Starting Rads in January 2017
Comments
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Hello everyone,
ElizabethAM, happy you got one down. It must feel good to have started! My thoughts are with you.
So, I've had 7 of 25 radiations so far and besides a little pinkish skin I don't have any other side affects. Today I slathered the whole area with coconut oil.
I was hoping that my appetite would decrease, I gained 10 lbs during my chemo, and would love to lose it. Most of it was because I did a lot of stress eating and gave into my cravings. One week I only wanted to eat salami. So weird.
I did have a funny incident happen today in the radiation room. Today was the first time I've seen one of the technicians. He seemed very serious about getting everything just right. Usually they'll ask me not to move and explain that they are going to move some part of my body, for example move my hip to the right 2 cm or something like that. Then he said to me very gravely "I will now move your robe and expose the effect area". I wanted to giggle because my effected area has been exposed so many times since diagnosis that I've lost count and I've lost any semblance of modesty. Usually during radiation I'm praying ' God, please help kill this cancer, oh Jehovah help me'. Today I had a smile on my face thinking about my effected area being exposed. :-)
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Hello all. I started rads on 12/21/16. Tomorrow will be treatment 10 of 25. I am feeling really irritated under my arm. I feel sunburned on my chest too. I've been using miaderm but only twice a day. I may have to bump it up to 3 or 4 times a day. Tonight I decided to lather on shine Aquaphor to see if that helps. I'm starting to see the light at the end of this very long tunnel.
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SuMarie....cute story ...nice that he gave you fare warning..lol I gained during chemo about 10 lbs too darn it. When they told me I'd gain weight from the steroids I only had visions of bawled & chubby!! I still don't have a lot of energy to exercise.
mlopez77... I started 12/19/16 and today was my 10 of 33 ... Doing well so far but I did order the Lindi skin roll on Amazon today. Pricey but my BS recommended it. I am ready just in case. My lymph noid incision area is the most tender for me.
Not sure what it will be like when I go back to work next week. I've been blessed to be off since my diagnosis.
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Hi all - I am starting radiation January 5, (Tomorrow!). I had may second marking yesterday. I'll have to go back and read the posts in this thread and others about radiation as my center gave me no instructions or breast care info. Nothing about any special lotions, clothing, washing etc. The only info I received a few weeks ago was to use some special deodorant ( Tom's) on the effected side - or just use no deodorant on that side at all. My center has been wonderful for the oncology side ( weekly infusions) but seems to be lacking on the radiation side.
I finished 12 weekly treatment of Taxol/Herceptin in mid November. I am continuing with Herceptin infusions for 9 months until early September 2017. I will start 16 sessions of boosted radiation on the 5th. . Not sure when Tomoxifan starts, but I think it is after the radiation . ( will have to check my notes).
Best wishes to all.
M
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MLMSC...Welcome ...glad you found us to encourage each other through this journey. I am sorry no one helped you with creams and such. My BS and RO said to use Jeans Cream ...but you have to order it. Some people just use pure aloe Vera and others use Miaderm .. I guess we are suppose to keep the radiation zone well lubricate & drink plenty of water. Everyone has a different plan and I want to be ready. Today will be #11 for me. The doctors all have different treatment plans I guess we have to trust in their plan.
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I had my first radiation today, 1 down 19 to go it was fine but my hands were numb took minute or 2 to get the circulation going, they told me not to put anything on breast and they will give me cream when it gets sore in few days I cant understand why you would wait for that to happen rather than start off with crea
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Thank you Caligirl. Lorri, I am with you - I like to be proactive rather than reactive. But - I don't want to overact. I bought some items on the chemo shopping list and never needed most of them. Maybe I'll get some info at my first treatment tomorrow.
Thanks
M
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I'm going to post here I started radiation in Dec but had to stop and wait for new insurance authorization. I will be going starting tomorrow into Feb, was scheduled for 33 with 8 boosts total and haven't missed much all told. My skin is broken in middle but not painful there as of yet. Hope the break helped it. I'm getting ready to hang this up and head to bed soft hugs to all
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Lorri... I find that odd since everyone at my cancer center including BS insisted I use certain creams right after each treatment. No wonder we are all confused half the time.
MLMSC...I am preparing for the worse in hopes I won't need it. With chemo what I needed I wouldn't have but some of what I had purchased I never needed. Haha!
