Can we have a forum for "older" people with bc?

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  • Wren44
    Wren44 Member Posts: 8,585
    edited December 2016

    Bonnets, Cat dander is sticky, so 2 years might not have removed it all. When DIL visits we wash the walls and carpets to get as much dander as possible out of the house.

  • NormaJean65
    NormaJean65 Member Posts: 234
    edited December 2016

    Dear Ducky.....you gave me my giggle for the day. My body says it feels older but then again some of that may be the Tamoxifen. Who knows....no one.

    For all of you stuck in the midwest mayhem I am so sorry. Being a Hoosier & living in Fort Wayne until I was almost 50 y/o I know what you are going through. If my house was bigger & you could get out, I would tell you to come on down. It was 71 here today but we are also going to have a drop in temps in a day or two but nothing like you are dealing with. This is one of the few times I like Texas other than your cars don't rust out & there is no state income tax. 20 yrs here hasn't changed my feeling at all.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited December 2016

    Wow !!! Just got home from a trip to Wally World --- all the way the opposite side of town. That is after we drive the two miles on back roads to get to town. Going was fine, but coming home --- so rain had fallen and turned to ice. Oh, not fun at all. First it was a slow walk thru the parking lot to the car. Then 15 or so miles per hr. all the way thru town. Able to get up to 22 mph's for a short while, but then we left town and it became quite difficult again.

    Got inside and Dh got the salt container to salt down our deck and the stairs and long wooden walkway out to the parking area. My car ( new to me ) did fine but wow --- I was not liking it at all. I do know Dh would have driven faster than I did, but that is the biggest reason I didn't let him take the wheel. I am not as flamboyant as he, and others around us were driving just as slow as we were --- so that says something to me. I hope the city gets their salt trucks out soon. I feel for people who sort of got caught out like we did.


  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited December 2016

    Three years ago, after two weeks of unrelenting snow & deep freeze in January, we got a couple of 40F+ days, with rain on the second day. I was scheduled to play a concert in Madison, WI with my singing partner. I decided to give myself plenty of time to get there. First omen was when my Fusion Hybrid (hadn’t bought the Outback yet) got stuck in the melting ice partway out of my garage and needed a push to get to get on my way. Second omen was traffic crawling along Peterson Ave. en route to I-90. Third omen was the WBBM traffic report, warning of flash flooding in McHenry, Boone and Winnebago Counties….all of which I had to pass through before the state line. Made it on to the tollway, only to find a single lane open due to construction, moving at a snail’s pace. Continually updated my partner about my progress. At about 1/3 of the way there, just s. of Huntley, my phone rang. It was my partner.

    “Turn around and go home,” he said. “The Beltline is a solid sheet of ice and there are trucks jackknifed all over the place. I’m here at the venue already, so I’ll go ahead and do the show solo.” (Turns out he and the sound guy were the only ones who showed up). Only then did I realize how urgently Nature was calling, and that the trip home would be torture unless I answered it. “I know,” I thought, “there’s the Huntley exit and I can go to the bathroom at the Outlet Mall.” It was about 6 pm when I entered the outdoor mall’s parking lot, which was strangely nearly empty. Approaching the mall itself, I saw the reason why: the entire place was swathed with yellow “CAUTION” tape, with sandwich-signs reading “DANGER—FALLING ICE.” I took tiny little mincing steps (wearing UGGS and using my cane) and entered the Ann Taylor outlet. I apologized, “There’s nothing here that could possibly fit me, so I can’t buy anything; but would it be possible to use your restroom?” They nodded, I did my business, and headed out the door on to the sidewalk, which was strewn with rock salt. Then on to the asphalt of the parking lot…and no more than 6 ft. from my car, I felt my foot start to skid. I was able to straighten up and try again. Same result. From that spot to my car was a solid sheet of ice, and the ice was beginning to spread toward the sidewalk.

