Can we have a forum for "older" people with bc?
Comments
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Chevy, so glad you are back! You always make me laugh. Seeing the snow angel video of the dog along the fence and then sliding down the hill just cracked me up. The little girl in the pink snowsuit was just too cute!
Jo
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Sally, Bob (a cardiologist) says he sees a lot of “broken heart syndrome,” usually in those recently bereaved—and more often in widowers than in widows. Yours may be partly panic attacks from PSTD, which is not rare in people blindsided by a cancer dx and all the stress of treatment. Could be a SE of Arimidex, or even excess calcium (which in high enough amounts can be cardiotoxic—Bob wants me to take a “calcium vacation” for a weekend every couple of weeks or so).
I’ve had three palpitation episodes—the first was when I was about to go on tour to CO, WY and OR. Bob insisted on schlepping me to the ER for an EKG and troponin levels. However, they couldn’t get an I.V. started (on either arm—this was pre-bc), and by the time they drew a blood sample, the EKG showed plain ol’ sinus rhythm. Maybe I’d been apprehensive about how I was going to be able to transport my instruments in-flight (and I’d had a couple glasses of wine at dinner). Went on tour as planned. The next time was a few months later when we were visiting NYC. My partner & I had driven down from the Catskills, where we’d attended a folk music conference, to Garden City, LI, to meet up with Bob & Gordy. (I was still on a Medrol dosepak and a Z-Pack for a nasty case of allergic bronchitis uncontrolled by my inhaler & nebulizer). We went to visit the family graves in Flushing and Plainview, and then Bob & Gordy flew home. My partner & I went out to a Portuguese restaurant in Mineola, ate like horses and still had leftovers. We also split a half-carafe of vinho verde. Got back to the hotel and a couple of hours later felt a bit peckish and was about to nuke some of my food when I had a palpitation episode. I chalked it up to the stress of having to transfer the data from my dying MacBook Pro to a new one we’d bought that afternoon. Half an hour later I was fine. On the way back home, we stayed overnight in a hotel in Clearfield, PA…next door to a hospital. I joked that if I had another episode, all I’d have to do was walk across the parking lot. Fortunately, nothing happened. But a few months after that, I had a really bad early spring chest cold that turned into bacterial bronchitis—and back I went on the Z-Pack. At an Oscar-night party, with several glasses of wine, I had the palpitations again. Told Bob, who said not to drink while on Zithromax. It never happened again. But last Feb. when I had bad bronchitis again, my PCP was on vacation, his on-call sub was about to prescribe a Z-Pack, and I casually mentioned the palpitations. Thought he’d just tell me to avoid alcohol. Instead, he said that at my age Zithromax could cause a serious or even fatal arrhythmia, and I should never take it again, period. Great—that makes FOUR antibiotics I can never take again (penicillin, sulfa, Cipro or Zithromax).
Chevy, ouch ouch OUCH! How’s your knee now? Gonna see an ortho just to make sure? Did you know that last week an NFL player was fined for making snow angels in the end zone, as “excessive celebration?” Oy.
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Sandy, your info about the z-pack is handy to know , with my tachy and palpitation history. The Saturday episode lasted from 2 til I went to bed. Never had one last like that, plus tachy, which has been sooo much better, since no caffeine! I have had z-pack with no side effects, except when they added prednisone, bad tachy from that one.
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Yeah, I don't have those episodes anymore! Not even when I take an antibiotic for Asthma/Infections! They always give me the Z-Pack also....
But I landed on so many places at once, nothing hurts! NOT like when I fell on my hip. Man that hurt! I could have just laid in the alley, but I felt like such a "help, I can't get up" person, that I HAD to get up! It's rather difficult, when something is really broken. But we got it fixed.
THIS time when I fell, it was frontwards, but I rolled over on my butt, like where the black-top dipped, and I was up against the fence, like in a recliner! And no way I could get up! But I'm sure if I had to stay there long enough I would have figured it out.... even if I had to scoot around ..... It's funny now, because I didn't get hurt! There was so much ice, I couldn't get any traction.... Hah!
Sandy, I saw that Bronco player SLAM down the Quarter-back, AFTER the play! A 15 yard penalty wasn't enough, I don't think! Some of those guys are just jerks! For what they get paid, I would expect a little higher standard for these guys! Oh! And then what's-his-name the "MVP" for whining about his "girl-friend" wanting to make money off of THEIR sex tape???? He okay'd the taping, but resented being extorted???? These MEN need lessons in growing up. (Brandon Marshall) MVP....???? Hah! Yeah, he is an MVP alright..... just not in MY book
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I believe that life is given us so we may grow in love, and I believe
that God is in me as the sun is in the colour and fragrance
of a flower--the Light in my darkness, the Voice in my silence.
