Starting Chemo January 2017

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  • M0221
    M0221 Member Posts: 45
    edited December 2016

    Naniisscared,

    I'm a planner. Planning through this has helped me have some sense of control

  • Provence
    Provence Member Posts: 20
    edited December 2016

    Oh my goodness M0221, Are these really all the meds prescribed during chemo?

  • M0221
    M0221 Member Posts: 45
    edited December 2016

    Provence,

    Some are only as needed. I wanted them handy in one place just in case. My MO believes in giving everything up front so if I need it I don't have to call and wait for it or worse have it happen at night when the pharmacy is closed. Hoping I won't need most of them.

    They insist on the vitamins, the steroid, Zantac, and Zyrtec. Highly suggest the Ativan and insist on 1 mg an hour before chemo. The rest are there for just in case side effects. I have a really high pain tolerance so I am not anticipating needing much for the bone pain from Neulasta

  • Zolagirl
    Zolagirl Member Posts: 15
    edited December 2016

    Hi all,

    I would love to join this group even though I start December 30 (this friday) Doing dose dense AC for 4 rounds than 12 weekly treatments of Taxol...anyone else still completely terrified already? Have read the tips, have my bag packed. Just need to take the chemo class and get my port tomorrow....I'll try to come on and keep you posted as soon as it starts Friday...

    A little about me...47y.o, no kids except two furkitties. Been with my man for 10 yrs and he's my rock through this. Him and my work family, who are amazing! Haven't told many others outside of this circle as I'm usually a pretty private but I think I'm gonna have to work on being kick ass!

    How many do we have here?

  • Provence
    Provence Member Posts: 20
    edited December 2016

    M0221, I haven't really researched the chemo. I'm resisting becoming informed. All I am aware of is they give a steroid and something for nausea. I just assumed that it would be given intravenously. I appreciate all the info I receive here. I am curious why some have cytoxan and taxotere but not with adriamycin. My MO said I would need all three? Thank

  • M0221
    M0221 Member Posts: 45
    edited December 2016

    Provence,

    I was too terrified to read much for a long time, then I dove right in. Sometimes I wish I hadn't. People tend to post when they are having side effects and not so much when things go well. It got me scared several times for no reason because their experiences thankfully were not what I experienced. I was SO thankful when I felt nothing from the nuclear medicine injection for the sentinel node biopsy and I had no pain what so ever with my port placement.

    I am honest scared to death about tomorrow. My husband and closest girlfriend will be with me. I feel like I watched to many Criminal Mind episodes...I feel like I am heading into a leathel injection and I won't come home. Sounds overly dramatic and I am hoping once the initial infusion happens I will be less afraid. Fear of the unknown.

    I honestly don't know why we all get different drugs. I know there are so many factors and the chemo is very specialized for each person. Depends on age, grade, hormone + or neg, Her2 status, oncotype or mammoprint scores and many other things.

    Feel free to send me a PM if you ever want to chat. I'll let you know how tomorrow goes.

    Oh, I will get IV steroids and Benadryl tomorrow as well. I believe Taxotere depletes vitamin D and something else takes the B vitamins.

  • M0221
    M0221 Member Posts: 45
    edited December 2016
    • Zolagirl,

    Please join us! I am starting tomorrow, December 28th, and I felt like I was more in line with January chemo goers then December. I actually read both. The ladies that have already started have great input. The December ladies are great!

    It looks like we have 13 posting for themselves and 2 that are reading posts so they know how to help loved ones starting in January.

    Sorry you have to join us, but glad we can be here for each other. And I am thrilled you have a good support system. I am 49 years old and I have 15 year old boy/girl twins, a husband of 25 years and amazing friends. I cannot imagine this journey without them.

    I had no trouble at all with port placement. No pain, minimal bruising and mild neck stiffness for a few days. You'll do great

  • Provence
    Provence Member Posts: 20
    edited December 2016

    M0221,Good luck tomorrow! You will be in my thoughts and 🙏🏼

  • Zolagirl
    Zolagirl Member Posts: 15
    edited December 2016

    M0221, will definately be thinking about you tomorrow. ..you're fortunate to have your hubby and best friend with you, will make it harder to flee! :) I guess from reading (and I've tried to do lots without scaring myself to death), the first few days aren't so bad. It's the 3rd or 4th day in that s/e kick in, right? Do you plan to work through your treatment or just take it as you can?

    Hopefully your partners in crime will keep you laughing and otherwise occupied. Your in my prayers and wI'll look forward to hearing how your days do.

    Thanks for the info on the port tomorrow, been a bit nervous about it but at least I get drugs :)

    Jeanelle aka Zolagirl

  • M0221
    M0221 Member Posts: 45
    edited December 2016

    Janelle,

    Thank you! I definitely thought about fleeing chemo treatment today, but then common sense and a belief in medical care took over and I am set to go. I heard the same about feeling pretty good the first few days before side effects kick in.

