Radical Remission Book Club by Kelly A. Turner, Ph.D.

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  • lala1
    lala1 Member Posts: 1,147
    edited August 2016

    I too have problems with plantar fasciitis. The only thing that helps me is to make sure i don't walk too much every week (which I hate since like you I love to walk!) and I use Voltaren gel on a regular basis on my heel and instep. If i get a flareup, I cut back on walking and use the Voltaren till it eases. Then I slowly build back up, rinse, repeat :)

    Oh and a tennis ball and/or frozen water bottle. Roll my foot over one or the other every day to keep the muscle stretched.

  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited August 2016

    I have not finished the book, but I am shocked exercise is not on the list. i have focused a lot on diet and exercise because they were something I was very able to control. I mostly walk for exercise but I also ride my bike about once a week and I do a lot of gardening. All of those get me out in nature. We have extensive trail systems near me so there are a lot of good places to go and I enjoy it more rather than walking around my neighborhood. I just hit 7 hours of exercise for the week this evening. In the winter, sometimes i will turn on youtube and dance. Heidi knows I learned to Salsa via Youtube . I would like to find a place to go and dance the salsa.

    As I said these two items are within my control. I also try to "stop and smell the roses" every day. I plan lunches with friends. I like to get obsessed with things (music, gardening, diet) and I think that is a coping mechanism. Work is something I have to do and I would quit if I could. This part has been a challenge because it can be stressful and is not my passion. Sometimes I worry that will be my downfall in my survival plan.

    The only supplements I do is Vitamin D. I also decided to use less sunscreen and get natural vitamin D? As part of a Paleo lifestyle, it seems a natural. Oh and I sleep with a sleep mask since I read that tamoxifen was less effective if there was any nighttime light.



  • eelder
    eelder Member Posts: 169
    edited August 2016

    lala.... thank you for the suggestions to ease the pain. It's frustrating, isn't it? I will try this!

  • glennie19
    glennie19 Member Posts: 6,398
    edited August 2016

    eelder: have you seen a doctor about your foot? I had that years ago,, and calf stretches and an custom made insert for my shoe fixed the problem. It is not a quick fix,, but it did work.

  • eelder
    eelder Member Posts: 169
    edited August 2016

    glennie.... haven't seen a doctor yet. needed to find the time. now that kids are back in school i should hopefully be able to get in to see someone.

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited August 2016

    Yes, eelder, see if the podiatrist thinks custom orthotics would help. They ought to if you pronate, which stretches things too much. Also wear good walking or running shoes all the time; no barefoot or sandals until it calms down.

  • dragonsnake
    dragonsnake Member Posts: 159
    edited August 2016

    Eelder, what helped me with plantar fasciitis is a good pair of running sneakers + special inserts. I was fitted at Fleet Feet, a chain that sells running shoes: https://www.fleetfeetsports.com/catalogs/fit-process.

    They allow a return of worn footwear. It is safe to buy from them, and return the shoes if your feet start hurting after some time. They also can remove the original insert from the shoe, and put a special one that supports and cushions the heel and arch in a way that you can still walk with plantar fasciitis, you just have to explain them what the problem is, and they will help finding a solution. They helped me to find the inserts for my current shoes. My plantar fasciitis was so bad that I could feel the pain laying in bed after breast surgeries; I can walk 4 miles a day now.  

  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited August 2016

    Hi Eelder,

    I've had trouble with plantar fasciitis in the past and continue to have terrible hand and foot cramps.

    Here are some things that helped me that may help you too.

    No cheap flip flops and no bare feet (except on sandy beaches that massage your soles). All footwear should support the foot. Even slippers for around the house need to be supported by design or with insoles. Hiking shoes should fit well and have ankle support.

    Throw out shoes that are starting to sag in heels, soles or sides. Many experts say, toss shoes that are over 1 year old. At least wear insoles.

    Roll foot on a golf ball, tennis ball or footsie roller to stretch foot muscles.

    Be sure to stretch calves, legs and tush regularly. Before getting up from bed or chair, flex and point the toes, rotate the ankles, bend the knees and hips, release as many sleep-bound muscles as possible. When sitting, do gentle walking motions with your feet to relax and massage them and your calves.

    Do deep relaxation - go to yoga, listen to online or recorded guided instructions, learn body scans and relaxation exercises.

    You might want to check out biofeedback devices like HeartMath or GSR2.

