Mom just passed from cancer and now I have it.

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Hi everyone- I just joined. My mom passed at the end of July after battling stage IV since this past January. I miss her so much because I spoke to her everyday. She was someone I could talk to and I just miss her a great deal. I loved her more than anything. She was 68 when she passed. A couple of days after her memorial service I told my MD about a lump and after ultrasound, mammogram and biopsy they stated I have DCIS-in my right breast. The surgical oncologist states she thinks it may be more than DCIS but won't know until surgery. She also states that I will need a mastectomy. I want to get this taken care of right away. The crazy thing is that I am in the same hospital and same clinic rooms that I was in with my mom a few months back.

Right now I just want to put this all behind me but it just seems so difficult and I can't see past this. A week before my mother passed my long term (4 year) relationship ended. My mother was there. Then a week later she passed. Now a few weeks after, I'm diagnosed with cancer. I just turned 34. I feel overwhelmed and defeated/angry all at the same time. A part of me feels like I am complaining because it could be a lot worse but I just dont have much joy. I just feel defeated. Has anyone gone through anything similar?

I have spoken with a therapist and am listing out things that make me feel better but honestly there is an underlying bitterness that I feel is growing in me.

Comments

  • AmyQ
    AmyQ Member Posts: 2,182
    edited September 2016

    I don't have any words of wisdom or anything of comfort except to say I am so sorry for the loss of your beloved mother and for the situation you find yourself in now, especially when you could use your mom's love and support. I wish I could help. Do you have any other family you can count on? I hope so. You will need a strong support system.

    I wish you well.

    Amy

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited September 2016

    natstar - I, too, am so very sorry about the loss of your mother, your dx, and everything else you're facing. First, please know that you are not alone. Someone is here 24/7. We have been where you are, and we love to help. Second - take things a step at a time. Whatever it is, you'll deal with it. I'm glad you've seen a therapist. Is there a support group close by that you might try? Also, as sad as your mom's passing was, you are not her. My mom passed from BC too, but my BC was not hers, it had not spread, and with any luck I'll outrun the beast. It is highly probable that you will too. Remember one step at a time, don't go "there" until you get there.

    In the meantime I'm hoping that it is all DCIS. Also I'm marking this thread as a favorite, so when you come back, I'll be here to support you. YOU are not alone. This is a crazy, whacky, loving sisterhood. Hang in there. Sending you a big momma hug (my kids are around your age).

  • Blinkie
    Blinkie Member Posts: 169
    edited September 2016

    Natstar ~

    You asked if anyone has gone through anything similar. I'm not in your exact situation, but this summer I have been going through more than just treatment for breast cancer, and grief has formed a giant, oppressive black cloud that won't leave me alone. I would like to stop crying! My therapist keeps reminding me that I am grieving (horrible death of a family member, having cancer, etc) and that all my uncomfortable (her word) feelings are appropriate & probably necessary and inevitable. Nooooo! I want it all to stop; I want to wake up in a different world, without cancer, violent death, trolls, etc. I can understand the feelings you mention -- being overwhelmed, angry, defeated and bitter. It may be no comfort at all, but this seems completely normal under the circumstances. Everyone tells me that this will pass, that I will not always feel this bad. Sometimes I know this to be true. When I've gone through times of 'unbearable' emotional pain, I thought I could not make it, yet I did. I did bear it. I eventually stopped drowning in it. I try to think about that now to encourage myself. Meanwhile I am a walking zombie. I sleep a lot & watch Doctor Who. Really. What a life. . . .

    As farmerlucy said, you are not alone. & there are places on this forum to rant and rave or laugh or ask questions or just be distracted.

    Please accept my condolences.

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2016

    Natstar-

    We are so sorry for the loss of your mom, and for your recent diagnosis. That is so much to handle all at once, and we completely understand feeling overwhelmed. You are not alone! We're glad you've joined us, and hope you find the support you need to get through this during your time here.

    The Mods

  • Lita57
    Lita57 Member Posts: 2,437
    edited September 2016

    Nastar: It really sucks that your mom passed AND you have just been Dx'd with BC. You have my deepest sympathies. These are two deep blows (plus ending a relationship to boot), so go ahead and BE angry! Your anger will strengthen you.

    We are all here for you. Like farmerlucy, I have also marked this thread to my favorite topics so I can check in on you from time to time. Others have offered excellent advice, so I won't repeat that. However, I must emphasize living ONE DAY at a time. Trying to plan too far into the future will just lead to more anxiety and/or depression.

    I was just Dx'd w/Stage IV BC right from the gate this past April with extensive mets in my spine, liver, pancreas, bladder, kidneys, adrenals and other bones. No history of BC in my family, but my mom also died from metastatic soft-tissue sarcoma when I was in high school. There is nothing I can say to make your situation better other than to say I'm sorry for all the crap you're now dealing with. You can take comfort in the fact that you had your mom for as long as you did. I was a mere teenager when mine passed, and it grieves me to know that I won't be here for my daughter, who is only 22 years old right now.

    The first several months are going to be very hard emotionally and psychologically. Allow yourself to grieve and pound your fists as much as you need to. Everyone handles grief and devastating Dx's in their own way.