    I only worked PRN part time and my office has been so amazing with me just showing up when I am up to it. I am the insurance coordinator and billing advisor in a small dental office so the world doesn't end if I'm not there. A lot of what they need they can call me at home and I can either talk them through it or get online and handle it from my recliner. And I am very blessed to have people that are helping through this. My heart goes out to anyone that doesn't have a strong support system.

    I'll be praying for an easy port placement for you tomorrow! And YES for the meds!I've never taken any meds but I figure I may as well take what they are offering now! No need to try an tough this out.

    Provence,

    Thanks for the thoughts and prayers! I'll let everyone know how it goes. Time for all of us to start kicking cancers butt!

    MJ aka M0221

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited December 2016

    Hello chemo sisters. Stopping in to offer support to you. I went through this in 2015. Not easy, but doable! Yep, you lose your hair....but it comes back! I have had 4 haircuts. My strength came back and at age 68, I am teaching exercise classes. My advice is be prepared! Take a laxitive the day of chemo. I took Colase. Anti nausea stuff makes you constipated.....not fun! Take Claritin day of chemo and for 5 days after if you get Neulasta shot. That helps with the bone pain you MIGHT get. Have your soda and salt water mix ready and use it often!

    YOU CAN DO THIS!

  • newt72
    newt72 Member Posts: 16
    edited December 2016

    Hi everyone. You can add me to the list as well. I will be having my port placed next Friday 1/6, and chemo should start the following week. I will have 4 rounds of A/C followed by 4 rounds of Taxol and then surgery. I hope to be more active here now that I have a plan in place. The thought of chemo sucks, but I'm truly thrilled to have a treatment plan and can feel like there is an end in sight! I'm sure we will all be a great support system for one another.

  • M0221
    M0221 Member Posts: 45
    edited December 2016

    Newt72,

    Sorry you have to join us but so glad you found us!

    Port placement for me went smoothly with no pain. Praying you will do well! I had minor bruising and some tenderness as well as neck stiffness but no real pain.

    Good luck! Keep us posted!

  • M0221
    M0221 Member Posts: 45
    edited December 2016

    Well ladies, I had my first infusion today! It went well and I was less afraid then I had anticipated. The nurses at the cancer center were amazing!

    I am so tired. I only slept 45 minutes total last night. I napped a bit when I got home. Hopefully I will sleep tonight. I am having a reaction to the steroid. They lowered the dose to see if it will help. I don't want to totally have to come off of it because it will help with me not getting neuropathy in my feet and hands and will also prevent swelling of my legs and abdomen. I should be good today and tomorrow. We will see how Friday goes. Praying for minimal and very bearable side effects. Hope lowing the dose will work and I won't have to completely come off the steroid. Splitting headache for the last 18 hours that won't go away with meds, stomach cramps and nausea, and a very bright red flushed face that is hot to touch. They said it is definitely the Decadron. Lowering to half the dose.

    We can do this ladies!

  • illimae
    illimae Member Posts: 5,710
    edited December 2016

    Hi all,

    I'm starting chemo on 1/2 following my port placement surgery. I believe it will be 6 rounds of the THP mix for HER2+ treatment of IDC which has spread to a spot on my pelvic bone. This is all very new and sudden (found the lump less than 2 months ago. I was diagnosed last month with final test results confirming stage 4 two weeks ago, I am only 41 and still shocked but very determined.

  • M0221
    M0221 Member Posts: 45
    edited December 2016

    IIIimae,

    So sorry you have this crummy disease. It truly sucks, but glad you found an incredible group of ladies here that can help you through.

    Please let us know what we can do to support you. Praying for easy treatments with minimal side effects.

  • M0221
    M0221 Member Posts: 45
    edited December 2016

    Janelle aka Zolagirl,

    How did port placement and chemo education go today? I've been thinking about you and sending prayers your way!

  • Provence
    Provence Member Posts: 20
    edited December 2016

    M0221, you are truly amazing! Hope that you get a good nights sleep. And that your reaction to decadron goes away. You have been thru a lot today but you still are encouraging us. Praying for you

  • Zolagirl
    Zolagirl Member Posts: 15
    edited December 2016

    Mysunshine,

    Thank you so much for the encouragement and the tips/advice! It's so wonderful to hear that you have persevered through this nasty thing they call cancer, and that makes it a little less scary (for me anyway) and more prepared for the fight! Best wishes to you as we carry on in this battle together!

    Zolagirl

  • MexicoHeather
    MexicoHeather Member Posts: 365
    edited December 2016

    Hi. I will be starting chemo on 1/16. The port will be put in after New Year's.

  • Zolagirl
    Zolagirl Member Posts: 15
    edited December 2016

    M0221,

    Thanks for helping prepare me for my port surgery today..as you had said ( and for all you future chemo'ers), it really was not a big deal. Bruising and tenderness, mostly if I try and stretch my neck muscles. Chemo class was good, but truthfully, I've learned more here from this site!

