INSOMNIACS place to talk in the wee hours

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  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited December 2016

    Lover have a great holiday!

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  • JWoo
    JWoo Member Posts: 1,171
    edited December 2016

    image


    In case I don't get back here before the weekend, I want to wish you all a safe, happy, pain-free holiday <3

    Stay warm and behave yourselves!

    -jeni

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  • magdalene51
    magdalene51 Member Posts: 2,214
    edited December 2016

    Smaarty, if you're on FaceBook, there are 2 Flat & Fabulous groups. Here's the link for those who are flat due to BC; the other is for those who have had preventive mx.

    Flat & Fabulous

    And because we always need a laugh, here's this.

    image

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited December 2016

    thanks mags, I'll check those out.

    Poppy, I used to feel quilty too. And there's a thread here for that. I don't any more. This will be #5 sx for this, I think Ive paid my dues now. I know others have it much worse, so no complaining there. I wish there was some way to know what would work best for us. Maybe some day in the future. I used to have a cat, his name was Windy. That's should tell you what his problem was! You could always tell where he was.

    You guys be good out there.


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  • kathindc
    kathindc Member Posts: 2,042
    edited December 2016

    MammaRay, We're thinking about a movie and dinner out. DD who just got married is taking her hubby out of town for the weekend and will be back on Monday. I'm doing the holiday dinner then. It was either this past weekend, too early to feel right, or Monday. I chose Monday and am feeling very relaxed about it. I was 61 when I had my BMX. It's felt right for me from the beginning.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2016

    Yay! Kath is back! Lookie was here! Eeyore blew in! Jwoo stopped by! 🎈🎉🎈

    Kath ~ I had to look up Sjogren's syndrome. Dang. Why is it so many of us have autoimmune disorders? Like BC isn't enough? Hoping there is an easy way to get rid of the dry eyes - that must be sooo uncomfortable. I know there are drops, but I wonder if a humidifier would help? Anything to add moisture..... The wedding sounds lovely! And no pumpkins - woo hoo!

    Susan & Sensi ~ Sending gentle warm (((hugs))) to both of you. Slow down, rest and try to take it easy. Even an Iron Lady and a Go-Go Girl need a re-charge every so often 😴

    Smaarty ~ So sorry you are having so much pain and discomfort. Hoping your doc can help you make the best decision for you. Cold does aggravate everything. I'm tempted to start tucking those little heat packets for cold hands under my clothing!

    Loverly ~ Thinking of you and DDs and DH getting to spend Christmas in paradise. Pretty awesome! Have a fancy frozen cocktail with an umbrella in it for me 🍸

    Feline ~ Still smiling thinking of your dad's magical Santa sighting 🎅

    PeppyJean ~ Gassy Gus? Nooooo. Not that sweet little fuzzy wuzzy. I'm sure he is taking the blame for someone else. In your pocket for the MO tomorrow. Just 'cuz a genetic test might indicate something bad, it doesn't mean it will happen - my opinion. I had the cancer profile done last October.....I am zero risk to develop cancer! Tried to tell my MO I was not cancery but he didn't believe me 😜

    M0mmy ~ What a nice early Christmas surprise - great grade and time off!

    WildT ~ Are you on winter break with the kids too? I miss spending Christmas time with my kids when they were little. We'd go see light displays, visit Santa and stay up late snuggled with blankets watching movies on TV while pigging out on goodies.

    MammaRay ~ After a lazy Christmas morning we would sometimes take the kids to see a movie after dinner. We also would play board games. How did your cookies come out? Yummm icing!

    Mags & Spookie ~ Spine pain from mets/disc disease/arthritis/ect. big time suck. The challenge is to isolate what is causing the pain and then figure how to treat it. Is it nerve pain, bone pain, soft tissue/muscle pain? Rads, kyphoplasty, radiofrequency ablation, anti-inflammatories, Cymbalta, Neurontin, Tramadol, Robaxin, pain killers...... Usually a combination of stuff since more than one thing is causing the pain. All I can advise is to fight and be a pain in the arse to keep your docs working to find a solution.

