. I worked PT and babysat grandkids, never got nauseated. Best wishes! You've got this!
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keep the faith
Thanks for all the continued support
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Positive -Below is a link for people starting chemo January 2017. I found it most helpful to interact with women who were at the same place the same time I was. You can do it. Good luck.
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Positive, I always thought of my 8 rounds of chemo ( 4 ) Adriamycin & Cytoxin and ( 4 ) Taxotere as what I needed to do to make sure I helped the Oncologist save my life. It was time-wise a pretty short time for the yrs. I already had on me ( 62 ) to spend six months doing chemo. I'd have rather been in the Bahamas's but as it didn't go that way I figured I owed it to myself and my family. I always held us together --- and in some ways they still needed me to do that -- so I did. There were some struggles, but I got through it and have been back to my regular life for many yrs. now.
This is a time like no other -- but I've always felt that I have an attitude and I can use it in ways that will help me make the best of any situation I come across. I hope you will find an attitude and let it help carry you to where you need to go.
Blessings,
Jackie
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thank you Jackie for posting.
It is so good to see someone 10 yrs out I think you have same estrogen prog and Her2 as me and I was worrying about that too. I fear I did too good of a job raising my son as he is independent and rally doesn't need me for much. My husband is 16 years older than me and I have spent for much time worrying about him and somewhat serving him. But he works everyday, his own business and really is very strong.I almost think I should get a pet I quit my full time job at 65 and it was time in that position, but I was hoping to find a more fulfilling position with less responsibility. It just didn't happen and now this.
Yes, I need to find my attitude, so very long ago I won a skating marathon...but where did that girl go
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Positive, I think we all got caught up in " not" going to happen to me. I really wasn't aware very much of how many people do get this dx. I was nearing retirement, though at the time I really felt I wouldn't be ready even when it was time. Then while I was busy being complacent and putting one foot in front of the other -- wham.
I only realized later that I was doing more drifting and less paying attention to living and making sure I enjoyed the experience. I think the classical rut was going on. So, while I'd never advise getting out of a rut by having cancer -- it did teach me that I really did value life and that has made me very grateful, even for the problems that often come along. I realized that I needed to find ways to 'grow' myself better every day if I could and I found one of the best ways was to be okay with challenges. Getting well was a BIG challenge, but I did it and now - Each day I am thankful for nights that turned into mornings, friends that turned into family, dreams that turned into reality and likes that turned into love. That is my signature line and every night I talk to the universe and express how grateful I am that I was given a chance to do over -- to notice the beauty in every day and to appreciate every breath.
We are ( I hope ) good cheer leaders here and that is one of the biggest reasons I've stayed so long.
Blessings
Jackie
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It need not discourage us if we are full of doubts. Healthy questions keep faith dynamic. In fact, unless we start with doubts we cannot have a deep-rooted faith. One who believes lightly and unthinkingly has not much of a belief. One who has a faith which is not to be shaken has won it through blood and tears--has worked his or her way from doubt to truth as one who reaches a clearing through a thicket of brambles and thorns. -Helen Keller
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Found this and thought you all might enjoy it. I've always loved the smell outside after a rain:
Can You Smell Rain? - Geosmin and Petrichor
Chemicals Responsible for the Odor of Rain and Lightning
When you smell rain or an approaching thunderstorm, it isn't the water that you smell, but chemicals from reactions caused by lightning and others produced by plants and bacteria. Wallace Garrison, Getty Images
By Anne Marie Helmenstine, Ph.D.
By Anne Marie Helmenstine, Ph.D.
Updated September 14, 2016.Do you know the smell of the air before or after it rains? It isn't the water that you smell, but a mixture of other chemicals. The odor you smell before rain comes from ozone, a form of oxygen which is produced by lightning, and ionized gases in the atmosphere. The name given to the characteristic odor of rain after it rains, especially following a dry spell, is petrichor. The word petrichor comes from the from Greek, petros, meaning 'stone' + ichor, the fluid flowing in the veins of the gods in Greek mythology. Petrichor is caused primarily by a molecule called geosmin.
About Geosmin
Geosmin (meaning earth smell in Greek) is produced by Streptomyces, a Gram-positive type of Actinobacteria. The chemical is released by the bacteria when they die. It is a bicyclic alcohol with the chemical formula C12H22O. Humans are very sensitive to geosmin and can detect it at levels as low as 5 parts per trillion.
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Figured as much—now that I think of it, the air after rainfall does smell like wet stones.
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As I look back upon my youth I realize how important to me were the help, understanding and courage, the gentleness and wisdom so many people gave me.These men and women entered into my life and became powers within me. But they never knew it.Nor did I perceive the real significance of their help at the time. We all owe so much to others; and we may well ask ourselves, what will others owe to us? You may be sure, that the effect of your own life on those around you is—or can be—great indeed. - Albert Schweitzer
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Good luck to you, Positive. You can do this!