    I'm sorry for the issues with your steroid and hope you can get that adjusted so that your s/e stay somewhat under control. Hope your headache is better too....those things are miserable! Hound your doc and get that nausea under control....my doc said there are many different meds to try that anymore, nausea is one of the s/e that is easiest to get a handle on....who knows if that's true, but I liked how it sounded when she told me that 😊

    Get some sleep so your body can fight!! Keep us posted how you're doing... (ONE DOWN....WOO HOO!!!)

    Zola

  • Zolagirl
    Zolagirl Member Posts: 15
    edited December 2016

    Illimae, I'm so sorry that you've had to deal with your breast cancer diagnosis, I will never forgot the shock of the words, "it's cancer"! But, being determined and ready to fight is a good place to be, and from it looks like, we have a great group of women going through this together! Family and friends will help us get through this, but I think only those who have been and are on this roller coaster can truly understand....

    We can do this!

    Zolagirl

  • Goincrzy8
    Goincrzy8 Member Posts: 387
    edited December 2016

    I will be having Chemo sometime in Jan. I need to decide on the type, was given 2 different options

  • Zolagirl
    Zolagirl Member Posts: 15
    edited December 2016

    Newt,

    I agree with you, knowing what you're up against and having a treatment plan has been huge for me, the testing and the waiting was the worst!!! Im doing neo adjuvant treatment as well, with surgery sometime this summer and radiation, hormone therapy after... we're on this journey together!

    Zola

  • Goincrzy8
    Goincrzy8 Member Posts: 387
    edited December 2016

    Holy Moly M0221 that is a lot of stuff. All needed? What the heck I better start looking

  • tessu
    tessu Member Posts: 1,564
    edited December 2016

    Just popping in to wish all of you the best possible results from your treatments, and minimal side effects. The women on this site remain an invaluable source of support for me even now, a year after chemo and almost two months after my last Herceptin dose. I hope you also find as muchsympathy, and encouragement, and practical advice here, too --- and new friends! YOU'VE GOT THIS!!!!!!!

  • sweatybetsy
    sweatybetsy Member Posts: 6
    edited December 2016

    Hello Everyone - I'm popping back in and reading all the updates and comments! My first infusion is Jan 4. Had my port placed today and so far, no issues whatsoever. Just a nice little bump with bruising on my chest. They gave me pain meds, but I honestly have NO pain (not yet anyway). Had chemo class two days ago. Learned mostly about constantly monitoring my temperature and when to call or go to ER for that. And there was a lot of discussion about nausea and digestive issues and when to call or go to ER for that sort of thing. They provided a bunch of written information which I need to sit down and go through. I already have a list of questions a mile long for my MO when I see him next week. I'm having an Echo tomorrow. All in all, this s&*t is getting real now - I'm still pretty nervous about this whole chemo process.

    In reading through the comments, I see that several of us are having the same treatment order (chemo first, surgery 2nd). Personally I'm glad to have chemo first - I can hold off on my surgery decision (lumpectomy? mastectomy? double mastectomy??) for a few weeks that way and see how the chemo does shrinking my tumor.

    M0221, would love an update for you as to how your are feeling 2-3 days after your first infusion. And I am in awe of your preparation medication wise - in fact that post resulted in several questions added to my list for my MO!

    Zolagirl, good luck with your first infusion tomorrow - please let us know how that goes for you!


  • Naniisscared1
    Naniisscared1 Member Posts: 7
    edited December 2016

    hi everyone. I hope that you are all doing well.

    My first chemo session is in one hour and I wanted to feel not so alone so I read everyone's posts.

    I am scared but because of my family support they will ensure that I can't hightail it 😄

    I already have severe anxiety attacks due to being attacked at work 5 years ago and I suffer from PTSD as well as copd. But I'm determined to get through this and I will be doing my best.

    And yes I'm a list and organising freak lol 😂

    My thoughts are with you all as we travel this journey together.

  • sweatybetsy
    sweatybetsy Member Posts: 6
    edited December 2016

    nannisscared1 - sending best wishes to you as you start chemo! I agree, thank goodness for family and friends. I don't know what I would do without their support. One common remark I have read is that chemo suc but it's doable. Hang in there!

  • newt72
    newt72 Member Posts: 16
    edited December 2016

    Thank you to those who have shared your experience with having the port put in. I get so worked up about medical procedures and have been quite nervous about that. I'm glad to hear that most have been uneventful :). I'm not too nervous about chemo yet, but I'm still a couple of weeks away, so I'm sure that anxiety will come soon enough. Praying for all of us as we begin this journey together. Did everyone have an ECG? I asked the vascular specialist about that when they set up my appt for the port, but they said they don't do that. I thought my MO said I would have one though.

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