Calling all TNs

Options
1…10431044104610481049…1198

Comments

  • Lookingforward66
    Lookingforward66 Member Posts: 147
    edited November 2016

    All,

    Just saw this on Facebook. Hope the link works.

    https://www.facebook.com/TheNextStageInHumanEvolut...

    Let's pray it continues to show good results

    Marsha

    · Share on FacebookShare on Twitter
  • Goldie1431
    Goldie1431 Member Posts: 29
    edited November 2016

    Scotbird-I found out today my bone scan was free of any cancer. I am so hoping you get the same result!

    Breastcancerhusband you have the CUTEST baby ever! Just adorable.

    Hoping for as stress free of a dayfor everyone as possible.

    · Share on FacebookShare on Twitter
  • nrsteph
    nrsteph Member Posts: 114
    edited November 2016

    Love - I did have genetic testing and I am going to call the gal back tomorrow to see if it was.  I am TN, PDL1-, Androgen receptor -, no genetic mutations noted in report.  All I am positive for is Cancer...go figure!

    · Share on FacebookShare on Twitter
  • 6feetover
    6feetover Member Posts: 320
    edited November 2016

    {{{Annie}}}

    · Share on FacebookShare on Twitter
  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited November 2016

    I have fallen behind in responding, - but I want to welcome the newbies, and send hugs to all here.

    It is impossible for me to add to the eloquent messages to you, Annie, but add me to your list of supporters rooting for BENIGN results and in your pocket for all that you are dealing with!

    Shopgal, - your pics are amazing!! What a wonderful trip!

    BCHusband, - your little guy is adorable!! Enjoy every minute with him!! Time flies and we dont realize how fast they grow up!

    Wishing everyone GOOD HEALTH and easy days!

    ps I am still keeping an eye on the area of concern on my breast, spot seems to be fading so I will give it a few more days. My hip/back mri showed arthritis and bulging disc (?) which explains the discomfort. Hard to believe that I am thrilled with that report, but I am!


    · Share on FacebookShare on Twitter
  • ScotBird
    ScotBird Member Posts: 650
    edited November 2016

    Goldie that's awesome news, what a relief.

    Whippetiggy hello and welcome. Sorry you have to join us here but it's a supportive and friendly place, where we can all cheer each other on.

    Annie I feel the sadness and worry in your recent posts and am so so sorry for what you are going through. The worst thing at the moment is not knowing either the diagnosis or the treatment plan. One day at a time. When you have the plan everything get's easier because you can follow the plan, however much you wish you didn't have to

    Meanwhile I'm sending cosmic hugs and loving kindness from Scotland to New Zealand. XX

    · Share on FacebookShare on Twitter
  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited November 2016

    How on earth can I smile when you all keep making me cry.

    gmmiph I will do what you say and fight, just got to find the fight at the moment but with all of you ladies and men behind me how can I fail. Thank you so much.

    Luvmydobies I love you too. Thank you for being in my pocket, as always. xx

    Beastcare husband your wee lad is beautiful. I can certainly see why he is a flirt with the ladies. Enjoy every single minute with him because time goes by in the blink of an eye. xxxxxx kisses back to him.

    Mike your post made me laugh out loud. I could just imagine me marching into the specialists office and saying Mike said I'm not to go home until it's benign. lol. I take your comments on board and as I do all the ladies and somewhere eventually I will dig up that fight, I hope. Now let me first say, congratulations, you are going to be a Granddad. Absolutely fantastic. There is going to be nothing but love, joy, sticky hands, wet kisses, and laughter in your Kathy's and your lives. It's a precious time for you both and a time you will learn all over again what it is like to be a child. On my recent birthday my grandson Ben wrote on my card "I love you Nana cause you always stick up for me" lol. That's cause I tell his older sister off for sometimes being mean to him.

    I must share a little Christmas story with you. One Christmas when Ben was three I brought three little snowmen to place on a cabinet. After the presents had been opened and the house was quieter I walked into the lounge and my little Ben was just standing there all alone looking at these three snowmen. I stood beside him and his sad little voice said "you haven't got one for me'. I said what do you mean Ben and he said " you have one for Jessica, one for Connor and one for Caitlin, but not one for me". With that he walked away and I nearly died. I had never purchased those darn snowmen with the three older kids in mind but I can assure you all three snowmen went immediately into the garbage bin and I've never brought three of something again, always four. So however many grandkids you get always make sure you buy the same amount of snowmen.