Pammac...Welcome ...sorry you have had to take this break but I always figure there must be a good reason beside insurance change that your body needed this break.
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I just finished my 15 treatments Tuesday. I was fine until that last week. Then I broke out and certain areas were sore and swollen. And itchy. I got folliculitis. I used hydrocortisone which made it worse. The whole time all i used was vaseline lotion 3 times day. The last week a used Eucerine and that was just sticky and I didn't really see a difference. Once I went back to the just the vaseline, the itchy stopped and it has been clearing up. I am red, but not blistered and the pain is from inside not outside and more of an ache then actual pain. I took alive one night and sleep on my side with my daughters heart shaped pillow under my arm and against my breast.
I used dove deodorant and body wash everyday. I wore a tank top for bed and sports bra daily. No issues there. I walked 3 miles a day and dark a lot of water.
One thing I figured out is if you keep going after treatment, you are fine. it's when you stop you get tired fast.
Just glad to be done. Good luck and God bless.
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I had my second radiation today went fine clinic is an hour away my dad drove me. I feel like my breast is burning now from the inside is this possible after 2 treatments or is it in my head anyone else have this I just don't feel right I'm not really happy to leave my skin with nothing on it either any thoughts
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Even if it is in your head, your feeling it. Rest, put the lotion on and I found that letting a fan run over the breast cooled it down and helped the pain.
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Hi all! I had my last taxol/herceptin on 12/19, started my triple dose herceptin on 12/28 which will continue until October. Today I had preliminary work like body mold made that I'll lie on for rads, and chest tatoos. First rads will be next Tuesday. RO prescribes a cortisone cream to be applies 2-3 times a day, said it has really helped prevent skin issues, and can still use eucerin and aquaphor. I did so well during my weekly chemo, hoping I do as well during rads. It does feel good to be moving forward to this next phase of treatment.
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Weneke6
I found using hydrocodone cream once skin splits won't work at that point you need silverdene cream for broken ski
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trishcat, hi, I had same diagnosis as you, but with one node positive.....And surgeon said it's gone, he removed it!! So I do not have energy to go to hospital every day for radiation....Even too far for me to walk to that part of hospital....For consult I used wheelchair! So I decided I can't do rads. I have to start pill you take now...Could you tell me if any bad effects from it? PS. I am 80 yrs. Old.would appreciate anyone's advice on all this...Had lumpectomy in Oct 27, and forget I even have? Or had? Cancer. Just very tired.
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Weneke6....yay for being done.... tomorrow is # 13 with 20 more to go for me! You are right I guess thats why I keep going each day...so I don't get tired or uncomfortable.
Lorri...so sorry you already have discomfort. I bought the Lindi Skin roll that my BS recommended for burning. I have also heard of some using green tea to cool.
Germangirl...Welcome ...good luck as you move on to the next phase. Where are you from?
CCtoo...Welcome..sorry you are having such a rough time of it.
Hopefully some of you newbies can fill in the information on diagnosis and treatment.
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Hi
I had my first radiation yesterday. Getting the 16 days more intense treatment. Like Lorri, I feel a pinch on the breast and it was uncomfortable last night. I thought it would be too soon to feel anything. The treated breast feels much warmer than the other one too.
15 to go.
I have been lathering up with Aquaphor since I read it on this site. I decided that with a nice Xmas gift card I received, when all this is done, I'll just get new camisoles and bras. I might need to steal some of my husband's shirts but he doesn't know it yet. Will cross that bridge when the time comes.
Weneke6- did you get the Canadian treatment? I was told that the bulk of the symptoms would show up when the radiation was done. What is happening to you is what I am expecting. Hope you find relief.
Off to start day 2. Happy Friday everyone
Update-last night when I lathered, hall way light was on so light was dim in the room. This morning, upon inspection, lower part of breast is pinkish.
This journey is not looking like I was hoping it would
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SuMarie- cute story. My first rad was Wednesday. It was all a bit intimidating, though not without humor. I was lying on the table breasts exposed to god and everybody when the first male doctor through this whole adventure walks into the treatment room. He checked to make sure I was all lined up, then said, "Looks good!". I was so temped to quip, "That's what all the fellas say."