Helen Keller -
Morning --- some sun out there but it is 4 degrees. Well might I just say brr. Most of the chores are done save for going out soon and feeding feral cats. Had a great afternoon yesterday. Went and visited with my Aunt --- all that remains of my family as far as Aunts and Uncles on my Mom's side. Likely the other side too. In Oct. my Aunt was 98. She lives in a Sr. retirement center here in one of their duplexes. They are quite nice actually. She gets around fine though does not drive anymore and hasn't for some time. Sharp as a tack still. Hard to believe out of 7 children in the family --- she is the one left.
Some negative news this morning as well. Dh was to go to work at 1 p.m. today but his boss called just a short while ago. The store burned down last night. Too soon to know for sure but one side of the store was a "Mattress Mart" so plenty of 'fuel' I guess for the fire. Sure changes our outlook on things. I know that the owners have been doing some dealing on the hometown store here in Centralia. Maybe those negotiations might bear fruit now, and if so hopefully a lot quicker than it has been going. Fire Marshalls are still looking for the problem so we won't know much for some time I guess.
At any rate --- we are in a holding pattern for now. No un-necessary expenditures. We will do okay, but it will be tight.
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I'm so sorry Jackie! Yes, we never know what tomorrow will bring! Things can change in an instant..... Just like when I told Janie, when she was struggling.... Don't buy any magazines, subscribe to anything, or buy anything you don't need.... especially on any credit card. I remember buying groceries for 2 weeks worth of meals.... And making a menu to use for planning meals, and just how much we could spend.
I remember when I had back surgery years ago, and I had I think 3 charge accounts at stores! When you aren't working, you can't pay them! That's when I learned to pay off EVERYthing, and never open another charge account. Also cut up any charge cards you have.... or hide one for an emergency. If you can live with only one card, it would be a debit card.... money coming from an account that you have money in!
My older neighbor lived that way.... She had SS coming in, but thought charge cards would help her more... She finally had her house foreclosed on, called into court for her credit card debt. THEN she tried to rent out her house, after she moved into a section 8 apt. but the BANK said, 'NO you can't do that.... it is ours now!" She really was smarter than that, and had been a Realtor, but she tried to get away with something....
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Jackie, bummer about the store burning down. I doubt it was arson from the mattress store next door—because mattress stores have the lowest overhead of any brick & mortar business: no inventory necessary, just floor samples; no stockroom; only one employee on the premises; and contract with an outside delivery service. Between the bedbug epidemic and the b.s. that you have to replace your mattress every 8 yrs. (so why does Tempur-Pedic have a 20-yr warranty?), mattresses practically sell themselves. And you typically see those stores in clusters—when people shop for mattresses, they rarely buy the first one they see, and nobody wants to lose a sale to a store two miles away. Sorta like “auto row" of yore.
Got down to -8 by the lake (-13 inland!) this a.m., but we're outta the deep-freeze for at least the next week (and NY & DC will be in the low 40s when we're there). We’re looking at a wet Christmas no matter where we are this coming week.
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It's possible to have too much in life. Too many clothes jade our appreciation for new ones; too much money can put us out of touch with life; too much free time can dull the edge of the soul.We need sometimes to come very near the bone so that we can taste the marrow of life rather than its superfluities.
Joan Chittister -
Okay -- my panic has lifted. Dh got a job yesterday and will likely be coming back to the Hometown store here. The owners of the one that burned ( while likely continuing on in business ) are not sure if they want to renew having a hometown Sears store or just go back to a "Mattress Mart " only. They have had a "Mattress Mart" for many years as it is quite lucrative. So, that is still to be determined. Dh talked with them yesterday before applying at the Hometown store that remains here.
It seems the people here are, as is so often the case, as in need as anyone for 'reliable' people who pretty much know the overall business inside and out and only need to learn "owners" preferences within that. So, I do think he will be able to go back to work. He won't make as much money ( in ways that may not be bad so we can stay maybe in a better tax bracket ) as he did in Mt. Vernon since he won't get the high commissions that he was getting by selling the mattresses. Sort of yells big mark-ups to me, but whatever.