    Thank you for Mike Pence's words I will remember them always.

    Wishing all of you a happy, stress free day. xxooxx

    · Share on FacebookShare on Twitter
  • georgie61
    georgie61 Member Posts: 95
    edited November 2016

    Awww Cocker...what a sweet story about your darling grandson. Our daughter when she was little ( she's 25 and our son is 27) used to say "Why does Cameron always get 2 grownups in his room?" - when we inadvertently went back and forth to their rooms to read and smooch them, and sometimes "landed" that way. We still tease her about that, and often call her on speaker to say " You have 2 grown ups on the phone with you! " Keep your head up, no matter what - you have time for a lot more fun and heartwarming stories like that! xoxo

    · Share on FacebookShare on Twitter
  • jenjenl
    jenjenl Member Posts: 948
    edited November 2016

    cocker, when and what tests are they planning on doing to confirm?

    · Share on FacebookShare on Twitter
  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited November 2016

    jenjen I should have gone for tests this last Wednesday, it's Friday today, but I went to Auckland to see Andre Rieu the tickets of which my daughter bought me for my birthday and we stayed over night. We were prepared to put the trip off but never heard anything so went ahead. I checked my phone often while we were away and nothing and when we got back on Wednesday afternoon I got a call from my GP who was upset I hadn't gone for the appointment at 1pm on the Wednesday. Anyway to cut a long story short there was obviously some miscommunication and now my appointment is Thursday the 10th of November. On the Wednesday the 9th I have got my yearly mammogram booked and they said to keep that appointment. So on the Thursday my scans start, plus I see my Physician with the results of the scan and then she may also do a broncoscopy which I am not looking forward to. I should have the results of the scans that day but probably not the broncoscopy as they will biopsy and then send for confirmation on what it is. I almost don't have any voice at all, it's like I have laryngitis. My voice has been like this for a month or two now. I have lost weight down from 64kg to 58kg but I put this down to the fact that I have been walking a lot more and really cutting down on sugar. I don't eat a lot of cakes and biscuits but I can't drink tea and only like coffee with a lot of sugar but as I said I have been cutting that down and drinking a lot more water. Sometimes when I get home tired from work and my old feller is on late duty I can't be bothered to cook a dinner just for me so only have a snack and so put the weight loss down to all of that. It's not the lung nodule that is worrying me it's whatever is in the chest and somehow I have to dredge up some fight when all I want to do is shut my ears and eyes to it all.

    georgie isn't it funny how kids think. I would never ever have left my wee Ben out and just didn't think about only three snowmen. They always have to have the same amount of kisses and hugs, just part of their little minds I guess. I do hope you are right and I do have a lot more time but just right now I am not so sure.

    I am going up to Tauranga this afternoon, two hours away, with my youngest daughter to the cake conference held in the North Island this year. Even that I have to fish around for the strength and motivation to go but I won't let her down. So will be back on here on Snday.

    Keep well everyone, don't worry, don't stress and make sure you keep happy whatever happens. xxooxx

    · Share on FacebookShare on Twitter
  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Hi Madam Cocker,

    I am glad you're up and about being your usual self again. So much different when youre down. Did you see the "Dancing Partner" i sent to you on this thread? Just to cheer you up a bit. It's a Youtube video. It is one of the earlier post yesterday.

    I just finished my first chemo session yesterday. I am still in the hospital, 6 am nov. 4. all went well, it took about 5 hours for the actual administration of 2 pre-chemo meds and the FEC. the onco nurse said she slowed down the flow of the FEC so that it wont be too hard on my vein. i will be out in about 2-3 hrs. No side effects so far except for the red pee.

    I will try to read all your post when I get home. i am in a rushto leave the hospital now.

    ok, this is all for now, i got to get ready for my discharge, bills and all,

    talk again soon,

    gmmiph

    · Share on FacebookShare on Twitter
  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited November 2016

    gmmiph I certainly did see the Dancing Partner and thought, oh my I hope he's not going to need a hip replacement lol.. Never seen a dog dance like that before. My girl only does it when she is wanting food. lol. gmmiph why are you in the hospital if your chemo was yesterday? Ah yes, the red pee, remember it well. Reminds me of the time when I went to the loo during my session and thought it didn't look too clean. Because I was a bit iffy of germs going through treatment I used to sit on the edge of my knickers on the edge of the seat. Being without pubic hair (sorry to be so factual) there was nothing to keep the flow downwards so all the edge of my knickers got soaking wet and I had to gingerly walk back into the chemo room with legs that looked like John Waynes (you know wide apart like a cowboys) lol. Glad you are going home now and can forget chemo for a little while.

