Better PFS but not better OS?
Comments
-
Stefanie, thank you for your response.
RosesToeses, I hope you find your true mate in the tried and true Xeloda after being jilted by the trendier new drugs.
Woke up thinking about other promising cancer treatments and cures and how they've changed over the past 25 years.
While I could write pages about the supplements (shark's fin, anyone?) or clinics (Mexico, Europe or other?) or various practitioners around the world, I'll stick to the dietary advice that we're all too likely to get from well meaning folks.
Trends come and go. Used to be macrobiotics and low fat McDougall diets, then Weston Price Nourishing Traditions. These days it's all Crazy Sexy raw foods, green drinks and low carb diets (raw or paleo).
It does make sense that the SAD (standard American diet) isn't the healthiest, vegetable rich diet for reducing cancer risk and healing, but I've seen many many cancer patients and their loved ones go overboard into extreme diets. Recently, I wrote about orthorexia vs. healthy diets and quoted from http://www.orthorexia.com/healthy-eating-vs-orthorexia/
It's worth thinking about - in cancer our very lives and well being are at stake, so it makes sense that we'd become more scared and more inclusive of all foods and preparation methods we think are medicine and exclusive of all we perceive as toxic.
BUT, I know two very thin friends of friends who've eaten well for years (no SAD or bad health habits for them). One has a recurrent brain tumor and they're talking about going to a monthlong raw food retreat to beat the cancer. Both are already underweight and I worry about them going on a catabolic diet that will break down what little stores they have...I think they need an anabolic diet to build their strength and stamina for dealing with cancer, recovering from surgery and radiation, etc.
Of course, their lives are their own, but the extremism of the raw food diet is worrisome in their case.
We cancer folks have been offered so many dietary treatments and cures. While most have worked for a few, few have worked for most.
And don't get me started on cannabis medicine...helpful, but not a cure-all for all.
-
Stefanie, thank you for your response.
RosesToeses, I hope you find your true mate in the tried and true Xeloda after being jilted by the trendier new drugs.
Woke up thinking about other promising cancer treatments and cures and how they've changed over the past 25 years.
While I could write pages about the supplements (shark's fin, anyone?) or clinics (Mexico, Europe or other?) or various practitioners around the world, I'll stick to the dietary advice that we're all too likely to get from well meaning folks.
Trends come and go. Used to be macrobiotics and low fat McDougall diets, then Weston Price Nourishing Traditions. These days it's all Crazy Sexy raw foods, green drinks and low carb diets (raw or paleo).
It does make sense that the SAD (standard American diet) isn't the healthiest, vegetable rich diet for reducing cancer risk and healing, but I've seen many many cancer patients and their loved ones go overboard into extreme diets. Recently, I wrote about orthorexia vs. healthy diets and quoted from http://www.orthorexia.com/healthy-eating-vs-orthorexia/
It's worth thinking about - in cancer our very lives and well being are at stake, so it makes sense that we'd become more scared and more inclusive of all foods and preparation methods we think are medicine and exclusive of all we perceive as toxic.
BUT, I know two very thin friends of friends who've eaten well for years (no SAD or bad health habits for them). One has a recurrent brain tumor and they're talking about going to a monthlong raw food retreat to beat the cancer. Both are already underweight and I worry about them going on a catabolic diet that will break down what little stores they have...I think they need an anabolic diet to build their strength and stamina for dealing with cancer, recovering from surgery and radiation, etc.
Of course, their lives are their own, but the extremism of the raw food diet is worrisome in their case.
We cancer folks have been offered so many dietary treatments and cures. While most have worked for a few, few have worked for most.
And don't get me started on cannabis medicine...helpful, but not a cure-all for all.
-
(((Carrie)))
I don't have a clue what is right for you now.
This disease and the treatments so suck vital energy and we're too often in the position of making impossible
choices,er, decisions.May your way be cleared as you move forward.
much love & good wishes, Stephanie
-
Bump since this question has come up again recently.
-
Hi Shetland Pony,
Thanks for bumping topic this forward!
I didn't remember it, but felt like we'd explored PFS & OS and that Musa Mayer's wise words had been included.
When I wrote, I shared that a friend and her spouse were considering a raw/live food diet with fasting to fight his aggressive brain cancer.
She dropped by out of the blue last night, so I asked what diet they did pursue and she said, Rebecca Katz's Cancer Fighting Kitchen. I was so relieved! And she looked much healthier than when we'd talked last time. Whew!
You just never know how someone's life will go!
http://www.rebeccakatz.com/recipe-box/
Wishing health and well-being for all, Stephanie
Please see too the bco topic:
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team