Starting Rads in January 2017

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  • DiV
    DiV Member Posts: 231
    edited December 2016

    snowsogal thank you so much! I'm trying to stay positive at times it's not easy. I can't find any breast cancer information on anyone going through what i'm about to. Orthopedic surgeon suggested i meet and speak to some one who has lost their arm to cancer, probably going to take him up on the offer. Sorry you have to go through this too.

  • MicheleE
    MicheleE Member Posts: 2
    edited December 2016

    I have just started radiation. Feeling uncomfortable and looking for advice or products to help with the physical discomfort. Tricks from experience are welcomed

  • Gramamom
    Gramamom Member Posts: 2
    edited December 2016

    I finished rad towards the end of September 2016 then started hormonal therapy. Things have gone quite well. I did develop lesions after the radiation and tried everything to clear them up as they were quite painful. Finally, in desperation, I tried using Castor Oil and massaging that into the skin where there were lesions. The lesions cleared up in 4 - 5 days. What a miracle!

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2016

    Michele and Gramamom, welcome to Breastcancer.org and the January 2017 Radiation Therapy thread.

    Michele, we know you'll get lots of great advice and support here.

    Gramamom, thank you for posting to Michele with your tips -- great advice!

    We look forward to hearing more from you both soon!

    --The Mods

  • Gramamom
    Gramamom Member Posts: 2
    edited December 2016

    Thank you. I'm not always so great at keeping up with things but am going to try. I am also on hormonal therapy and was having side effects - bones hurt, no energy, , not sleeping. When I saw the oncology nurse at the beginning of December, she was sooo helpful. She told me to take Aleve PM at night to sleep better and to also take Glucosamine/Chondroitin for the bone pain. I did both and immediately I felt so good. Those two things alone have done more for me than anything else I've tried. Hope it helps someone else too.

  • JShannon
    JShannon Member Posts: 14
    edited December 2016

    Saw RO today, really liked him, he explained alot, which helped my husband, and he prayed with us. I had learned almost everything from this wonderful site! Love this place! Will do 30 sessions, getting all the insurance stuff lined out then will schedule. They said to brew green tea daily and spritz my breast with it several times a day, had not heard that one. Also called in a prescription cream.

    DIV - love your puppy, my name is Riley too! I admire your attitude to stay positive, even when it's hard.

    To all the others on this thread, thankful to have you to share this journey.

    Today is my hubby's birthday - cake is in the oven!! Love him so much!

    Hope you all have a good evening.

  • DiV
    DiV Member Posts: 231
    edited December 2016

    JShannon hi! So sorry that you are here but glad to have you! Riley was on my list of names. I was reading a book and the authors name was Riley, watched movie and girls name was Riley etc now you! How awesome! Riley was meant to be her name! Happy Birthday to your husband!

  • brigid_TO
    brigid_TO Member Posts: 75
    edited December 2016

    Hi JShannon Glad you found us here.

    I am receiving radiation December/January and am now 7 out of 21 without too much to report as far as issues. I am also using green tea- I had first put it in a spray bottle to spritz but now use it when I get home from radiation treatment soaking a cloth and letting it sit on my breast for 10-15 minutes. I keep it in the fridge so it is cold and it seems to pull the heat out. I have a few other things I am using but that is one.


  • Caligirl55
    Caligirl55 Member Posts: 486
    edited December 2016

    Snowsogal....thank you I was hoping the Jeans Cream was good to use.

    DIV....ok Riley is too cute ...that's my granddaughters name too.

    JShannon...sounds like you are so blessed by your RO. Green tea is new to me. Happy Birthday to DH

    Welcome ... Michele E. & Gramomom...hope we are helpful if there's a need and we appreciate any and all tips for the discomforts of radiation.

    I better get some green tea ..hugs

  • DiV
    DiV Member Posts: 231
    edited December 2016

    Caligirl55 ok this is just too awesome! Thinking Riley was a god send! I agree with you on what JShannon said, gotta get some green tea. Did alot of research on my diagnosis. There are only 23 documented cases like mine. I'm not a quitter will fight tooth and nail..

