MI Survivors

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  • SEI
    SEI Member Posts: 191
    edited November 2006
    Hi everybody. Welcome adrionna and looksgreat. I believe we have someone in Battle Creek and one in Jackson.

    ANMom- Glad to hear you got a new job already. That was fast!

    Sorry it's taken me so long to get the poll done. It's been a busy couple of weeks.

    Irene
  • SEI
    SEI Member Posts: 191
    edited November 2006
    Well, it looks like we can't do polls any more. It doesn't give the option now. I've PM'd Melissa/Tami to make sure it's not just me. This is a bummer!

    Has anyone checked for a place to go?

    I guess we can just reply with dates we can make it.

    I can make it the first three weekends in December.

    Irene
  • fancy2
    fancy2 Member Posts: 162
    edited November 2006

    This really ticks me off! Every month we lose another bit of board functionality. Six months ago, we lost all the archives. Two months ago, we lost the auto-notify when we had a post in a favorite thread. Now no polls. Why don't they just put up one screen, let us write a message, and have it vanish when we leave? Grrrrrr!

  • iamDawn
    iamDawn Member Posts: 6
    edited November 2006
    Hi lookgreat, I'm in the Jackson are about 1 hour from you. I don't use the boards much, tell ya the truth they confuse me. LOL I try to go into chat from 7-7:30 in the morning before I go to work. Would love to hear from you.
    Hugs,
    Dawn
  • JanHere
    JanHere Member Posts: 31
    edited November 2006
    Hi everyone, sorry have not been on for a while I finished my Adriamy, and started the Taxol. I had a real bad reaction so they had to change my tx they started me on my Cytaxon which was going to be last, all have been DD every two weeks, each one of the three Adriamy, Taxol, Cytaxan, was to be 4 times. Now instead of the Taxol 3 more times because I did one I'm going to be doing taxotere instead, but it goes once a week for three weeks then skip a week, then once a week for three weeks then skip a week again then repeat three more weeks which is a lot more chemo and a lot longer time. Then after that radiation I won't be done until spring some time and then who knows. I have been really up for all of this until this happened and it just kind of got to me. It has already been three months but feels more like six, I just want it over. Sorry to whine. I am doing better and praying the taxotere isn't to bad. Keep telling myself this two shell pass! Trying to not look at the big picture just focusing on what I'm doing now the Cytaxin and I only have two more of them left.

    I would love to try and meet with you guys again, my Mom is home and doing well so hopefully I'll be able to be there.

    SEI you said..."how did you know it was my birthday?? " Well, you mentioned your Birthday coming up in an earlier post and I remembered, I even went and bought a Mylar helium balloon to bring to the lunch but then couldn't go so my cat played with it and loved it lol.

    You are all in my prayers, Hugs Jan from Milford
  • kats
    kats Member Posts: 509
    edited November 2006
    To all my Michigan friends mark your calendars, the Detroit Komen Race For The Cure 2007 is scheduled for June 16, 2007.

    Sphynx please say you'll be our Team Captain again.

    Mary
  • fancy2
    fancy2 Member Posts: 162
    edited November 2006

    I got my email, too. I was just about to post the message you just did. Good little Kats! purrrrrr Yes, Sphynx, you did a GREAT job last year! Let's do it again!

  • sharalou
    sharalou Member Posts: 223
    edited November 2006
    Anyone in the Southfield area, or near by? I went through Royal Oak Beaumont for everything. Has been almost 2 years. Still having some isssues, wondering if from Arimidex. Would love to chat.