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that is funny. I like how they keep trying to protect our modesty when we are off the table
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Oh you guys, trying to start radiation has been so frustrating! I was supposed to start this past Tuesday. I think I had mentioned earlier in the thread about how I had gone in to get marked up last month and that they called saying that they couldn't get the correct angles because my expanders were too full. So the RO called my plastic surgeon, and I went in to get saline removed. The nurse at the PS's office removed about half of the saline from the cancer side. I went back that afternoon to get marked again, and it was actually the other side that they were concerned about being too full. It was basically in the way and they couldn't get a clear path to the breast they were supposed to radiate. So I go back to the PS's office a couple days later, and they remove almost everything from both sides, and I have two pathetic deflated balloons on my chest. I go back for the 3rd time to get marked, and they still can't get the angle right to get a clear path. My expander sticks up kind of strangely on the inside of my left breast. It's just the way it's positioned. They even tried taping it down, and they still couldn't make it work! I'm going to see my plastic surgeon on Tuesday to see if there is anything we can do. I wish I could get both doctors in the room together with me to hash everything out. Unfortunately they are at two different hospitals, so that's not even on the table. I am THIS close to just throwing in the towel (I'm not going to though).
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Kelly
I hate to hear these stories, different radiologists want different things. Some centers as well, have you thought about trying a different radiologist/ center. My TEs did not have to be deflated but I know someone as the same centers who did and frankly we have very similar diagnosis. That why I am saying this. Wish to give you the support while you go through this mess, I sure hate this for you
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Kellychamel, I'm so sorry this is happening to you, it is so frustrating it's bad enough lying there with them marking you up and positioning you and To do that a few times and still not have started the treatment is awful I hope they sort it out quickly.
I had my 3rd treatment today it went well was very quick bit more imagining to do the actual treatment was very quick, I asked about cream they again said not recommended and to instead wear no bra where possible I really don't want to do that I never have done that as my chest hurts. I am annoyed that I have to leave it alone.
I'm getting fed up stripping off in front of people as well different nurses the 3 times now but there only about 6 I think but still
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8 treatments down, 25 to go. Skin looks good, just getting darker pink and a bit tight like sunburn. had a reiki treatment offered by the hospital, left me very relaxed, going to sign up for more. I have a massage scheduled as well. If the hospital offers it, I'm taking advantage of it, except I don't feel the need for a support group since I have you guys!!!!!
Have a good weekend
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kelly so sorry to hear of your problems.. I hope they will sort themselves out very soon.
Glad everyone else seems to be doing well.. I had my 4th session today... only 12 more to go. Was really really tired today for some reason and have an ankle that hurts like heck making it hard to walk. So early to bed tonight and some form of pain killer.
Have a great weekend ladies.
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I live in Holland Ohio, outside of Toledo. I am stage 1, no lymph nodes. Had lumpectomy, and then 2nd surgery to clear margins.So thankful for these forums since my diagnosis 7/16.
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Hi all. This morning was #9 of 22 for me. Minor redness so far... nothing too major. It's my left side and they have me doing the deep breathing to keep the heart and lungs away from the radiation field. On Wednesday, it was like everything had changed, and I couldn't keep the bar in the right spot with my breathing anymore. I ended up shaking to get it to stay there, and that scared me that I was radiating myself to death with the shaking, and then I started crying... Suffice to say, Wednesday sucked. We got it worked out yesterday, and today was great, but has anyone else had that problem? I haven't read anybody's story about the breathing part, or any problems with it.
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jenrich- I too have to do deep breathing as my radiation is on my left side. I don't have to hold on to a bar or anything. I am positioned on the machine and the techs ( from another room) tell me to take a deep breath me hold. Have to hold about 20 seconds. I do have to have my arms over my head and hold on to handles to keep from moving.
Hope your treatment goes well.
M
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MLMSC... thanks for the reply. I was talking about the digital bar... it's a yellow bar that turns green when I've taken a deep enough breath to get it into the blue box... Is yours like that? Are you watching a screen to see how deeply to breathe before holding?
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I wish I lived in the US mine is on my left side as well I've been told nothing about deep breathing and no cream either fgs
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Lorri - not everyone has to hold their breath for treatment. It depends on how close to the chest wall the heart is located. My Rads are on the left side too and I do not have to hold my breath.
JenRich & MLMSC --- Glad things are going well... It is easy to get emotional about things at the wrong time Jen. But we are in your pocket.
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