This morning I had an ultrasound of my kidneys, bone density scan, and blood work, all at an outpatient center. All ordered by the phrenologist I saw recently. When I go for my next appointment, she should be able to tell me about how well my kidneys are functioning.
The technician who did the bone density was impressed with my strong bones. My little square was well up into green normal territory. The reward for years of exercise.
Now I'm sitting in our dentist's waiting room follow an appointment with the hygienist. Dh is in the chair now.
Our several days of winter are over and we will be returning to 70's by later in the week.
Happy Monday to all
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Dentist tomorrow for me, too (because of my gums and a “Maryland bridge” lower single-tooth partial, I go 3X/yr). Likely X-rays (which I hate because the sharp edges of the film holders hurt the roof and “floor” of my mouth). Bridge coming a tad loose, so I expect a repeat visit to secure it. Hopefully, no cavities or fractured fillings.
Positively tropical today: all the way up to 32! And though tomorrow will start out “wintry mix” and then rain, we’re looking at 44! (Actual snow this weekend, boo, hiss).
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Hi gals! Got through the Holidays okay! Just so tired of the cold weather, and the big snow storms. Today it is 60, so lots of melting and MUD! I still can hardly wait for Spring. Got lots of Pampas Grass seed to plant, and more tomatoes....
I lay awake "organizing" my garden, and where I will plant this stuff!
Positive! You are YOUNG! Hah! I was 72 when diagnosed.... I just had a Lumpectomy, stage 1 grade 2, and no chemo.... so I can't help with that one, but so many women have taken this, and you know, there are a lot newer drugs now! I'm 79 now, and doing great.... I don't feel "old"..... Some of my friends do, but I don't pay any attention to them.
I like this "poem"....I remember watching my Grandma in a nursing home.... and feeling so bad for her.... Hopefully we will all have empathy for our older folks.... My "older" friend Theresa fell yesterday.... missed her chair.... she managed to crawl over to the bathroom, to pull the "help" cord.... The "cute paramedics came, and got me on my feet!" So then she laughed.!!!! She finds humor in so many things.... so I tease her just to make her laugh....
Carole..... your Mom doing okay? And Jackie.... how is Sally? xoxo
When an old woman died in the geriatric ward of a nursing home in Moosomin , Saskatchewan , it was believed that she had nothing left of any value. Later, when the nurses were going through her meager possessions, they found this poem.
Its quality and content so impressed the staff that copies were made and distributed to every nurse in the hospital. One nurse took her copy to Alberta .
The old woman's sole bequest to posterity has since appeared in the Christmas edition of the News Magazine of the St. Louis Association for Mental Health. A slide presentation has also been made based on this simple, but eloquent, poem.
This little old woman, with nothing left to give to the world, is now the author of this 'anonymous' poem winging across the Internet.
Crabby Old Lady
What do you see nurses? . .. . What do you see?
What are you thinking .. .. .. when you're looking at me?
A crabby old lady .. .. .. not very wise,
Uncertain of habit .. .. .. with faraway eyes?
Who dribbles her food .. .. .. and makes no reply.
When you say in a loud voice .. .. .. 'I do wish you'd try!'
Who seems not to notice .. .. .. the things that you do.
And forever is losing .. .. .. A sock or shoe?
Who, resisting or not .. .. .. lets you do as you will,
With bathing and feeding .. .. .. a long day to fill?
Is that what you're thinking? .. .. .. Is that what you see?
Then open your eyes, nurse .. . .. you're not looking at me.
I'll tell you who I am .. .. .. As I sit here so still,
As I do at your bidding, .. .. .. as I eat at your will.
I'm a small girl of Ten . .. . with a father and mother,
Brothers and sisters .. .. .. who love one another.
A young girl of Sixteen .. .. .. with wings on her feet.
Dreaming that soon now .. .. .. a lover she'll meet.
A bride soon at Twenty .. .. .. my heart gives a leap.
Remembering, the vows .. .. .. that I promised to keep.
At Twenty-Five, now .. .. .. I have young of my own.
Who need me to guide .. .. .. a secure happy home.
A woman of Thirty . .. .. My young now grown fast,
Bound to each other .. .. .. With ties that should last.
At Forty, my young sons .. .. .. have grown and are gone,
But my man is beside me . .. . to see I don't mourn.
At Fifty, once more, .. .. .. babies play 'round my knee,
Again, we know children .. .. .. My husband and me.
Dark days are upon me .. .. .. my husband's now dead.
I look at the future .. .. .. and shudder with dread.
For my young are all rearing .. .. .. young of their own.
