Calling all TNs

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  • Goldie1431
    Goldie1431 Member Posts: 29
    edited November 2016

    Although I don't post often I have continued to follow this group since I joined. Cocker you have been such a calming force for me and others. I am so so sorry to hear of your update. I will keep you in my thoughts and as others have said will be there for you.

    Someone previously posted about hip and back pain. I have had minor which progressed to horrible right hip pain moving to my back for about 2 months. Saw my internist first who ordered physical therapy. Then saw my oncologist at my regular appointment. He ordered a nuclear medicine full body scan just to "be sure". That's tomorrow. I started PT 2 weeks ago. She said my pelvis was out of alignment. I'm already about 50% better. So I'm hoping the scan will be clear.

    Since finishing treatment I have also had 2 breast biopsies-both clear. It certainly seems like it never ends. Just when it's going great something seems to pop up.

    Warm thoughts to all on this board

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  • Shopgal2
    Shopgal2 Member Posts: 649
    edited November 2016

    I just checked these boards after not being on in weeks and am heart sick reading how so many of us are facing tough times.

    Cocker I am praying for you and as many have said holding you tight. You were so kind to me when I joined this board in the spring after finishing treatment and you really helped me with your kind words. Sending you love from the states.

    I had posted the beginning of oct about having costocondroitis. Well it had gotten pretty bad. Two weeks ago I was having some intense pain after finishing a course of steroids to take down the swelling. My ro had me go in for a cat scan a week before my trip to Ireland and England. Needless to say I was scared shitless about them finding something. Thankfully no micro fractures or signs of any masses or tumors. Just this damn costocondroitis that makes it incredibly painful to sleep, and causes me some intense pain. Cancer the gift that keeps giving.

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  • Shopgal2
    Shopgal2 Member Posts: 649
    edited November 2016

    I did want to say that I did something amazing in Ireland. I got to stay in an Irish castle and did a cliff walk at the cliffs of moher in doolin Ireland. The cliffs were carved out by glaciers and are beautiful. It was a tough hike up the mountain and thru some very rough terrain thru tiny paths, steep inclines, over rock streams, and rural paths. Basically you walk a tiny path next to the cliff edge overlooking the Atlantic Ocean. Beautiful and scary. I kept thinking I couldn't make it then I said at this time last year I was getting chemo and was pretty sick, not even able to walk and about 60 lbs heavier. When I finished I was crying. At one point I looked over the edge and screamed fu cancer and hoped the sea took my cancer and pain away. Here is a pic of me on the trail and the view from the edge.

    imageimageimageimage

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  • Ka-cey
    Ka-cey Member Posts: 18
    edited November 2016

    Dear Annie:

    You are in my thoughts and prayers.

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  • Cathytoo
    Cathytoo Member Posts: 667
    edited November 2016

    Shopgal2...What fabulous photos. You look wonderful, full of life and so happy....indeed "FEARLESS AGAIN"‼️

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  • ScotBird
    ScotBird Member Posts: 650
    edited November 2016

    Goldie, I too have been experiencing hip pain for months and had a nuclear bone scan yesterday after what sounds like a similar path of consultations to you. I've found that Pilates and gentle swimming seems to help a bit but still need painkillers every day. I'll be keeping my fingers crossed for your results to be clear too! I might have to wait a week or so for mine and will keep you posted. I also had an ultrasound on my scar area because there seemed to be a lump there, which they said was fat necrosis. I have to massage it daily until it goes away. Lots of love to everyone.