Like many people, I bought a new set a few years back ( like maybe 5 ) and pretty well knew from the first that I would also buy a three inch memory gel foam topper for it which I did. So only slept directly on it one night --- and it wasn't a good night at all. I'm on my 2nd. gel memory foam too. I had the other one all over the bed. I think I would get extra wear and tear if I could train myself to sleep on both sides of the bed but some things elude me.
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As a television or radio antenna stretches upward to capture symphonies from the sky, so you, through meditation and prayer, can stretch your spirit upward to receive God's immortal music in your life. To be spiritually vertical means to keep constantly stretching upward toward life's highest good—towards love, faith, courage, hope, and joy. - Wilferd A. Peterson
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Just caught up on a couple of days of posts. Chevy, I'm SO relieved that you didn't hurt yourself falling in the snow. I agree with those who said that having you and Ducky around is definitely a pleasure.
Jackie, good news that your dh quickly found another job. I would guess that he's a very good employee.
Our forecast for Christmas day is now high 70's maybe up to 80 degrees. My sister will probably be running the a/c.
My mother is running a low temperature today and complaining of a sore throat. I hope she's feeling well enough by Sunday to join the family at my sister's house for dinner.
Today I need to go to the supermarket with a list. Yes, Jackie, I rely on lists at this stage of the game! My youngest brother, his wife and daughter will be in town from OK for several days and they are invited to dinner here on Friday night. Also, I will be cooking for Christmas day's meal. I'm planning to get some of the preparation done on Saturday and the rest on Sunday morning.
Happy Wednesday to all.
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Puffin, I forgot to say that dh and I think of you when we see the weather reports on MN and ND.
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Was 12 degrees when I got up! Now its up to 40! Been wrestling with my prescription company to cover my Flo Nase for my allergies. DOn't want to try a new one, since I seem to have palpitation/ tachy with steroids, and I dont have any problem with the Flo nase. Im in the dreaded donut hole, plus found out the generic is more expensive than the brand name! Really weird!
Tried to get an appt for a haircut. My 25 year beautician retired and I still haven't found a replacement that I like. Since I cudn't do that I baked Gluten free chocoate chip cookies for Christmas. Tried one, yummy!.Quiet Christmas, wish more of my family were near.Got the presents wrapped. DH always says, when I ask what he wud like," Don't need nothing", so this year I found a gift, marked a jar of NOTHING! I hid his presents and will give him that first. Want to see his reaction. He is always joking, my turn!
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"Maybe the reason nothing seems to be 'fixing you' is because you're not broken. Let today be the day you stop living within the confines of how others define or judge you. You have a unique beauty and purpose; live accordingly."
-- Steve Maraboli -
Jackie, congrats on DH's new job (and your ability to see the silver lining in everything). What a difference a few days makes: Monday it was -25 wind chills (-13 air temp); this morning when we left Chi it was in the 30s--and landed in NYC with the temps near 50! We'll be walking to Ruth's Chris 1/2 mi. away (because of you-know-who's barricades, a taxi would take longer) to have dinner with our best man/Bob's BFF since HS.
Definitely in remission from my LE--didn't wear compression on the flight and my ring slipped off!
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Yes, what a difference a few hours or a day can make. We had a beautiful day today -- just fantastic. Not too hot or cold and not much for wind and there was plenty of sun. Just my kind of day. Sounds like you have weather to be happy with as well C Sandy and what can I say --- I don't have lymphedema and hope I never do, but I've always had my ring finger grow in size --- usually through the night. So, reluctantly I got it enlarged a size bigger, but often have to watch out. I have knuckles that generally hold the ring on though it sometimes twirls quite nice. Glad the LE gave you some peace. Wonderful when that happens. Enjoy your dinner.
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Morning gals...... Well it's a little warmer this morning... 23 so far! It's funny, how anything over 0 feels so much better! We don't get that many days of that frosty weather, but just thankful when they are gone.
Have to run back to Costco.... Ordered my new hearing aids there, but evidently I made the check out wrong.... Both places on the check have to "match", and when I wrote out the amount, I must have done it wrong! They didn't catch it, until that afternoon... I'll try agan today... Either I need a lesson in making out checks, or I need my eyes checked! Maybe I'll just take my debit-card !!! Or have them fill out the check electronically! It makes it harder when it isn't an even number.... And how do you write out $ Two thousand five hundred and 93/100 cents???? Isn't that right? Or is it Two thousand five hundred dollars and 93/100 cents??? She said the amount, and the written amount have to match.... I thought they did.
I'm sure I'll LEARN! I NEVER use checks! And don't you hate to get in back of someone at the check-out line, like me for example, and they don't have their checks already made out except for the amount? Hah!
