DCIS v LCIS

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Artista928
Artista928 Member Posts: 2,753
edited January 2017 in LCIS (Lobular Carcinoma In Situ)

I'm assuming my mom has DCIS but I really don't know. Seems they are both same prognosis and such with the difference only being one is confined to the duct and one is in the lobe? Is there a diff in tx, life expectancy, going to cancer, etc between these 2? My mom doesn't want me to know so I'm using my bro the middleman to get info and provide info back if I can. TIA

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  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited December 2016

    Artista, they aren't "equivalents" of ductal vs. lobular at all.

    DCIS is treated as cancer. LCIS is not

    The preferred newer term for LCIS is lobular neoplasia because it really isn't carcinoma it is just considered a risk factor that you may be at higher risk for developing cancer in the future. Most women with LCIS don't go on to develop cancer, but it depends on other risk factors and family history as to how high that risk is. Often women who have LCIS who do develop cancer have DCIS or IDC-they don't necessarily develop ILC.

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  • Artista928
    Artista928 Member Posts: 2,753
    edited December 2016

    So the fact that mom is getting rads makes it DCIS? Thanks

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  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited December 2016

    She is not getting rads for LCIS, so yes, I would think it is DCIS.

    LCIS/ALH/ADH are all commonly found in an "alphabet soup" along with DCIS or invasive cancer.

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  • leaf
    leaf Member Posts: 8,188
    edited December 2016

    There have been some RARE papers that report using rads for LCIS, but in this case it was for PLCIS (which is sometimes treated like DCIS) https://www.ncbi.nlm.nih.gov/pubmed/24372322

    In this study they report 1% of LCIS patients got excision with radiation https://www.ncbi.nlm.nih.gov/pubmed/24372322. I don't know if these were or included PLCIS patients.

    Anyways, any type of diagnosed LCIS is much less common than diagnosed DCIS. If I remember right, diagnosed LCIS is about 7 times less commonly diagnosed than DCIS in a SEER study in the last decade or two. But, of course, we don't know how many women are walking around with LCIS and don't know it.

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  • InStitches
    InStitches Member Posts: 80
    edited January 2017

    Yes, both DCIS and LCIS were found in my lumpectomy. It can be very confusing and complicated.

    Peace and healing,

    Nanc

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