Travel after Bilateral

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I travel internationally a lot for work and have a hugely important trip for a global conference (to the arctic), 4 weeks after my scheduled surgery. I have talked to a couple peers that have gone through the surgery and they said I most likely will be okay based on their own experiences. BUT, I wanted to pose the question about travel here to you all. Some things I am curious about:

- issues during flight and security checks - esp. in international airports and customs.

- luggage input

- clothing, etc

- any other helpful tidbits or warnings

...i'm nervous

Comments

  • ksusan
    ksusan Member Posts: 4,505
    edited November 2016

    You'll probably want compression garments to prevent lymphedema, and if they don't have your size in stock, it could take awhile. Maybe ask for a referral to an LE specialist so you can get a fitting now?

    - issues during flight

    Do a search for this on BCO. Short version: Stay hydrated, do fist pumps and other manual lymphedema drainage exercises periodically.

    and security checks - esp. in international airports and customs.

    I go flat and haven't had any trouble. Others should be able to tell you whether they've had any problem with prostheses, if that's a concern.

    - luggage input

    Check your bag. Reaching up to the overhead compartment after the pressure changes of a flight is considered a lymphedema risk. You also may still have restrictions or functional limitations on reaching higher than your shoulders that soon after surgery.

    - clothing, etc

    Temperature changes may be associated with lymphedema flares, so be sure you've got the outerwear you'll need.

    I fly internationally quite a lot and haven't had trouble other than that the compression garments can get pretty toasty on the plane.

    Best of luck!

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited November 2016

    I've flown internationally several times. I've never had any problems with my sleeve or glove. They did check my glove for residue but it was no big deal. I go flat.

    I use a backpack for my carry on and stuff it under the seat. I tell the attendants I need extra fluids. They are very helpful. I get up and walk and do fist pumps. I haven't had any issues.

    I would take extra pain meds, even some heavy duty ones just in case. And prunes! I would take a small travel pillow or that seatbelt thingy (sorry chemo brain) to protect your chest while in the car.

    You probably already do this since you travel a lot. I carry my favorite tea with me. I need it to start my day right but find a cup very comforting when I'm tired or sore or stressed.

    I would recommend clothes that didn't pull over your head. I understand your base layer might have to but give yourself some wiggle room

    You might want to consider Clorox wipes and a mask. If you've had chemo, you already are a sanitizer queen! I had a snarky comment about my mask from the car rental dude but whatever. I'm on oral chemo and wasn't going to ruin my vacation being sick.

    Don't be afraid to ask for help. You don't have to have a reason but you can always use the generic "I've had surgery". Good luck!

  • Jennie93
    Jennie93 Member Posts: 1,018
    edited November 2016
  • Jennie93
    Jennie93 Member Posts: 1,018
    edited November 2016

    As far as luggage - you definitely will not be allowed to lift anything heavy that soon, and may not be able to reach up either. So make sure your carryon fits under the seat, and is not more than 10 pounds. Check your bags, and make sure there's someone with you who can lift them off the carousel, into/out of the trunk, etc. etc.

    The whole lymphedema thing is so frustrating. You can find several threads about that here, too. But it seems like everyone gets conflicting advice. Some are told to wear compression when flying to prevent it, some say not to wear it if you don't have LE. You probably should acquire a well-fitting set of sleeves and glove/gauntlet, and bring them along with you if you don't wear them, just in case.




  • BarredOwl
    BarredOwl Member Posts: 2,433
    edited November 2016

    Hi thekeensheep:

    As noted above, different people receive differing advice about wearing compression in the absence of a diagnosis of lymphedema ("LE"). This might reflect some degree of controversy about the risk and/or the efficacy of preventative compression. It might also in part reflect different risk profiles of the patient. In my case, I had surgery alone (bilateral mastectomy), sentinel node biopsy (bilateral; 1 node; 4 nodes) (with a relatively lower risk than more extensive ALND), and bilateral axillary cording, but none of these other well-defined risk factors:

    "Well-defined risk factors for developing lymphedema include axillary lymph node dissection (ALND), [9-15] regional lymph node irradiation (RLNR), [8,16-19] higher body mass index (BMI), and older age at diagnosis [citations omitted] . . ."

    I discussed the question of preventative compression with my PT-LANA. She gave me her opinion on the pros and cons, and in the end I decided against it. Other members here do use preventative compression. Here is a post of mine regarding my approach to air travel from another thread on the subject. Please see other comments there as well:

    https://community.breastcancer.org/forum/68/topics/833147?page=1#post_4432636

    I fly flat, and carry TLC microbead forms (TLC Direct # 8139; these are expensive ($60.00 each, $120 per pair), but wear well and are hand-washable). I carry them in a small carry-on bag (fits under my seat). Multiple TSA agents and foreign equivalents scanning my carry-on bag have never opened it.

    https://www.tlcdirect.org/Micro-Bead-Lightweight-Breast-Form-Mastectomy-Prosthesis-American-Cancer-Society-TLC-Direct

    I was selected once at random for a pat down in Boston. I agreed without really thinking, and she went from my legs all the way up to where a bra band should have been and a tad further before she realized that there was nothing to investigate. Meanwhile, I'm thinking to myself, "Oh yeah, I forgot, nothing there." I suspect she was more surprised than I was, but she was totally professional (didn't react or comment), and just sent me on my way.