Congratulations to you Jackie and your DH! And for my Daughter too! She asked for a transfer to a store right by her house, and GOT it! She has 37 years service with King Soopers mostly in Floral, and a gal was leaving, so she asked for the transfer! Now instead of driving like 20 miles a day, each way.... she could WALK to this store if she HAD to!
Okay Sandy, and any of you other gals.... I've been wearing compression stockings for maybe 5 years now... because my LEFT leg, same side as my Lumpectomy side, has always swollen up... On top of that I then fell & broke my hip on that side, and after the surgery/rod/screws, it was even worse. Isn't it possible that it IS Lymphedema, and not Edema? If I go without the compression stockings for a day or so, sometimes my lower leg, on the outside, gets so sore, and it swells down into my ankle. I wear them day & night usually. I was afraid it was a blood clot... but she said it wasn't...
Seems like when you ask a PC about something, if you aren't having a flare-up, they don't have a clue.......
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And no, I took a check out of my check book, so I didn't have a carbon "copy" and I don't know what I did.... Hah!
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Christmas is not a time nor a season, but a state of mind.
To cherish peace and goodwill, to be plenteous in mercy,
is to have the real spirit of Christmas.
Calvin Coolidge -
Hmmm, interesting questions Chevy. I wouldn't have written that check ( $ Two Thousand Five Hundred & 93/100-------------------, but then again, since I got my debit card, and especially when I'm doing something local --- I just use it and later that day go on my bank website and enter the debit from there. Helps me keep my check-book up to date as well as make sure the figures that I have in my head or on a slip of paper match what the bank subtracted from my account.
No one might recall that I only got my check card ( debit ) likely about a yr. ago. At first I was terrified about keeping up. It has become fairly second nature to me, but at times ( I've made addition/subtraction errors now and then ) I get riled up a bit -- when it doesn't come out on the penny. Dh used to just "fix" his check-book which was also scary to me with some checks written and some debited -- I'm not sure he quite knew where the figures were coming from but I want to know and account for every penny --- ALL the time. A little OCD on my part but I was a book-keeper for a few years with no fudging allowed --- so it became a fact for me at some point that I should know where money was, who I owed, what I could spend or no spend while having my balance always agree with the bank. They ( only once and special circumstance ) have had to RETURN money to me. I'm sure there are people who can wait a couple of weeks and still find an 'outness'. I will maybe never have that much confidence about mine.
We are having a rain ( maybe stopped by now -- not sure ) and the good news is that I don't think it will get near cool enough for it to turn to ice. In fact, it sounds like we will be wet through Christmas --- but hopefully the warmth ( 40's or so ) will stay and we won't have to face bad roads on our holiday tour.
I'm still loving my hearing aids. I think this coming yr. they will change mine out. I thought it was this yr. but now think one more yr. to go. I have noticed that I'll be ordering batteries much sooner this time ( they give me enough for a yr. at one time ) than I ever did. By the time I got mine and I'm sure Chevy was like this too --- my hearing had deteriorated enough ( in one ear anyway ) that I was struggling ALL of the time to hear properly and I was making a lot of mistakes at work taking information over the phone. So, I'm thankful every day when I put on my aids after my night of sleep, for the gift of hearing again.
There are sill some issues --- like I now tend to hear the loudest sound --- so if someone is talking while the t.v. is on --- because the t.v. is modulated ( and language cleared and filtered ) it almost always comes out as the loudest noise in the room as opposed to a person whose voice starts strong but rises, falls, or flattens out at in-consistent times. Also those in front of me I hear better as my aids are set to hear those behind me lower --- which I think is less confusing then EVERYTHING everywhere the same consistent sound and tone. I can pick out who is talking etc.
Well anyway --- didn't mean to get into all of that. I still have to tell DH ( I think he finds it a bit annoying ) that I can't hear him over the t.v.. He doesn't realize either that his voice doesn't have the strong pitch it once did when he was younger. We think of ourselves as un-changed, but whether subtle or not --- nothing remains the same.
I hope you are all going to have a nice day and no really bad weather.
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Good Morning, up to 50 this morning, probably saying bye bye to the last of our snow! I use my debit card as credit, and call it my plastic check! I keep track of it in my checkbook as though I were writing a check. I wud have written the check as two thousand-five hundred &93/100 also. Usually only use my checks to pay bills and send gifts to the grands. I keep an extra balance that I don't even show, so that I never overdraw. My acct is never to the penny, but close, I figure it when the statement comes every month.
