Stage 4 Fitness 2016

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  • zarovka
    zarovka Member Posts: 3,607
    edited October 2016

    Shetland - Great goals! I know you can get to a daily routine. But remember that you are ALREADY doing awesome with the Dance and Yoga. Good job getting it done at home.

    Lulubee - My favorite exercise book is The First Twenty Minutes. The basic point is that people that can get 20 minutes of any exercise 4-5 times a week get something like 80% of the benefits of exercise. Of course I like to exercise more and the American Cancer Society, supported by a lot of studies, recommends more, but there are days and weeks when its not going to happen. And for those just starting the recommended 150 minutes of aerobics per week is not going to happen. The book reminds me that even when I can only get a small amount of exercise done, I am getting a huge benefit.

    Yesterday I biked 5 miles and did a a 90 minute yoga class. Monday I walked for 75 minutes and I did a 25 minute strength training routine with DD. Today I hope to do a run while my daughter is in orchestra, but my feet hurt from the letrozol.

    Wish I could run. There are so many other options like swimming and biking. Even an aerobics class with jumping jacks and stuff is okay, but I miss jogging on the trails around my house. The bone pain from letrozol has been going on for 2 months. It didn't start until like 6 months into treatment. I've acupunctured it and massaged it into submission so it's not debilitating, but I still can't run. Grrrrr.

    >Z<

  • mara51506
    mara51506 Member Posts: 5,088
    edited October 2016

    I agree Shetland about moving more. Am starting to do more myself.

    I am a little upset with a family friend who told my mother that I have gained weight since my Stage IV dx. Yes I did gain weight. Six weeks of steroids alone will do that from eating. My body shape also changed since being in menopause from prior chemo and the steroid. More fat around the midsection. I also am exhausted so it is hard to keep moving. I will probably also start another drug regimen soon which may include a chemo. I am upset because I don't think my weight should be up for discussion given my dx. My doctors have not complained yet. Also, same person feels I should "think positive" through my terminal dx. This really burns me up. Nobody can understand what we go through except other people with similar dx. I have the worst prognosis due to the location of met, type of cancer (IBC) and being Her2+ with grade 3. There is nothing wrong with me being somewhat realistic that my life expectancy will be shorter. I don't try to predict what will happen or how fast. I think I do a good job taking it day by day. I would defy another person to take this kind of news any better. I am doing the best I can day by day. Don't need this person telling my mother I am negative and fat. Thanks for hearing me out. Can't say anything to mother since it will just cause more stress we don't need. The friend may mean well, but I am irritated nontheless.

    20 mins on stationary bike so far.

  • sissy2013
    sissy2013 Member Posts: 10
    edited October 2016

    I used to run marathons before I started treatment in September 2013 now I am happy if I can just run/walk a 5k (which I have only done once this year) In my opinion it is much more difficult for all of us that want to exercise but the tx just make it so much harder to will yourself to do it. I have had the exact same thing happen but it was a friend who dropped by my office and told me wow you have gained weight. I wanted to get up and shake him but I just said yes sir I have. Sometimes I wonder what is wrong with people, but I think some people don't think of anyone but themselves and I am sad for them. Anybody else feel guilty when your friends offer to exercise with you but you know that you are just holding them back?

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited October 2016

    Mara, I'm speechless. Which is probably a good thing. How dare they!

    Zarovka, thank you for the pat on the back. How frustrating that your sore feet are keeping you from running. The soles of mine hurt after being still, but once I am moving they are fine. I wonder if a podiatrist would have any ideas for you.

    Lulubee, any luck on arranging a recumbent bike or a yoga program?

    Sissy, it's true, so many of us are wistful about what we used to be able to do. I suppose we should flip that thinking and compare doing whatever we can do, to the alternative of giving up and doing nothing. Looked at that way, every time we exercise even for a few minutes, we are doing well!

  • mara51506
    mara51506 Member Posts: 5,088
    edited October 2016

    I agree with you Shetland. Even 5 minutes makes a difference.