  • CC2016
    CC2016 Member Posts: 107
    edited December 2016

    I'll be joining this group too...never belonged to so many things before dx. Finished chemo on the 21st. Met with RO this week, will have the planning scan on the 10th and should start rads the following week. I was upset with RO that he had mentioned that studies showed not much of a difference in outcomes between 20 or 30 treatments....for ladies 20 years older than me. Since I was younger, he's ordering the full 30 (25 whole/5 targeted). Glancing through many posts it looks like most are getting 30 so I'm wondering why he even brought up a shorter road when it might not actually be a standard. And totally down-played the skin issues (will keep an eye and recommend creams as needed). And will not start before 4 weeks after last chemo, and only if I appear healthy enough. And, and, and. So ready to be done with this journey.... Whole journey...and this is only step #3 of 4, hormones are next...

  • DiV
    DiV Member Posts: 231
    edited December 2016

    CC2016 welcome. So sorry you are here. Lots of support and encouragement here. I start January 5.

  • Caligirl55
    Caligirl55 Member Posts: 486
    edited December 2016

    CC2016...Welcome ...sorry your here. I can never figure how so many doctors have so many different opinions? I was told by my BS and RO start lathering up right away so I've used my Jeans cream that they recommended as soon as I could after surgery. I also ordered the Miaderm L last night just in case. Some women apply cream twice a day and some use all kinds of things from green tea to Lindiskin rollers. I am preparing for battle just in case. My surgeon and RO have also made me wait between treatments. I think with chemo or at least in my case they want my resistance level to improve.

    Rads #8 today ..... Hugs


  • ElizabethAM
    ElizabethAM Member Posts: 245
    edited December 2016

    What Cali said, no rhyme nor reason to the treatments. But we have to remember we do not have all the information that they do.

    Welcome to all the newcomers. We are glad to have you, but so sorry you share this path.

    Div - we are in your pocket, while you weather your special circumstances.

    My instructions were to use Base Glaxal lotion and to wash with Dove for Sensitive Skin. No Deordorant or lotion before treatment. Also to wear soft cotton t-shirts.

  • DiV
    DiV Member Posts: 231
    edited December 2016

    ElizabethAM thank you. Sending prayers and hugs your way!

  • ArtyMom
    ArtyMom Member Posts: 71
    edited December 2016

    4 sessions down and skin is starting to get pink and feel 'sunburny', January could be a rough month, keeping up the slathering

  • SuMarie
    SuMarie Member Posts: 37
    edited December 2016

    hello everyone, I got 5 sessions done. The cream I was prescribed is Biofine. I noticed a little bit of pinkish skin and my arm pit feels sensitive. I got a urinary tract infection & E. coli this week, I'm taking antibiotics. I had a Lymphatic drainage message, which was great. I feel really overwhelmed with the radiation I haven't been able to do anything around the house, thankfully my husband has been taking care of things. Not much else to share. I'm wishing you all the best and thanks for your posts, I'm learning so much and appreciate the encouraging spirit here.

  • ArtyMom
    ArtyMom Member Posts: 71
    edited December 2016

    SuMarie, was your lymphodema really bad? I have an appointment on Monday but not sure how much I need it.

  • SuMarie
    SuMarie Member Posts: 37
    edited December 2016

    hello ArtyMom, thankfully I don't have lymphodema. The message was 'ordered' by my MD as a precaution. I get one every week or two. Also a general upper body message. I never got messages before diagnosis. I sure do enjoy them.

  • DiV
    DiV Member Posts: 231
    edited December 2016

    Happy New Years ladies!

  • ElizabethAM
    ElizabethAM Member Posts: 245
    edited December 2016

    Have a very Happy New Year, Ladies!! Wishing you all the best. Don't do anything I wouldn't do at your parties tonight.

    image

  • Lorri70
    Lorri70 Member Posts: 191
    edited December 2016

    Happy new year, health and happiness to you all for 2017

  • Caligirl55
    Caligirl55 Member Posts: 486
    edited January 2017

    Happy New Years ladies 🎉🎉Out with 2016 and in with a happier, healthier 2017 🎉🎉

  • brigid_TO
    brigid_TO Member Posts: 75
    edited January 2017

    Happy New Year to all and to an improved 2017.

    I will be entering my 3rd week of radiation on Jan 3rd and thought I would check in here as a bridge member between Fall and January Rads.

    So far my treatments have been generally uneventful although I think that is a typical course for early days. I thought I would review for those starting out in January a few things I have gleaned from *lots* (probably too much) reading.

    Reactions to radiation treatment are varied and not necessarily attributable to the type of lotions, activities etc you use. As you all probably know by now it is more a reflection of other factors including size, grade, previous chemotherapy etc. I took a brief look at how treatments are calculated- definitely over my head-crazy complex math and individual practitioner judgement involved. It is a fine line to give radiation that normal cells can recover from but gives the whammy to the cancer cells.