    Chevy ~ Hope you tossed your shovel out and are not feeling too sore. Have the squirrels come begging at the door yet? I/m going to Costco to get my ears tested again... I remember you saying they had good doctors and the best hearing aids. I had seen a ENT specialist the other week.....whatta dope! He told me that he had no knowledge of Tamoxifen or Femara causing hearing problems! His hearing aids were crazy expensive too.

    JunieB ~ Hope you are safe n' warm at home. Do you have all your puppy proofing done yet? Next year you can take Kirby to have his picture made with Santa!

    Good night to all and Good Morning to Feline!

    Marti and I didn't go see Santa this year - this is from last year. Marti looooves Santa - my avatar is from 2007 when she was 4 - bigger pic below....

    image

    image



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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited December 2016

    SHEPPERS ! Same thing here..! My PC, Oncologist weren't any help! I researched it, and found LOTS of articles about hearing loss from certain ototoxic drugs ... like Tamoxifen... Chemo drugs cause hair loss...(So did Tamoxifen with me) And the insides of your ears have tiny hair follicles to help with transmitting waves.... When they are damaged, sometimes they just "lay-over" temporarily... But when they stay down, that is permanent hearing loss.

    I took 5 pages of info to my Doctors'.... They didn't seem to even care. I sent the drug company samples of the pill I was taking... Never heard back.

    YES it is possible, because certain women, born with a certain gene, are more susceptible to an "infarct" (stroke) near the 8th cranial nerve causing hearing loss.... Usually in older women. The SE's listed on Tamoxifen include, stroke, cataracts, and on & on.... But we never think of that! And not enough professionals are familiar with this happening!

    There IS information, and I'll post some links.... And here on BC.ORG, a few of us were talking about it a few years ago!

    But the bottom line is, most won't get their hearing back... I took Tamoxifen for about a year and a half... Then woke up one morning and my left ear could not hear... Then about a week later, my right ear. The PC thought it was maybe allergies... treated that for a month.... nothing helped bring my hearing back.

    A month of nothing helping, my Husband said it HAS to be something you are taking! All I was taking was the Tamoxifen.... I stopped that.... Then my Oncologist wanted me to go on Femara... I just was so afraid, I quit it all.

    So I am going today.... just have so much trouble with my old hearing aids... (5 1/2 years) The feedback in my left ear is driving me nuts... I know they can adjust SOMEthing to help.... Then I'll get NEW ones! They are about $2600... not the $5000 that any ENT would charge! I go back to Costco occasionally for "cleaning" etc. and new little plastic "pieces"... I have the BTE kind....

    You can get CHEAPER ones, online.... but I have never tried them! My Brother tried a different type, but didn't like the "extra" noise, because being around a lot of people talking , is sometimes a PITA....

    Your hearing will never be the same as before... but you will get used to the hearing aids........I'm posting this before I lose it, but I'll post links.

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited December 2016

    http://www.webmd.com/breast-cancer/news/20041011/t...

    http://www.dartmouth.edu/~dons/part_1/chapter_6.html

    http://www.yourlawyer.com/topics/overview/tamoxife...

    https://www.vanderbilthealth.com/billwilkerson/279...

    http://www.webmd.com/breast-cancer/news/20041011/t...

    Maybe some of these links will help answer your questions?

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited December 2016

    For Spookie... Steel capped thongs....

    Image result for steel capped thongs


    And for me..... but I don't care....

    Image result for funny crocs meme

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  • susan3
    susan3 Member Posts: 3,728
    edited December 2016

    sheps...the Iron Lady has melted down. Now I am an iron lump. Not sure how this lump is going to make it through Christmas :(.

    Mammaray, was in femera a long time. I didn't have hair loss, so don't know if it's a side effect. Got a lot of hair loss now.

    Off to work.....pain meds aren't helping theses days :(

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited December 2016

    I am so tired of having things blow up in my face over the slightest thing

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited December 2016

    there are a few threads here about hair loss, what to try, etc. Most say biotin? is good. I tried it but was too impatient. Others say rogaine. My derma said you must use it for life. I was afraid the dogs would lick the sweat off my face and injest it so never tried that.