    For cramps, supplement with oral magnesium and/or use spray magnesium oil (it dries tacky, not oily, so you you won't want to leave it on your hands).

    My own best helper is listening to my body engaging Focusing techniques. I get the most amazing and immediate feedback about what to do and what not to do. Nothing like an up-to-the minute body-mind response, rather than imposing mind upon body.

    Hope you find something helpful here.

    warmest healing wishes, Stephanie


  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited August 2016

    My favorite book for encouraging physical exercise when living with cancer (especially advanced cancer) is Keith Block's Life Over Cancer

    http://www.lifeovercancer.com

    My big problem with that book is all chapters and topics lead to very expensive treatments, usually at the Block Center in Chicago. Yes, I've good friends with extraordinary results from his clinic, but only a few can afford it. I can't and I don't like being marketed to.

    Anticancer: A New Way of Life by David Servan-Schreiber is a much more accessible program, but not as detailed for those dealing with problems of advanced cancer.

    http://www.anticancerbook.com

    I do prefer Block's dietary advice, since I'm wasting away and don't want to do either the very low fat diet suggested by Servan-Schreiber or the "foods" laden with sugar and bad fats promoted by some cancer "nutritionists".

    Revealing my natural and whole foods bias. Local, organic and seasonal choices, if at all possible.

    Best Stephanie

  • gardengypsy
    gardengypsy Member Posts: 769
    edited August 2016

    In the middle of RR, and I really like the offering. It will guide me.

    My big challenge is my wine. The link between Breast Cancer and alcohol is strong, and I am going to have to give it up completely because there's no way I can accept the recommended 3 oz per week!

  • Wendy3
    Wendy3 Member Posts: 1,012
    edited August 2016

    Pot helped me there

  • eelder
    eelder Member Posts: 169
    edited August 2016

    Stephanie, your posts are wonderful. Thank you.

    I have been having 2-3 glasses of red wine per week. I'm hearing this is a no-no, right?

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited August 2016

    After reading up on it, I concluded that alcohol could be especially risky for a very hormone-driven bc, which it seems ILC is. It wasn't a big deal for me to give up the occasional half-glass of wine, but I can understand that for some it is a quality of life issue. Here's just one link for starters.

    http://www.breastcancer.org/risk/factors/alcohol

    If I'm going to a gathering where special drinks will be served, I take my own special, reasonably healthy, fizzy drinks that I save for such times.

    I'm reading Block's Life Over Cancer at the same time as RR. I don't mind the references to the Block Center, because there is also advice on what to do if you can't go there, at least for the issues I am currently interested in.

  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited August 2016

    Good essay, emphasis added by me:)

    Accessing Desire As Loving Motivation

    --by Miki Kashtan (Aug 22, 2016)

    When Yannai, my sister Inbal's son, was three and a half, his grandparents were visiting and were staying in the downstairs room. At about 8am the next morning Yannai started banging a pole on the floor upstairs. There ensued the following dialogue:

    Inbal: "Seeing you banging on the floor, I am worried about our guests. I would like them to be able to rest as long as they wanted. Would you be willing to stop banging or to bang on the couch?"

    Yannai: "I don't want to, but I'm willing."

    I: "How come you don't want to?"

    Y: "Because it's not waking me up!"

    I: "So how come you're willing?"

    Y: "Because I want to consider you."

    He then put down the pole, without any of the sense of resentment and anger that people often exude when they are doing something against their will. Inbal expressed her gratitude to her son for meeting her need for cooperation, and they moved on with their morning.

    When Inbal shared this story with a group of people at one of her workshops, one man said: "But of course, your son was clear that if he didn't do what you asked you would take the pole away!" "No," she replied. "I would not have taken the pole away. In fact, I believe that because my son knew that I would not physically take the pole away from him, he was willing to put it down even though it was not what he wanted."

    As I see it, the ongoing absence of coercion and "should" thinking was the context within which Yannai could find and cultivate his organic and genuine desire to care for the well being of his mother.

    Whenever I notice myself using "should" thinking, I pause to translate. Instead of "I should …" I aim for "I want to … because I …." The linguistic turn is simple. The internal shift is not. It's easy to say "I want to eat fewer cookies because I want to care for my body" instead of saying "I should eat fewer cookies." It's not so easy to access our desire to care for our body sufficiently to make the difference, to access the desire so deeply that it can serve as a loving motivation to eat something else rather than a self-admonition.