    · Share on FacebookShare on Twitter
  • Sister-Sister
    Sister-Sister Member Posts: 28
    edited November 2016

    Hello everyone, I'm still seeing the same Doctor at Karmanos. I have support but it still very hard. I had an appointment on 10-27-2016 to visit my Oncologist since being released from the Hospital around 10-21-2016 and was told everything was Okay, however, it will take time for the Talc Procedure to work, so I'll be on Oxygen until. The Nurse accessed my Port for Blood work, however, after returning home I realized she left the Needle inside my Port. I was to exhausted to returned that day and scared my Oxygen would run out, so I returned back to the hospital on 10-29-2016 Saturday, to have the Needle removed and found out my Doctor was wrong, more Fluid had Buildup around both Lungs now and I was hospitalized again. Currently still in the Hospital, had to have Fluid Drained, my Heart has been very stressed and I'm now in the Cardiac Ward after getting out of ICU. The Doctors are going to insert a Chest Tube so I can Drain the Fluid myself when I go Home. I'm currently on 5 liters of Oxygen and Angry as Hell. My Sister just had Genetic Testing and I hope she will not carry the Gene. I'm taking my Xeloda and praying that it will work.

    · Share on FacebookShare on Twitter
  • Meadow
    Meadow Member Posts: 2,007
    edited November 2016

    bchusband, thank you for sharing the picture of that sweet boy!

    Annie, love to you !

    Whippetiggy , Welcome !

    · Share on FacebookShare on Twitter
  • Kathseward
    Kathseward Member Posts: 379
    edited November 2016

    hey Cathy too

    I'm terrified and I'm still on chemo so I hate to think what I'll be like when I'm off of it. Congratulations on ur first anniversar

    · Share on FacebookShare on Twitter
  • Spica16
    Spica16 Member Posts: 130
    edited November 2016

    Annie, Dear Friend,

    I'm reaching back from the other side of the 5 year goal line, to help pull you over. I crossed that line in September, and am still moving forward...until I saw your post, and it stopped me in my tracks.

    Well, we BC Warriors stick together, cry together, laugh together, pray for each other, support each other. So Annie, reach out and hang on tight...your BC Warrior Sisters (and Misters) are all here for you!

    I remember when you first joined this group. You were so scared, so worried about chemo and radiation, so unsure of your future. You made it through your treatments, with tips and tricks and encouragement from the Wise Sages who had already traveled the rocky path that loomed ahead, in 2011. You got through it all, and then stayed here, giving support and encouragement to others, often by the telling of light-hearted, comical stories. You are one funny gal, Annie, and we love you for that!

    And then something happened...the transformation...you became a Wise Sage, honored and cherished by newbies and oldies, alike.

    So...

    Take some time to listen to a beautiful music concert. Share the weekend with your daughters at the cake convention. Take some time to cry, to question, to mourn, and then get mad...get angry...and get your fighting spirit up and at it, because you are a BC Warrior, who will face another battle, if needed. We need you to fight...

    because you tell the best stories!!!

    Love 'Ya ~ Shar



    · Share on FacebookShare on Twitter
  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Hi Madam Cocker,

    I hope that doggie dance perked you up a bit. If not, then it will be me next time doing a belly dance and most probably end up with a broken hip.

    As for your question why I am still at the hospital this morning,my MO gave an order for me to stay overnight for monitoring in case i develop any adverse reaction to the chemo drugs. I checked in at the hospital at 11am yesterday, started my chemo session at around 1pm and finished at around 6pm. I then have to stay overnight for hydration with NSS (normal saline solution) until 3am, then checked out at around 8 am today. I got home at 9:30 am.

    About the red pee, i started peeing red right after my epirubicin infusion and before the cyclophosphamide and my pee went back to its normal color this morning around 3 am. I wonder if that's good...

    You know what, as i am reading your John Wayne walk, i started to laugh, imagining how awkward you may have looked (you being without pubic hair made me laugh all the more) and then, I felt i have to pee again 4:30 pm and the color is pale red again. Is it really like that? I am trying to drink as much as I can to flush out the red devil but it goes on and off.