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  • Cathytoo
    Cathytoo Member Posts: 667
    edited November 2016

    Goldie & ScotBird...these aches and pains are enough to send you into a panic. I've had shoulder pain for about a month now. Going to physical therapy. They seem to feel it's coming from my neck. I feel better after therapy but the pain isn't totally gone. I have a Rx for a MRI but I'm hoping that the therapy will finally get rid of the pain. Hope you find that everything is fine

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  • Meadow
    Meadow Member Posts: 2,007
    edited November 2016

    Shopgal , my heart jumped in my chest at your beautiful pictures, beautiful moment . thank you for sharing

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  • SA8PG
    SA8PG Member Posts: 371
    edited November 2016

    Shopgal that is amazing!!!! I am so glad you were able to take that trip & for the good health to make that hike. Beautiful pictures thank you for sharing your life with us. :))))

    Goldie & Scotbird I had a bone scan & Ct scan on Friday for all these pains I have been having in my femur, right rib & shins. I had a PCR as well. I am 2 years out from my last chemo. My scans are clear of any metastic disease however my bones took a big beating from chemo. The scans show several areas that are degenerating. Oh the fun of chemo side effects at age 41. Lol

    Cocker you continue to be in my prayers & thoughts. Your such a bright light on here. You are dearly loved.

    Sending my love & prayers to all.


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  • georgie61
    georgie61 Member Posts: 95
    edited November 2016

    Shopgal,

    I love your pics. My husband and I were hoping for a trip to Ireland this summer...I would love to know where you stayed, if you don't mind sharing. I haven't begun planning yet. Awesome!!!

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  • georgie61
    georgie61 Member Posts: 95
    edited November 2016

    Also, amw - I've been thinking of you a lot, hoping you get your treatment plan going soon so you can get into proper Warrior mode!! it helped me just knowing I was taking action.

    Cocker, still thinking about you and pray, pray, praying for a miracle or better. You can do it - whatever "it" is. xoxo

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  • whippetiggy
    whippetiggy Member Posts: 49
    edited November 2016

    Hi. I'm brand new here. Just diagnosed with my third negative hormone receptor this afternoon which makes me part of the triple negative club. I just turned 46.

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  • georgie61
    georgie61 Member Posts: 95
    edited November 2016

    I am so sorry whippetiggy - do you mean this is your third diagnosis? I hope not...or Triple Negative?...which is definitely treatable! Just know, we are all here for you and we were all in the same place you are now. I promise it gets better when you start a treatment plan.

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  • Shopgal2
    Shopgal2 Member Posts: 649
    edited November 2016

    Georgie I sent you a pm with some info.

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  • whippetiggy
    whippetiggy Member Posts: 49
    edited November 2016

    I just edited my post. I knew I was ER-/PR-, was just waiting for HER2 and that's what I found out today. That's negative also so I'm confirmed as triple negative.

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  • lilyrose53
    lilyrose53 Member Posts: 216
    edited November 2016

    Shopgal2,

    I must say, your pics are fantastic! That's what I love to see! Getting out there and living life to the fullest! I am also planning a trip next year to Ireland, Scotland and England. I hope I can make as much of it as you did yours. Your post really gave me a boost. Thank you!

    Wishing you all the best, lilyrose

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  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited November 2016

    Awesome trip, Shopgal! Not sure I would have the courage for sheer cliff walking, but I've been wanting to go to Ireland.

    Sorry you had to join us whippetiggy, but welcome

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited November 2016

    Ladies everyone of your posts brings me to tears. I feel your prayers and hugs dear friends and somehow I will face with renewed courage whatever I have to do. Yes, I'm scared but no more scared that all of you ladies trying to get through the days and years and all what our newbies are going through. I hate the word recurrence more than anything because I don't want any of you to worry about what may not happen and it really is the word that stops us from living after cancer because it's always in the back of our minds. Forget what may happen to me, there is only one who knows, I want all of you to know that your treatments were the best for you all and there is no reason you all cannot go on and live wonderful lives. That is my prayer for you all and I found out today from a friend that prayers do come true.

    My love to you all. xxx

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Hi Miss Annie,

    I am one of the newbies here and you dont know me. I've been following all the sympathy posts here since you broke out the bad news about your R (i am beginning to hate that word). You are a lucky lady to have many sincere friends and I can see why. You have such a big heart and thru your soothing and comforting words, we seem invigorated.