    I screamed for help, for someone to walk me to my car, and for five minutes I had no luck. Finally, a woman across the lot yelled that she was going for help. Soon, along came an EMS ambulance, followed by a police car. I explained that I’d had knee replacement surgery only a few months earlier and was terrified of falling. One policeman took my right arm and the other the left, and made sure I got safely into my car. Then the EMT insisted on taking my vitals. I assured him I was fine, hadn’t fallen and was not going to have a heart attack. He asked where I was going, and I explained I had to turn around from a trip to Madison and was heading home to Chicago. “We’ll follow you out of the parking lot and to the tollway—that way you won’t be able to change your mind, and if anything happens, we’ll be right there.”

    So I made it on to the eastbound lanes, doing only 40 mph. SUVs kept passing me, honking and flipping me off. The blind spot monitoring system was disabled because of all the slop. It was so icy that I could have sworn the snowplows & salt trucks I saw were really Zambonis. I phoned home. Gordy answered that there was no way I’d be able to get through the alley to the garage. So I vowed to find the closest hotel to the Chicago city limits that appeared to have a clear parking lot. Ended up at the Holiday Inn O’Hare. Got some very strange looks checking in with just my purse and a guitar. I had no emergency overnight bag, so I had to ask for a toothbrush & deodorant. I’d have bought a T-shirt in the gift shop to sleep in, but I wasn’t about to pay thirty bucks for a souvenir T-shirt I’d never wear in public. Used my iPad Mini to go online, went to sleep, and in the morning for breakfast nuked the leftovers from my Bar Louie dinner the night before. Made it safely home.

    First thing I did was to grab a gym bag and pack a change of underwear, nightgown, tee, granola bars, water, tooth stuff, deodorant and at least one day’s worth of meds. Never leave home—at least in my car—without it.

  • Puffin2014
    Puffin2014 Member Posts: 961
    edited December 2016

    Sure miss Lew on days like today, not enough snow for the paid service to come clear it, but enough that it needed to be shoveled, and too sticky to be able to use my leaf blower. So in -7 with -21 windchill I spent 45" clearing the driveway and sidewalk this morning at 7:30. Tonight it's supposed to drop to -24 with a -40 to -50 windchill.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited December 2016

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    I have always been delighted at the prospect of a new day, a fresh try, one more start, with perhaps a bit of magic waiting somewhere behind the morning.

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    J.B. Priestley
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  • Goincrzy8
    Goincrzy8 Member Posts: 387
    edited December 2016

    Oh my gosh I feel for you ladies in the cold and snow. I live in Southern Calif, so we get rain and some snow flurries in the higher elevation. I can't imagine driving in those conditions, you are strong ladies for sure.


  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited December 2016

    Not going to be nice our here later. More freezing rain with maybe a bit of snow on top later. This is not how I actually wanted our winter Christmas weather to start all at. Unfortunately, like Puffin and everyone else, no one asked me my preference. Well, good chance I wouldn't have gotten it anyway. Otherwise -- I don't have much to do out today so it should be okay. We will do what we have too this morning and stay in the rest of the time. I have some mail ( Christmas cards ) to get out and a purchase ( of course I forgot something at Walmart ) to make at the store. Ladies --- I'm in complete denial that I can remember everything without writing it all down --- like I used to be able too. SIGH !!!! I've tried so hard to achieve this feat --- but it is time for me to get real and keep a pencil and notepad at the ready. Another big SIGH !!!!

    I hope all of you have a safe but productive day. Hope you don't have to spend too much time out of doors Puffin --- at least not cleaning icy/snowy areas that aren't enough for you service. Stay safe.

    Hey Ducky -- we are waiting for you.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited December 2016

    Jackie - I've always been a list maker - but you're right, remembering every little thing gets more challenging. I have pads of small sticky notes everywhere - night table, kitchen, in the car - so I can jot notes & put them on the back door or on the dashboard of my car or on my computer monitor.

    79 degrees this morning. Supposed to be 34 tonight!!

