mouth sores

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Blessed2016
Blessed2016 Member Posts: 37
edited October 2016 in Just Diagnosed

hi everyone. Glad this site is available!! I started chemo on Sept. 19th with A&C and a few days later have the worst sores in my mouth. This is my week off and despite the fact that my appetite is great, its so hard to eat. Im getting all my nutrition through food, supplements and vitamins. I have used the salt and baking soda mix, biotene, l lysine 1000mg daily but nothing seems to help them go away. I also have magic mouthwash. Im hoping this is not the way my treatments will go for the next 5 months!!! Im trying ice chips on my next treatment. Anything else i should try?? Thank you in advance. By the way i couldn't add my dx. Breast stage 2b, 3/13 nodes, E and P positive and Huer 2 negative. Tumor was 1.6 cm in the right breast but 1.9 cm in the sentinal node. Had lumpectomy in July with SN biopsy and re-excision in Aug. With AND.
42 years young.

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  • Blessed2016
    Blessed2016 Member Posts: 37
    edited September 2016
    😢
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  • Moderators
    Moderators Member Posts: 25,912
    edited September 2016

    Hi Blessed -- we're so sorry you're experiencing this uncomfortable side effect of chemo! You may get some more responses if you post in the Chemotherapy -- Before, During and After forum.

    In the meantime, you may find some help on the main Breastcancer.org site's page on Mouth and Throat Sores.

    We hope this helps and that you feel better soon!

    --The Mods

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  • sensitivehrt
    sensitivehrt Member Posts: 359
    edited September 2016

    you might check with mo if you can increase lysine when mouth sores are present. Mine had me take 300mg daily while I had sores.

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  • Blessed2016
    Blessed2016 Member Posts: 37
    edited September 2016

    300 or 3000?? I'm taking 1000 now.

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  • Blessed2016
    Blessed2016 Member Posts: 37
    edited September 2016

    thank you, I will do that.

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  • peyton3
    peyton3 Member Posts: 43
    edited September 2016

    Drink lots of water during and after each chemo. Also rinsing three and four times a day helps.

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  • meg2016
    meg2016 Member Posts: 287
    edited September 2016

    I had really bad mouth sores also. Try using hydrogen peroxide on them. You can rinse and spit with it, but even better if you can hold it on one area for a bit- like 30 seconds on one side of your mouth, then then spit and put in more and 30 seconds on other side, etc. At least twice a day, more is better. This (along with the salt and baking soda after EVERYTHING I ate) really helped mine when I had AC. Also, use the softest toothbrush you can and gentlest toothpaste (I used Tom's of Main sensitive) or even switch to using gauze to wipe your teeth off until they improve.

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  • Jenwith4kids
    Jenwith4kids Member Posts: 635
    edited September 2016

    Ice Pops!!! During the AC drip for sure. Bring them with you if your center doesn't have them.

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited September 2016

    I had mouth sores with my first infusion, but didn't use ice chips in my mouth. I did ice hands and feet. My MO gave me a sample box of Caphosol - it is a prescription mouth rinse. I had at least a dozen sores and they were gone in 48 hours. I used ice chips on subsequent infusions and had no additiona sores. Caphosol is expensive, so I was fortunate to get the sample. Mugard is another prescription mouth sore med, very good but also expensive.

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  • Pessa
    Pessa Member Posts: 519
    edited October 2016

    Also had mouth sores. Wish I had had a thread like this for suggestions. I ate ALOT of ice cream, which was about the only thing I could tolerate at the time.

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  • Blessed2016
    Blessed2016 Member Posts: 37
    edited October 2016

    ok I will try the peroxide. I didn't have any on hand otherwise I would have tried that cause I know its a good for the mouth. Thank you.

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  • Blessed2016
    Blessed2016 Member Posts: 37
    edited October 2016

    Def. Will be going in on Monday with a bucket full of them since my center doesn't have them. I wish I would have done this first treatment but to be honest I saw it on a forum sometime ago and completely forgot! I hope they go away. Thank you! By the way im originally from NJ too. Living in AK now. Different world for sure

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  • Blessed2016
    Blessed2016 Member Posts: 37
    edited October 2016

    thank you so much. I'll ask for it on Monday!

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  • Michellelynn875
    Michellelynn875 Member Posts: 21
    edited October 2016

    Hi there, I had those horrible sores in my mouth also while I was on ac. Seemed like they would go away just in time to receive a new dose of ac. My doctor said salt water would help. I also read drinking ice water during infusion would help. But I had them so awful. Really nothing helped. I tried to avoid spicy foods since it seemed to make it worse. Good news is, those sores stopped when I began Taxol.

    One doctor told me to start a pro biotic. Which I didn't, but a friend of mine did and she didn't get any sores! I started the pro biotic after chemo. Never felt better, wish I had done it sooner. It not only helped with the constipation, but it helped with the upset stomach and yeast issues I was having.

    Good luck with your treatment!

    Michelle

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  • Blessed2016
    Blessed2016 Member Posts: 37
    edited October 2016

    Michelle,


    Thank you so much for your advice. I was told about the ice by the second treatment which was too late! You're right I did the ice as much as I could during the second tx but man did that burn those sores! Holey smokes! I'm feeling a bit better since starting on the gelclair, actually a whole lot better because now I can actually eat and not drink my meals! I normally take probiotics but stopped when I started chemo because I thought if my white count goes down I may not want to add more bacteria to my body. Even though is good bacteria, a nutritionist told me to be careful with them if I was nutripenic. Of course they meant like WBC of 500 which I was no where near and hope to never be. But anyway I just stayed away from it. I'm going to go back on because they are so very helpful in general. I'm sorry you also experienced this awful side effect but glad to hear it didn't happen with Taxol. There is a light at the end of the tunnel thank God.

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