    Sissy, let your friends exercise with you. This will allow them to feel they are helping you, having fun spending time with you too. If they were to feel shortchanged, they would simply workout themselves later. Anything we are willing to do physically is good to do. Moving our bodies are enough to make a positive difference. I am going to take a walk after I get off the computer as well. My mother does not think I am fat. She does worry about my sense of well being, but as she explains, she is my mother and that is her job she says. That is what she does but she does not push me to be more positive. She did tell her friend some of the info I told her regarding weight gain, steroids and challenges of being in non stop treatment for so long. I told her not to stress too much about the friend, that I just don't need to hear about it. I told her she can put a stop to it if it becomes bothersome to her as well. I feel better having a place to vent as well. Keeps it from becoming a sore spot or adding more stress to my mother.

    Z, am so sorry you can't run either. I know there are other things that can be done, but it does not lessen the loss that is felt when you can't do what you want. I felt that way when I could not walk due to the sprain then the swelling I had after my surgery in August. I could bike, but it was not the same. Hoping your pain can improve enough to allow it at some point. Hugs to you.

  • ABeautifulSunset
    ABeautifulSunset Member Posts: 990
    edited October 2016

    hello. Jumping into this thread. Some of you will know me from other threads. I'm an avid exerciser, so I'm thinking I belong here just as much as I belong on my treatment and disease threads. . I privately train twice a week,which is often just hill walking, stretching and some core work. Twice a week I head down to the beach, close to where I live, and do an outdoor group workout typically with about 4 other women AND I just started one morning a very slow and gentle beach yoga class. I also ski.. although just a little anymore, and in the summer I'm still hiking a bit and I just learned how to paddle board.

    Yet, I'm definitely more tired and move more slowly than I used to. Have more aches and pains. Sometime I just don't wanna, and sometime I just can't. Sometimes I aim for five times a week and end up with only three, but that's still three more than nothing. I can't do a lot of arm work because I have a mild case of lymphedema that I'm afraid will get worse. I can't plank or do push ups since my bilat 5 years ago... think I'm going to have to let that one go forever.

    BUT, I'm here and I look as good as I can possibly look, under the circumstances. Exercise does make me feel more normal, orat least I feel it evens me out with a lot of the rest of the population with regards to fitness, in spite of my disease.

    So that's me, and my fitness routine. Hi everyone!

    Stefanie



  • zarovka
    zarovka Member Posts: 3,607
    edited October 2016

    Welcome Stefajoy. We're all about showing up, compromising and doing our best. You definitely belong here. I tried to run for the first time in a while today and, of course, I decided I would head off down a rocky trail. I miss trail running very much. I tripped and fell hard within 100 feet of the start of the trail. Limped back to the street. I don't have the balance and I don't naturally lift my feet like I used to. But I have to smash my leg on a rock to remember this. I guess I'll blame the drugs.

    Wasn't doing badly, however. Feet getting better. Will try again Friday. On the street.

    Mara - I can't imagine having brain mets and having a more positive attitude then you without some kind of mental illness.

    Talking with friends can be like calling home from Mars. I have told almost no one. With those who know I tell them I am FANTASTIC! That is what they want to hear. Shuts down the discussion of my health and we move on to other things. They don't get it. One of the many things we lose is some piece of our relationship with family and old friends.

    And with all the effort I am put into watching my diet and exercise I too am gaining weight. Hormone suppression does that. Grrrrrr. I am tired of this already.

    >Z<

  • mara51506
    mara51506 Member Posts: 5,088
    edited October 2016

    Welcome Stefajoy. I definitely recognize you from other threads. We are definitely happy to see you. Any movement is awesome and sounds like you get quite a bit done.

    I was able to get another walk today which was great. I am about to ride my stationary bike another 20 minutes before bagging it for today. I like to ride while watching TV.

