Calling all TNs

Options
1104510461048105010511198

Comments

  • ScotBird
    ScotBird Member Posts: 650
    edited November 2016

    (((((Ally)))))

    I'm still waiting for my bone scan result. I don't want to call as I'd rather wait in ignorance for a few more days!

    I woke up at 3.30am and checked the news, and haven't been able to sleep since I'm riveted by election results. It's 5am now and nearly time to get up and go to work!

    Strange times we are living in...... love to you all. XX

  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited November 2016

    Ally, - hard to eat when in pain, - perhaps that is cause of weight loss. Sending wishes for CLEAR scans and simple solutions!!

    BE WELL wishes and hugs to all here.

  • Curlyq1974
    Curlyq1974 Member Posts: 144
    edited November 2016

    ALLY!!! OMG!!!! Have you been trying to lose weight? I have to tell you, since chemo, steroids, instant menopause, I gained 30 pounds... I started a program in July, and today I can brag I am down 30 pounds, but I have been weighing/measuring and counting everything that enters my body and back to working out. Let's just pray that you eat well, and it is just your body adjusting back to it's new normal and everything is b9!!! UGH!!! The waiting is the worse. I'm thinking of you, praying for b9 results. Hang in there!!!

  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited November 2016

    Ally, I'm thinking of you today. Please check in when you get a moment!

    Also, Cocker I'm praying for you for your upcoming tests tomorrow. We'll be with you dear! (((((HUGS))))

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Hi to all nice ladies in this thread,

    Just checking in to say hello.

    I was just wondering what happened to Cocker and Cathytoo.

    I hope they're OK.

    Best Wishes everyone,

    gmmiph

  • Cathytoo
    Cathytoo Member Posts: 667
    edited November 2016

    gmmiph...Hi Gina..,how nice of you to think about me. I'm just fine...off the boards a bit because of all the hoopla going on with our recent election. Hope you're doing well

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited November 2016

    Well mammo and scan over but to be honest I think this is going to be a dreadful outcome. The CT was head, chest and abdo but I have a really bad feeling that I may only be given months, if i am lucky. Had I gone last week when appointment got mixed up I would have had results today but my specialist was away today and I have to wait until Monday, which I am 100% certain is not going to be good news. Thank you ladies for being in my pocket, I felt everyone of you there with me. xxx

    Ally thinking of you and hoping that your pain is only arthritis or something like that. Love you girl. xxx

    Love all of you ladies as well. Thanks once again also to all of you ladies. I'm going to take myself to bed as can't seem to think straight anymore today. xx

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Healing Prayer for our Dear Friend, Annie

    With all humility and sincerity, wherever we may be at the moment, let us all pause for a few seconds, to collectively pray for our friend Annie who is in utmost need of His Divine Providence...

    Heavenly Father,

    We seek your omnipotent presence at this very moment.

    We humbly beg for your forgiveness for all the sins we have commited. We want to be truly cleansed before your holy presence.

    We thank you for all the blessings you have bestowed upon us.

    We now come to you in deep prayer to petition for the complete healing of our friend Annie. May your healing hands touch her now, melt all cancer cells in her body, remove all diseases she has and show to her that with sincere faith, Your infinite love and mercy will be upon her.

    We also pray for the deliverance of all of us from this dreaded disease which bind us. May our collective petition be a unified sign of immense faith which would be pleasing enough for You to grant us Your infinite compassion.

    We also pray for the comfort and protection of our loved ones. That they may calmly understand your Holy Will. Keep them safe Father.

    In Jesus' name, we pray,

    Amen



  • jenjenl
    jenjenl Member Posts: 948
    edited November 2016

    Cocker, there have been many times since diagnosis i have sworn the results were going to be bad - they weren't and i was very surprised. Please don't go there yet, continue to stay positive until confirmed. xo

    Ally, any news?

