Starting Rads in January 2017

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  • Caligirl55
    Caligirl55 Member Posts: 486
    edited December 2016

    SuMarie... We can all understand these emotions because we are living it. Hard for others to get it.

    Welcome Rita & TrishCat .... Trish we would appreciate any help. The bra thing confuses me since I am not able to go bra less ... I start my rads tomorrow.

    I've been feeling down and confused but yesterday I got blown away by a huge group of family and friends on my drive way then lights and sirens and the Pink Heals group surprised me with roses, hugs and a prayer. It was so amazing ...for me!! I wanted to share some pictures on this site too


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  • Caligirl55
    Caligirl55 Member Posts: 486
    edited December 2016

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  • Caligirl55
    Caligirl55 Member Posts: 486
    edited December 2016

    image

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  • ElizabethAM
    ElizabethAM Member Posts: 245
    edited December 2016

    Hi Rita, I have not had a pre- rads mamo and no one has mentioned having one. But that could change as they called and left a message with an appointment time for this coming Tuesday. I'm going to call tomorrow to see what it is for. Since my RO said they would not start Rads until 4 weeks after my last Chemo, which was Nov. 30. I'll let you know what they say.


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  • ElizabethAM
    ElizabethAM Member Posts: 245
    edited December 2016

    Stg4thrivor and others -- This website has a wealth of good information about all phases of BC treatment. Go to the main site and poke around. It is good to have as much info as possible under you belt. They also have a great search, if you are looking for something specific. This site was recommended by my Cancer Clinic as a place to get good information, since most of the websites are a little iffy.

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  • Caligirl55
    Caligirl55 Member Posts: 486
    edited December 2016

    Rita ....I have not been given a pre-radiation mammogram and I start mine at 7am tomorrow

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  • SuMarie
    SuMarie Member Posts: 37
    edited December 2016

    Caligirl55, that was an amazing surprise by the pink heels. Good for you!!

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  • Caligirl55
    Caligirl55 Member Posts: 486
    edited December 2016

    SuMarie ...thank you! Got me out of my blues

    First rad down this morning...yay me ..only 32 more to go!

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  • ElizabethAM
    ElizabethAM Member Posts: 245
    edited December 2016

    Called the clinic this morning and I will be starting my Rads today... Which is not what I was told.. At least I will get it over sooner....

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  • Caligirl55
    Caligirl55 Member Posts: 486
    edited December 2016

    Elizabeth ... I'll be thinking about you..hugs

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  • KKsMom
    KKsMom Member Posts: 12
    edited December 2016

    So very thankful to see this thread. I just met with a rad onc last week, and am expected to begin 6 weeks of rads in January.I recently had lymph nodes removed from under my arm, so I have to heal a little more before they will begin rads. Good luck and I look forward to everyone sharing their experiences/tips as we get through this together. Thanks, ElizabethAM !

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  • SuMarie
    SuMarie Member Posts: 37
    edited December 2016

    Welcome KKsMom.

    ElizabethAM, I'm sorry you got that surprise today! It's good to view it as getting it over with sooner. I hope also goes well.

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  • Lorri70
    Lorri70 Member Posts: 191
    edited December 2016

    looking good caligirl, it's lovely to see your photos.

    That's a shock Elizabeth when you weren't expecting it, hope it went ok

    I had my scan today for tattoos and markers it took absolutely ages 2 nurses and then a DR all lovely ,but I can relate to you caligirl I was feeling sad and when I came home I was really upset I dunno what it was they even asked me about the start and said they never see Paget's at such an early stage I should have been really happy but I wasn't I'm starting my 20 sessions of rads on 4th january


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  • Lorri70
    Lorri70 Member Posts: 191
    edited December 2016

    I asked about deodorant and hair removal they said as soon as rads starts to not use anything so I think I'll have an underarm wax the week before

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  • ElizabethAM
    ElizabethAM Member Posts: 245
    edited December 2016

    Lorri, sounds like a good idea....

    As it turned out, my RO's nurse called and said I was not to start till January. She called and got my appointments cancelled and rescheduled to start Janurary 3rd.

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  • Lorri70
    Lorri70 Member Posts: 191
    edited December 2016

    we will be starting together Elizabeth 😀

    when I came home I was upset I dunno why Ive not been upset like this since my first Operation I feel like my hearts gonna break I thought I was ok with all of this but I can't stop crying I think I might just go to bed now and hope I'll be better tomorrow it's 10.34 in Ireland lol

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  • ElizabethAM
    ElizabethAM Member Posts: 245
    edited December 2016

    Lorri, I know how you feel. It comes on me at the most inopportune times. Unfortunately, we can't have a drink to relax the nerves a little bit ( I do love my Bailey's and Coffee). But a sleep does seem to fix it... Things always seem better in the morning.