    Cocker, you know the old saying, "If there's life, there's hope". Please show us what it means, be our hope! No matter what the outcome may be, it doesnt matter, the main thing is you, we tried, together, to the very end!

    We definitely want you to stay.

    In the words of the canine...

    Woof woof, bowow-wow, grrrr, ruff-ruff-ruff!

    Translation: Dear Cocker, we love you. Fight! Go, go, go!

    Let me see that cute smile now.

    Happy thoughts,

    gmmiph



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  • breastcancerhusband
    breastcancerhusband Member Posts: 85
    edited November 2016

    Hi ladies

    Hoping this might make a few faces smile. Here is a picture of my little boy. With my wife being pregnant at the time of her chemo this little chap went through it all with her.

    He is doing well! 18 months old and a typical little boy, never sits still, is into everything and is a bit of a flirt with the ladies! So here's a big huge kiss from my son to all of you.

    x


    image

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  • Cathytoo
    Cathytoo Member Posts: 667
    edited November 2016

    breastcancerhusband...such an adorable little boy...and what an incredible bond he shares with his mom. I'm sure he brings you joy every day. Here's a giant hug and kiss from me. XOXO ❤️ Please post more photos

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  • nrsteph
    nrsteph Member Posts: 114
    edited November 2016

    SOOOOOO CUTE!!!!

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  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited November 2016

    Shopgal, awesome pics! You look great!

    Breastcancerhusband, my heart just melted!! Thanks for sharing the pic of your sweet boy with us!

    Sweet Cocker, I love you so much my dear!! We all do and I will echo what gmmiph said! You're on my mind a lot every day and I'm saying so many prayers for you! Please keep checking in with us because we all care so much! We all think about it coming back sometimes, no doubt, but we all did that even before you shared the latest with us. Please come here whenever you need to share anything whether it's a good day or not. We are with you, smiling, crying, screaming, the whole nine! You're like the momma onhere and I know we all want to hug our momma! So.....(((((HUGS))))!!!

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  • Allydp
    Allydp Member Posts: 520
    edited November 2016

    Shopgal, beautiful photos! What an experience of a lifetime that must have been. So glad you got to have it.

    Annie - sending all my love to you.

    Breastcancerhusband - adorable!

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  • nrsteph
    nrsteph Member Posts: 114
    edited November 2016

    http://www.newstalk.com/Irish-research-teams-make-potential-breakthrough-on-breast-cancer-treatment


    Thoughts??

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  • nrsteph
    nrsteph Member Posts: 114
    edited November 2016

    http://www.nature.com/nm/journal/vaop/ncurrent/full/nm.4213.html

    Researching alone is no fun, help I am desperate for more information or sites to keep and eye on. THOUGHTS??

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  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited November 2016

    Steph, did you have the genetic testing? Is p53 one of the genes they test for?

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  • ALHusband
    ALHusband Member Posts: 344
    edited November 2016

    Cocker I just checked in after a while away and almost fell out of my chair. You, of all people! The lady of ladies who is a constant source of inspiration to us all! And now we're all praying for you? Well, let me tell you something lady. You're a friend and an example of strength to me and to dozens of women on this thread. So, here's the plan. You are going to march in that doctor's office and do what he tells you to find out what the heck is going on in there. Then you're going to wait for the results, which will be a big "nothing burger", and the day you get them you're going to sit down and tell us all about your BENIGN results! That's an order! I don't know if you get much coverage of the US elections, or if you follow it, but, recently the Republican Vice Presidential candidate here, Mike Pence, had his plane skid off the runway. The news reporters asked him if he was scared, and I want to share his answer with you. He said, "The safest place in the world is right in the center of God's will." Please remember that because it's true! You are in my prayers my friend!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Hi Miss Cocker,

    I've found you a new dancing partner...

    click here... Dancing Partner

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Hi Miss Cocker,

    I've found you a new dancing partner!

    Click here... Dancing Partner

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