    From:

    http://www.awakin.org/read/view.php?tid=2196

  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited August 2016

    i think that is a good example, Stephanie. Yannai stopped because he is not the type of person to upset his mother. You kind of have to make it part of your personailty. When I started eating better, it was sheer fear that everything I put in my mouth could kill me, but that motivation wont last. Now I just realized it is more who I am " I am not a person who will abuse their body with food-I eat like my ancestors-I cant risk eating whatever I want like other people can". These are not things I say out loud to people. This is what I state to myself. Its a different mentality than pre-BC days(its Ashleys baby shower and that cake looks so good so I will start my diet Monday, followed by some other reason two days later)

    I was never much of a drinker but I think it would be a similar self talk.

  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited August 2016

    Yes, Yannai is said to be a wonderful human being...

    His mother Inbal Kashtan (author of Parenting From Your Heart) includes his story in her essay, about her family's cancer experience, including her own ovarian cancer – Holding Hope, Lightly,

    My son, now 13, and I are family, friends, and mutual mentors. We can talk about anything, even cancer. It's how our family has lived since he was born: everyone matters equally—my wife, myself, our son; we respect everyone's autonomy and self-knowledge, trust everyone's intentions, always aim to understand and connect.

    Over a year ago, after we got some particularly sad news about my health, I asked my son how he was doing. He said he was sad but okay. I persisted, gently—was he worried? "Ima [mother]," he reminded me, equally gently, "I'm not a worrier."

    "So what do you do instead of worrying?" I asked.

    "When there is bad news, I'm sad. And then, as long as there are things to try, I'm hopeful again. It's not an expectation, I just hold the hope lightly."

    I have learned so much from my son; this lesson has been especially powerful. I used to be afraid to hope, terrified of disappointment. Dashed hopes produced a sense of humiliation, like "I should have known better." Witnessing my son's example—his authentic capacity to live fully in the face of uncertainty by being open to both hope (held lightly) and sorrow—helped me form a vision of what's possible for me.

    Inbal died two years ago, but before going, she transformed ovarian cancer and available treatments.

    Others' stories about living with cancer diagnosis and treatment are available at Healing Journeys, follow this link https://www.healingjourneys.org/resources/healing-...


  • gardengypsy
    gardengypsy Member Posts: 769
    edited September 2016

    Checking in.....

    One place I am successful lately is a "radical change in diet." For me, it's been about fruit smoothies, no meat , lots more beans. This winter I will roast an organic, local chicken from time to time, but going vegetarian has been fun.

    A lot less sugar and simple carbs. I am about to let go of my wine. That's a tough one.

    Stephanie~ I am with you on the chips and salsa. The garden is blessing me with tomatoes and peppers.

    Another place that I am successful is the 30 minutes a day on the bike. I love my recumbent.

    I am stuck with the spiritual piece. A long time ago, I decided that the higher power wasn't it for me. So I look to the wonder of nature for my spiritual connection. I am trying to choose readings that help me understand life on this planet.

    I have just starting seeking out new herbs to try and I am referring to Susun Weed's "Breast Cancer? Breast Health!" My daughter just took a workshop with her.

    Ok. So that's what I am doing. Looking for help on the joint pain from Tamoxifen and neuropathy from chemo. But that's a different thread!!!

  • Wendy3
    Wendy3 Member Posts: 1,012
    edited September 2016

    I just joined Kelly Turners blog post so I get now emailed to me conversations with various other patients and they tell what they are doing. Very interesting it's on her website if anyone else is interested.

    Wendy

  • Tanya222
    Tanya222 Member Posts: 12
    edited September 2016

    Wendy, I tried to find what you're talking about, the only page I can find is like a "story of the month", is there a section with all the stories?

    I just borrowed Radical Remission from my library & am finding the stories very inspiring! Some of the turnarounds are amazing to read.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2016

    Just a note to let you know she is on twitter as well.

    Hugs, Carol

  • Frill
    Frill Member Posts: 311
    edited September 2016

    Hi! I've been slowly taking this thread in. I've been dealing with so much depression as I'm coming up on my DX date and I'm not through with treatment because of so many complications. Starting out my attitude was so wonderful, and before DX I rode my bike to work, worked out, had been vegetarian for a year for the most part.

    But that's not why I skipped to the end and am posting.