  • ElizabethAM
    ElizabethAM Member Posts: 245
    edited December 2016

    Thanks for the birthday wishes... I have also finished Chemo and I'm in the process to start Rads.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited December 2016

    Good to hear you have finished chemo Liz. That is usually what tends to give the most issues. Rads in general are easy and depending on how long you do them rather boring. It takes longer to get ready ( table positioning etc. ) than to actually have the rads. Also, once a day for five days -- week-end off then back at it again. I did have extreme fatigue a couple of times which I solved by taking a walk once in awhile. Otherwise -- it was a ho-hum time for me. I had my done by the V.A. who contracted with an in-hospital facility especially for cancer pts. needing rads. As well, they also put me up in a motel for each of the 7 weeks I did my rads as it otherwise would have been a 150 mile round trip for me so that actually added to a lot of my boredom. Wishing you well for your rads.

    Jackie

  • Wren44
    Wren44 Member Posts: 8,585
    edited December 2016

    Puffin, Shoveling snow in those temps is just plain grim.

    Sandy, Glad your home again. That was the trip from hell for sure.

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited December 2016

    I thought I was such a smarty, getting out in all that snow, to help DH with the shoveling! I wanted to shovel a path to the squirrel-feeder on our fence...So I was almost THERE, and I tripped on something, lost my shoe and fell up against the fence and down on my knee! But I got turned around, like 1/2 laying down, and I could NOT get up! I was yelling for DH, but HE couldn't hear...finally he looked out, and saw me floundering out there like some frozen fish!

    He helped pull me up, so I was kind of sitting, and I moved over, kind of on my knees, and pulled myself up by holding on to the shovel and a plastic box. Man I was FROZE! That movie FROZEN was about ME! I only hurt my knee... was covered with snow... like the 12 to 16 inches we got, and he tried to sweep some of it off, and me laughing all the time! My hands were numb! My pants are still wet.... but I don't care.... Man, I lucked out on THAT one! So much snow, it would be hard to break anything!

    It's still only 2 degrees out, but the sun is shining.....!!!

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited December 2016

    How many times I gotta tell you Chevy. Golly, isn't there some little neighborhood guy who might like to make a couple bucks by doing a bit of shoveling. Well, I think maybe there was actually enough snow to help you with your landing but my oh my --- you got to take better care of yourself so you can take care of the sir you lives with you. I'm glad he finally saw you -- out there turning into an ice crystal sparkling in the sun.

    You know --- I usually have to crawl over to something --- no matter how I end up on the ground or floor and use it to help hoist myself up. It is partly age and partly that stroke yrs. ago. In some instances I can get up but it is not at all a great sight -- so I'm resigned to just being a bit of a spectacle which I hope is soon forgotten by all. I'm sure glad you only ended up with a sore knee, some wet clothing and very cold hands. From now on -- please for me ( and you and dh too ) stay upright when you are supposed to be, okay.

    Jackie

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited December 2016

    Bob just left for our friends' party—no way am I going to risk it. Earlier today en route to church he stopped off at CVS & picked up a script he wrote me for Baclofen, which isn't as sedating as Flexeril, doesn't produce any kind of high (because it's not a benzodiazepine) and might work better for me. I had a setback this morning, just sitting on the same “comfort height" (yeah, right) toilet in our upstairs bathroom. Turned my head to reach for the T.P., and…uh-oh. Pain and stiffness is back to, if not “square one," where it was the first couple of days after the first awful spasm. Because I've been unable to do the prescribed exercises (can't get down on to or up from the floor, the beds & sofas are too soft, and the leather storage bench is too short), my glutes have weakened and are spontaneously “mini-spasming." I have become resigned to the fact that I may always have back pain—after a certain age, when something goes haywire you can't completely fix it. Bob says it's ok to take a couple of Aleve so long as I don't make a habit of NSAIDs, and to start the Baclofen tonight—he gave me 2 wks worth, enough to get me to Jan. 1. If I still need it after that, my problem is probably worse than just a muscle spasm. Until today, standing and walking (after the first 20 or so steps) felt better—now, walking aggravates the pain, unless I am pressing hard on that glute or the piriformis (on my upper R butt). And the pain is sharper too, like one of those traveling gas bubbles. Not canceling our trip to NY/DC—I can always use the Rollator & cane, and would be much more miserable sitting at home during Christmas (not to mention being unable to see my sister & niece). No wheelchairs in the airports, as all that sitting is much worse than walking.

