Waiting for PET results and biopsy

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Curlysue50
Curlysue50 Member Posts: 22
edited October 2016 in Stage IV/Metastatic Breast Cancer ONLY

I was DX in February 13 with stage III BC. This past week has been one of the scariest. I'm waiting for results of PET scan and biopsy to be scheduled in my abdomen. My CA 15-3 was 375. Have any of of you had mets to abdomen? It seems rare? Staying as positive as possible.

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  • zarovka
    zarovka Member Posts: 3,607
    edited October 2016

    Curlysue

    Mets to the abdomen are not common and definitely tricky. The only person I know with mets to the abdomen is on a different forum. She is on Inspire. Her handle is lynn92 name is lynn. She is currently very late stage and boy has she has seen it ALL. It is a very good idea to hook up with Lynn and others who have navigated this space. That said, lynn's even lynn's mets did not start in the abdomen.

    The good news is that ERPR+ is responsive to many treatments. You are in Chicago with access to the very best medical care. Make sure you get second opinions every step of the way at a major cancer center. Things are changing fast enough such that no single doctor or even institution is on top of all the options. I expect that you will soon find a treatment that knocks your cancer to the curb.

    Finally, the first few months are unbelievably hard mentally. Hang in there. Let us know how everything goes. We learn so much from everyone's experience.

    >Z<

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  • Twirp26
    Twirp26 Member Posts: 178
    edited October 2016

    hi! I just found out that after fighting the past year with chemo surgery and radiation to my left breast and 27 positive nodes that I now have effected nodes under my right arm. I need to get a biopsy but I'm pretty certain it will be malignant. I'm so scared and feeling defeated. I was her 2 positive and still get Herceptin however my cancer did not respond well to chemo. My brain is swimming with what ifs. I assume this means I'm a stage 4. I see my oncologist on Tuesday. The unknown is so hard:

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  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited October 2016

    HI CurlySue,

    Yes, there is a bco community for we with belly mets at:

    peritoneal carcinomatosis

    https://community.breastcancer.org/forum/8/topics/...

    While this manifestation of MBC is scary and daunting, the members of this community are particularly kind, knowledgable and supportive of one another. You would be welcome there.

    I am nearing the end of over 2 years with belly symptoms and wish I'd found that community sooner!

    much fondness, Stephanie




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  • Curlysue50
    Curlysue50 Member Posts: 22
    edited October 2016

    Thanks to all of you for your responses! .. my PET scan showed cells, not tumors in my omentum and a couple of lymph nodes. There is no involvement in organs thank g-d. I also only had pain two nights, I've been fine since. (eating small amounts).. so no pain or symptoms. I'm awaiting the schedule of my abdominal radiology biopsy and then the results. Breath. My ONC plan (she actually said I didn't really need the biopsy which I though was odd).. is to go on Faslodex and Ibrance. My breast tumor marker was 375. I'm hoping to head to my new home I built last year in Bonita Springs Florida at some point. Does anyone know a great ONC down in the Naples, Fort Myers area to follow me while I'm there and away from chicago?



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