    You will find compassion, loving arms, and maybe a laugh or two on these boards. Try to hang in there as best as you can.

    Sending warm (((hugs))) and prayers your way.

    Lita


  • eggroll
    eggroll Member Posts: 150
    edited September 2016

    I lost my mom to lung cancer, she died just a week after being diagnosed. It was a week of hell. Then a year of hell. I feel like I cried every day. My breast cancer diagnosis came three years later. Nothing harder than losing your mom. I know that for sure. One thing I find ironic, I never smoked, didn't drink til I was 30 really, was generally very active, did the vegetarian thing for two years, and at 50 I got cancer. Meanwhile I lectured and pleaded with my mom to stop smoking and she lived pretty healthy until 78. I like to think she is getting a smirk out of that.

  • Lita57
    Lita57 Member Posts: 2,437
    edited September 2016

    Eggroll, sorry for your loss. CURE magazine (the cancer magazine) said that cancer is basically a crap shoot. We all know people who smoked and died in their 70s/80s (like my dad who smoked and drank and NEVER got cancer, living to 85, but my mom, who never smoked or drank DID, and she died at 48...go figure).

    People have told me that I probably staved off cancer by maybe 10 or 15 years because I ate well (part-time vegetarian), didn't drink much until I was in my 30s, and tried to keep my weight down until menopause kicked in. Then bingo, I get Stage IV cancer right from the gate at age 57 (RO said it was probably already there when I was 56). We can't blame ourselves. I think it's the environment...all the pollutants and toxins we breathe in or ingest that can cause our cells to mutate into cancer as they divide. We're starting to see more and more people getting cancer at younger and younger ages, particularly lung, colon and skin cancers. It's becoming an epidemic. But we also have to realize that years ago, most people died from injuries, illnesses we didn't have vaccinations for (whooping cough, measles, small pox, etc.) and plain old childbirth in their 20s and 30s. Making it to 50, let alone 60, was rare for most people a hundred or more years ago.

    Should that placate us? Hell no!!! I'm still angry, and we all should be pissed. It's not fair. I have older friends who drink quarts of diet soda every day, pick up fast food at least a couple times a week and hardly exercise, and they're still going strong. So why me? Why any of us on these boards? I don't have an answer. All I can offer is my sympathy and support.

    Lita


  • elise24601
    elise24601 Member Posts: 155
    edited September 2016

    So sorry. I can relate and sympathize. My mother had BC too. I was diagnosed at age 31 a few months ago and have not been emotionally ok since then. Also ended a relationship shortly prior. I feel my life is unraveling before my eyes. I can't stand to wake up every morning and remember what's happening all over again - it feels like a total nightmare horror movie. I want it to be over.

    I hope things get better for you.

  • xxyzed
    xxyzed Member Posts: 230
    edited September 2016

    I understand how you are feeling. My husband died from lymphoma in January last year after two continual years of treatment and relapses. It was horrific. My father died from bladder cancer in May last year after two years of continual treatment and relapses. I am left with two boys aged 9 and 11 to raise on my own. I was diagnosed with aggressive breast cancer in April of this year. I was already struggling with PTSD from my husband and fathers illnesses and now I get this on my plate as well. I am managing pretty well considering and am having a lot better time of it with side effects than my husband did.

    The main thing I am doing that helps is differentiating my cancer experience from theirs by making sure I am in completely different hospital systems than my husband and father were in. If I am having a problem I want to know it really is a problem not a panic attack or meltdown from a ptsd trigger from a horrible hospital, surgery or chemo memory.

    I also know I cannot do this on my own and have enlisted an army of friends, relatives and school parents to take my boys to after school activities, cook meals and drive me to appointments. I really need all hands on deck to get through.

    I try really hard to focus on today and know that each step of the way is dependent on many things so go into each step knowing that what was intended for today may not work out and that's ok. Worry about tomorrow when it happens. A calm mind is the most important thing for me.

  • eggroll
    eggroll Member Posts: 150
    edited September 2016

    Lita and xxyzed, you guys are amazing. Thanks for chiming in . . . you have definitely improved MY attitude today. You guys reaching out to others when you have so much on your plate. Wowza!

    Lately when I am exhausted at the end of the day I have been treating myself to an episode of the Twilight Zone on Netflix. I definitely think I could write one of those stories someday . . . In fact, I'm writing a thank you note to a distant police department where my brother hitchhiked to in order to see his imaginary property . . . that was a byproduct of my mother's death, I get to chase after my very creative brother who is disabled by mosaic down syndrome, only the department of developmental disabilities tell me he is just fine and he doesn't qualify for their services. Even though he desperately needs them. We have had many adventures these past three years! Oh and PTSD is real. I had such terrible flashbacks from what my mother went through. BUT, I also had some incredible spiritual experiences that have given me a lot of peace and confidence that God is real and we do go on in some kind of way. I know scientifically it must be impossible, but the stuff that happened go so far beyond coincidence. Science can't explain those either. The mystery of life is amazing... I do want to stick around as long as possible most days!