    Ouch Z, sorry to hear about the fall. Hope you are not too injured from it. I hear you on telling people you are fantastic. I tend to do that with some people in my life as well. When asked, I will say I am fine. Sometimes, I will simply say I don't want to talk about cancer. It is extremely tiresome to me as well. Hope your feet at least allow you to practice on the street. I would not be surprised to hear the drugs can cause balance issues. What don't they cause it seems. The weight is frustrating I can imagine too. I decided not to worry so much in my case and just keep moving. The comment from my mom's friend actually has spurred me to keep moving out of anger. I don't care why I am moving more, just that I am and is nice that I am able to as well.

  • ABeautifulSunset
    ABeautifulSunset Member Posts: 990
    edited October 2016

    I recently decided to open up to someone about how cancer has so negatively affected my body. Not even mentioning the whole stage 4 thing, ShE ends up crying and I''m comforting HER. This is why I'm reluctant to say anything except "I'm doing great. Thank you for asking". 🙄

  • mara51506
    mara51506 Member Posts: 5,088
    edited October 2016

    I hear you Stefajoy. For casual people, I usually say I am fine as well. Luckily have not had people use my cancer to get sympathy for themselves which is good. Just did another 20 mins on the bike so feeling good about my 80 mins of exercise between the walks and the stationary bike. Looking forward to doing more tomorrow.


  • ABeautifulSunset
    ABeautifulSunset Member Posts: 990
    edited October 2016

    These are not my words.. I stole them off of a FB post, but wow, if this doesn't say US.

    "The more I workout, the more I love my body. Not because it's perfect. But because with every step, it proves I am capable of more than I ever thought possible.

  • zarovka
    zarovka Member Posts: 3,607
    edited October 2016

    AWESOME MARA!

    >Z<

  • Heidihill
    Heidihill Member Posts: 5,476
    edited October 2016

    Go, Mara, go!!! I think that person has some kind of mental illness.

    Stefajoy and Sissy, jump or run/walk right in. I love an active fitness thread (pun intended).

    Sorry for the fall, Z. My legs are full of dark spots from all the falls I've taken, some bloody some not. They're like battle scars, a testament to our will to move.

    Moving is the best thing we can do for ourselves (after taking meds, that is) so in that respect we are all doing great! Sort of along the lines of Stefajoy's quote.

  • Iwrite
    Iwrite Member Posts: 870
    edited October 2016

    Hello everyone,

    Reporting in on activity for the good if the cause. So far this week I walked a mile, swam 1/3 mile and today did a half mile swim. Still feel creaky with random worrisome pains but seriously sooo much better after exercise. This is the last seven days of the Ibrance cycle which creates such a fog and exercise is the only thing that helps. Jury duty this week (1st time) and girls night out tonight so no complaints.

  • zarovka
    zarovka Member Posts: 3,607
    edited October 2016

    Thanks for the updates ladies. This is my favorite thread.

    I ate a brownie with some green tea today. Hope that balances out somehow. Otherwise resting.

    >Z<

  • sissy2013
    sissy2013 Member Posts: 10
    edited October 2016

    I love this thread

  • mara51506
    mara51506 Member Posts: 5,088
    edited October 2016

    The brownie sounds good. Enjoy it I say. Hope the rest was helpful for you today after your fall.

    I treated myself to pizza and cheesy garlic bread. I had to get a Dr. note which normally would cost 20 dollars but was not charged anything so used that to pay for the pizza. A guy also gave me a free parking stub so did not pay for that either. Nice day that way.

    Pedaling away on a mini peddler and watching Tv. Will probably do a couple of hours (is a tiny peddlar you can use from your chair). It is not too hard to do, but feels good to keep moving anyway.

    Stefajoy, love the quote and it is very true.

    lwrite, glad to hear from you. Fatigue fog can sometimes only be lifted through exercise. Good job. Haven't experience Ibrance myself but given to understand it can hit hard in the fatigue department.

    Great to hear from you Heidi. I love an active thread too.