    Shari
  • neesie
    neesie Member Posts: 1,924
    edited November 2006
    Hi Michiganders,
    I think I'm getting a bit back on track again! Fancy2 I'm sorry I haven't called you yet. It's been a month of not feeling well, Doctors, Hospital ER, I swear I have no more blood to give......they've drawn it so much. Anyhow, they have done alot of testing. Not for "C", but the ole heart. It appears all is fine, so I go back to the Dr. this Friday for whatever reason! Probably so he can tell me it's all in my head!!!!!!!!!!!!
    I'm not real computer savvy........but I try. If you girls get together for a Christmas luncheon please let me know. If possible, I'd love to join and meet you!
    Denise
  • neesie
    neesie Member Posts: 1,924
    edited November 2006
    Hi Junie,
    I was reading back over some of the MI post. Still learning my way around the site! I also lived on Kincheloe AFB! 1972 and 1973!!!!!!!Small World. Where do you live now?
    Denise
  • Anna_Marie_Rogers
    Anna_Marie_Rogers Member Posts: 198
    edited November 2006
    A Dec. Jan get together sounds great. I hope for once I'll be able to make it. I'm a little worried--reconstruction surgery tomorrow, but dr. wants me to have a brachioscopy because jmy lung is "cloudy". Also fractures in sacrum won't heal. I praying it is all unrelated. I hope everyone had a Thanksgiving as great as mine was.
    Ann
  • Anna_Marie_Rogers
    Anna_Marie_Rogers Member Posts: 198
    edited December 2006
    Sharalou, I live in Rochester Hills. My treatment was through Henry Ford Main Campus. Now I'm in the Beaumont system (Troy). I was put on Arimadex because I had had blood clots. I couldn't tolerate the Arimadex because it gave my bone and joint pain that was as bad as what I experienced on Taxol. My onc. then switched me to Femara. The pain continued for a time, but has gotten much, much better over the past couple of months. At first on Femara I seemed to get numb fingers too, but that has also subsided.
    Ann
  • SEI
    SEI Member Posts: 191
    edited December 2006
    Hi Everybody,

    Hope everyone is doing well.

    Sharalou - I'm not near Southfield, but had chemo at Royal Oak Beaumont. Everything else was through Troy Beaumont. Hopefully you can make it to our next lunch.

    Ann - Glad to hear changing meds helped the pain. Were you able to have your reconstruction done? How are you doing?

    Jan - Thanks for thinking of me. I'm glad your cat got to enjoy the balloon.

    I realized I never posted the photo from our last lunch, so here it is:

    [image]image[/image]
    normalcani, fancy2, sei, sphynx, tonya88

    If anyone has a date in mind for our next lunch, please post. I can make it any time.

    Take care,
    Irene
  • fancy2
    fancy2 Member Posts: 162
    edited December 2006

    What a lovely picture. Especially that super chick second from left. LOL Thanks for posting--it was a ton of fun.

  • kats
    kats Member Posts: 509
    edited December 2006
    Irene,
    Thanks for posting the pic, what a beautiful bunch of women.
  • Anna_Marie_Rogers
    Anna_Marie_Rogers Member Posts: 198
    edited December 2006
    Irene, Thanks for asking. My reconstruction seems to have gone well. I am still sore & the "real" breast which the dr. reduced is every color of the rainbow, but I'm having fun calling friends my age (59) & saying, "I have 30 year old boobs & you don't!" It's not much consolation for having bc, but you have to find a positive side where you can. If the insurance approves an open MRI, I'm having one on my sacrum Thursday and then a bronchoscopy Friday to see why my lungs are cloudy. Since I'll get the results next week, it'll either be a great week or a bad one. I'm praying to be able to accept either result.
    I hope everyone will have a beautiful Christmas season.
    Ann
  • Anna_Marie_Rogers
    Anna_Marie_Rogers Member Posts: 198
    edited December 2006
    I still hope everyone has a beautiful Christmas, but my seems to have taken a turn for the worse. See the Metasteses Boards. I am just too tired to try to be a survivor any more. My reconstructionn was such a big disappointment and things went downhill from there.
    Ann
  • SEI
    SEI Member Posts: 191
    edited December 2006
    Ann,

    I just saw your post and have sent you an e-mail. Please let me know if you don't get it.

