Would love feedback!
I am a 62 year old (young) who found out today that I have stage 2 cancer. Not sure what to do...I have an appointment next week for an MRI. he Doctor I saw seemed great. He asked what I wanted to do, but I was still in a state of shock. I have no knowledge of various types of treatments. One better than the other?
Help!
Thanks...
Joyce
Comments
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Hi Joyce, there is no better, just what is right for you, and sorting that out can take some doing.
I sometimes say BC is the chatty cancer because there are so many decisions.
You will probably decide about what type of surgery to have, whether to do chemo, what method of radiation, and whether to take anti hormonal medication. Fortunately you don't decide this all at once.
Good luck and hang in there.
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Joyce-
We just wanted to welcome you to our community here at BCO! We're sorry for the circumstances that have brought you here, but just know that you are not alone, and we are all with you!
The Mods
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Hi Joyce,
I am so sorry you received this diagnosis but you have come to a great place for information. You have a steep learning curve ahead of you. After your MRI you will most likely have a biopsy. Once you have the biopsy you'll get a pathology report where you'll learn what type of cancer, if you are ER/PR positive or negative and HER2 positive or negative. Your Drs should be able to judge if your lymph nodes are involved (but they'll know for sure after surgery). Once you have pathology then it's time to talk treatment options. Will you have lumpectomy or mastectomy? Will radiation be recommended? Is chemo recommended? Do you want reconstruction? Ask your surgeon to order an Oncotype test to see if the benefits of chemo outweigh the risks.
You will most likely have a Breast Surgeon, and a Medical Oncologist. You might also have a Plastic Surgeon, and a Radiologist Oncologist. Many, many people get second opinions. It's always nice to get several points of view regarding treatment.
I was 62 when diagnosed also. My surgery was delayed 3 weeks because of commitments but my Drs were fine with the delay. Generally this is not an emergency and you have time to get all the information you need to make decisions. The diagnosis scared me to death and shook me to my core but now, 5 months after surgery, I feel like I'm 100% - ripping down walls and hanging drywall to remodel my kitchen. I refuse to let this cancer slow me down. I had a double mastectomy, was able to skip radiation and chemo and just take one little pill every day to make sure no nasty stray cells come back.
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Dear Mods,
Thanks...right now I am just having difficulty telling family members and thinking about work. Should I stay or should I go? How much interruption will this be and for how long? I hate sympathy. Just saying it aloud to others makes it real.
I am going to get involved with a local support group but finding this outlet is reassuring already!
Thanks,
Joyce
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Dear Cookie gal,
Thank you! And yes, right now a cookie sounds wonderful
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Dear Lucky Number,
Yes, I had a biopsy already. I am positive to estrogen....??? there are things from the pathology's report that sound gibberish to me at this point. I know I have stage 2.
I feel like I need a crash course in BC.
I am very lucky that I have a very loving husband who will ride this storm with me.
There are bumps in the road of life, but I just hit a pothole. This car is still going forward thou!
? Which treatment is more sure of getting all of the cancer out? Which is less disruptive to your life?
Why do I feel like my body has failed me?
🙁
Thanks!
Joyce
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Joyce, sorry you found yourself here. I was DX'd at 58. It is a hard pill to swallow. I think feeling like your body has betrayed you is a normal reaction. Do you have ILC or IDC? If you are going to go to a multi-disciplinary facility, they will coordinate with a nurse navigator and all Dr's involved to get the best treatment plan for you. Kind of a team concept. As far as telling people, you may want to wait until you have more information, but that's up to you. As far as "are some treatments better than others?"....you will find that BC is not a one size fits all disease, as we are so often lead to believe. So, yes, some treatments are better than others, depending on your type, stage, grade, etc, but it's still not as black and white as we wish it would be. Get as much information as you can about your DX, be your own advocate, follow your gut and BREATHE! You've go this. PM me if you like. Best wishes.
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i am sorry about your diagnosis. I was shocked when it happened to me and completely alone, so I was lucky to find this community.