  • remz
    remz Member Posts: 393
    edited October 2016

    Still waiting on Ibrance approval from insurance, but finally got moving today out of the kitchen and away from the tv. I managed to do some squats and lunges.(no small feat for me I assure you) That propelled me into a cleaning frenzy, which included dance vaccuuming and dusting.(headphones and mp3 player are a blessing).
    I definitely feel better emotionally. Im afraid of hurting myself and making things worse than they already are, but I really need to do this.I hate being sedentary.
  • mara51506
    mara51506 Member Posts: 5,088
    edited October 2016

    Great job remz. Housework is as much exercising as walking or other things. Great job, keep moving as you can. Rest when you need to as well. Love hearing about everyone moving. It inspires me as well.

  • Sherriw
    Sherriw Member Posts: 47
    edited October 2016

    I'm not much for posting, but I do lurk a lot in this thread for motivation. It's so inspiring to hear everyone's updates. I did try a couple planks in support, yikes! I didn't expect them to be easy, but I've lost a lot of strength.

    I just wanted to chime in with my own wistfulness for running. A good long run used to be where I worked through my thoughts, got my shot of endorphins, and goosed my self esteem. I'm really at a loss without it. Even when I manage a little running, I never get to that point where I'm just eating up the miles, enjoying that runners high. I've been out on the bike more, somedays it's close and a lot friendlier to the neuropathy.

    On the house cleaning front, I've got my own routine. I put on my workout clothes, and put on some music (or a book on tape). For about 30 minutes I clean as much as fast as I can. I treat it as part of my exercise. Straighten up, hustle up and down the stairs with a load of laundry or putting away the clutter. Most days I tackle one chore (dusting, sweep and mop, deep clean something that's been bothering me, etc.). It's just enough to keep the place livable. Then I'm warmed up and out the door for my daily exercise.

  • mara51506
    mara51506 Member Posts: 5,088
    edited October 2016

    That's a great idea Sherri. I have to employ that myself since we are having both brothers and their families over for Sunday dinner at our place. I have been less than the best with the housework, mostly just clean bathrooms and laundry myself. I do tackle a bigger chunk once a day myself, ie vacuuming, mopping myself so I don't feel overhwelmed. Will be nice to have the company at my house this time since has been a while.

  • zarovka
    zarovka Member Posts: 3,607
    edited October 2016

    Thank you for the stories ladies. Yup, I charged down that trail looking for that self esteem boost and landed on my face. Nursing my ego today. Will try a yoga class tomorrow. Obviously I need supervision.

    >Z<

  • BionicBunny
    BionicBunny Member Posts: 146
    edited October 2016

    Love all the activities here! What an inspiring group!

    And as I am reading posts, I'm thinking, "Yep, I know exactly what they are talking about." Though I exercise and work out regularly, I am slower than I've ever been-walk slower, bike slower, swim slower-just move slower all the way around. And it frustrates me. But on the positive side, my family is great, always encouraging me and having fun together. I also have certain friends that I am very comfortable with, walking and biking, but I am definitely selective about who I work out with. No room for negativity.

    Earlier this week I got in several bike rides and some treadmill walking. Very rainy this morning so it was an early trip to the gym for time on the treadmill and spin bike.

    Welcome to all the new posters. So glad you're here and moving with us. Have a great weekend everyone.

  • ABeautifulSunset
    ABeautifulSunset Member Posts: 990
    edited October 2016

    I had the great fortune to attend the Desert trip music festival this past weekend. Because I was traveling for 5 days, I missed a few workouts. Then I got sick on my last day and have literally been in bed, or on the couch, all week. I'm going freaking nuts! I not only feel sick and blah, but the lack of exercise brings on bad cancer thoughts and depression.(and reading too much political commentary... ew!) It's amazing how much we really need to move our bodies.

    Since all my surgeries, I miss push ups and bicep curls the most. I had kick ass biceps. But overall have adapted. Now I just need feel well enough to do it. I haaaate being sick. Waaaaahhhh!!

    Btw, I will only allow myself a pity party a few more days (must heal) then I'm back at it again.