    Irene
  • sharalou
    sharalou Member Posts: 223
    edited December 2006
    Hi. Anyone out there had treatments at Royal Oak Beaumont? That's where I had treatments, and my still see my docs there. I have been done with treatments, July 05. It's weird, cause now is the time almost 2 years ago, that everything started to tumble down. It's sad and scary.
    Shari
  • Not_Me
    Not_Me Member Posts: 180
    edited December 2006
    I treated at Beaumont...Royal Oak and Troy.

    Loved the picture...I just realized how much I missed you all. Anyone want to get together this Sunday for lunch? I know its last minute...
  • SEI
    SEI Member Posts: 191
    edited December 2006
    Hi Shari -

    I had treatment at Beaumont Royal Oak (chemo) and rads at Troy. I switched oncs recently, but the new one is also at RO. I finished treatments in August 05, and it's also getting to be the two year mark for me. It's hard to believe. Seems like yesterday, but also seems like years ago.

    chris - Have you checked your email?

    I'd be up for lunch on Sunday. Anybody else?
  • Anna_Marie_Rogers
    Anna_Marie_Rogers Member Posts: 198
    edited December 2006
    Is there a luncheon this Sunday? Where? I'd like to come if it is early enough. My church has a Christmas candlelighting service this Sunday & then a dinner afterward. I think the service is at 5 or 6 (haven't been to church for a while), so would have to make it back to Rochester from wherever.
    I got my MRI results on my sacrum today. It is still broken, but there doesnt' appear to be any cancer!! Tomorrow brachioscopy results!
    Ann
  • SEI
    SEI Member Posts: 191
    edited December 2006
    Good news, Ann! Keeping my fingers crossed for tomorrow's results.

    Hopefully some of the other ladies will respond about lunch. Anywhere and any time is good for me.
  • Sphynx
    Sphynx Member Posts: 611
    edited December 2006
    Ann - I've been thinking of you and hope the best for the rest of your tests. I was going to call you last night and see how you are holding up but got in too late.

    I'd like to meet Sunday, even for a little while. It looks like early is best so let's think of a time and place.

    Nancy
  • kats
    kats Member Posts: 509
    edited December 2006
    Ann,
    Great news on the MRI, looking forward to hearing the same great news from the brachioscopy.

    Hugs,
    Mary
  • fancy2
    fancy2 Member Posts: 162
    edited December 2006

    Yes, let's do lunch. Just tell me where and when, and I'll be there. Ann, sister, gentle hugs to you. I will give you one in person when I see you Sunday.

  • gmr52
    gmr52 Member Posts: 74
    edited December 2006
    Ann,
    I'm hoping todays results are good and you get some relief.

    I'm up for meeting on Sunday providing there are no last minute issues with my mom. Should we try to meet closer to the Rochester area so that it's less difficult for Ann?

    Gerri
  • Not_Me
    Not_Me Member Posts: 180
    edited December 2006
    Yes I can be there...now for a time...I am open. Where at ladies? There is a brunch at Cantebury Village (Lake Orion, $15.95 and we can reserve space still) and maybe some other areas as well.

    Good luck Luckyanna on your test results!
  • pconn03
    pconn03 Member Posts: 643
    edited December 2006
    Ann:
    Adding my congratulations for the good test results and wishes for the rest to be exactly the same!!! I'm up for an early lunch (or brunch) on Sunday as well. Let's do it!!! It sounds like most of us have plans for later so if we can do it early enough (like 11:30 or 12:00)??? it might work out, right?? I also was thinking closer to Rochester for Ann's sake - but whatever we can find or work out is great with me.
    Looking forward to seeing everyone!
    Hugs,
    Pat
  • SEI
    SEI Member Posts: 191
    edited December 2006
    I can make it whenever, wherever. I don't know that side of town very well, so don't have any ideas for where.

    Irene

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