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  • ArtyMom
    ArtyMom Member Posts: 71
    edited December 2016

    I got a CT scan so they could plan the radiation, not a mammogram. 4 dots of tattoos and a dry run with x-rays this Friday and we are ready to cook starting the 27th. Ready to get going so it can be over.

    Also started my tamoxifen two days ago and no side effects as of yet.

    On the bad side, oven broke yesterday, luckily no festivities planned for here

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  • Lorri70
    Lorri70 Member Posts: 191
    edited December 2016

    thanks Elizabeth tomorrow will be better hopefully have shopping to finish and house cleaning to do 😀

    Ready to cook I like that artymom

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  • Caligirl55
    Caligirl55 Member Posts: 486
    edited December 2016

    KKsMom...Welcome hopefully we can help each other through this.

    Lorri.... Not sure why these emotions just hit us when they do but it could be we have a serious thing going on in our bodies and it's scary to me and I try to be brave for everyone else. My RO said I could use Tom's deodorant but I didn't ask about shaving because I haven't had to since chemo..one good SE.

    ArtyMom...started my cooking today ... My friend keeps calling me her glow in the dark friend. She went through radiation 2 years ago ... I'm about ready to ask if she really did glow in the dark? Haha

    Tomorrow #

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  • Ware
    Ware Member Posts: 70
    edited December 2016

    Hello ladies, January starter here. Tomorrow is my last chemo and then I get to frequent the hospital for 7weeks of daily radiation. I don't have a start date yet, I was just told it would be about 3 weeks after chemo ends. Hopefully I can get an appointment with RO soonto get a start date set up.

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  • SuMarie
    SuMarie Member Posts: 37
    edited December 2016

    hello ladies, I had my last chemo today. It was a little anticlimactic. I'm just so glad to have it done with. I never know how I'm going to react emotionally. I didn't even cry once.

    Yesterday my husband talked to my RO to make sure he will double check the CT scan & my tattoos next Monday, which is suppose to be my first radiation.

    I don't have to worry about underarm hair since the chemo I don't have any! I wish the hair on my head would grow but there's other places i don't want hair, too bad we can't pick and choose.

    I'm so happy to see so many ladies in our group, supporting each other.

    ElizabethAM I'm sorry you've been on roller coaster ride about when your going to start your radiation. That is so hard.


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  • Caligirl55
    Caligirl55 Member Posts: 486
    edited December 2016

    SuMarie....woohoo! Glad your done with chemo. When my last one was over there was no bell to ring or anything but I was happy to get the heck out of there.

    Ware..welcome to the group. Hoping your last chemo goes well tomorrow.

    Hope you both don't have too terribly bad SE.

    Hugs 😘

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  • Lorri70
    Lorri70 Member Posts: 191
    edited December 2016

    sorry, that was a bit insensitive of me I forget some of you have had chemo and a loss of hair.

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  • Caligirl55
    Caligirl55 Member Posts: 486
    edited December 2016

    Lorri....don't be silly ... I didn't even find what you have said offensive. I cried enough tears as my hair all fell out..it was way more emotional then I ever imagined. Now I just chuckle when my friends complain about their bad hair day..lol

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  • SuMarie
    SuMarie Member Posts: 37
    edited December 2016

    Hello Ladies,

    Lorri70, please don't give it a second thought, hairy or bare we're all in this together.

    Welcome Ware, looks like we both had the same chemo. 4 AC and 12 taxol.

    I'm getting a vitamin C infusion right now and since I'm 'tided up' I'm going to read through some forums about radiation side effects.

    ArtyMom- did your friend glow in the dark? 💡:-)

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  • ElizabethAM
    ElizabethAM Member Posts: 245
    edited December 2016

    I look like Curly from the 3Stooges and for the first time in my life I have a Brazilian that was paid for by the government. I have laughed about it since it started, because I know it will grow back at some point. In our situation we need to keep our sense of humour as much ass we can.

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  • PBinKC
    PBinKC Member Posts: 3
    edited December 2016

    I will begin Rads on 12/27/16. First time but after Ct scan and tattoos I am ready to get the 6 weeks over. Working retail on concrete full time but figure I will have to back off to ptime b4 it is over. Stage 0, noninvasive, no lymph involvement, surgery was 11/11, DCIS. Grateful found in infant stage. Glad I have you and this community to share with the days ahead

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  • ElizabethAM
    ElizabethAM Member Posts: 245
    edited December 2016

    Wishing you all the best for 2017

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  • ArtyMom
    ArtyMom Member Posts: 71
    edited December 2016

    OK ladies, I had my dry run for radiation that starts on Tuesday and everything was fine except that my shoulder really bothered me, not that I can't get my arms up but keeping both arms up. With my head turned to the left made my whole body shake and now a couple of hours later both shoulders are aching. Treatment should be a little shorter time wise, I hope this is not going to happen every time

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