And I think of the years .. .. . and the love that I've known.
I'm now an old woman .. . .. and nature is cruel.
'Tis jest to make old age .. .. .. look like a fool.
The body, it crumbles .. .. .. grace and vigor depart.
There is now a stone .. . .. where I once had a heart.
But inside this old carcass .. .. .. a young girl still dwells,
And now and again .. .. .. my battered heart swells.
I remember the joys .. .. .. I remember the pain.
And I'm loving and living .. .. .. life over again.
I think of the years, all too few .. .. .. gone too fast.
And accept the stark fact .. .. . that nothing can last.
So open your eyes, people .. .. .. open and see.
Not a crabby old woman .. .. .. look closer .. .. .. see ME!!
Remember this poem when you next meet an older person who you might brush aside without looking at the young soul within. We will all, one day, be there, too!
The best and most beautiful things of this world can't be seen or touched.
They must be felt by the heart.
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Thanks Chevyboy,
I have never felt old but now after this I worry about my resilience. When I mentioned my concerns to MO, she just said you look 50. Great I was hoping for 45 lol but my worries concerned weren't consoled with the flattery. My DH has continued with being upset with his business problems etc as life is just the same and maybe it is but I'm still trying to grasp it all. I think my Dx is good except that high risk mammaprint.
Tonight I will go to the support group....don't know if it helping but one women has my same Dx and she looks like she weathered chemo fine so maybe that helps.
Thanks for your support
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Your diagnosis is pretty good! You might not need chemo..... Talk to your team.... or your oncologist! Remember, it is up to you! If your DX is that good, and your onco-score is good enough, you might not need it!
My family was my support group.... and most of my friends.... I didn't go to an actually "group"..... just listened to my "new" friends on here.... people that had been through the same thing! You will be okay....!
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I went to the dentist yesterday too, getting a crown later this month.
Still dealing with plugged ears, I'm on my second Medrol pack and will be starting my 3rd zpack. If still plugged will be getting tubes Jan 19th.
Shoveled snow yesterday (only half an inch so my hired company doesn't come), more snow coming today, then down to -25 degrees Thursday night (actual temp, not wind chill)
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Puffin.... I went back looking to see what you said, if anything, about your ears being plugged up.... Sorry you are having that problem!
My PC couldn't figure out why my ears plugged up either... I just woke up one morning and couldn't hear... After she told me to treat this like "allergies" for a month, I still could not hear... Do you have an infection? Is that how they were treating it? Did they say what your problem is? My Docs could not figure out why I lost my hearing all of a sudden.
I took Tamoxifen for over a year... It is an ototoxic drug, like chemo.... And SOMEtimes, in older women, with a certain gene, this can cause hearing loss in women... like what happened to me.
Any drug can cause problems with people... warning signs even say, "may cause strokes, cataracts, etc." I had a stroke near the 8th cranial nerve in my brain..... that's all..... and it affected my auditory nerve for hearing... could have been much worse, I guess. Even too much aspirin, may cause hearing loss!
I did a lot of research, because I could not hear........ Finally went to an ENT... " Profound hearing loss:", but I then went to Costco, and have been wearing hearing aids for over 5 years. Just got my second pair!
Maybe your hearing loss is something simple, and I'm hoping they can help you with "tubes".... If you want to PM me, just drop me a line....
Now the only problem I have is with so much wax buildup .But people who wear hearing aids sometimes have this problem.... I clean my ears out myself with ear candles...... And it works.
But the whole world, including ENT's, "ear people" and everyone else wrings their hands at this notion, and says it doesn't work..... I just know it works for me.........Same as some people swear by supplements, etc...... and holistic methods.... and sometimes it works! Good luck!
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"Possessions, outward success, publicity, luxury—to me these have always been contemptible. I believe that a simple and unassuming manner of life is best for everyone, best both for the body and the mind." — Albert Einstein
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Puffin, My mother got tubes in her late 70's or early 80's. They made all the difference in the world.
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We finally had the last Christmas visit on Saturday meeting two DDs and grandkids in Connecticut. We were getting the storm and I just wanted to go back to bed...but I got in the car and drove on terrible roads to the ferry. I packed to stay over, as the forecast changed from 6" to 12" overnight.
I had a good visit with the kids and grandkids. There are a lot of changes going on and some stressful moments among the daughters in dealing with the kids. I have learned to be neutral.
The tree is down and now the boxes must be re-packed and sealed for next year.
My favorite Christmas gifts are a robot vacuum that goes by itself all around the house, and a very warm faux fur blanket throw which I use while sitting on the lower level. So warm!
Home Sunday and we got 8" with 12" drifts. DH is sick with the long lasting virus; and I got the job of shoveling out the mailbox and a path to the door.