It is important to know that although this is a serious condition, it is not an emergency. The cancer usually takes years to develop. You can safely take three weeks to get information and weigh options. There is a great, clear and easy to understand book by Dr. David Chan, "Breast cancer, Real questions, real answers" in which he answers the most common questions his patients have asked throughout the years. It is the best book I have found for me as a patient and helped me to understand the options and risks better. I include the link below.
Please ask around for recommendations on oncologists and surgeons. It is better to hear from other patients and their families than from other doctors. Even if you liked the first oncologist, it is always good to have a second opinion. Write down your questions and go methodically through them in your appointments. Try to bring someone with you (who is clear-headed and take good notes). It is amazing how stress clouds memory.
Finally, remember that the doctors work for you. If they are insecure and get angry when you have questions or when you ask for options, give you only one, change doctors. It is your health, it is your chioce.
https://www.amazon.com/Breast-Cancer-Real-Question...=sr_1_1?ie=UTF8&qid=1475330822&sr=8-1&keywords=Real+questions%2C+real+answers+breast+cancer
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i did not tell anyone for three months. I finally had to tell my employees because I had to start chemo and of course, I would be out for appointments, etc.
Just take your time. You do not have to tell everyone or anyone. Also you could just ask somebody you trust to inform the other people that you want to know about your diagnosis. This is a very emotional time. Take it easy.
I worked through the whole treatment. The longest time I was out, was two weeks, for the mastectomy. Working had two major benefits: it kept my mind focused on other things than my condition and it kept me within a group health insurance so I was protected from abusive behavior from the health plan company.
You have to decide for yourself about working, depending on your treatment and line of work, but you have time for that also. Wait until you have all the facts and know how the treatment is affecting you.
Good luck!
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I was 63 when DXd. I was never asked 'what do you have ant to do'. I was told what my TX plan needed to be from the 'git go'.The scans/tests that will be done will give the Drs more info as to what your options might be. Different types of BC have different protocols and prognosis. Your overall other health can come into the possible TX plans.
Get a notepad and write down all the questions you have so you don't forget to ask them. Make a second copy to hand to the Dr - he/she may be able to combine several questions into one answer. Use your smart phone to record what the Dr tells you so you can review exactly what the Dr tells you if you need to. It's hard to listen and write down what is said. Even if you take someone with you they may not be able to get everything written down correctly. Be sure to find out the type of BC (not all BC types are the same), your ER/PR and HER2 status is, what other scans/tests will be done, different TX options, are a few questions to ask. Will you be doing a lumpectomy or mastectomy? Neoadjuvant (pre surgery) chemo or adjuvant (post surgery) chemo or both. Will rads be done? Is genetic testing being suggested? If he/she does not explain in words YOU understand keep asking until you understand what you're being told.
No one here can tell you what would be 'best' for you. We are not Drs who are actually seeing you. We can only tell you of our personal experiences - which are very divers.
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HI Joyce, welcome to the club! I was diagnosed recently and am having surgery on Monday, less than two weeks after diagnosis, which is awesome as far as I am concerned. I found it helpful to do lots of research so I could understand what the Dr was talking about. The BC.org website is great, so too one at Johns Hopkins University. No doubt there are others. What threw me was my Dr talking about 'Conservation' surgery without saying it is the same thing as a lumpectomy, so I agreed to it even though it comes with compulsory radiation, which I don't want unless necessary. I am 57, I personally don't feel (now anyway) threatened in my identity by having just one breast. After speaking with the breast nurse (my age, 14 years experience) it confirmed my strong instinct that a full mastectomy is right for me. Will I regret that? If I want to I can have reconstruction later on (unlikely).
You have to listen to the Dr, and trust them, but listen from an informed position. Read the booklets from the cancer society (given to me too late, it has to be said) they are really helpful although do bang on about 'bereavement' when losing a breast. I am sure it is true for some, but not all of us feel that way.
Mostly I keep thinking that I had cancer for a while before I was diagnosed, and it is so hard to resist the impulse to get it removed asap. But I had just as much cancer before so a few days to think probably won't make any difference. A couple of weeks / months might, so don't take too long but I implore you to think hard and listen to your heart to choose from the options presented. And if you don't know what they are talking about, ask ask ask until you do. Best of luck.
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