Skin sensitivity post- BMX

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Jennj99738
Jennj99738 Member Posts: 34

I had BMX with bilateral sentinel node biopsy on 10/12. Everything has gone very well but I am having this horrible skin sensitivity to anything. I still have steristrips on the long incisions and on the small node incisions. My skin feels like it's on fire but it isn't warm to the touch. Everything that touches me is irritating. The sports bra my PS requires me to wear irritates me. It's not pain but just this burning and sensitivity.

Does anyone have any recommendations? Ice doesn't seem to do anything. Thanks!

Comments

  • Irony
    Irony Member Posts: 46
    edited November 2016

    Yes! You are not alone. I had a BMX on 9/19. I had terrible burning pain that felt unbearable! My PS said it is nerve regeneration. Some people get the pain, some don't. I'm now six weeks post surgery and only get that kind of pain when I get my tissue expanders filled and it only lasts for the day.

    Hang in there. I know it is terrible, but it will get better.

  • Mombytheriver
    Mombytheriver Member Posts: 25
    edited November 2016

    I had the same after BMX with reconstruction. It was worse in the evening. I would put a fan on and sit in front of it to calm the skin. The OT told me that standing in front of a mirror and rubbing lotion into the skin while looking at it helps the brain to make the connection. The issue seems that the brain has a hard time determining between "light touch" and pain while the nerves rejenrate I am 5 weeks post surgery and that feeling is nearly gone. Hang in there.

  • Jennj99738
    Jennj99738 Member Posts: 34
    edited November 2016

    Thanks to both of you. I will give the fan and the lotion a try. I was planning on asking my PS for a recommendation on cremes or lotions when I see him on Monday. It's still miserable right now and it's 3 weeks today.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2016

    This is usually a short term phenomenon that has to do with the nerves being severed at the time of mastectomy, and it dissipates over time - for some almost immediately - others, it takes a bit. One thing I would caution you on is the use of ice if you have expanders in place. Because there is no underlying tissue your skin can actually freeze, and additionally, icing the skin over the expander can lead to a less robust blood supply to the skin and you can experience necrosis, not a good thing. I found skin to skin contact bothered me more, particularly on my inner arm, and found that soft fabric was helpful. Hope this goes away soon for you!

  • aweate
    aweate Member Posts: 53
    edited March 2018

    I am having the same thing. Hope it goes away soon. A little freaked out.

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited March 2018

    My PT recommended using different textures of fabric with different amounts of pressure on the areas. It sounds weird and counter intuitive, but it's something about retraining the nerves. It really helped me.


  • aweate
    aweate Member Posts: 53
    edited March 2018

    may I ask how long yours lasted? Did it go away all at once or were there little improvements? Any medicine seem to help?

  • ksusan
    ksusan Member Posts: 4,505
    edited March 2018

    I found it helpful to put a textured cloth, like a towel, over the area. Instead of moving the towel, I moved my hand over it, applying different pressures.

  • aweate
    aweate Member Posts: 53
    edited March 2018

    did it eventually go away?

  • Jennj99738
    Jennj99738 Member Posts: 34
    edited March 2018

    I am the OP. It did go away very gradually. It's been almost a year and a half now since the surgery and can't remember how long it took. I recommend using very soft materials on the area. I asked my doc for the cotton batting he used after the surgery and placed that over the irritated areas.

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited March 2018

    I think that the horrible "burned" feeling was much better by around 8 weeks. It started getting better after I started using the cloths a couple of times a day. It seems like it was a gradual process. I never tried any medicines, topical or systemic.


  • aweate
    aweate Member Posts: 53
    edited March 2018

    thank you...have been using your suggestions and a three prong electric massager. It hurts but feels good at the same time. I feel like I am making some progress...this nerve pain has set me back just a bit but I am determined to not get discouraged.

  • KBeee
    KBeee Member Posts: 5,109
    edited March 2018

    I developed rashes where tape was used after mastectomy. I never had a problem before. If any type of tape is used on my chest to this day, I still get horrible rashes. I don't get them on other parts of my body. After a 48 hour ECG, I had a rash that lasted 3 months and took 3 different prescription steroid creams to get rid of it.


    I think this is not a problem for most people, but occasionally, the sensitivity may stick around.

  • aweate
    aweate Member Posts: 53
    edited March 2018

    found some serious relief for anyone feeling down with the sunburn. The three prong electric little massager has helped (Sharper image, Walgreens 9.99) It hurts to do it but massage the sensitive areas sl alternate a cold pack. It is not going to feel good at all for the first day or two but keep at it. The areas gets used to it and the clothes don't bother it anymore. The ice pack feels good but don't put it on The numb areas for too long. The more you do it the more normal the skin feels (obviously don't overdo)...i have done well with recovery but the skin thing has bugged me and I feel I am headed in the right direction again. Also a seamless tight cami is a must to keep your inner bicep from rubbing your side. That is by far the most sensitive part for me...massage, massage, massage. I vitamin E oil on one of the prongs on the third day.

  • Lula73
    Lula73 Member Posts: 1,824
    edited March 2018

    safety note- if you had natural tissue recon, be sure to check with your PS before using the ice packs as they can compromise the blood supply to your flap tissue and potentially increase risk of necrosis and/or flap failure.

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