    Ok, try imagining the John Wayne walk again but this time with the dancing doggie underneath. Oohh I am sure it will be a real Youtube hit! You know, I am trying to read the other posts here and I can sense that you are a funny lady. I hope you continue doing that. Let's all do that.

    KILL ALL FORMS OF CANCER WITH LAUGHTER.

    Happy thoughts for you,

    gmmiph



    · Share on FacebookShare on Twitter
  • Meadow
    Meadow Member Posts: 2,007
    edited November 2016

    gmmiph, yes, the red in your urine is totally normal.....let that chemo do it's stuff! Work away Red Devil. Hugs to you

    · Share on FacebookShare on Twitter
  • amw5
    amw5 Member Posts: 189
    edited November 2016

    georgie61 (((hugs))) Thx so much dear.

    My first visit with my oncologist went well. We sat down and discussed everything, and I asked all of my questions. He is very thorough and compassionate (and that means so much to me). We spent 1.5 hours together going over everything. I will begin chemotherapy on November 15. I will need to update my signature area with the medications that will be used for chemotherapy. I'm so glad I have a plan in place. Oh, and my PET / CT scan shows cancer cells in my left breast and in some of my left axillary lymph nodes just as we had originally thought (knowing this gave me quite a bit of relief, as it was something that was heavy on my mind). The surgery for my port will be on November 9. Everything is rolling right along. Thank God!

    · Share on FacebookShare on Twitter
  • Cathytoo
    Cathytoo Member Posts: 667
    edited November 2016

    Kathseward... A plan that might help your anxiety would be to call the American Cancer Society. They have a program that can put you in touch with a one to one peer support person. This person would have the same diagnosis as you and be out of treatment living a full life. When I was going through treatment I spoke to a woman who had been clear for 15 years. Just the other night I spoke to a woman who had a 5cm tumor, BRCA+ and lymph node involvement. That was eight years ago. We are all terrified at first and anxious always after treatment. You have to find a way to calm down. The odds are really in your favor that you will be fine. Actually, the control you DOhave is to be calm, follow your doctor's instructions, eat healthy, walk, get a good night's sleep and be positive that all will be good.

    · Share on FacebookShare on Twitter
  • amw5
    amw5 Member Posts: 189
    edited November 2016

    Did any of you continue to take your regular (daily) vitamins and supplements while you were doing chemotherapy?

    Did you change your vitamin and supplement regimen prior to starting chemotherapy?

    · Share on FacebookShare on Twitter
  • nrsteph
    nrsteph Member Posts: 114
    edited November 2016

    amw- I started taking everything and then I went to a doctor that specializes...of course not covered by insurance but this is what I take and what I learned...

    Curcumin - Terry Naturally, Vitamin D3 - up'd dose after level was tested, B Stress Complex, Calcium, Magnesium, Selenium, Probiotic, Kelp, Algae, Vitamin C, Multi vitamin

    I was taking Vitamin A and E too but doctor said "you are taking a lot of antioxidants...chemo is trying to kill cancer cells by oxidizing so maybe don't take those but eat as many antioxidants as possible."  After a discussion about how I have three little ones she said I could continue to take vitamin C.  I would recommend a consult like this to anyone because I kept reading take this, take that, and so on, so I did.  But sitting down and speaking with her was informative and she really helped me focus on how to keep all of my organs as healthy as possible while undergoing chemo.  All in all I felt it was worth the $175 in the grand scheme of things.

    Good Luck!

    · Share on FacebookShare on Twitter
  • 6feetover
    6feetover Member Posts: 320
    edited November 2016

    amw5 - Welcome to the group! My onco team advised me to refrain from taking supplemental antioxidants while undergoing chemo (same as nrsteph's did)...

    · Share on FacebookShare on Twitter
  • nrsteph
    nrsteph Member Posts: 114
    edited November 2016

    oh and Melatonin!!! YAY to sleep.  AND NO PREMEDS (I was on taxol now going to doxil).  However, I miss the energy from the steroid I do not miss the 3-4 nights of no sleep!!

    · Share on FacebookShare on Twitter
  • simplelife4real
    simplelife4real Member Posts: 563
    edited November 2016

    Sister-Sister, I'm so sorry to hear about your pleural effusion. I hope the talc procedure kicks in and helps prevent further fluid buildup. My heart goes out to you.

    Inspired, it was wonderful to see you post here. I've missed your presence on this thread.