  • etnasgrl
    etnasgrl Member Posts: 650
    edited September 2016

    ((((Hugs)))) to you sweetie! Hug

    My mother passed away from metastatic breast cancer in 2000. She was diagnosed at 42, died at 56. I understand the horrible loss. It's heartbreaking. It's been 16 years and I still miss my mom every single day.
    Then, in November of 2015, at the age of 41, I was diagnosed with breast cancer. God, did I need my mom, want my mom. It was just as horrible as losing her the first time. I needed her advice, her support, her love. It was incredibly painful walking this "journey" without her.....BUT....she did teach me how to get through this without even knowing it. I learned by watching her.

    It's totally normal to feel defeated! You've been dealt a crushing blow.....the loss of your mom, the loss of a relationship, and now cancer. That's quite a bit on your plate!
    My advice would be to go easy on yourself. Give yourself time to feel, to grieve, to scream, cry, throw things....whatever.
    No matter what it may feel like, you are NOT alone. These message boards and the ladies here are incredible. The support, advice, encouragement, and friendship you will find here will be a great help. Come here often! I can't tell you how much this place helped me. I know it can do the same for you!

    I'm so sorry for your loss. I will keep you in my prayers.

  • natstar
    natstar Member Posts: 16
    edited September 2016

    thank you amy. Although my brother an I have a strained relationship he is supportive. I have a couple of friends that are supportive as well

  • natstar
    natstar Member Posts: 16
    edited September 2016

    thank you for this. Everything was so close together that it's hard to not associate my mom's situation with my own. And my mind wanders. Therapy helps and I am having some friends look into support groups for me. Right now I just really want my surgery so I won't worry as much

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited September 2016

    I'm not sure if anyone mentioned this, but antianxiety meds were made for times like these. I had never taken them, but I needed them early on after dxto get me through. My PCP basically ordered me on them for a year. Weaning off was not a problem. I can't imagine how much grief you are feeling right now.

  • natstar
    natstar Member Posts: 16
    edited September 2016

    Thanks everyone for the support and condolences. My prayers and condolences go out to everyone who is dealing with this disease in one form or another. I am so thankful that I joined this board. Reading everyone's stories makes me KNOW that I am not alone in this.

  • eggroll
    eggroll Member Posts: 150
    edited September 2016

    farmerlucy is right. I asked for Ativan and only needed two... then later I couldn't sleep and it fixed that, too... now I take GABA occasionally. Hang in there. Life is hard... the longer you live the more pain it seems to bring. Currently have an elderly mentor ailing in a nursing home, visited her today, a friend who fell in the bathroom and is now paralyzed, I need to go see her, and the guy we bought our house from died yesterday, too. Everyone grieving at his brother's house next door... life is short short short. I'm looking forward to a little two week getaway to Kauai where I will be hiking and snorkeling into oblivion hopefully.

  • Lita57
    Lita57 Member Posts: 2,437
    edited September 2016

    eggroll: Kauai should be fabulous this time of year...not too hot. They have wonderful snorkeling over there. My DH, who is Hawaiian and Chinese, and I went to Hanalei Bay in 2012 - geez, can't believe it's been 4 yrs already. We drove to the canyon, but it was too foggy/cloudy and we couldn't see a thing :o(. Have a great trip!


  • AnotherMichelle
    AnotherMichelle Member Posts: 39
    edited September 2016

    Natstar, I'm so sorry to hear about your mom. We are here with you, so many of us whose mothers and grandmothers have been diagnosed, too. My mom was diagnosed exactly 12 months before I was (she 66, me 46). Despite the fact that our experiences are different in almost every way, it is hard not to compare or even conflate them. I'm so glad you're seeing a therapist, who can watch out for symptoms of PTSD that you might have from supporting your mom. I also could not agree more with farmerlucy about the usefulness of an anti-anxiety at this point. At the low dose your doc would give you, you will not have trouble going off them later. Hugs to you, dear one. Keep us posted.

    Kelli

  • natstar
    natstar Member Posts: 16
    edited October 2016

    Thanks everyone for support. I send well wishes to you guys also.


    I've been on autopilot not really wanting to interact with ppl outside of work for the past two months or so. Now that my surgery is coming up I feel these emotions coming up (sad, hopeless, anger) because my mom had always been someone I could call or would be there to help and now she isnt there. Not to mention my ex boyfriend of 4 years. I hope I can get support from another family member.

  • xxyzed
    xxyzed Member Posts: 230
    edited October 2016

    I was barely functioning on autopilot after my husband and then dad died last year. Now during treatment I switch between being a hermit and getting out with friends depending on what I can manage. Right now I'm being a hermit

    Good luck with your surgery. I had some difficulty with the hospital stay and PTSD. The empty visitor chair should have had my dad sitting in it keeping me company. Of course it didn't stop me talking to him in the empty chair. I would also burst into tears every time there was a code on the ward or a hallucinating patient as it took me straight back to my husbands many hospital stays.

    I find each person in our lives has typically supported us in different ways. Even with the support of other family members it's not the same and I really miss what isn't there anymore as I know that wherever they are it would be hurting them just as much to know that that can't be there for me.

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