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  • Beatmon
    Beatmon Member Posts: 1,562
    edited December 2016

    Mags, your weird friend beatmon loved that joke

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  • sensitivehrt
    sensitivehrt Member Posts: 359
    edited December 2016

    image

    Have a great day all

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2016

    Chevy - OMD.....I'm printing up some of those pages you posted. Excellent, excellent stuff! Wish I had read this all before going to that dum-dum ENT. My birthday "surprise" from FartFace was a visit for the free exam at Sam's Club last month. (few days after my October B-day) The exam was sooo thorough and the tech was very nice and knew sooo much! The tech had me try some hearing aides in the store.....I could HEAR and the buzzing/ringing/clicking in my ears was GONE! I thought going to the ENT would be the thing to do to double check. His test was all of 10 minutes! Sam's Club was almost an hour. I want to see what Costco will find and then I'll decide between them or Sam's. Costco offers a way better deal with free insurance for lost/broken hearing aids and lifetime servicing. I'll have to somehow come up with $ out of pocket and get reimbursed through my Insurance. If I were to go to Beltone, they would bill my insurance and I wouldn't have to worry about paying for anything. There are some Beltone offices near - don't know anything about them though. THANK YOU for the info!

    Susan ~ (((Hugs))) When pain meds fail I break out the Valium or Ativan to ease the panic and distress of hurting so bad. I should be waaaaaaay happy all the time! Thhhhp to yucky things that make us feel bad :(

    MammaRay ~ My hair was damaged from years of thyroid meds that I didn't need - misdiagnosed - and then thinned some on the Tamoxifen. Femara can thin hair too; hasn't wrecked mine so far. I started taking Peridin-C a few years ago for the darned Tamoxifen/Femara hot flashes. 2 tablets, 3 times a day. It helps nicely and gives a mega boost to your hair. My hair is thick again and grows like crazy. Plus, the mega doses of that particular form of vitamin C are supposed to block or slow down cancer. Amazon or eBay usually have the best prices.

    M0mmy ~ Hope your day gets better. No more explosions!

    Spookie ~ Gah! What we do and don't do because of our furbabies. I always worry about what they might lick off my skin too. With all the literal crap doggies eat, maybe we shouldn't be so worried? Said the girl who has been cooking venison and potatoes for her dog all week..............

    Beatmon ~ Weird friends are the best! Especially weird friends bearing hair. Mags is so lucky to have you :) ......and yes, I "got" Mag's joke.....Just didn't know if I wanted it, ha!

    Edited to give a big (((WAVE))) to Sensi who just snuck in <3


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  • kathindc
    kathindc Member Posts: 2,042
    edited December 2016

    image

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2016

    Oy, not so wacky with Loverly ditching us to have fun in the tropics..... So this week I say...

    Image result for wednesday meme

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited December 2016

    No more explosions today. Everything is back to normal

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  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited December 2016

    Glad to hear M0mmy. Sometimes killing them with love and kindness (even when you don't much feel that way) can help bring things back to a better equilibrium

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited December 2016

    Yes.

    In tears here at the moment. A dear friend from high school just honored people that he knows that are dealing with cancer, he included me in that group.

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  • Lookforward
    Lookforward Member Posts: 392
    edited December 2016

    Shep my daughter loved the happiness fairy and sent it to all her friends.

    My Christmas wish is for all of you to have a pain free holiday.

    image

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited December 2016

    image

    I think they should make winter start about 3 weeks ago!

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  • Lita57
    Lita57 Member Posts: 2,437
    edited December 2016

    Prayers for everyone dealing w/pain, stress, hair loss (always distressing...), obtuse ENTs, and all the other crap that we have to deal w/when it comes to cancer. BIG FAT BOO!!!