  • Cathytoo
    Cathytoo Member Posts: 667
    edited November 2016

    Cocker...❤️❤️

  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited November 2016

    (((((HUGS))))) Cocker! Praying for you. I sure hope you're wrong about your bad feeling.

    ScotBird and Ally, any news yet? Praying for y'all and hoping for good news

  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited November 2016

    Cocker, - I agree with the others, - don't assume bad news!! Keep GOOD thoughts on the forefront! Many of us have thought the worst, and misread what we thought were cues from the technicians and ended up with benign results. KEEP YOUR CHIN UP!!

    Hugs from NYC

  • nrsteph
    nrsteph Member Posts: 114
    edited November 2016

    Cocker -  sleep well, eat well, and try to laugh.  waiting can be so hard...we are all waiting with you!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Hi ladies.

    Cathytoo, it's good to see you again. Last time you said you were feeling down. I got worried. So, how's the post-election atmosphere after Trump won? It seems like the whole world is nervous except for Putin. LOL.

  • iz1999
    iz1999 Member Posts: 46
    edited November 2016

    hello I have a question, I was diagnosed in march 2016 triple negative, had 5 months chemo, lumpectomy and now radiation will finish mid December. I see my oncologist feb 2017, for my first follow up and survivorship plan. I am paying cobra and it's very expensive but I love my plan Kaiser, planning on enrolling with covered California, can any one please give me an idea what the first year after treatment is like? Is there tests, MRI, scans, etc. I know we are all different I just need a little guidance. Thank

  • cassylou
    cassylou Member Posts: 52
    edited November 2016

    Good morning Cocker, I am so very sorry to hear that you are going through all of this crap again. I truly hope this is a blip in this cancer path that we have all been dragged unwillingly into, and good news is around the corner. You sound quite convinced that things are not great. That must be just horrid to be dealing with. You are very wise, but on this occasion I hope you've got it wrong. Thinking of you x

  • Meadow
    Meadow Member Posts: 2,007
    edited November 2016

    Rest well Cocker. Ifor you do have a fight on your hands, you know we are in it with you. prayed for you last night, you are in my prayers today , tomorrow . ..

  • Meadow
    Meadow Member Posts: 2,007
    edited November 2016

    iz1999, congrats on finishing treatment! That is a milestone in your return to good health , for sure. everyone seems to have different paths after active treatment, for me, I had check up appointments every 3 months, and port flushes every 6 weeks. I had a follow up with my surgeon at 6 weeks, and one with my plastic surgeon. Post having drains removed, that was it with the surgeons. I had CT scans at 6 months out. so not a lot of appointments compared to active treatment. Perhaps others can chime in on their first year out. Keep us posted.

  • iz1999
    iz1999 Member Posts: 46
    edited November 2016

    hi Meadow, the last time I saw my oncologist he mentioned that after treatment I would see him every 4 months, but we would make the final decision after radiation, I have my port flush every 6 weeks as well. I imagine that I won't have so many appointments, I see the physical therapist for my arm, I guess depending on what she tells me, I can make a decision about my insurance. I completely agree with the comments, having cancer and fighting it should be the only thing we should worry about, not insurance😢 Thanks for your kind words.






  • Cathytoo
    Cathytoo Member Posts: 667
    edited November 2016

    iz1999...I finished 6 chemo infusions on May 18th and 20 rad treatments on July 22. With the exception of regular mammograms, checkups with one of my doctors every three months (surgeon, medical oncologist and radiation oncologist)...that's it‼️ My MO only does scans if you are having a problem. It seems strange after months of doctor appointments and treatments, but that's pretty much the protocol, although I do know that some MO's like to do yearly CT or PET scans. Be happy you are done treatment and keep your eye on a healthy future. Good luck to you .❤️

  • iz1999
    iz1999 Member Posts: 46
    edited November 2016

    hi Cathytoo, I am just worried about the insurance, need to make sure I have good coverage for my future appointments, don't know how often I'll see the lymphedema therapist. Thanks for the info. 🐶

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited November 2016

    IZ, I don't have LE, but my plan is: see MO every three months for a check up for at least another year, mammo every six months. I will be getting a breast MRI once a year due to dense breast tissue.

