What is better if you have implants - lumpectomy or mastectomy?

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LoveandLightinLA
LoveandLightinLA Member Posts: 80

Hello,

Please help me to decide which is the better way to go, I already have implants and am trying to figure out what is the best treatment plan.

My tumor is small, 8mm, grade 1 in my right breast. I have read that radiation is bad for implants, so it sounds like maybe mastectomy with reconstruction is better?

What do you think? Anyone out there with previous implants? What choice did you make, and do you regret it? Or are you happy with your choice?

I'd love to hear from you!


Comments

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited December 2016

    LoveandLightin: I actually had radiation with reconstruction implants in place. I had a recurrence after reconstruction so I had chemo, then ALND and then rads. Luckily the surgeon was able to get clean margins for the node dissection w/o touching my implants. The radiation just made that side a little tighter & harder, but didn't hurt the implant.

    I had already had a double mastectomy, so of course I was thrilled that I didn't have to have the implant removed.

    I can't get a mental picture of how you would have a lumpectomy with an implant in place. I'm guessing your implants are above the pec muscle? I expect they would want to surgically remove the lump and get clear margins before rads. Good luck.

  • TarheelMichelle
    TarheelMichelle Member Posts: 871
    edited December 2016

    hi there

    I had implants when I was diagnosed with Stage I. I had a tiny IDC as well, left side. I thought I would have to get my implant removed before radiation, because that's what Dr. Google said. But that was wrong. Implants stayed in.

    I had a LOT of tissue taken out before I got clean margins.

    Radiation went fine. It was my left breast and the radiation folks told me that my implant would protect my heart. There was no hardness or any other implant problem that developed after radiation. Later, I lost weight, and the difference in cup size became noticeable, so I had fat grafting, so now both sides are symmetrical. And, the plastic surgeon who did the fat grafting also smoothed out the lumpectomy scar area as well.

    I'm glad I chose lumpectomy and would do so again. I hope that whatever your choice is, makes you equally happy.

  • LoveandLightinLA
    LoveandLightinLA Member Posts: 80
    edited December 2016

    Thank you MinusTwo and TarheelMichelle! :)

  • Dfarm13
    Dfarm13 Member Posts: 8
    edited December 2016

    thank you so much for this question. I have recently been diagnosed with IDC and have implants. I met with the plastic surgeon yesterday and felt so confused. I was not sure if I should have a mastectomy or a lumpectomy. These answers have helped out a lot.

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2016

    Dfarm13-

    Welcome to BCO! We're glad you've found some helpful information and support on the boards, that's what we hope for! Please let us know what you end up deciding!

    The Mods

  • LoveandLightinLA
    LoveandLightinLA Member Posts: 80
    edited December 2016

    Hi Dfarm13 -

    I'm glad these answers have been of help. What did your plastic surgeon recommend? I'm curious because I haven't met with any plastic surgeons yet. What do you think you are going to end up doing - mastectomy or lumpectomy?

    At the moment I'm leaning towards lumpectomy, but I am waiting on my genetic test results and also need to do another biopsy on another area, so that might determine if I need to do a mastectomy or not.

    Wishing you the best, I know it is hard trying to figure out all the answers. I am definitely going through the same process. It is especially hard being diagnosed right before the holidays.

    I wish you and all of the wonderful women on this board the happiest of holidays. May this New Year be filled with much love, happiness, health, and recovery for us all. :)

  • reneeCA
    reneeCA Member Posts: 45
    edited December 2018

    LovenandLightinLA

    I just saw this thread and your other about BC surgeons. I just had BMX for extensive DCIS in left breast & prophylactic right breast with direct to implant (410 gummies). I had surgery at St. Johns in Santa Monica and I believe that to be the best hospital in LA. I met with 3 of the best BC doctors: Funk, Dinome and Dennis Holmes (who replaced Dinome as head of breast center at St. Johns when she left for UCLA). I also met with 5 plastic surgeons, including Orringer who I did not pick because he will only do it his way - which was too large for me (I wanted to go from a large C to a small B in 1 surgery). Funk works a lot with Dr. Ritu Chopra and I chose them because I felt they were a team more than the others. I cannot say enough good things about Kristi Funk. I live in Brentwood so if you'd like to talk more just PM me.

  • LoveandLightinLA
    LoveandLightinLA Member Posts: 80
    edited December 2016

    Thank you Renee! I really appreciate you sharing your experiences with me. I don't want to bombard you with questions over the holidays, I will definitely private message you in a few days! Wishing you a very Merry Christmas and a very Happy New Year! :)

  • reneeCA
    reneeCA Member Posts: 45
    edited December 2016

    Dfarm - if I had been given the option of lumpectomy, I probably would have taken it, but my DCIS was too widepsread. Mastectomy is a much bigger surgery, harder recovery, and it's lifelong loss of part of your body. The toughest part for me (I'm only 4 1/2 weeks out) is accepting the implants and how they feel against my chest wall. Perhaps, since you & LoveandLight already have experience with implants and have already had the pectoral muscles lifted up, the recovery and sensation might be easier for you to accept should you go with MX.

    LoveandLight - I realized it seemed like I was pitching St. Johns by calling it best in LA:) but I know there are so many great surgeons & hospitals all over the city! You will find the best match for you. Feel free to PM me anytime even if it's over the holiday.