    I got my Pneumonia 13 immunization yesterday, and for some reason I simply COULD NOT SLEEP . Finally got a couple of hours after the sun rose (from maybe 7am to 10 am). Thank God I don't have to go to work anymore, and kudos to all of you who still work while dealing w/the challenges we have. I'll have to get up early tomorrow to take our Sofia to the groomer....no one wants a stinky dog in the house with company at Christmas ;o).

    The diarrhea from the shot wasn't that bad (if you're getting the shot, be sure to look up the SEs on line). Geez, the drs and nurses don't tell you squat about this! All they say is, "Oh, your arm might be a little sore, and you might be a little sleepy..." Yeah, arm was a little sore when I tried to sleep on that side, so I slept on the other side. Sleepy? NOT!!! I have to get the Pneumonia 23 shot in a couple of months. Not looking forward to that. You have to get them when you are OFF cycle.

    Tamoxifen and AI's....YEP, hearing loss can indeed happen. I swear, the MOs need to READ these posts, darnit! It's like we know way more than they do....so FRUSTRATING. Hair loss is also a big SE with some of the AI's, too. MO wants to switch me to one in February if my scans are good b/c she doesn't want to keep me on Xeloda for too long: cardio toxicity, etc. She says I can always switch back if the AI's aren't effective.

    Well, got to pull myself out of the La-Z-Boy and go mail some more Christmas cards. More cookie baking tomorrow, and on Friday DH says he'll help w/getting the house a little tidier. OMG, it's a disaster area around here .

    Hugs to all and Happy Solstice - the days will FINALLY start getting longer again...Yay!

    Lita


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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited December 2016

    You guys, I went to Costco for that "extensive" hearing test! My hearing is just a little worse than it used to be.... Ordered new hearing aids....

    Sheps...! I suppose Sam's club is about the same as Costco.... I just don't know... but I love they way you can go in if you ever have a question, or for cleaning the aids, and the batteries are a lot cheaper. I ordered Bernafon again.... just the newer up-graded kind.... "(Bernafon Juna Pico") I'm sure all hearing aids are about the same? I don't know, because I have never had any other.

    I also ear-candle my ears.... have for years! I get a ton of soft wax out.... That has a lot to do with my lack of hearing, and the feed-back from my hearing aids. I order them from EarCandles.US.... the Paraffin ones... not the Beeswax, or the soy.... Only Paraffin.... They burn better. If you are interested, google how it's done.... The tech said my left ear had a lot.... I came home and used 4 candles....! I got so MUCH out! Probably about a Tablespoon ! I told the guy I would work on them when I got home... so I could get the test anyway!

    I know ENT people just have a heart-attack when I talk ear-candles.... but I have had them flushed before, and it doesn't work. I use a mirror when I do a candle, to see how far it is burning down. I just know it works for me.

    Sorry about the hair loss! I don't lose mine anymore.... or very little.... but any of those drugs MIGHT cause all kinds of problems!

    Take good care everyone!

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited December 2016

    Not much to do tomorrow so I think it will be an easy day for me

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  • sensitivehrt
    sensitivehrt Member Posts: 359
    edited December 2016

    Feeling a little bit of anxiety as I sit and wait at the infusion center. Have to have a phlebotomy since chemo put me into chempause and I'm now loading too much iron. It seems to be never ending

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  • susan3
    susan3 Member Posts: 3,728
    edited December 2016

    sorry sensi and all who are struggling. I pray for peace and joy for all you ladies. And I pray love is showered on all of you, so you can feel the beauty of its warmth . Merry Christmas. The blessed child has been born, and he reigns in heaven. All is well. Peace my friends

    Susan

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  • sensitivehrt
    sensitivehrt Member Posts: 359
    edited December 2016

    imageChance got to see Santa at the dog park today. I'm off to read and catch up, I'll try and not get lost

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited December 2016

    Sensi, so how did the treatment go? Will you know anything soon? Do you have to do it only once?

    Susan, how you hanging in there? Have you finished working for the year?

    Hope everyone is doing better

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited December 2016

    in case any of you need a handyman for future projects, here's your guy!

    image

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