    Stefanie

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited October 2016

    Nice to see you here, Stefanie. Hey, someone recently posted about a study that suggested massage has some of the benefits of exercise, so I am prescribing a home massage for you. Make a call.

    Yes remz, a friend pointed out to me that if people are afraid to move for fear of getting injured, they get out of shape and even more prone to injury. Of course when you are dealing with cancer, you really have to work smart and listen to your body. Zarovka, have you seen those T-shirts that reveal that the wearer "Runs with Scissors"? I'm thinking we need to make you some version of that.

    I want a brownie now.

  • roosarider
    roosarider Member Posts: 20
    edited October 2016

    Hello - I have not started my Ibrance yet, but having some groundglass nodules in my lungs that make mountain biking hard. Not able to climb hills - become breathless - so I have had to resign to flatter surfaces (big sigh). I hope and pray that this medicine could kick the lungs back so I could go back to mountain biking which I love. Husband and I took off to the trails yesterday and got wonderfully lost. Had to keep hiking 2.5 hours until we found our way out. I love adventure and new trails. Always keep water with you!

  • mara51506
    mara51506 Member Posts: 5,088
    edited October 2016

    Welcome roosarider, I hope the Ibrance kicks back those nodules too for you so you can get back on your bike. Glad to hear the getting lost was a good adventure for you and your DH. Flatter surfaces count too so great job. I see you are recently diagnosed as well but glad you found us. This is a pretty active thread and is extremely supportive if you are ever feeling down.

    I am envious of places with good weather/trails to walk or bike on. I pretty much go around my neighbourhood. Last couple of days are rainy and cold but I will get a jacket and venture out now that it has stopped raining.

    Stationary bike for the rest of the day for me, will aim for at least an hour. I usually break up into 20 mins at a time. Will aim for at least 20 mins of walking as long as it is not raining. Once my disability kicks in, I plan to join a gym of some sort as well since winter is coming. I don't walk in the winter since I am good at falling.

    Stefajoy, you are right. Now that I am moving more, I do feel less dark about my situation. I don't realistically expect to fully put it aside, but I don't need to think 24/7 about all the possible ways my brain met could come back or side effects of radiation etc. The exercise does push the fatigue back some and makes errands easier to do as well. Small victories. I agree with Shetland, if you can't move, maybe massage can be helpful. I had a cold recently myself which was not fun. It kept blocking up my ears more than anything else. That made me feel so foggy, similar to the fog I had pre dx of the brain met and during brain radiation. Not fun. Glad it went away. Hope yours improves soon.

    Hope everyone has a good day, Z hope you are doing better after the fall.

  • roosarider
    roosarider Member Posts: 20
    edited October 2016

    Hey mara51506 We all are good at falling at times. Listen have you ever tried Nordic Poles or some call them Nordic walking sticks? I walk with them because I am a clutch and they make me more solid on trails. You can get them from allover - even at walmart. http://survival-mastery.com/skills/camp/how-to-use-walking-poles.html

  • zarovka
    zarovka Member Posts: 3,607
    edited October 2016

    Walked to a "prenatal" yoga class today and did yoga for an hour with 5 ladies in their third trimester. Didn't injure myself. Walked home safely. Victory. I intended to jog to the class and back, but today my feet and calves were hurting a lot. Brisk walk instead. I am a long way from the days I ran half marathons, but with little adjustments I can keep moving.

    Tonight I take my daughter and her three friends to a huge art installation/haunted house in the next town over. Spending the night in a doubletree with three 10 year olds. Please keep me in your thoughts and prayers.

    Glad you found us here roosarider. Only after my diagnosis did I discover mountain biking. I have bruises all over from falls. Glad to have someone on this thread who understands. The rest of the ladies think I am crazy. But I can get a real workout on a bike that I just can't get running anymore. Somehow it doesn't trigger the joint pain in the same way.

    >Z<

  • remz
    remz Member Posts: 393
    edited October 2016

    Zarovka, What is a doubletree? I'm intrigued. 3 10 year olds should be a hoot! Thanks for putting a smile on my face.

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