    Will see what my LE doc/physiatrist (rehab-medicine doc) says Mon. about the back pain—I have a feeling he'll send me to either the PT or ortho clinic.

    Heidi is doing better after her surgery—peeing like crazy (unfortunately, partly on Gordy’s bed), nibbling her kibble a bit (we had to elevate her food & water dish so she could get her face close enough w/o that conical E-collar getting in the way). She isn’t crying, panting, “pain-purring” or whomping her tail, so she’s probably not in much pain. (Could be the few drops of loopy-juice, aka buprenorphine, Gordy has to give her twice a day). The big chore is going to be keeping her incision closed, so she has to be supervised at all times. Gordy is so dedicated to her, as he was to his late feline BFFs Misha and Matthew before her. We’d thought our housekeeper Carrie might pitch in (as did she) but her adult son down in Birmingham has been getting panic attacks that are worsening to the point he’s had to leave work early and even miss days. Cardiologists at UAB Med. Ctr. (one of the best in the nation) ran the full battery of heart tests and haven’t found anything wrong, and the Paxil the shrink has given him doesn’t seem to be working either. His wife is an LPN and she’s stumped too. He pleaded with Carrie to come down (she was just down there for a week at Thanksgiving), so how could I say no?

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited December 2016

    Hope you get relief soon Sandy. I'd opt for going on the trip too.

    Jackie

  • ritajean
    ritajean Member Posts: 4,223
    edited December 2016

    Hi Gals,

    I just wanted to take a minute to tell you all Merry Christmas before I fly out to TN to spend a week with my son and his family. With all the Christmas activities that will be going on, I am not even going to take my computer this year. It's one less thing to worry about on the flight.

    I have been reading your posts but just haven't taken the time to participate. My family was home for this Thanksgiving so I did all the cooking and then I totaled my convertible when a lady decided to turn right in front of me at an intersection when I had the green light. I slammed on my brakes and somehow I missed her but just as I took a deep breath of relief, I was struck from behind. The insurance company decided to total the car so I had 10 days left on my rental car in which to buy a new car without having to pay for the rental. What a fiasco! Naturally I couldn't find another convertible except for the Mustang that had a trunk big enough to carry my golf clubs and the Mustang had no leg room at all in the back seat so no more convertible for me. I'm sure I will miss it in the summer as I drove with the top down most of the time. At least I was not hurt. If I would have hit the lady who turned in front of me, I would have been sandwiched between the two vehicles and I probably would have been injured.

    Anyway, Merry Christmas to all of you! May 2017 bring you health and happiness!

    Rita

  • Wren44
    Wren44 Member Posts: 8,585
    edited December 2016

    Sandy, We use buprenorphine at the shelter and it really does help the pain. We fostered a cat who managed to reach her incision with the cone on. Eventually she ended up with a large cone which solved the problem. One of our volunteers discovered that the small paper plates fit right into some cat bowls to make elevated dining. She uses it on old or arthritic cats as well, just to make them more comfortable.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited December 2016

    Wren, thanks for the idea! Thus far, Heidi hasn’t figured out how to “game” the cone. She’s peeing okay (and it’s getting paler) and is mellow enough for us to pet her. Happy, of course has gotten even clingier and lovier now—so much so that I’ve put lint rollers in every room.

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited December 2016

    Morning girls.... It's always fun reading what you talk about Sandy! Boy, you do a lot more than WE do! Is it because we are older that we really don't go traveling as much as we used to? And we don't drive all the way across town to go shopping in some snazzy shopping center? Or maybe we really don't NEED anything.... Ha!