    Ally, your hair in your new profile pic looks great. (We always notice the hair after having gone through chemo!)

    Cocker, I hope everything turns out to be b9 for you.

    Welcome to all the newly diagnosed. I'm sorry you have a need to join this thread, but happy that you found us. I hope each of you have found the chemo threads on this site for the month you started chemo. Those threads are a huge help. I still keep in touch with my old chemo group. We shifted over to a Facebook group after treatment ended and are in touch with each other constantly.

    I was having hip pain all summer and was getting nervous that it might be bone mets. I decided to go to a sports medicine doctor first to see if it could be bursitis. I saw him 4 days ago and he thought it was bursitis too. Yes!! I got a steroid injection and an order for PT. The injection didn't take away all the pain, but it is far better now than it was. I have an appointment with my MO in about 10 days. I plan on letting her know about the hip pain, but I'm hoping by then that it will be so much better than a bone scan won't be necessary.

    · Share on FacebookShare on Twitter
  • georgie61
    georgie61 Member Posts: 95
    edited November 2016

    amw5 I was the same stage as you, pretty much same treatment plan it sounds like and I feel as optimistic as one can, that we kicked it to the curb. All I can say is plan on this being "the year of cancer" and then you can move on, and you will. My doctor didn't tell me to not take vitamins - I wasn't anyway - but no advice in those regards was given to me as I know it was to others, so who knows?

    Cocker, so glad to hear you went to have some fun with your daughter. I'm sure waiting a week or so is not going to change a thing..so have fun! I know you have some challenges ahead, but with the love of your family and pups I know you can handle it.

    My heart goes out to all the new people being diagnosed, and to those who are still suffering. Take care everyone and I hope you have a nice weekend!

    · Share on FacebookShare on Twitter
  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Hi to all,

    I think i saw a post here asking whether or not to continue taking vitamins and supplements during chemo. My advice is to ask your onco doctor about it. Tell them everything you are taking before and after chemo, and wait for their reaction. My MO told me to stop taking my supplements but she added iberet-active for iron/vit c supplementation, (i think it has vit B12 which is important) 20 days after chemo. If my stomach cant accept it, as i have previous problem with iberet, then find natural foods that contain the needed vitamins like in this case, i can change iberet with a cup of moringa leaf veggie which is also rich in iron. i am also planning to continue taking raw turmeric everday thru meals and smoothies. i've been taking it even before surgery and chemo, and i find it helpful against my rheumatic knees. The main thing is to EAT HEALTHY, more fruits and veggies, less meat and sugar.

    Greetings to Cocker, Cathytoo, Meadow and all the special ladies on this thread. Thinking about you and sending my prayers and positive thoughts.

    Take care everyone,

    gmmiph (Gina)

    · Share on FacebookShare on Twitter
  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited November 2016

    Well, I was planning on having a good weekend, full of activities, but my immune system has other ideas. I can still go outside, I just have to stay away from people and their germs. It's my birthday weekend too.

    Steph, the only premed I took during taxol was aloxi. My MO allowed me to skip the steroids and benedryl.

    Happy weekend!

    · Share on FacebookShare on Twitter
  • Shopgal2
    Shopgal2 Member Posts: 649
    edited November 2016

    bc husband beautiful pic of your little one.

    Cocker know that we are here for you and praying for negative results. I'm glad you can spend time with your daughter.

    For amw5 I only took bit b6 & b12 when I was on taxol to help with neuropathy. I would check with your medical oncologist before you start chemo.

    Ugh I caught my first cold since treatment and I feel like I am down for the count. I even got the flu shot before I went on my trip to Ireland and England. I think I may have picked up some flu bug on the flight home. I am cuddled up on my couch under a warm crocheted throw trying to feel better.

    Happy fall Saturday to all


    · Share on FacebookShare on Twitter
  • jcpriest0469n
    jcpriest0469n Member Posts: 86
    edited November 2016

    Hi to all, I stopped chatting shortly after being diagnosed three years ago. I am feeling better and enjoy the site. My appetite was so awful during treatment, everything hurt my mouth. I am taking my vitamins again with extra calcium. I can eat some spices foods. I hope that helps amw5. I had a pet scan last month and everything was clear. That was a pleasant surprise. Happy birthday to Lovemyvizsia oh I loved ginger tea during treatment.

    · Share on FacebookShare on Twitter

Categories