Doing Taxol soon. Scared of permanent hair loss

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Sunflower64
Sunflower64 Member Posts: 166
edited February 2017 in Second or Third Breast Cancer

I'm scared of losing my hair permanently!!! Any thoughts

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  • Jackster51
    Jackster51 Member Posts: 357
    edited October 2016

    Hi Sunflower... I am one of the unlucky gals that did not get her hair back :-( But this risk is only with Taxotere, as far as I know. Thats the one I had and all the other ladies.. you can read up on us at www.aheadofourtime.org

    I have not heard of this happening with Taxol, but maybe others have?? I will say it sucks HUGE time, as I had no idea it was a possibility - I had chemo in 2011, and Sanofi Aventis did not change the label until last year.. Had I known, I would have asked for Taxol - or you can do cold caps... Lots of great info here on them... All the best to you!

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  • ShazzaKelly
    ShazzaKelly Member Posts: 909
    edited October 2016

    Sunflower if you are doing weekly taxol then I have never heard of anyone with permanent hair loss. As a Stage 4 I've been on it for 3 years and while it all fell out to begin with I now have a full head of hair despite still getting Taxol every week.

    While I've never used cold caps a lot of ladies do with great success. Maybe check out the Weekly Taxol thread.

    Good luck with your treatmen

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  • KBeee
    KBeee Member Posts: 5,109
    edited October 2016

    As the others have said, that risk is with Taxotere, not Taxol. Taxol is very doable.

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  • arielsimonne
    arielsimonne Member Posts: 2
    edited October 2016

    Hi,

    Don't be scared the drug affects everyone differently. For me it's been 5 years with no hair re-gowth but was taking Taxotere.

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  • cali64422
    cali64422 Member Posts: 4
    edited November 2016

    I had Taxol, not Taxotere, and only got about 70% of my hair back. I don't mean to dampen your hopes or anything. I had more and different chemo a few months later, which didn't help my scalp, I'm sure. (5-FU AND MITOMYCIN-C). Those cooling caps were not available at the time. I would use one if I had it to do over again. There's no lawsuits for people who lost their hair to Taxol.

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  • ShazzaKelly
    ShazzaKelly Member Posts: 909
    edited November 2016

    so I've been on weekly taxol for over 3 years now. Same dose as the 12 week course. I lost all my hair to start with but it started growing back a few cycles in and while it's been slow I now have a full head of hair and that's despite getting Taxol well over 100 times.

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  • snowsogal
    snowsogal Member Posts: 79
    edited November 2016

    Hello: I had Taxotere, but I started using Brian Joseph's Shampoo before my Chemotherapy started. My hair did grow back. Please remember that not every one will have the same experience with Taxotere. So, every one I caution you not to be so negative with Taxotere. It is possible if I had not used the Shampoo specially formulated for people going through Chemotherapy and Radiation, maybe my hair would not have grown back.

    It was the mastectomy boutique that I went to that introduced me to this product line.

    Cindy


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  • pmsanders
    pmsanders Member Posts: 4
    edited February 2017

    I'm sorry that you're going through this! Yes, it is a terrible thing to lose your hair, even temporarily! I did have taxotere after my recurrence 9 years ago. I was fortunate and do have a full head of hair now. I hope this helps and I wish you well.

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