ISO IDC Left side Grade 1 ER+ PR+ Her2- <1cm survivors

Well, I'm still alive so that makes me a survivor so far. I don't think you'll get too many posts from non-survivors....just saying.

My tumour was bigger than yours. I did a double mast with no chemo or rads. Made it 7 years before it came back so that's a good run. Didnt go on Tamoxifen either. What else do you need to know?

I was diagnosed 9/4/16 during my routine mammogram. I got the results via phone call from my primary care doctor on Labor Day weekend.

They found a 2cm tumor (IDC-invasive ductal carcinoma) in my right breast. Breast cancer does not run in my family and I really think I got this from doing IVF treatments to have my children (14 years ago). I have no regrets and would do it all over again to have my kids. I had a lumpectomy and they also removed the sentinel lymph node. The node was negative. My ER and PR are positive but HER2 is negative. My oncotype score was on the cusp of intermediate. They offered the choice of doing chemotherapy and I had a blunt conversation with my oncologist asking if this was his body, would he do chemo? I would avoid putting that poison into my body whenever possible. But if my doctor said I had to do it, I would. I decided to do radiation and then tamoxifen for 10 years. I had radiation every day for 5 weeks (took Thanksgiving off). Started tamoxifen 12/28/16. I've had hot flashes, joint aches and fatigue. I'm fighting it by going to the gym and exercising and also found that doing acupuncture really helped with the joint aches. (I have none now). It's so important (but not easy) to do something good for yourself. I've also tried yoga (I'm not very flexible though). Hang in there. You have a lot of support from your doctors and forums like this. Best wishes to you!

Stage1Lady - breathe, you got this.

Standard treatment with lumpectomy is rads which are very doable. Your high ER/PR positive and Her2 negative standard treatment would be depending on Pre/post menapausal status tamoxifen or an AI.

I'm four years out Stage 1: left side lumpectomy, radiation with boosts, and AI with Zometa infusions every 6 mos. My team gave me a great prognosis. I had 8mm and 4mm tumors near each other near chest wall upper quadrant. MRI after lx said all gone. The chest wall margin was less than 5mm so rads were required even if I had chosen MX. I did have 7 nodes taken all clear, but LE is ongoing issue. I take AI had bone lost soZometa infusions. I eat well, walk, dance, exercise, lift weights, and enjoy life. My hubby lost his battle with cancer 2015...promised him I would live well and enjoy life!

You can check out cancer math and look at the projected outcome with your data.

You have a highly favorable outcome...breathe, keep your head down and keep moving forward. Join a thread going through rads with you...you can do this. Join a support group in your area. Apply for weekend with Casting for Recovery or Little Pink Houses...you so have this...

Let us know how you proceed...

(((Hugs)))

Cind

Hi,

Diagnosed on 8/8/16, lumpectomy by oncoplastic surgeon, radiation 20 days. No fatigue whatsoever, actually felt the opposite. I had so much energy that I developed insomnia (which I have taken care of.) I start Lupron shots with an AI in January. The reason for radiation even with a small area removed is because you want to stop any progression of cancer cells in the affected breast. The reason for anti-hormonals is to prevent hormones attaching to breast cells. I have a great surgeon, MO and RO all from really good institutions - USC, Washington University, Harvard, etc. I trust them to give me their best advice and I follow it.

i would recommend registering on the NCCN's website and reading the breast cancer treatment guidelines. With respect to lumpectomy, with invasive bc the standard of care includes radiation unless you are above age 70.Depending on your age, you might be given the choice of different radiation protocols. While I was offered brachytherapy with my lumpectomy, I chose whole breast radiation and did well.

While controversial because we can never 100% identify who will or will not recur, with such favorable tumor characteristics, you should be looking at curative treatment. That is, not being over or under treated, but treated enough so that you will probably not have to revisit this disease. Keep in mind, when choosing treatment, you also want to reduce your chances of getting a new primary. That sai, you need to choose a team that will address all of these issues...

And, I most humbly and respectfully disagree with Barbie's physician's recommendation. While my doctor would not initially over treat me, he was very clear in giving me a treatment with the intent that it would not be necessary down the road to require endless treatment due to a progression. With favorable prognostics, it is essential to have many good choices from a trusted physician. I am 7 years out from my initial diagnosis and doing well

RMIlulu- why are you on Zometa infusions?? I'm just asking out of curiousity.

Stage1lady- I am relatively new here as well and struggle with treatment decisions and timing. I was diagnosed with left IDC Stage 2A, 2.6 cm, no nodes, Er +. I had a lumpectomy and fought the idea of radiation, but ultimately did it as I squeaked out of a recommendation for chemo with an Oncotype of score just within the intermediate range (19). Radiation was a tough decision for me due to the impact on my heart and lungs, and feeling like I was trading one potential problem for another. It was initially terrifying, but once I got a few sessions under my belt it became easier. I am now on to the decision of taking Tomoxifen. I should have started it a week ago, but again, the thought of harming other parts of my body makes it a hard pill to swallow. I know it is the recommended course, but I am very scared.

Good luck with your decisions! You are not alone in your apprehension!

Meow 13- Not for me. I was told he would not deny it if I wanted it for a few percentage points reduction in chance of recurrence, but did not feel the risks would be worth the benefit in my case.

Pinks - so there you go. Your doc says mastectomy means no chemo or rads - unless there is node involvement. You said ideally, no chemo, no rads - so sounds like you've already made your decision because there is just no way to know about nodes until surgery. Let us know when you move forward. It really does get easier once you commit and have a plan in place.

Hi there

I had 1cm tumor removed ..margins clear..1lymph node removed, no c cells seen. I am Her2+ e+p. I'm 38. I was told i have 80%of being clear so i ran out wanting non of the 'preventative ' treatment ahich was to be Chemo Herceptin radiation and tomox. I thought, how would i be treated if c was found in tissue and node and elsewhere.. the same ? I couldn't put my body through ALL that. I am doing all the alt.i can to prevent a favorable environment for anything to grow and can only hope for the best. Big double edged sward :-( Positive positive positivity

Blessings to all.