    Merry CHristmas!

  • TarheelMichelle
    TarheelMichelle Member Posts: 871
    edited December 2016

    Renee, I'm so sorry you didn't have a choice. Thank you for sharing your honest feelings. You have given such positive energy by sharing your recommendations and your experience.

    Too often, surgery discussions focus on "get rid of 'em" without examining the pain and loss that is a sad part of mastectomy. Implants are cold. They do not feel like natural breast tissue to the wearer. Rarely do I hear from women whose breast surgeons explained this beforehand.

    In three years of counseling breast cancer patients, what I hear most often is sadness over breast loss, especially younger women. That doesn't always mean regret. But some women felt rushed into surgery, and didn't have adequate time to process cancer grief and mastectomy grief. Grief is healthy and necessary.

    Renee, I hope your recovery includes immense healing. Like adopted children, implants aren't biologically yours, but they become yours, through choice. They eventually become part of your identity, just like your natural breasts were.

    Personally, I never liked the jokey T-shirt that proclaims the wearer has fake breasts because "the real ones tried to kill me." My breasts aren't m enemy. My friend lost part of a leg to cancer, and I can't imagine him wearing a shirt that expresses a similar distaste for his leg.

  • Dfarm13
    Dfarm13 Member Posts: 8
    edited December 2016

    Sorry I have not been on here in a few days. My plastic surgeon leans toward the mastectomy. But he said it's up to me. The surgeon prefers the lumpectomy. However, both agree if the genetic tests come back positive then it's a mastectomy. I am leaning toward the lumpectomy right now. My surgery date is scheduled for January 13th. 

  • reneeCA
    reneeCA Member Posts: 45
    edited December 2016

    Dfarm - that's great news that you have the option. Plus, your BC surgeon seems to really be giving you the green light for lumpectomy. Fingers crossed that you'll be BRCA negative.

    TarheelMichelle - thank you so much for those kind words. I'm still in discomfort all the time except when asleep. This new iron bra is a crazy feeling. I miss my saggy boobs. Just trying to breath and give it time.

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited December 2016

    Hi,

    I had implants, but went with double mastectomy and am so glad I did. I had a small tumor in right breast but really did not want radiation AND they found pre cancer cells in the left breast tissue after surgery. I made the decision for symmetry and never wanting to go through this again. Had skin soaring mastectomy and expanders. Expanders were recommended even though I had previous implants. Had expanders removed last fall and implants put in. My incisions were only under breasts and I could be a pole dancer. Ha Ha. Not really, but breasts look great and hardy a scar.

    Everyone has to make her own decision, but I sure am glad I did what I did!


  • Dfarm13
    Dfarm13 Member Posts: 8
    edited December 2016

    I'm curious did your insurance cover the mastectomy then the implants? My fear is I will go in they will find more cancer cells but insurance won't cover the mastectomy. Is that unusual? I'm notsure. Thank you for sharing your story. This is so much to take in, in such a short amount of time

  • LoveandLightinLA
    LoveandLightinLA Member Posts: 80
    edited December 2016

    MySunshine - Thank you for sharing your story! It's great to hear you had such a positive experience with your double mastectomy.

    Dfarm - I am definitely going through the same dilemmas you are. After hearing both sides of the story in favor of lumpectomy or mastectomy, it is very confusing and difficult to decide what is best. It is all very overwhelming. I've been trying to educate myself and do research online everyday, to the point that my eyes feel strained and my head feels like it is going to explode. So then I try to take a little break, and try to forget about my diagnosis for a little bit. But I do feel the same as you, that I have to squeeze in a massive amount of information in a very limited amount of time. I'm happy you have a surgery date already! I don't have one scheduled yet, and I was diagnosed on 12/9. I feel like I need to make a decision soon! I also wonder if insurance will cover any complications or revisions that need to be done in the future. I wish you the best of luck making your decision!

    Renee - I wish you a very speedy recovery and much healing! I will be messaging you tonight! :)

  • TarheelMichelle
    TarheelMichelle Member Posts: 871
    edited December 2016

    loveandlight, no need to feel rushed to decide. Take your time. Take a month, two months. Your surgeon's scheduler may bug you to set a date; the scheduler doesn't have to look at your body in the bathroom mirror every day.

    Insurance is required to cover revisions no matter how far out from original surgery. My fat grafting was covered, even though it was 6 years after my lumpectomy. You can also have a lumpectomy ... then see that the results aren't what you had hoped, then have mastectomy. You can't go backwards though. You can't have mastectomy, then ask for the breast tissue to be put back. Can't happen. :-)

  • LoveandLightinLA
    LoveandLightinLA Member Posts: 80
    edited December 2016

    Thank you TarheelMichelle! Yes, how did you know my surgery scheduler was on me to set a date? lol They have been quite aggressive about trying to pencil me in as soon as possible! Thank you for reassuring me that it is okay to take a little time, I was starting to feel like I was behind schedule. And yes you are so right, the only one that has to look at my body in the mirror everyday is me!

    And that is really comforting to know that revisions are covered by insurance, even years later. That is a relief! I didn't know that you could opt for a mastectomy later if you weren't happy with your lumpectomy results. So good to know! Thank you!!! :)

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