    If you have not received arm measurements, you may wish to seek a referral to a qualified lymphedema therapist for a baseline assessment, and patient education about self-care and prevention. You can ask them to review your risk factors and make a recommendation about whether to wear preventative compression. If used, compression garments (including both a sleeve and hand protection) should be professionally fitted and checked for comfort and proper fit prior to use. Here's some information on finding a therapist.

    http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htm

    Best,

    BarredOwl

  • Metta
    Metta Member Posts: 84
    edited November 2016

    You'll be okay. I was scared, too. I agree with Ksusan and BarredOwl that you should probably wear a sleeve and glove during such a long flight, so try to get fitted for them now. LE rears its head within the first 18 months after surgery, and a flight can trigger it.

    Carry your bag in your other hand, not your cancer side. Avoid lifting heavy stuff for a while.

    At four weeks you can't have a silicone prosthesis yet, so you'll likely be wearing the fluffs they give you after surgery. They won't trip the TSA alarms. When I fly I wear fluffs (or padded Genie bras), not my silicone ones. Flying flat works, too, of course, and an infinity scarf covers your chest well.

    You'll probably feel pretty good a month after surgery. It's the first week that's the pits.

    By the way, you are a tough cookie for taking this trip a month after a bilateral mastectomy. Women are so strong! Let us know how it goes. And remember, the unknown is the scariest part. You will get through it

  • BarredOwl
    BarredOwl Member Posts: 2,433
    edited November 2016

    Just to clarify, my recommendation was to seek case-specific advice from someone with appropriate training and expertise regarding the question of whether or not to use preventative compression. I agree that flight time may also be another consideration.

  • thekeensheep
    thekeensheep Member Posts: 24
    edited November 2016

    Thanks for all this so far ladies! I will be flying flat for sure, and most likely in my surgery compression bra just in case.

    I have had significant LE from my ALND from my Lymphoma for the last two years (i have it all the way to my fingertips so I have to wear a full sleeve AND a full glove!) and have flown several times with my LE gear, so I am certainly prepared for that. (anecdotally, I will tell you that I do Bikram yoga regularly, and as soon as I restarted my practice after my ALND, I went from stage 3 LE to not needing to wear my compression gear at all - except to fly. ((Just my personal experience and not a recommendation)) )

    I am concerned about schlepping my luggage around more than anything and incision management- even with a wheeled suitcase, but I feel like I will take any opportunity to ask for assistance from airport staff if needed. I am wondering what documentation I might need to take just in case I need to make any assistance requests. I already ask for aisle seats for my LE and have never had a problem receiving one as soon as I show them I am in a sleeve. I also usually get seats at the back in case I need to stretch or something.

    I traveled overseas for 3 months with an 80lb pack and did some extreme mountain hiking for my research 4 months after a complete hysterectomy - it was okay but a challenge - so I have a feeling that since my lower body is cooperating this time, I will still be a lot better than I was post hyst. :)

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited November 2016

    Be sure you talk with your BS about your risk for Deep Vein Thrombosis (DVT, blood clot.)  Long flights put people at higher risk, and recent surgery raises that risk substantially. If you do decide to go overseas, you need to get up and move about every hour. You can also do foot and leg exercises in your seat.  (I had a friend who flew to London for vacation; she wasn't there 24 hrs before she threw a clot and died. Made a believer out of me!)

  • Luckynumber47
    Luckynumber47 Member Posts: 397
    edited November 2016

    At 4 weeks post surgery I still had daily bouts of fatigue, so try to plan down-time every day. You'll still be healing, so protect your energy.

    When I travel my favorite carry on is a small backpack but at 4 weeks post surgery I wasn't ready to go back to using it (I am now and my PT has given her approval). Roll aboards are hard because they're too heavy to lift into the overhead. Maybe just a big roomy bag with only the absolute essentials would be a good carry on. Also I think Costco has a small square roll aboard that fits under the seat. That might work. I didn't travel until 7 weeks post surgery but had no trouble pulling around my rolling bag.

    Clothes - I was able to pull clothes over my head by 4 weeks but not everyone is. Nearly every bra/camisole I wore would hurt after a few hours so I switched to different kinds frequently. I also used silicone strips to help with scarring and it gave me the nice benefit of cushioning under the bra/camisole elastic.

    Have a great time on your trip. It'll be a nice break after all the intensity of the last month.

  • BarredOwl
    BarredOwl Member Posts: 2,433
    edited November 2016

    mustlovepoodles makes a good point, and you should definitely be cleared for flight by your surgeon.

    You may also wish to check directly with the carrier, because ChiSandy once noted that airlines may have their own policies applicable to post-surgical travel. See for example this information from the UK National Health Service:

    http://www.nhs.uk/chq/Pages/2615.aspx?CategoryID=69

    "Check before you fly

    Each airline has its own regulations about flying after surgery. Check with your airline before you fly, particularly if you've had complicated surgery.

    If you've had any kind of major surgery, you should also check with your surgeon or GP before flying. . . "

    See link for more information

    As noted at the post I linked to above, I always check my suitcase. It is not just any roller, it is a lightweight spinner, which can be pushed alongside or in front of you with much less effort and without stretching and pulling on your arm. An ordinary roller must be pulled along behind you, and drags on and stretches the arm, which is undesirable for me at least.

    BarredOwl

  • hugz4u
    hugz4u Member Posts: 2,781
    edited November 2016

    On the lymphedema threads Carol57 is our frequent flyer and has great advise. Search her name and put in subject line flying

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