  • Shopgal2
    Shopgal2 Member Posts: 649
    edited November 2016

    ally hoping and praying for you today. Hang in there.

    Cocker we still are in you pocket holding you tight. ❤️

    Hi iz I finished my chemo last dec and my rads the end of feb this year so I can't comment on the insurance since most of my doc appts were covered this year. As for next year we shall see.

    Congrats on being done treatment. As for follow up visits I am saw my mo at 3mo pfc in march, in July 4 mo later and will see him again in Jan, (so about every 3-4 months). My ro I saw at 6 mo post rads, and will see her again in Jan, (so every 6 mo). My surgeon I saw in may and will see him again tomorrow. (So every 6mo) and that's it as far as followup treatment. I lost a lot of weight (60lbs) exercise 2x a week at the gym, and eat a mostly plant based diet with some lean proteins. And I replaced sugar with stevia.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Madam Cocker,

    I think you should consider to always bring a Sewing Kit with you. With all of us inside your pocket, there is a big possibilty to have a hole on it.

    Don't fear the unknown yet! It would only add up to your misery. Even if your hunch is right, what the heck. There are still a whole lot of solutions to it. In life, there's always hope. Always focus on the positive side, enjoy with what you have, your family, friends, maybe a few million bucks left, kidding!

    Remember, Humor and Laughter are always Free! God knows this for sure, or else He might have gotten a heart attack a long time ago.

    With prayers and fond thoughts,

    John Wayne




  • Cathytoo
    Cathytoo Member Posts: 667
    edited November 2016

    gmmiph...I want to acknowledge you for taking such an active role in the group. Your posts are always reaching out offering hope, support and funny thoughts. You are a very special woman, and I'm happy I met you....just wish it was somewhere else besides a TN support group. But, here's where we are, and you are a very welcome and important addition. ❤️

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Cathytoo,

    Making someone happy brings happiness back to me. Thanks for the appreciation!image

  • Cathytoo
    Cathytoo Member Posts: 667
    edited November 2016

    Allydp...thinking about you. Results yet? ❤️

  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited November 2016

    Cocker, sending prayers every day.

    ❤️

  • VLH
    VLH Member Posts: 1,258
    edited November 2016

    How long after chemo do you retain your port? Since my surgery, I can frequently hear and feel my heartbeat in my left ear and hate to think of dealing with that annoying pounding indefinitely. I just completed AC #3 last week so still have one AC and 12 weekly Taxol treatments ahead as is. Thank you!

    Lyn

  • georgie61
    georgie61 Member Posts: 95
    edited November 2016

    Cocker, I've been thinking of you and worrying about you. This must feel like hell, not knowing and imagining the worst. Please take some time for some self care. Let us all do the worrying instead!

    I just got back from SLC where I met with a hand specialist . I have a torn UCL (ligament ) that he will repair November 30th . This is from my bike accident in July and it has been so painful just trying to do every day tasks . I am looking forward to getting it done , but I admit I'm growing weary of hospitals , procedures and healing.

    I also have a small area above my lip that is blue that has not gone away, I saw a facial doc over there as well, and she said it is an area where the blood got in there and basically tattooed the spot on my skin!? so weird. I'll probably just continue to cover it with make up, but if I want to at some point I can have a laser they use for tattoo removal. I understand it is quite painful , so I'm in no hurry to go there .

    While I was away I had a massage, facial, manicure and pedicure . That was just what I needed. I hadn't gotten a massage since before the mx last August , because I wouldnt have been able to lay face ( and foobs! ) down and hadn't had any of the other since before the accident . I went without DH which was nice as well. He's been wonderful , but sometimes it's nice just to be allowed to be "selfish".



Categories