I dont wear hearing aids, though both of my girls were deaf, so I know the us and downs. I hate the TV programs, especially Hallmark movies, where the supposed background music drowns out the dialogue! I do have tinnitus at 4,000 hz, which blocks many high frequency sounds,though my hearing itself is OK. so I have to turn up the TV louder than DH wud, to hear over my never ending whistle. tried a gew remidies for it , but there really isnt anything that seems to work.
Stay warm and safe and have a blessed Christmas.
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Thanks gals.... Got it taken care of.... My fault about the check, I somehow eliminated the $500 part... Just wrote it for Two thousand and 92/100 But I wrote the right amount on the top line, $2,593.92. I wrote another check, but they went ahead and ordered the hearing aids anyway! Wouldn't take debit card because they don't take Master Card without my pin.... and since I don't use that either, I forgot what it is! They only take Visa anyway.
I'm just glad it is over.... Bet I don't do THAT one again!
They were getting so crowded! But we were there when they opened, ordered 2 hot-dogs, took them home, and we each ate 1/2 of one for lunch! They have the BEST hot-dogs!
Almost 50 degrees out! Still a lot of ice around, where the sun doesn't reach, but that's okay.
Jackie, each battery lasts about a week.... sometimes longer... My main problem is with the excessive wax in my left ear! I'm just glad I can get it out with ear-candles..... My hearing hasn't changed much.... but my hearing aids are about 6 years old. Technology has changed and improved they say.... So the newer ones work differently.... The Bernafon Juna 9 Pico..... I'll get it all explained to me when I get them......
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Good for you Sunny. My batteries last almost two weeks. It is a good-sized battery. I'm thinking ( had another friend here who got aides after I did ) yours are a bit smaller than mine though operate almost the same with the plastic line that curls into your ear --- and the ear bud that sits down next the bottom of the ear. Betty's batteries here lasted about a week too.
I get the ear wax too, but it seems like when I take my hearing aid off my ear and pull out the ear bud it comes out with it -- so I never lose any sensation of sound/hearing. I have more trouble with that in the morning nasal stuffiness from allergies when I have to blow my nose over and over --- that interferes and I just have to wait until the pressure settles back down --- but I don't hear too well for a short time --- 5 mins. or so. Ah -- always something, huh !!!! I'm just glad there is a good solution. My hearing just got bad mainly from older age --- I do have a hole in one ear, but since even repaired I would need hearing aids, I chose to skip the repair. It is surgery, and you have to actually go all the out to have it done --- and as it wouldn't help me to go w/o the hearing aid I just figured why bother. For all I know --- I may ( but I hope not ) need some surgery down the road so if I can skip something all the better.
It has been dreary here with rain a second time this afternoon. Sounds like we will have this off and on thru Christmas ( oh joy ) but if our temps don't drop too much --- it will be a lot better than snow.
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Your greatest gift to your family and friends is yourself -
your relaxed, happy, and fully-present self.
- Jonathan Lockwood Huie -
Wishing all peace, health, and a loving heart. Merry Christmas from my house to yours.
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Wishing you all a Blessed Christmas!
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Most docs don't have a clue about LE. Lower body LE usually occurs on the left side, because that's the drainage path. When I was taught to do MLD (and my LE was on the R side), this was the sequence: massage clavicular nodes, then both sets of inguinal (groin) nodes, then down both sides of the cleavage simultaneously; then gently stroke from R to L axilla across the top of the chest; then massage first the L and then R axilla; then the R breast (all quadrants); then stroke down the R side from axilla to groin; then upper arm (first outer, then inner), middle arm including elbow (outer, then inner), forearm (both surfaces), back of hand to wrist; finally, massage R axilla again.
I get lower leg edema only when overindulging on sodium and if I let myself get dehydrated. Never had lower LE, though.
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No time to catch up on 5 pages of posts. Just dropped by to say Merry Christmas and to say that Mike is still alive and I haven't totally succumbed to caregiver burnout...but it's close.
Both Allison and Stephanie are here for Christmas since it's likely to be their father's last one. Ryan is not doing great but as long as I keep him in wine and cigarettes he isn't too much of a "pain" the past two week. That's all I can hope for. I have Mike home for the first time in two months. Don't know how long it will last. He requires a lot of attention at night so I'm majorly sleep deprived already. He's only been out 5 days!
He has gotten pretty close to dying three times in two months so I'm kind of numb. Maybe tomorrow I'll have time to go back and read those 5 pages of posts. Miss you all.
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