    Jackie, there aren't any kids around here! Just little Ivy & Ellie next door! We are the oldest ones in the whole neighborhood! All these new "kids" are in their 30's buying all these expensive newer homes, that were built off of scraped land. So we can't put the 5 & 7 year old girls to work.... Hah! The younger guys in the neighborhood, DO help with the front walk.... And we watch their homes, feed the cat, take in mail, when THEY are gone!

    And the snow on the walks is pretty easy to handle, because it USUALLY isn't that big of a deal.... but we shovel paths like out to the squirrel feeder, and in back of our gate, and places that could easily melt, if we let it... like about June! But we don't mind shoveling a little at a time....

    I SHOULD have had my boots on.... Not my slippers... I know, I know.... I can hear you all now.... Hah! But the squirrels came right over, when the temp got up to 7 degrees, and the sun was shining.

    I must have done a 12 point landing in that snow! Nothing hurts today! Like Tim Conway rolling down those steps! I fell forward, on my knee, my hands, my other knee, then my head on the fence, and plopped on my butt! So I was 1/2 laying back against the fence like "up-hill"... I think if I wasn't getting so frost-bitten, I could have maneuvered myself up alone.... but just that extra hand, to pull me up to sitting position, so I could turn over on both knees, then hang onto "stuff" to get up, really helped. The whole thing just made me laugh! Probably because I was so thankful I didn't really hurt something!

    Rita! I saw you driving your convertible!

    Image result for driving a convertible

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited December 2016

    So here's a better idea of what I was doing.... there in the snow....



  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited December 2016

    Every time I hear & watch this, I am thankful...........



  • Seedsally
    Seedsally Member Posts: 260
    edited December 2016

    Hi everyone. Thought I'd check in. Been reading but too ill to post. I think my BC is truly the gift that won't quit giving. Last Sunday I was asked to sing a special at the End of our church service. I had been having some skipped heartbeats (usual for me) and felt very tired but hated to say no. So at the end of my song I had a light heart attack. But hard headed me was in denial and made my way home rolled around in bed till evening then decided to let my sweet daughter carry my 40 miles to the ER. After 2 1/2 days in the hospital, an angiogram 2 d echo and multiple blood tests, I was diagnosed with Jacosubot Cardiomyopathy Syndrome. Get this: common name broken heart syndrome. Thought to be caused from stress related from my cancer DX. No severe blockages. Lots of BP meds and low salt diet then discharged. I am not 100% convinced ofthat DX since I have a sister and several cousins who have had the same thing. I think it's a defect I've inherited. Anyway sent home when all cardiac enzymes returned to safe levels and go back In Feb for more tests. Told to only rest no more exercise than light walking and monitor weight. Oh my what a year

  • Seedsally
    Seedsally Member Posts: 260
    edited December 2016

    And oh yes yesterday we had not one but two tornadoes, a flood of rain, 70 degrees, terrible wind, temp dropped to 19 this morning. Cold windy icy patches now. Like they say about Missouri if you don't like the weather hear just stick around a couple hours and it will change.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited December 2016

    I slept and dreamt that life was joy.
    I awoke and saw that life was service.
    I acted and behold, service was joy.
    - Rabindranath Tagore

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited December 2016

    All I can say is 'youse' gals. S. Sally I'm relieved that you finally decided to get yourself to some medical people to figure you all out. Stoic people sometimes I think do have trouble owning up to some of the parts that try to be lax on the job now and then. I'm with you on that DX as sometimes we really do know. Not so much more than the Dr.'s but more of the whys and hows. I'm also convinced to a degree that our family ( shared genes ) do match up well enough to put us in a position to have similar illnesses. I'm hoping those things you do from now on will get you right as rain.

    Hard to believe ( even though I'm your neighbor so to speak ) about your weather. Especially the 70 degrees as we here over in Illinois have been weathering the cold for several days and have a light layer of snow on the ground as we speak. The sun it out which may do a lot of that in --- we will see.