Last night was 3 degrees F in my town but today it rose into the 30s. Melting has begun.
I am back to work.Speaking of computers, I am so hard on everything I own. I have had 5 laptops since 2004. My favorite was the featherweight Sony Vaio (13" wide) but the motherboard burned out.
By the way, Ann, they can recover your hard drive files and Best Buy used to do it for $99.
I had a hard drive failure two years ago, and I paid a small fortune to have only my photos recovered. They found over 70,000 files with p hotos (some repeats). I shudder to think of the cost but am happy to have these memories back.I just bought a new desktop PC with regular keyboard. I like this so much better than the laptop which I use all week at work. I also have an I MAC all in one that is beautiful. The memory is limited though, and since today's files are so large, it is slow and freezes. I use it for looking at photos or watching a movie.
I was on the verge of standing up to my dental fears and getting a renovation. January is the only time besides summer where I can have time off to do this. But since I was sick across 2 weeks, I am not getting it done. Now I have to start dealing with the anxiety all over again! This is my year to do it.
Positive, I cannot comment on chemo because I did not take it. You are young and I hope you find your "attitude" because it really helps to put BC in perspective in your life. Best wishes with your treatment planning.
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We in the West don't think much in terms of balance,
and obviously we should. Even the very thought of an exquisite union and balance of all our forces, both physical and mental, has a gentle, hopeful ring
to it. . . . All of us must find a bridge between our physical and spiritual parts. When that balance is achieved, what a happy comfort for ourselves!
Edward J. Lavin -
The boards have been really quiet. I am beginning to think I'm the only one who didn't resolve to spend less time here in the new year.
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I played golf today for the first time in weeks. The temperature was mild, 60's and later low 70's, but, fortunately, it was overcast. I had a blue light treatment on my face last Friday and am supposed to avoid sunlight. The dermatologist ordered the treatment to kill pre-cancers. My skin is fried and the recovery has not been fun.
The whole outer layer of skin will peel off. This reminds me of having a severe sun burn.
Hope today went well for all of you
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First, welcome Positive, our experiences with BC have been as varied as our lives are, but we do love to chat about those lives..
As you can see below, I was diagnosed with Her2 positive in 2013. I had lost my husband of 42 years in Aug of 2012, and was just coming out of that fog when I was diagnosed. My response to chemo was feeling like I had the flu. I ached all over, and couldn't eat much. I survived on soft boiled eggs and protein shakes. I have heard that that reaction I had might have been to the Newlasta shot I got 24 hrs after chemo- anything is possible. The reaction got worse and lasted longer with each new treatment. I had 4 full chemo's then had to stay on the herception for a year.
I was fortunate that I was not working - I had "retired" a few years before because of my husband' health issues, so I was able to just feel the way I did, without worrying that I needed to do more. I stayed with my oldest daughter near Atlanta and was treated at Emory University. I believe one of the major reasons I did as well as I did was because my team of Dr's decided to do chemo before surgery. I had a double mastectomy with no reconstruction, three years ago this month, and am still good with those decisions.
At my very first meeting with my surgeon, as he came in, he put his hand on my knee and said "you are going to have a rough year or two, but you will be okay" I think I fell in love with him that day, and I look forward to my once a year check-ups. I believed what he said, and never entertained the idea of not beating it. I was also very pleased with my ONC, who has since left Emory. I now travel more than an hour to see her, also once a year
As Jackie has said, I have learned to appreciate the little things. My life is a crazy one, if you stay on this thread, you will soon understand what I mean, but as crazy as it is, I am so thankful I am here to participate in it all. I have gained 3 grandchildren, and a new daughter-in-law, since my DX, and adore each of them, including the DIL. I travel around like a maniac because I have grandchildren in Atlanta, Charlotte, NC, here at my home base in Ft Lauderdale, and by the end of the month, three of them will be two hours away, which is absolutely killing me.
Looking forward to getting to know you, and you couldn't find a better group of ladies to walk you through this journey. We have a really special bond and as I said at the beginning, we enjoy sharing our day to day lives, good and bad.
Anne
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Thanks Everyoe,
I did go to a support group Monday night 2 women said acupuncture really helps, yikes the thought of it but I did met a women that finished the same chemo they want me to have. She survived but she is 43
I do know that I will need to get moving, exercising and eating right.
I am thinking I can do chemo because those words from people say you will always wonder what if if there is a a recurrence
But I know I need to get my act together, but still frozen in my chair and limp feeling.
Thanks all for listening please keep talking to me I love it
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When I saw the ENT for my plugged ears he said there was fluid behind my ear drum, half way up the ear drum. He's been treating with Z-pack and medrol pack, if not better by Jan 19th he'll put tubes in at the office. My hearing is a little better but still not normal.
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