    It's the plantar fasciitis business! I had done EVERYTHING. EVERYTHING. Shots, socks, wraps, stretches, tape, balls.... Then I met a woman at a block party who recommended I get some of these shoes. I'm not sure they're available, because Sketchers sort of "stole" (not the right word) the general idea with the wonky shoe bottoms, but these shoes actually give you whatever benefit necessary to get rid of the PF. I swear, I bought a Mary Jane style and a tennis shoe style on Ebay at the time for a fraction of the price. I can't remember how long it took me of solid time wearing those funky shoes, but it cured it. I haven't dealt with it since.

    Ok, it took me a bit to find the name of the shoes. My Ebay didn't go back that far. I'm pretty sure they were MBTs. There's conflicting research on this area, but all I can say is that nothing else worked for me but wearing these shoes. If you're at the end your PF rope and you can get a good deal, they might be worth a shot.

  • Wendy3
    Wendy3 Member Posts: 1,012
    edited September 2016

    Tanya it's on her web page

  • Frill
    Frill Member Posts: 311
    edited October 2016

    I just got the book. Just the first chapter. I mean, the food stuff was mostly things I'd already read, but it was particularly ironic while reading it because DBF was yelling at me to eat and had brought me a huge glass of coke and a turkey sandwich. I mean, I gave up Coke Zero with the DX a year ago. After that, the processed meat full of hormones, the mayonnaise, the gluten filled bread.....

    I ate the tomato and spinach out of it. All of the things above are things I'd already been saying and not eating.

    I should probably skip ahead to the suppressed feelings chapter. Lol.

  • zarovka
    zarovka Member Posts: 3,607
    edited October 2016
  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited October 2016

    We've often written of not only diets, supplements and exercise, but also in the promise and possibility of making real and lasting changes in our lives.

    I have a perpetual habit of worry, something deadly for stomach/spleen, appetite and digestion in Traditional Chinese Medicine. For 35+ years, I've been working with a variety of methods for dealing effectively with worry, including spiritual/emotional "solutions" to melt its influence, TCM acupuncture and the gentle art of Jin Shin Jyutsu (love the finger holds suggested in this chart).

    image

    I've made up a simple chart below for others who face similar emotional challenges compounded by fear/worry/stress of living with a cancer and/or terminal diagnosis.

    Stephanie's simple chart of things to try when emotions overwhelm:

    emotion – spiritual antidote – tcm – jsj finger holds

    Worry – faith – stomach/spleen - thumb

    Fear – love – kidneys – forefinger

    Anger – forgiveness and compassion (slowing down & checking in) – liver – middle finger

    Sadness/sorrow – lungs – nurture and restore – ring finger

    Trying too hard/perfectionism – reciprocity – heart – little finger

    Additionally, I recently read this chart and a set of 6 rituals for resolving worry:

    image

    Ancient Wisdom Reveals 6 Rituals That Will Make You Happy – The Stoics

    Events Don't Upset You. Beliefs Do: Only the end of the world is the end of the world.

    Control What You Can. Ignore The Rest: Worrying never fixed anything.

    Accept Everything. But Don't Be Passive: Nobody recommends denial. Accept. And then do something.

    Choose Whose Child You Will Be: "What would Batman do in this situation?"

    Morning And Evening Rituals Are Essential: Plan for the day, then reflect on the day.

    http://www.bakadesuyo.com/2016/09/ancient-wisdom


    The Elements - Traditional Chinese Medicine

    http://acupuncturist.edu/the-elements/


    Balance Disharmony Holding Fingers – Jin Shin Jyutsu

    http://balancedwomensblog.com/bring-balance-to-disharmony-holding-fingers/

    Please click on links above for more information.

    May this prove helpful to others...these emotions, while pesky, can be amazing guides, leading us to where we'd rather not go. May we be brave enough to follow their lead. And even braver to resist their overwhelming influences.

    well wishing always, Stephanie

  • Wendy3
    Wendy3 Member Posts: 1,012
    edited October 2016

    So this was what I got in my fortune cookie, somebody or something is trying hard to tell me something I think.image

  • Faith-840
    Faith-840 Member Posts: 995
    edited October 2016

    Stephanie, I have and am working my way through the book on Jin Shin Jyutsu you recommened. Trying hard to have less worry in my life. That's been my life too much. If you can't guess , I'm a control freak. LOL

    Wendy, love your fortune cookie, if only, we could believe it.

    Healing prayers to all,

    Faith (in the future)

  • glennie19
    glennie19 Member Posts: 6,398
    edited October 2016

    Wow, Wendy,, that was quite the fortune!

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