    Chevy, yes --- do put proper footwear on if you attempt some of those things that aren't so easy for some of us as it used to be. Sure, you know I'm not saying anything about age because we don't need too many reminders. I help now and then with snow around here. We have ( since we use mainly the side door and have for years ) a lot of shoveling that needs to take place. The deck which is large and has a set of steps both sides. Left side is shorter amt. of wooden walk-way, but the right is much longer and leads to the parking area in front of our house. We have thought of putting up an awning there to help with how much snow accumulates. Didn't get that done this yr. with having to replace the furnace. Our four car garage was actually a huge awning starting out here when we first bought the house --- then we framed sides, front, and back and filled it all in with a double garage door on back and mid-sized single on the front making it a drive-thru garage. Guess what --- neither of us ever "drove" through. Dh always had too many things in the way so it was drive in the back and back out of the back. It was still a good idea.

    Hope you all have a great Sunday.

  • bonnets
    bonnets Member Posts: 769
    edited December 2016

    We had about 6-7 inches of snow here and was in the 20s yesterday. DH spent the afternoon on his tractor plowing the drive. Had to use it on the walk as the blower wudn't start. I had been having skipped heart beats also, Sally! Never heard of the diagnosis you received. that is usual for me, also , but this time it was constant at varying intervals, plus racing heart, which except for a few episodes , usually from steroids, Has almost been eliminated since I went no caffeine! Anyway finding no reason for the tachycardia and the addition of more missed beats than I ever had, went to the urgicare , to spend the rest of my Saturday. They ended up doing a CT, since my d-dimer blood work was elevated and since I had a Pulmonary embolism 2 years ago. Nothing was found on the CT, for which I was thankful, but they need to find out why the blood work was quite elevated. Heart rate has calmed down, so see the lung dr and cardiologist tomorrow.

    Today the temps are headed to 50 with some rain and the snow is yucky and dirty. Supposed to get another cold front, this evening ,and roads will be icy. Guess we eat dinner at home. Packages are mailed and received to the grands, finally decorated the tree and wrapped all but Step daughters family's gifts. Sure wish we had more family to share Christmas. MOst of the church group has moved south. Think we will be here forever! As we say, growing old is such fun!


  • Wren44
    Wren44 Member Posts: 8,585
    edited December 2016

    Jackie, Just a thought. If the wind direction is consistent when it snows, a hedge or small fence might help keep the walk clear. The hardest thing when we moved here was to look south for the approaching weather. Most of ours comes from the southwest. In Texas and Okla it was always from the north.

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited December 2016

    Bonnets.... Your post brought back memories of my problems with my racing heart... It was off & on! First time was when I was really stressed at SF airport, picking up my little Grand-son... And having coffee & hot chocolate, and my Dad being drunk.... I thought I would pass out going across the SFOBB ! TWICE! Got back to Dad's place, because I knew the 11 year old couldn't drive, any more than my DAD!

    A few more times of almost "passing out" with racing heart.... I went in for tests.... Wore a Holter monitor... then another kind.... Nothing showed! After a stress-test, they figured out it was plain old nerves! They can really hurt you, even when you don't think you are stressed! So much going on in my life at that time! My Mom had passed, I was "in charge" of my Dad, & Grand-son... And I felt like I was the only adult!........ but your nerves & stress build up & cause a lot of bad things to happen.

    I drink de-caf in the mornings, but regular coffee if we go to Starbucks.... That can really make rapid heart-beat worse!

  • bonnets
    bonnets Member Posts: 769
    edited December 2016

    Yup Chevy, I went off all caffeine more than a year ago, added a little chocolate a while ago, which I can tolerate. Made the biggest difference in my life, since then had 4 episodes, 2 related to steroids. the other 2, as with yesterday, cant figute out. Drs are never worried cuz it is sinus rhythm. I pay attention to it though, as it was the only symptom when I had the PE 2 years ago! Yesterday there was an increase in my usual missed beats too! When I was having tachy every day , before I gave up any caffeine, I wore a Holter for 2 weeks.

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