    My 2 cents on things to pay attention to that will support your body in helping the normal cells to recover and minimize skin reactions- please understand that your mileage may vary:

    -sleep or simply rest if you have difficulty sleeping, is key to your body repairing damage.

    -water-keep yourself hydrated-drink, drink, drink!

    -more protein (for myself fish,nuts and eggs).

    -exercise- word is that 30 minutes per day keeps the radiation fatigue away.

    -lotions and potions- right now I am using lavender hydrosol, aloe vera, lubriderm, green tea soak. In the wings if needed I have cabbage leaf and salt soak (0.9 percent sodium chloride solution). The lubriderm and salt soak were recommended by the radiation treatment team. The salt soak is used when you start showing more symptoms than I have right now.

    I am very interested in others plans or experiences here so please share if you are able.

    ok final oddball thing is that I do carry a malachite stone around as a charm.

    Enjoy the first day of the new year and Onward....


  • Kattis894
    Kattis894 Member Posts: 218
    edited January 2017

    I am hoping I will join this group. My pathology report arrives tomorrow afternoon. I was suppose to start radiation today but it has been postponed in case I need more chemo...nightmare...anyway I am hoping I will join here instead...

  • Caligirl55
    Caligirl55 Member Posts: 486
    edited January 2017

    Welcome Kattis ...sorry you are here but we are in this together. Hope you get some answers regarding what your next step is. Having chemo would be discouraging for sure.

    brigid....we are on the same plan I start my third week tomorrow. I am sticking with what my RO suggests but always open to new things. It can just get too confusing for me when there are too many choices. I wish I could use your organized steps but my life is always so busy and I go back to work next week. Rest is a tough one for me ...I don't sleep well. This past weekend we went to Vegas to celebrate with my DS and family so I was pushing myself with not enough sleep or water but had a great time. My DIL' s parents were here from Europe so we wanted to see them.

  • Orangey
    Orangey Member Posts: 7
    edited January 2017

    Hi

    I'm a newbie here and in a way feeling blessed that my cancer was found when it was still small. I had a lumpectomy and will receive radiation and, then probably Tamoxifen. I had a partial hysterectomy in 2014 so we don't know if I menopausal yet. Since the cancer was on the same size as the LCIS, I understand that I am not fully out of the woods and monitoring will be necessary. No more delaying the mammograms!

    Last Tuesday I went for the planning with the radiation technician and will find out this Wednesday if I will get the 16 days (Canadian) or 5 days/5 weeks treatment. At this point, I just want to start already. Fortunately they are very understanding at my job and making time to go to the appointments will not be an issue. I just don't know what to expect. Well, I know what to expect, I just don't know how radiation will affect me and the waiting is killing me. In Paulo Coelho's words: "The fear of suffering is worse than the suffering itself"

    I hope to reply back in a few weeks that I'm done, I burn, I cream, and I'm healing :)

    So many of you are going through what I deem more difficult times than me, not just by being so much younger, but also by the seriousness of the cancer, having small children, teenagers, being the main bread winner, having minimal family support, no family near you or family members that rely on you for their care. My prayers are with you. Stay strong. Stay Positive.

  • Caligirl55
    Caligirl55 Member Posts: 486
    edited January 2017

    Orangey.... Welcome to the group. So true ...the fear of not knowing what to expect through this journey has sometimes been worse than It turned out....except chemo. Good luck ...keep us posted.

  • warrior6
    warrior6 Member Posts: 18
    edited January 2017

    I'm going today for 3/30 treatment and staying off work to see how it goes before I head back, you are ahead of me so you can be my pacer car would love to hear how you do as you head back to work especially as the weeks go on. This whole treatment sure does regiment me with the lotions, exercise, water, and just the worry on how my body will react to Radiation.

    I had a mastectomy with immediate silicon implant, it was never suspected that positive margins would come back...so Radiation with implant could be an issue for me. The RO did an IMRT plan and is really focusing the margin area which was my axilla and Rt chest wall area. So we will see.

    Happy New Year to all of you....we will get through this together

  • ElizabethAM
    ElizabethAM Member Posts: 245
    edited January 2017

    Hello to any newbies. Welcome to the group.

    Today was my first radiation treatment. I have 15 more to go.

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